Parents’ perceptions of dental care challenges in male children with autism spectrum disorder: An initial qualitative exploration
Open accessAbstract
Background Many children with autism spectrum disorders (ASD) experience barriers to oral care in the dental office setting. The purpose of this study was to provide an increased understanding of these challenges experienced during oral care in the dental office by children with ASD. Method This study was part of a larger mixed methods design and builds on quantitative results from a survey of parents of children with ASD ages 2-18 in which parents reported difficulties with access to care, sensory processing, and uncooperative behaviors. For this study, we conducted two, three hour, focus groups of parents of male children with ASD age 5-18 years in order to explore the survey results in greater depth. Focus group transcripts were analyzed using a template coding approach based on the three domains of office-based oral care challenges identified in the first phase (survey). Results Several related themes emerged including: (1) Access: "Difficult to find the right dentist", (2) Sensory sensitivities: "All the sensory devices just make him so uncomfortable", (3) Restraint: "It looked like they were torturing him", and (4) Drugs: "A mixed bag". Conclusions The qualitative findings from this study both confirmed our previous survey findings and expanded upon them. These findings can help professionals better understand the challenges experienced by children with ASD and their parents as well as help identify priorities for planning efforts to address the oral health-related needs of this population.
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Parents described their experience of dentists rejecting appointments due to not feeling comfortable dealing with children with autism.
“Parents described their experience of dentists rejecting appointments due to not feeling comfortable dealing with children with autism (Duker et al., 2017).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Duker et al., 2017
Parents described needing to shop around to find a dentist the family felt comfortable with.
“Parents described needing to shop around to find a dentist the family felt comfortable with (Duker et al., 2017).”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Duker et al., 2017
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- Authors
- Stein Duker, L. I., Henwood, B. F., Bluthenthal, R. N., Juhlin, E., Polido, J. C., & Cermak, S. A.
- Affiliations
- University of Southern California (US)
- Children's Hospital Los Angeles (US)
- Venue
- Research in Autism Spectrum Disorders
- Publisher
- Elsevier BV
- Published
- 2017-07
- Volume
- 39
- Pages
- 63-72
- ISSN
- 1878-0237 (ISSN-L)
- 1750-9467
- PMC
- PMC5662021
- OpenAlex
- W2616110565
- Cited by
- 61
- References
- 41
- Citations by year
- 2026: 6 · 2025: 8 · 2024: 5 · 2023: 6 · 2022: 12 · 2021: 6 · 2020: 7 · 2019: 8 · 2018: 3
- FWCI
- 6.79
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Research in Autism (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute of Clinical Studies
- National Institutes of Health (KL2TR001854)
- National Institute of Dental and Craniofacial Research (R34DE022263, U01DE024978)
- National Center for Advancing Translational Sciences
- Eunice Kennedy Shriver National Institute of Child Health and Human Development (T32HD064578)
- Topics
- Health Sciences › Dentistry › Periodontics › Dental Health and Care Utilization
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Keywords
- autism spectrum disorder, oral health, dental care, barriers to dental care, parental attitudes, sensory processing, uncooperative behavior, access to dental care, children with autism, boys
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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