Cited by 438Epilepsy research and treatmentPharmacological Effects and Toxicity StudiesMental Health Treatment and Access

The DOI matches its Crossref record; 52 of the 52 references it cites were found in a registry or an index.

The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions

Fisher, Robert S, Vickrey, Barbara G, Gibson, Patricia, Hermann, Bruce, Penovich, Patricia, Scherer, Ann, Walker, Steven·2000·Epilepsy Research

DOI 10.1016/s0920-1211(00)00126-1

Open this paper in CoChat — free account

Abstract

This study surveyed the perceptions about and subjective experience of 1023 people with epilepsy in two community-based samples: one from a national postal survey; the other callers to the Epilepsy Foundation. Response to a mail survey was 49%. In comparison with US Census Bureau norms, respondents had received less education, were less likely to be employed or married, and came from lower income households. Complex partial seizures were the most prevalent seizure type, but a convulsion had occurred in 61%. Fifty percent of respondents reported incomplete control of their seizure disorder, although 25% of these had a seizure in the prior year. Thirteen percent had a longest inter-seizure interval of a year or greater, 37% of 3 months, 22% of 1 month, 10% of 1 week and 4% of 1 day. Respondents listed uncertainty and fear of having a seizure as the worst thing about having epilepsy. Lifestyle, school, driving, and employment limits were also listed as major problems. When asked to rank a list of potential problems, cognitive impairment was ranked highest. These data indicate that ongoing medical and psychosocial problems continue for those with epilepsy in the view of those questioned and their families, even in a sample where the majority report good control of their epilepsy.

Integrity signals

Registry

Crossref · 10.1016/s0920-1211(00)00126-1

Cites

52 of 52 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

Early Identification of Refractory Epilepsy
Kwan, P., & Brodie, M. J. (2000) · New England Journal of Medicine · doi:10.1056/nejm200002033420503 · Cited by 5,204
Proposal for Revised Clinical and Electroencephalographic Classification of Epileptic Seizures
(1981) · Epilepsia · doi:10.1111/j.1528-1157.1981.tb06159.x · Cited by 3,433
Incidence of Epilepsy and Unprovoked Seizures in Rochester, Minnesota: 1935–1984
Hauser, W. A., Annegers, J. F., & Kurland, L. T. (1993) · Epilepsia · doi:10.1111/j.1528-1157.1993.tb02586.x · Cited by 2,084
Quality of life of people with epilepsy: a European study
Baker, G. A., Jacoby, A., Buck, D., Stalgis, C., & Monnet, D. (1997) · Epilepsia · doi:10.1111/j.1528-1157.1997.tb01128.x · Cited by 847
Introduction to Survey Sampling
Kalton, G. (1983) · Sage eBooks · doi:10.4135/9781412984683 · Cited by 840
Long-Term Prognosis of Seizures with Onset in Childhood
Sillanpää, M. L., Jalava, M., Kaleva, O., & Shinnar, S. (1998) · New England Journal of Medicine · doi:10.1056/nejm199806113382402 · Cited by 725
Descriptive Epidemiology of Epilepsy: Contributions of Population-Based Studies From Rochester, Minnesota
Hauser, W. A., Annegers, J. F., & Rocca, W. A. (1996) · Mayo Clinic Proceedings · doi:10.4065/71.6.576 · Cited by 701
The Clinical Course of Epilepsy and Its Psychosocial Correlates: Findings from a U.K. Community Study
Jacoby, A., Baker, G. A., Steen, N., Potts, P., & Chadwick, D. W. (1996) · Epilepsia · doi:10.1111/j.1528-1157.1996.tb00006.x · Cited by 632
Epilepsy: Frequency, causes and consequences
Messenheimer, J. A. (1991) · Journal of Epilepsy · doi:10.1016/0896-6974(91)90095-z · Cited by 567
Epilepsy: Frequency Causes and Consequences
Hauser, W. A., & Hesdorffer, D. C. (1990) · Medical Entomology and Zoology · Cited by 555

