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A new tool for creating personal and social EQ-5D-5L value sets, including valuing 'dead'
Open accessAbstract
The EuroQol Group's health descriptive systems, the EQ-5D-3L and its successor introduced in 2009, the EQ-5D-5L, are widely used worldwide for valuing health-related quality of life for cost-utility analysis and patient-reported health outcome measures. A new online tool for creating personal and social EQ-5D-5L value sets was recently developed and trialled in New Zealand (NZ). The tool, which includes extensive checks of the quality of participants' data, implements the PAPRIKA method - a novel type of adaptive discrete choice experiment in the present context - and a binary search algorithm to identify any health states worse than dead. After development and testing, the tool was distributed in an online survey in February and March 2018 to a representative sample of NZ adults (N = 5112), whose personal value sets were created. The tool's extensive data quality checks resulted in a 'high-quality' sub-sample of 2468 participants whose personal value sets were, in effect, averaged to create a social value set for NZ. These results overall as well as feedback from participants indicates that the new valuation tool is feasible and acceptable to participants, enabling valuation data to be relatively easily and cheaply collected. The tool could also be used in other countries, tested against other methods for creating EQ-5D-5L value sets, applied in personalised medicine and adapted to create value sets for other health descriptive systems.
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Compared with New Zealand population normative values, a significantly higher proportion of Veterans reported any problems in mobility, self-care, usual activities, and pain or discomfort.
“A significantly higher proportion of Veterans reported ‘any problems’ rather than ‘no problems’ with four EQ-5D dimensions: mobility, self-care, usual activities and pain or discomfort, but no difference in anxiety or depression.”
From Factors associated with self-reported health among New Zealand military veterans: A cross-sectional study (2022) · cites this paper as [24]
Section 2.4 describes a survey designed to represent New Zealand adults and says participants rated their health using the EQ-5D-5L; the Results say their self-assessed health is summarised in Appendix 2. The paper can therefore serve as a New Zealand population comparator, but our copy reports no Veterans comparison or statistical test showing higher proportions in four dimensions. (LLM, conf=0.83)
Experimental — accuracy not yet measuredThere was no significant difference between Veterans and the New Zealand general population in the proportion reporting any problems with anxiety or depression.
“A significantly higher proportion of Veterans reported ‘any problems’ rather than ‘no problems’ with four EQ-5D dimensions: mobility, self-care, usual activities and pain or discomfort, but no difference in anxiety or depression.”
From Factors associated with self-reported health among New Zealand military veterans: A cross-sectional study (2022) · cites this paper as [24]
The New Zealand survey section describes a sample of NZ adults completing the EQ-5D-5L, and the Results discuss anxiety/depression values. Neither passage reports a comparison with Veterans or tests whether the proportions reporting anxiety/depression problems differ. Searches for Veterans and for anxiety/depression proportions found no such comparison in our copy. (LLM, conf=0.75)
Experimental — accuracy not yet measured
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Metadata
- Authors
- Sullivan, T., Hansen, P., Ombler, F., Derrett, S., & Devlin, N.
- Affiliations
- University of Otago (NZ)
- The University of Melbourne (AU)
- Corresponding author
- Sullivan, Trudy
- Venue
- Social Science & Medicine
- Publisher
- Elsevier BV
- Published
- 2020-02
- Volume
- 246
- Pages
- 112707
- ISSN
- 0277-9536 (ISSN-L)
- OpenAlex
- W2938447163
- Cited by
- 51
- References
- 52
- Citations by year
- 2026: 5 · 2025: 7 · 2024: 11 · 2023: 9 · 2022: 8 · 2021: 6 · 2020: 4
- FWCI
- 6.25
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Social Science & Medicine (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- Otago University Research Archive (University of Otago) (submittedVersion, cc-by-nc-sa)
- Funders
- University of Otago
- Topics
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Economic and Environmental Valuation
- Social Sciences › Sociology and Political Science › Delphi Technique in Research
- Keywords
- EQ-5D-5L, value sets, health-related quality of life, binary search, data quality checks, cost-utility analysis, patient-reported outcomes
- MeSH terms
- Adult, Health Status, Humans, New Zealand, Quality of Life, Surveys and Questionnaires, Quality-Adjusted Life Years
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