The DOI matches its Crossref record; 43 of the 45 references it cites were found in a registry or an index.
Dignity in the terminally ill: a developing empirical model
Abstract
Despite use of the term dignity in arguments for and against a patient's self-governance in matters pertaining to death, there is little empirical research on how this term has been used by patients who are nearing death. The objective of this study was to determine how dying patients understand and define the term dignity, in order to develop a model of dignity in the terminally ill. A semi-structured interview was designed to explore how patients cope with their advanced cancer and to detail their perceptions of dignity. Interviews were audiotaped and transcribed verbatim. A consecutive sample of 50 consenting patients with advanced terminal cancer were recruited over a 15-month period of time from an urban extended care hospital housing a specialized unit for palliative care. This unit provides both inpatient services. and coordinates end-of-life care community based programming. Data were analysed using latent content analysis and constant comparison techniques. Four members of the research team independently coded the transcribed data, to develop conceptually meaningful categories of responses. Operational definitions were written for major categories, themes and sub-themes. Three major categories emerged from the qualitative analysis, including illness-related concerns; dignity conserving repertoire; and social dignity inventory. These broad categories and their carefully defined themes and sub-themes form the foundation for an emerging model of dignity amongst the dying. The concept of dignity and the dignity model offer a way of understanding how patients face advancing terminal illness. This will serve to promote dignity and the quality of life of patients nearing death.
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“Dignity therapy is based on a theoretical model of dignity in the terminally ill [3] and its purpose is to reduce dignity-related distress while enhancing hope and meaning [4].”
From Feasibility, acceptability and potential effectiveness of dignity therapy for family carers of people with motor neurone disease (2014) · cites this paper as [3]
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Dignity Therapy: A Novel Psychotherapeutic Intervention for Patients Near the End of Life
Chochinov, H. M., Hack, T., Hassard, T., Kristjanson, L. J., McClement, S., & Harlos, M. (2005) · Journal of Clinical Oncology · doi:10.1200/jco.2005.08.391 · Cited by 1,033
Self-citationFactors influencing death at home in terminally ill patients with cancer: systematic review
Gomes, B., & Higginson, I. J. (2006) · BMJ · doi:10.1136/bmj.38740.614954.55 · Cited by 977
“20 Place of death may result from interactions between three main groups of factors: those related to the illness, the individual, and the environment.”
BackgroundChochinov, H. M., Kristjanson, L. J., Breitbart, W., McClement, S., Hack, T. F., Hassard, T., & Harlos, M. (2011) · The Lancet Oncology · doi:10.1016/s1470-2045(11)70153-x · Cited by 775
Self-citationDignity-Conserving Care—A New Model for Palliative Care: Helping the Patient Feel Valued
Chochinov, H. M. (2002) · JAMA · doi:10.1001/jama.287.17.2253 · Cited by 725
“One of the few studies to specifically examine the construct of dignity using patient informants provides a model that helps to describe the notion of dignity-conserving care.(22) This study analyzed qualitative interviews of 50 patients in an advanced stage of terminal cancer, and documented their understanding and p…”
BackgroundSelf-citationDignity in the terminally ill: a cross-sectional, cohort study
Chochinov, H. M., Hack, T. F., Hassard, T. H., Kristjanson, L. J., McClement, S., & Harlos, M. (2002) · The Lancet · doi:10.1016/s0140-6736(02)12022-8 · Cited by 475
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Metadata
- Authors
- Chochinov, H. M., Hack, T., McClement, S., Kristjanson, L., & Harlos, M.
- Affiliations
- CancerCare Manitoba (CA)
- University of Manitoba (CA)
- Edith Cowan University (AU)
- St. Boniface Hospital (CA)
- Corresponding author
- Chochinov, Harvey Max
- Venue
- Social Science & Medicine
- Publisher
- Elsevier BV
- Published
- 2002-02
- Volume
- 54
- Issue
- 3
- Pages
- 433-443
- ISSN
- 0277-9536 (ISSN-L)
- OpenAlex
- W2015893364
- Cited by
- 733
- References
- 45
- Citations by year
- 2026: 34 · 2025: 37 · 2024: 31 · 2023: 30 · 2022: 34 · 2021: 38 · 2020: 34 · 2019: 25 · 2018: 28 · 2017: 40 · 2016: 35 · 2015: 30 · 2014: 30 · 2013: 39 · 2012: 30
- FWCI
- 19.85
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Social Science & Medicine (publishedVersion)
- PubMed (publishedVersion)
- Research Online (Edith Cowan University) (submittedVersion)
- RePEc: Research Papers in Economics (submittedVersion)
- eSpace (Curtin University) (submittedVersion)
- DigitalGeorgetown (Georgetown University Library) (submittedVersion)
- Swinburne figshare (Swinburne University of Technology) (submittedVersion)
- Funders
- University of Manitoba
- Topics
- Health Sciences › Nursing › Issues, ethics and legal aspects › Patient Dignity and Privacy
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- human dignity, dying patients, advanced cancer, end-of-life care, palliative care, patient perspectives, coping with terminal illness, social dignity, quality of life
- MeSH terms
- Activities of Daily Living, Adaptation, Psychological, Anecdotes as Topic, Attitude to Death, Family Relations, Humans, Interviews as Topic, Manitoba, Neoplasms, Professional-Patient Relations, Quality of Life, Right to Die, Skilled Nursing Facilities, Terminal Care, Cost of Illness, Terminally Ill
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