Show all 52 references

Research works printed but not linked: 1

Hermann, 1990, Psychosocial outcome following focal resections in childhood, J. Epilepsy, 3, 243

Sorted by citations

Items 101–200 of 438

Experiences of persons with epilepsy and their families as they look for medical and community care: A focus group study from South Carolina
Sample, P. L., Ferguson, P. L., Wagner, J. L., Pickelsimer, E. E., & Selassie, A. W. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.08.009 · Cited by 44
Neuromorphic deep spiking neural networks for seizure detection
Yang, Y., Eshraghian, J. K., Truong, N. D., Nikpour, A., & Kavehei, O. (2023) · Neuromorphic Computing and Engineering · doi:10.1088/2634-4386/acbab8 · Cited by 43
Quality of life and employment status are correlated with antiepileptic monotherapy versus polytherapy and not with use of “newer” versus “classic” drugs: Results of the “Compliant 2006” survey in 907 patients
Haag, A., Strzelczyk, A., Bauer, S., Kühne, S., Hamer, H. M., & Rosenow, F. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.09.037 · Cited by 43
Screening of anxiety and quality of life in people with epilepsy
Gür-Özmen, S., Leibetseder, A., Cock, H. R., Agrawal, N., & von Oertzen, T. J. (2016) · Seizure · doi:10.1016/j.seizure.2016.11.026 · Cited by 43
An evaluation of knowledge and attitudes toward epilepsy in Eastern Turkey
Kıyak, E., & Dayapoğlu, N. (2017) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.06.036 · Cited by 43
Seizure precipitants in a community-based epilepsy cohort
Wassenaar, M., Trenité, D. G. A. K.-N., de Haan, G., Carpay, J. A., & Leijten, F. S. S. (2014) · Journal of Neurology · doi:10.1007/s00415-014-7252-8 · Cited by 42
Grouping Pentylenetetrazol-Induced Epileptic Rats According to Memory Impairment and MicroRNA Expression Profiles in the Hippocampus
Liu, X., Wu, Y., Huang, Q., Zou, D., Qin, W., & Chen, Z. (2015) · PLoS ONE · doi:10.1371/journal.pone.0126123 · Cited by 42
Stress, seizures, and epilepsy: Patient narratives
Lang, J., Taylor, D. C., & Kasper, B. S. (2018) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2018.01.005 · Cited by 42
Mortality and morbidity rates are increased in people with epilepsy: Is stress part of the equation?
Yuen, A. W. C., Thompson, P. J., Flügel, D., Bell, G. S., & Sander, J. W. A. S. (2006) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2006.09.004 · Cited by 42
A comprehensive behavioral evaluation in the lithium–pilocarpine model in rats: Effects of carisbamate administration during status epilepticus
Faure, J., Akimana, G., da Silva, J. E. M. C., Cosquer, B., Ferrandon, A., Geiger, K., Koning, E., Penazzi, L., Cassel, J., & Nehlig, A. (2013) · Epilepsia · doi:10.1111/epi.12219 · Cited by 42
Adolescent Issues in Epilepsy
Sheth, R. D. (2002) · Journal of Child Neurology · doi:10.1177/08830738020170020801 · Cited by 43
The Personal and Financial Impact of Repetitive or Prolonged Seizures on the Patient and Family
O’Dell, C., Wheless, J. W., & Cloyd, J. C. (2007) · Journal of Child Neurology · doi:10.1177/0883073807303070 · Cited by 43
Burden, causes, and outcomes of people with epilepsy admitted to a rural hospital in Kenya
Kariuki, S. M., Chengo, E., Ibinda, F., Odhiambo, R., Etyang, A. O., Ngugi, A. K., & Newton, C. R. J. C. (2015) · Epilepsia · doi:10.1111/epi.12935 · Cited by 40
Mindfulness-based interventions in epilepsy: a systematic review
Wood, K., Lawrence, M., Jani, B., Simpson, R., & Mercer, S. W. (2017) · BMC Neurology · doi:10.1186/s12883-017-0832-3 · Cited by 40
