Subjective quality of life in psychosis: evidence for an association with real world functioning?
Open accessAbstract
Subjective quality of life (SQOL) is an established patient-reported outcome in psychosis. However, current self-report measures of SQOL may be affected by recall bias and may not fully capture dynamic changes in SQOL over time. This study aimed to examine the ecological validity of self-reported and momentary assessment measures of SQOL, and their association with emotional experience, social interaction and activity in real life, in both patients with psychotic disorder (n = 56) and controls (n = 71). Self-reported QOL was assessed with the WHO-QOL, momentary QOL and real life experiences were assessed with the Experience Sampling Method (ESM). Results show that both measures were significantly associated in patients and controls, and associations with emotional experience were most relevant, momentary QOL being a stronger predictor than self-reported QOL. The association between momentary QOL and negative affect was stronger in patients than in controls. Overall, momentary QOL was more consistently associated with affect, social interaction and activity, while self-reported QOL displayed a more narrow association with mostly affect. Concluding, concurrent assessment of self-reported QOL and momentary QOL showed that momentary QOL may enhance the ecological validity of SQOL measurement. Experience sampling research may broaden our perspective on SQOL and its associations with real life functioning.
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“internalized stigma (87), a lack of participation and activities (88), and maladaptive coping responses such as social anhedonia and substance abuse to deal with aversive internal and external experiences (89).”
Background
- Authors
- Leendertse, P., Myin-Germeys, I., Lataster, T., Simons, C. J. P., Oorschot, M., Lardinois, M., Schneider, M., van Os, J., & Reininghaus, U.
- Affiliations
- Maastricht University Medical Centre (NL)
- KU Leuven (BE)
- King's College London (GB)
- Corresponding author
- Leendertse, Pien
- Venue
- Psychiatry Research
- Publisher
- Elsevier BV
- Published
- 2018-03
- Volume
- 261
- Pages
- 116-123
- ISSN
- 0165-1781 (ISSN-L)
- OpenAlex
- W2773875004
- Cited by
- 24
- References
- 34
- Citations by year
- 2026: 1 · 2025: 2 · 2024: 4 · 2023: 3 · 2022: 3 · 2021: 6 · 2019: 2 · 2018: 3
- FWCI
- 1.12
- Type
- journal article
- Language
- en
- Open access
- green
- kclpure.kcl.ac.uk
- Licence
- cc-by-nc-nd
- www.elsevier.com/tdm/userlicense/1.0/ (tdm)
- Locations
- Psychiatry Research (publishedVersion)
- PubMed (publishedVersion)
- Research Publications (Maastricht University) (publishedVersion)
- Research Portal (King's College London) (publishedVersion, cc-by-nc-nd)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (publishedVersion, cc-by-nc-nd)
- Data Archiving and Networked Services (DANS) (submittedVersion)
- EUR Research Repository (Erasmus University Rotterdam) (submittedVersion)
- Utrecht University Repository (Utrecht University) (submittedVersion, other-oa)
- Lirias (KU Leuven) (submittedVersion)
- Pure Amsterdam UMC (submittedVersion)
- University of Groningen research database (University of Groningen / Centre for Information Technology) (submittedVersion, other-oa)
- Research Publications (Maastricht University) (submittedVersion)
- Utrecht University Repository (Utrecht University) (submittedVersion)
- Funders
- Netherlands Organisation for Scientific Research (451-13-022)
- ERC (ERC-2012-StG)
- Dutch Health Research Council (10-000-1001)
- Lundbeck
- AstraZeneca
- Eli Lilly
- Janssen Cilag
- GGZ Ingeest
- Arkin
- Dijk en Duin
- GGZ Rivierduinen
- Erasmus Medical Centre
- GGZ Noord Holland Noord
- GGZ Eindhoven en de kempen
- GGZ Breburg
- GGZ Oost-Brabant
- Vincent van Gogh voor Geestelijke Gezondheid
- Mondriaan Zorggroep
- Prins Clauscentrum Sittard
- RIAGG Roermond
- Universitair Centrum Sint-Jozef Kortenberg
- CAPRI University of Antwerp
- PC Ziekeren Sint-Truiden
- PZ Sancta Maria Sint-Truiden
- GGZ Overpelt
- OPZ Rekem
- Lentis
- GGZ Friesland
- GGZ Drenthe
- Dimence
- Mediant
- GGNet Warnsveld
- Yulius Dordrecht
- Parnassia psycho-medical center (The Hague)
- GGZ Centraal
- Riagg Amersfoort
- Delta
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Schizophrenia research and treatment
- Social Sciences › Psychology › Experimental and Cognitive Psychology › Mental Health Research Topics
- Social Sciences › Arts and Humanities › Philosophy › Mental Health and Psychiatry
- Keywords
- subjective quality of life, psychosis, ecological validity, ecological momentary assessment, negative affect, emotional experience, social interaction, real-world functioning, patient-reported outcomes
- MeSH terms
- Ecological Momentary Assessment, Activities of Daily Living, Adult, Affect, Emotions, Female, Humans, Interpersonal Relations, Male, Psychotic Disorders, Quality of Life, Multivariate Analysis, Case-Control Studies, Young Adult, Self Report, Social Participation
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