The DOI matches its Crossref record; 14 of the 14 references it cites were found in a registry or an index.
Improving knowledge and decision readiness to participate in cancer clinical trials: Effects of a plain language decision aid for minority cancer survivors
Abstract
Objective To evaluate the impact of a web-based, plain language decision aid (CHOICES DA) on minority cancer survivors' knowledge of cancer clinical trials (CCTs), readiness for making decisions about clinical trial participation, and willingness to participate in a clinical trial.Methods Participants were 64 Black and Hispanic cancer survivors from Miami, Florida. In a single arm intervention study, participants completed self-report assessments of CCT knowledge, decision readiness regarding clinical trial participation, and willingness to participate at three time points.Results Black and Hispanic participants did not differ on demographic characteristics. Post-test and follow-up measures of CCT knowledge and decision readiness were significantly greater than pre-test measures for the sample overall, and for Black and Hispanic participants separately. Few significant differences were observed between Black and Hispanic participant outcomes at each survey time point, and willingness to participate did not change overall and for either group independently.Conclusions Reviewing the CHOICES DA was associated with significantly improved knowledge and decision readiness to participate in a CCT immediately and at 2-week follow-up.Practical implications These findings suggest that CHOICES DA may support informed decision making about CCT participation within an acute, yet clinically relevant window of time for minority cancer patients who are substantially under-represented in cancer research.
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Seven included studies centred on the recruitment of Hispanic or Latin American individuals.
“Although 7 studies centred on the recruitment of Hispanic or Latin American individuals [12, 15, 36, 50, 51, 57, 66], most of them did not differentiate between the terms Hispanic”
From Enablers and barriers of clinical trial participation in adult patients from minority ethnic groups: a systematic review (2025) · cites this paper as [50]
Citations
Cites
Unger, J. M., Vaidya, R., Hershman, D. L., Minasian, L. M., & Fleury, M. E. (2018) · JNCI Journal of the National Cancer Institute · doi:10.1093/jnci/djy221 · Cited by 604
Volk, R. J., Llewellyn‐Thomas, H. A., Stacey, D., & Elwyn, G. J. (2013) · BMC Medical Informatics and Decision Making · doi:10.1186/1472-6947-13-s2-s1 · Cited by 239
Participation in Cancer Clinical Trials
Byrne, M. M., Tannenbaum, S. L., Glück, S., Hurley, J. E., & Antoni, M. H. (2013) · Medical Decision Making · doi:10.1177/0272989x13497264 · Cited by 170
Self-citationAre Cancer-Related Decision Aids Effective? A Systematic Review and Meta-Analysis
O’Brien, M. A., Whelan, T. J., Villasís-Keever, M. Á., Gafni, A., Charles, C. A., Roberts, R., Schiff, S., & Cai, W. (2009) · Journal of Clinical Oncology · doi:10.1200/jco.2007.16.0101 · Cited by 159
Juraskova, I., Butow, P. N., Bonner, C., Bell, M. L., Smith, A. B., Seccombe, M., Boyle, F. M., Reaby, L., Cuzick, J. M., & Forbes, J. (2014) · British Journal of Cancer · doi:10.1038/bjc.2014.144 · Cited by 84
Use of Decision Aids with Minority Patients: a Systematic Review
Nathan, A. G., Marshall, I. M., Cooper, J. M., & Huang, E. S. (2016) · Journal of General Internal Medicine · doi:10.1007/s11606-016-3609-2 · Cited by 73
Decision aids for people considering taking part in clinical trials
Gillies, K., Cotton, S. C., Brehaut, J., Politi, M. C., & Skea, Z. (2015) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd009736.pub2 · Cited by 72
Jacobsen, P. B., Wells, K. J., Meade, C. D., Quinn, G. P., Lee, J., Fulp, W. J., Gray, J. E., Baz, R., Springett, G. M., Levine, R. M., et al. (2012) · Journal of Clinical Oncology · doi:10.1200/jco.2011.39.5186 · Cited by 64
Decision Aids Can Support Cancer Clinical Trials Decisions: Results of a Randomized Trial
Politi, M. C., Kuzemchak, M. D., Kaphingst, K. A., Perkins, H., Liu, J., & Byrne, M. M. (2016) · The Oncologist · doi:10.1634/theoncologist.2016-0068 · Cited by 56
Self-citationImpact of Sociodemographic Patient Characteristics on the Efficacy of Decision Aids
Coylewright, M. J., Branda, M. E., Inselman, J., Shah, N. D., Hess, E. P., LeBlanc, A., Montori, V. M., & Ting, H. H. (2014) · Circulation Cardiovascular Quality and Outcomes · doi:10.1161/hcq.0000000000000006 · Cited by 39
Langford, A. T., Hawley, S. T., Stableford, S., Studts, J. L., & Byrne, M. M. (2019) · Journal of Cancer Education · doi:10.1007/s13187-019-1482-5 · Cited by 33
Self-citationEnard, K. R., Mullen, P. D., Kamath, G. R., Dixon, N., & Volk, R. J. (2016) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-016-0303-6 · Cited by 27
Langford, A. T., Larkin, K., Resnicow, K., Zikmund‐Fisher, B. J., & Fagerlin, A. (2017) · Journal of Health Communication · doi:10.1080/10810730.2017.1339146 · Cited by 26
Self-citationWells, K. J., Quinn, G. P., Meade, C. D., et al. (2012) · Patient Education and Counseling · doi:10.1016/j.pec.2012.03.011 · Cited by 18
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Research works printed but not linked: 1
- Wells, 2010, Development and validation of measures of patients’ perceptions regarding cancer clinical trials, Paper Presented at: American Public Health Association 138th Annual Meeting & Expo; 2010; Denver, Colorado
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Alarcón Garavito, G. A., Gilchrist, K., Ciurtin, C., Khanna, S., Chambers, P., McNally, N., Merivale, E., Carr, E., Yu, R., & Vindrola-Padros, C. (2025) · Trials · doi:10.1186/s13063-025-08769-y · Cited by 42
“The reasons driving people from minority ethnic groups who agreed to and continued to participate in clinical trials were discussed in 12 articles [10, 12, 33, 34, 43, 45, 48, 50, 56, 57, 63, 69].”
Metadata
- Authors
- Langford, A., Studts, J. L., & Byrne, M. M.
- Affiliations
- New York University (US)
- University of Colorado Cancer Center (US)
- Moffitt Cancer Center (US)
- Corresponding author
- Byrne, Margaret M
- Venue
- Patient Education and Counseling
- Publisher
- Elsevier BV
- Published
- 2021-02
- Volume
- 104
- Issue
- 2
- Pages
- 422-426
- ISSN
- 0738-3991 (ISSN-L)
- OpenAlex
- W3040947514
- Cited by
- 15
- References
- 14
- Citations by year
- 2026: 4 · 2025: 4 · 2022: 3 · 2021: 2
- FWCI
- 1.83
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Patient Education and Counseling (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Keywords
- cancer clinical trials, clinical trial participation, decision aids, plain language, Black patients, Hispanic patients, willingness to participate, informed decision-making
- MeSH terms
- Cancer Survivors, Clinical Trials as Topic, Decision Making, Decision Support Techniques, Florida, Humans, Language, Neoplasms, Patient Participation
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