Social support for self-management behaviors among people with epilepsy: A content analysis of the WebEase program
Walker, E. R., Bamps, Y. A., Burdett, A., Rothkopf, J., & DiIorio, C. K. (2012) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2012.01.006 · Cited by 40
Epilepsy stigma and stigma by association in the workplace
Parfene, C., Stewart, T. L., & King, T. Z. (2009) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2009.05.011 · Cited by 40
Improving quality of life beyond seizure control
Schachter, S. C. (2005) · Epileptic Disorders · doi:10.1684/j.1950-6945.2005.tb00150.x · Cited by 39
Patients' perception of epilepsy and threat to self-identity: A qualitative approach
Hosseini, N., Sharif, F., Ahmadi, F., & Zare, M. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.06.003 · Cited by 39
Treatment of memory disorders in epilepsy
Shulman, M. B., & Barr, W. (2002) · Epilepsy & Behavior · doi:10.1016/s1525-5050(02)00509-7 · Cited by 38
Western driving regulations for unprovoked first seizures and epilepsy
Winston, G. P., & Jaiser, S. R. (2012) · Seizure · doi:10.1016/j.seizure.2012.03.008 · Cited by 38
Noninvasive Detection of Hippocampal Epileptiform Activity on Scalp Electroencephalogram
Jaoude, M. A., Jacobs, C. S., Sarkis, R. A., Jing, J., Pellerin, K. R., Cole, A. J., Cash, S. S., Westover, M. B., & Lam, A. D. (2022) · JAMA Neurology · doi:10.1001/jamaneurol.2022.0888 · Cited by 38
First population study of the general public awareness and perception of epilepsy in Croatia
Bagic, A. I., Bagić, D., & Živković, I. (2009) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2009.02.044 · Cited by 38
Neuropsychiatric and Memory Issues in Epilepsy
Bortz, J. J. (2003) · Mayo Clinic Proceedings · doi:10.4065/78.6.781 · Cited by 38
Fostering epilepsy self management: The perspectives of professionals
Clark, N. M., STOLL, S. C., Youatt, E. J., Sweetman, M., Derry, R., & Gorelick, A. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.08.033 · Cited by 38
The societal integration of individuals with epilepsy: Perspectives for the 21st century
Bautista, R. E. D., Shapovalov, D., Saada, F., & Pizzi, M. A. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2014.04.006 · Cited by 37
Impact of insurance status on access to care and out-of-pocket costs for U.S. individuals with epilepsy
Halpern, M. T., Renaud, J. M., & Vickrey, B. G. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.07.007 · Cited by 37
What do temporal lobe epilepsy and progressive mild cognitive impairment have in common?
Höller, Y., & Trinka, E. (2014) · Frontiers in Systems Neuroscience · doi:10.3389/fnsys.2014.00058 · Cited by 38
Epilepsy
Bastos, F., & Cross, J. H. (2020) · Handbook of clinical neurology · doi:10.1016/b978-0-444-64148-9.00011-9 · Cited by 37
Energy-Efficient Data Reduction Techniques for Wireless Seizure Detection Systems
Chiang, J., & Ward, R. K. (2014) · Sensors · doi:10.3390/s140202036 · Cited by 36
The neural basis of autobiographical memory deficits in transient epileptic amnesia
Milton, F., Butler, C., Benattayallah, A., & Zeman, A. Z. (2012) · Neuropsychologia · doi:10.1016/j.neuropsychologia.2012.09.027 · Cited by 35
Seizure self-prediction in a randomized controlled trial of stress management
Privitera, M., Haut, S. R., Lipton, R. B., McGinley, J. S., & Cornes, S. B. (2019) · Neurology · doi:10.1212/wnl.0000000000008539 · Cited by 36
Genotoxicity assessment of the antiepileptic drug AMP397, an Ames-positive aromatic nitro compound
