Cited by 294Health Systems, Economic Evaluations, Quality of LifeCancer survivorship and careChronic Disease Management Strategies

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Using the Illness Intrusiveness Ratings Scale to understand health-related quality of life in chronic disease

Devins, Gerald M.·2010·Journal of Psychosomatic Research

DOI 10.1016/j.jpsychores.2009.05.006

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Abstract

Objective Illness intrusiveness is a common, underlying determinant of quality of life in people affected by chronic disease. Illness intrusiveness results from disease- and treatment-induced disruptions to lifestyles, activities, and interests (i.e., interference with psychologically meaningful activity). This paper introduces the Illness Intrusiveness Ratings Scale (IIRS), a 13-item, self-report instrument. The IIRS can be scored to generate a total score or three subscale scores: relationships and personal development, intimacy, and instrumental. In addition to describing the IIRS, the paper presents the theoretical framework in which it is anchored, reviews the evidence, and reports psychometric properties.Methods Qualitative literature review.Results Findings support the IIRS's reliability (internal consistency and test-retest), validity (construct, criterion-related, and discriminant), sensitivity to change, and factorial invariance across numerous chronic-disease groups. The paper reports IIRS reliability coefficients and normative statistics for 36 chronic, medical and psychiatric patient populations.Conclusion The IIRS taps the extent to which disease- and treatment-related factors interfere with psychologically meaningful activity among people affected by chronic disease. It provides a valid, reliable measure that is easy to administer and unequivocally interpretable rendering it suitable for research designed to estimate the psychosocial impact of chronic disease and to document (and compare) the effectiveness of therapeutic interventions.

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Authors: Devins, G. M.
Affiliations: University of Toronto (CA)
Corresponding author: Devins, Gerald M.
Venue: Journal of Psychosomatic Research
Publisher: Elsevier BV
Published: 2010-06
Volume: 68
Issue: 6
Pages: 591-602
ISSN: 0022-3999 (ISSN-L)
DOI: 10.1016/j.jpsychores.2009.05.006
OpenAlex: W2048449366
Cited by: 294
References: 105
Citations by year: 2026: 7 · 2025: 11 · 2024: 23 · 2023: 15 · 2022: 16 · 2021: 24 · 2020: 69 · 2019: 21 · 2018: 12 · 2017: 18 · 2016: 10 · 2015: 17 · 2014: 15 · 2013: 19 · 2012: 10
FWCI: 1.79
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Journal of Psychosomatic Research (publishedVersion)
PubMed (publishedVersion)
Funders: Canadian Institutes of Health Research
Topics: Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
Health Sciences › Medicine › Oncology › Cancer survivorship and care
Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
Keywords: illness intrusiveness, health-related quality of life, chronic disease, psychosocial impact, self-report measures, psychometric properties, measurement invariance, reference values, treatment interference, intimacy, instrumental activities
MeSH terms: Activities of Daily Living, Chronic Disease, Disability Evaluation, Female, Humans, Male, Psychometrics, Quality of Life, Reproducibility of Results, Sickness Impact Profile, Illness Behavior

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Using the Illness Intrusiveness Ratings Scale to understand health-related quality of life in chronic disease

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