How do patients with rheumatic disease experience their relationship with their doctors?
Abstract
This study is evaluated what patients with rheumatic disease perceive as important in their medical encounters. We interviewed two groups of patients: one with a well-defined inflammatory condition (rheumatoid arthritis (RA) or ankylosing spondylitis) (n = 12) and one with non-inflammatory widespread chronic pain such as fibromyalgia (n = 14). Both groups focused on their relationship to their doctor. Two central themes emerged as of importance: 'to be seen' and 'to be believed'. However, these themes had different connotations for the two groups. For the patients with inflammatory conditions, 'to be seen' implied being seen as an individual and not as a mere diagnosis, and 'to be believed' as far as pain and suffering were concerned. For patients with non-inflammatory chronic pain 'to be seen' and 'to be believed' primarily implied being able to obtain a useful somatic diagnosis. Practical implications of these findings are discussed.
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Visualizing and Predicting the Effects of Rheumatoid Arthritis on Hands
Mihail, R. P. (2014) · UKnowledge (University of Kentucky) · Cited by 1 · see citing works
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Exploring the Experiences of Living with a Controversial Illness in Patients with Fibromyalgia
Wheeler, S. L. (2011) · ScholarWorks - WMU (Western Michigan University) · Cited by 1 · see citing works
Clark‐Grill, M. (2005) · Otago University Research Archive (University of Otago) · Cited by 1 · see citing works
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Good Communication within the Medical Consultation
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Living with chronic pain : a qualitative study
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Spiritual Direction with Women Who Have Autoimmune Diseases: A Model of Psychospiritual Care
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THE ETHICAL SIGNIFICANCE OF COMPLEMENTARY AND ALTERNATIVE MEDICINES
Clark‐Grill, M. (2004)
- Authors
- Haugli, L., Strand, E., & Finset, A.
- Affiliations
- Diakonhjemmet Hospital (NO)
- Corresponding author
- Haugli, Liv
- Venue
- Patient Education and Counseling
- Publisher
- Elsevier BV
- Published
- 2004-02
- Volume
- 52
- Issue
- 2
- Pages
- 169-174
- ISSN
- 0738-3991 (ISSN-L)
- OpenAlex
- W2040509331
- Cited by
- 115
- References
- 21
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 6 · 2023: 4 · 2022: 2 · 2021: 2 · 2020: 8 · 2019: 2 · 2018: 5 · 2017: 6 · 2016: 3 · 2015: 5 · 2014: 5 · 2013: 7 · 2012: 11
- FWCI
- 7.11
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Patient Education and Counseling (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Health Sciences › Medicine › Psychiatry and Mental health › Empathy and Medical Education
- Health Sciences › Medicine › Rheumatology › Rheumatoid Arthritis Research and Therapies
- Keywords
- rheumatic diseases, physician-patient relationship, rheumatoid arthritis, ankylosing spondylitis, fibromyalgia, chronic widespread pain, inflammatory diseases
- MeSH terms
- Adult, Aged, Aged, 80 and over, Attitude of Health Personnel, Attitude to Health, Chronic Disease, Communication, Female, Fibromyalgia, Humans, Individuality, Male, Middle Aged, Norway, Pain, Physician-Patient Relations, Surveys and Questionnaires, Rheumatic Diseases, Spondylitis, Ankylosing, Stress, Psychological, Focus Groups, Trust, Qualitative Research
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