Suter, W., Hartmann, A., Poetter, F., Sagelsdorff, P., Hoffmann, P., & Martus, H. (2002) · Mutation Research/Genetic Toxicology and Environmental Mutagenesis · doi:10.1016/s1383-5718(02)00105-5 · Cited by 36
Quality of life and functional limitations in persons with epilepsy
Karakis, I., Boualam, N., Moura, L. M. V. R., & Howard, D. H. (2023) · Epilepsy Research · doi:10.1016/j.eplepsyres.2023.107084 · Cited by 35
Improving Methods for Measuring Quality of Care
Bokhour, B. G., Pugh, M. J., Rao, J. K., Avetisyan, R., Berlowitz, D. R., & Kazis, L. E. (2008) · Medical Care Research and Review · doi:10.1177/1077558708327174 · Cited by 35
Characterizing dynamics of absence seizure EEG with spatial-temporal permutation entropy
Zeng, K., Ouyang, G., Chen, H., Gu, Y., Liu, X., & Xiaoli Li, A. (2017) · Neurocomputing · doi:10.1016/j.neucom.2017.09.007 · Cited by 35
Perceived epilepsy stigma mediates relationships between personality and social well-being in a diverse epilepsy population
Margolis, S. A., Nakhutina, L., Schaffer, S. G., Grant, A. C., & Gonzalez, J. S. (2017) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2017.10.023 · Cited by 35
Adult patient perceptions of emergency rectal medications for refractory seizures
Tatum, W. O. (2002) · Epilepsy & Behavior · doi:10.1016/s1525-5050(02)00559-0 · Cited by 35
Continental generalization of a human-in-the-loop AI system for clinical seizure recognition
Yang, Y., Truong, N. D., Maher, C., Nikpour, A., & Kavehei, O. (2022) · Expert Systems with Applications · doi:10.1016/j.eswa.2022.118083 · Cited by 39
A Multimodal AI System for Out-of-Distribution Generalization of Seizure Identification
Yang, Y., Truong, N. D., Eshraghian, J. K., Maher, C., Nikpour, A., & Kavehei, O. (2022) · IEEE Journal of Biomedical and Health Informatics · doi:10.1109/jbhi.2022.3157877 · Cited by 33
Methodological Issues in Evaluating Machine Learning Models for EEG Seizure Prediction: Good Cross-Validation Accuracy Does Not Guarantee Generalization to New Patients
Shafiezadeh, S., Duma, G. M., Mento, G., Danieli, A., Antoniazzi, L., Cristaldi, F. D. P., Bonanni, P., & Testolin, A. (2023) · Applied Sciences · doi:10.3390/app13074262 · Cited by 35
Stigma scale of epilepsy: the perception of epilepsy stigma in different cities in Brazil
Fernandes, P. T., Noronha, A. L. A., Sander, J. W. A. S., & Li, L. M. (2008) · Arquivos de Neuro-Psiquiatria · doi:10.1590/s0004-282x2008000400006 · Cited by 33
Fluoxetine restores spatial learning but not accelerated forgetting in mesial temporal lobe epilepsy
Barkas, L. J., Redhead, E. S., Taylor, M., Shtaya, A., Hamilton, D. A., & Gray, W. (2012) · Brain · doi:10.1093/brain/aws176 · Cited by 32
Altered Sleep Microarchitecture and Cognitive Impairment in Patients With Temporal Lobe Epilepsy
Bender, A. C., Jaleel, A., Pellerin, K. R., Moguilner, S., Sarkis, R. A., Cash, S. S., & Lam, A. D. (2023) · Neurology · doi:10.1212/wnl.0000000000207942 · Cited by 31
Social and family characteristics of Hispanics with epilepsy
Chong, J., Drake, K. W., Atkinson, P. B., Ouellette, E., & Labiner, D. M. (2011) · Seizure · doi:10.1016/j.seizure.2011.08.008 · Cited by 31
EEG characteristics predict subsequent epilepsy in children with their first unprovoked seizure
Kanemura, H., Sano, F., Ohyama, T., Mizorogi, S., Sugita, K., & Aihara, M. (2015) · Epilepsy Research · doi:10.1016/j.eplepsyres.2015.05.011 · Cited by 30
Effectiveness of a first aid information video in reducing epilepsy-related stigma
Roberts, R., & Suhaimi, A. F. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.06.004 · Cited by 30
