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Cited by 12Family and Disability Support ResearchMindfulness and Compassion InterventionsGenetics and Neurodevelopmental Disorders

Feasibility of an app-based mindfulness intervention among women with an FMR1 premutation experiencing maternal stress

Hunter, Jessica Ezzell, Jenkins, Charisma L., Grim, Valerie, Leung, Sue, Charen, Krista H., Hamilton, Debra R., Allen, Emily G., Sherman, Stephanie L.·2019·Research in Developmental Disabilities
DOI 10.1016/j.ridd.2019.03.008
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Abstract

Background Women who carry an FMR1 premutation (PM) allele and are mothers of children with fragile X syndrome (FXS) experience elevated maternal stress. In-person mindfulness sessions have been shown to be effective in alleviating maternal stress-related outcomes among mothers of children with intellectual and developmental disabilities. Our prior studies indicate women with a PM are at risk of social anxiety, a potential barrier to in-person mindfulness sessions.Aim The main goals of this pilot study were to assess feasibility and adherence of an app-based mindfulness training program among mothers of children with FXS and to explore stress, social outcomes, and potential barriers to social support.Methods Participants (n = 18) completed questionnaires to assess stress and social anxiety, an app-based mindfulness program, and a semi-structured follow-up interview.Results Thirteen out of 18 (72%) participants completed the mindfulness program; of those, 10 (77%) found it helpful. Eight out of 18 (44%) participants met criteria for social anxiety and 11 (61%) reported having difficulties reaching out for help when needed. Women with social anxiety and those experiencing barriers to social support were more likely to find the program helpful.Conclusions This study provides guidance for future mindfulness-based interventions to alleviate maternal stress in mothers of children with FXS.

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Authors
Hunter, J. E., Jenkins, C. L., Grim, V., Leung, S., Charen, K. H., Hamilton, D. R., Allen, E. G., & Sherman, S. L.
Affiliations
  • Kaiser Permanente (US)
  • Emory University (US)
Corresponding author
Hunter, Jessica Ezzell
ORCID
Venue
Research in Developmental Disabilities
Publisher
Elsevier BV
Published
2019-06
Volume
89
Pages
76-82
ISSN
0891-4222 (ISSN-L)
DOI
10.1016/j.ridd.2019.03.008
OpenAlex
W2927963351
Cited by
12
References
27
Citations by year
2025: 2 · 2024: 2 · 2023: 2 · 2022: 2 · 2021: 3 · 2020: 1
FWCI
1.75
Type
journal article
Language
en
Open access
closed
Licence
Locations
  • Research in Developmental Disabilities (publishedVersion)
  • PubMed (publishedVersion)
Funders
Kaiser Permanente Northwest's Community Benefit Initiative, United States
Topics
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Social Sciences › Psychology › Clinical Psychology › Mindfulness and Compassion Interventions
  • Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Genetics and Neurodevelopmental Disorders
Keywords
fragile X premutation, fragile X syndrome, maternal stress, mindfulness-based interventions, social anxiety, social support, feasibility, intervention adherence
MeSH terms
Adult, Anxiety, Child, Communication Barriers, Feasibility Studies, Female, Fragile X Syndrome, Health Education, Humans, Male, Mothers, Pilot Projects, Social Support, Stress, Psychological, Fragile X Mental Retardation Protein, Fragile X Messenger Ribonucleoprotein 1, Mobile Applications, Mindfulness

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