Identifying seizure risk factors: A comparison of sleep, weather, and temporal features using a Bayesian forecast
Payne, D. E., Dell, K. L., Karoly, P. J., Křemen, V., Gerla, V., Kuhlmann, L., Worrell, G. A., Cook, M. J., Grayden, D. B., & Freestone, D. R. (2020) · Epilepsia · doi:10.1111/epi.16785 · Cited by 30
Cognitive function after status epilepticus versus after multiple generalized tonic-clonic seizures
Power, K. N., Gramstad, A., Gilhus, N. E., Hufthammer, K. O., & Engelsen, B. A. (2017) · Epilepsy Research · doi:10.1016/j.eplepsyres.2017.11.014 · Cited by 29
Telephone-based depression self-management in Hispanic adults with epilepsy: a pilot randomized controlled trial
Spruill, T. M., Friedman, D. J., Díaz, L., Butler, M. J., Goldfeld, K. S., O’Kula, S. S., Montesdeoca, J., Payano, L., Shallcross, A. J., Kaur, K., et al. (2021) · Translational Behavioral Medicine · doi:10.1093/tbm/ibab045 · Cited by 29
Exploring loss and replacement of loss for understanding the impacts of epilepsy onset: A qualitative investigation
Jacoby, A., Ring, A., Whitehead, M. M., Marson, A. G., & Baker, G. A. (2014) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2014.02.015 · Cited by 31
First population study of the general public awareness and perception of epilepsy in Bosnia and Herzegovina
Bagic, A. I., Bagić, D., & Živković, I. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2008.10.007 · Cited by 29
Assessment of adverse events and quality of life in epilepsy: design of a new community-based trial
Privitera, M., & Ficker, D. M. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.08.001 · Cited by 29
EEG power spectra parameterization and adaptive channel selection towards semi-supervised seizure prediction
Li, H., Liao, J., Wang, H., Zhan, C. A., & Yang, F. (2024) · Computers in Biology and Medicine · doi:10.1016/j.compbiomed.2024.108510 · Cited by 28
Current Concepts of Memory Disorder in Epilepsy: Edging Towards a Network Account
Rayner, G., & Tailby, C. (2017) · Current Neurology and Neuroscience Reports · doi:10.1007/s11910-017-0765-7 · Cited by 28
Cognition in adult patients with newly diagnosed non-lesional temporal lobe epilepsy
Bjørke, A. B., Østby, Y., Grahl, S. G., Larsson, P. G., Olsen, K. B., Nævra, M. C. J., Ringstad, G. A., Bjørnerud, A., Gjerstad, L., Taubøll, E., et al. (2021) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2021.107771 · Cited by 28
Treatment of depression in patients with epilepsy: problems, pitfalls, and some solutions
Krishnamoorthy, E. S. (2003) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2003.08.017 · Cited by 28
Verbal memory compensation: Application to left and right temporal lobe epileptic patients
Bresson, C., Lespinet‐Najib, V., Rougier, A., Claverie, B., & N’Kaoua, B. (2006) · Brain and Language · doi:10.1016/j.bandl.2006.06.005 · Cited by 28
Disobedience and driving in patients with epilepsy
Tatum, W. O., Worley, A. V., & Selenica, M. B. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.10.015 · Cited by 27
Cognitive decline in older adults with epilepsy: The Cardiovascular Health Study
Choi, H., Thacker, E. L., Longstreth, W. T., Jr., Elkind, M. S. V., & Boehme, A. K. (2020) · Epilepsia · doi:10.1111/epi.16748 · Cited by 27
Influence of Epilepsy on the Quality of Life of Patients with Brain Tumors
Krajewski, S., Wójcik, M., Harat, M., & Furtak, J. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18126390 · Cited by 27
Implementation of the epilepsy center of excellence to improve access to and quality of care – protocol for a mixed methods study
Pugh, M. J., Leykum, L. K., Lanham, H. J., Finley, E. P., Noël, P. H., McMillan, K. K., & Pugh, J. A. (2014) · Implementation Science · doi:10.1186/1748-5908-9-44 · Cited by 27
Análisis de costes directos, indirectos e intangibles de la epilepsia
Pato, A. P., Pérez, E. C., Hernando, I. C., González, J. R. L., Constenla, I. R., & Sampedro, F. G. (2010) · Neurología · doi:10.1016/j.nrl.2010.10.002 · Cited by 27
Acceptance of disease and lifestyle modification after diagnosis among young adults with epilepsy
Staniszewska, A., Religioni, U., & Dąbrowska-Bender, M. (2017) · Patient Preference and Adherence · doi:10.2147/ppa.s126650 · Cited by 27
Determinants of Employment Status Among a Community-Based Sample of People with Epilepsy
Bishop, M. L. (2004) · Rehabilitation Counseling Bulletin · doi:10.1177/00343552030470020601 · Cited by 27
Men with epilepsy—The lost tribe?
Sare, G. M., Rawnsley, M., Stoneman, A., & Duncan, S. (2007) · Seizure · doi:10.1016/j.seizure.2007.02.007 · Cited by 26
Long-term seizure dynamics are determined by the nature of seizures and the mutual interactions between them
Kudláček, J., Chvojka, J., Kumpošt, V., Splítková, B., Pošusta, A., Jefferys, J. G. R., Maturana, M. I., Novák, O., Cook, M. J., Otáhal, J., et al. (2021) · Neurobiology of Disease · doi:10.1016/j.nbd.2021.105347 · Cited by 25
Parent perspectives of the challenging aspects of disclosing a child’s epilepsy diagnosis to others: Why don’t they tell?
Benson, A., Lambert, V., Gallagher, P., Shahwan, A., & AUSTIN, J. K. (2016) · Chronic Illness · doi:10.1177/1742395316648749 · Cited by 25
Counseling and social work for persons with epilepsy: Observational study on demand and issues in Hessen, Germany
Schulz, J., Beicher, A., Mayer, G., Oertel, W. H., Knake, S., Rosenow, F., & Strzelczyk, A. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.05.027 · Cited by 25
Awareness, knowledge, and attitudes with respect to epilepsy: An investigation in relation to health-related quality of life within a Malaysian setting
Lua, P. L., & Selamat, N. W. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.03.039 · Cited by 25
Evaluating the World Health Organization’s International Classification of Functioning, Disability, and Health (ICF) framework as an employment model for people with epilepsy
Sung, C. Y. Y., Chan, F., Ditchman, N., & Chan, C. C. H. (2020) · Journal of Vocational Rehabilitation · doi:10.3233/jvr-201072 · Cited by 24
Stress increases susceptibility to pentylenetetrazole-induced seizures in adult zebrafish
Canzian, J., Franscescon, F., Müller, T. E., Stefanello, F. V., Souza, T. P., Rosa, L. V., & Rosemberg, D. B. (2020) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2020.107557 · Cited by 26
Health behaviors and conditions of persons with epilepsy: A bivariate analysis of 2006 BRFSS data
Konda, K., Ablah, E. A., Konda, K. S., & Liow, K. K. (2009) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2009.07.010 · Cited by 24
Long-term seizure outcomes following resection of supratentorial cavernous malformations
Kwon, C., Sheth, S. A., Walcott, B. P., Neal, J. B., Eskandar, E. N., & Ogilvy, C. S. (2013) · Clinical Neurology and Neurosurgery · doi:10.1016/j.clineuro.2013.08.024 · Cited by 24
Childhood trauma in patients with self-reported stress-precipitated seizures
Lee, I. J., Strawn, J. R., Dwivedi, A. K., Walters, M., Fleck, A., Schwieterman, D., Haut, S. R., Polak, E., & Privitera, M. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.07.019 · Cited by 29
Gender and drug effects on neuroimaging in epilepsy
Koepp, M. J. (2011) · Epilepsia · doi:10.1111/j.1528-1167.2011.03150.x · Cited by 23
The safety and tolerability of galantamine in patients with epilepsy and memory difficulties
Griffith, H. R., Martin, R. C., Andrews, S., Paige, A. L., Ware, J., Faught, E., & Welty, T. E. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2008.05.006 · Cited by 23
Tools for assessing quality of life in epilepsy patients
Jacoby, A., Baker, G. A., Crossley, J., & Schachter, S. (2013) · Expert Review of Neurotherapeutics · doi:10.1586/14737175.2013.850032 · Cited by 23
Of seizure prediction, statistics, and dogs
Litt, B., & Krieger, A. Μ. (2007) · Neurology · doi:10.1212/01.wnl.0000255912.43452.12 · Cited by 23
Counseling and Management of the Risks of Living With Epilepsy
Noe, K. H. (2019) · CONTINUUM Lifelong Learning in Neurology · doi:10.1212/con.0000000000000708 · Cited by 22
Medical and Social Issues Related to Posttraumatic Seizures in Persons With Traumatic Brain Injury
Bushnik, T. L., Englander, J., & Duong, T. (2004) · Journal of Head Trauma Rehabilitation · doi:10.1097/00001199-200407000-00004 · Cited by 22
ForeSeiz: An IoMT based headband for Real-time epileptic seizure forecasting
Prathaban, B. P., Баласубраманиан, Р., & Kalpana, R. (2021) · Expert Systems with Applications · doi:10.1016/j.eswa.2021.116083 · Cited by 21
Barriers to the Management of Patients with Surgically Remediable Intractable Epilepsy
Swarztrauber, K. (2004) · CNS Spectrums · doi:10.1017/s1092852900008506 · Cited by 21
Autobiographical memory and the self in a case of transient epileptic amnesia
Illman, N. A., Rathbone, C. J., Kemp, S., & Moulin, C. J. A. (2011) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2011.02.022 · Cited by 20
Employment in people with epilepsy from the perspectives of patients, neurologists, and the general population
Majkowska-Zwolińska, B., Jędrzejczak, J., & Owczarek, K. (2012) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2012.10.001 · Cited by 20
Automated epileptic seizure detection based on break of excitation/inhibition balance
Fan, X., Gaspard, N., Legros, B., Lucchetti, F., Ercek, R., & Nonclercq, A. (2019) · Computers in Biology and Medicine · doi:10.1016/j.compbiomed.2019.02.005 · Cited by 20
The Experience of Earthquakes by Patients with Epileptic and Psychogenic Nonepileptic Seizures
Watson, N. F., Doherty, M. J., Dodrill, C. B., Farrell, D. F., & Miller, J. W. (2002) · Epilepsia · doi:10.1046/j.1528-1157.2002.41801.x · Cited by 20
Marital adjustment for patients with epilepsy in China
Chen, J., Zhang, Y., Hong, Z., Sander, J. W. A. S., & Zhou, D. (2013) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2013.03.027 · Cited by 19
Analysis of direct, indirect, and intangible costs of epilepsy
Pato, A. P., Pérez, E. C., Hernando, I. C., González, J. R. L., Constenla, I. R., & Sampedro, F. G. (2011) · Neurología (English Edition) · doi:10.1016/s2173-5808(11)70006-2 · Cited by 19
Neuropsychiatric Disorders in Epilepsy: Some Transcultural Issues
Trimble, M., & Krishnamoorthy, E. S. (2003) · Epilepsia · doi:10.1046/j.1528-1157.44.s.1.9.x · Cited by 19
Assessment of quality of life, stigma associated and self-management practices among patients suffering from epileptic seizures: A cross sectional study
Joseph, N., Ray, A., Reshma, B. K., Bhat, S., Herady, M., Kumar, A., & Kiran, K. (2011) · Journal of Neuroscience and Behavioral Health · doi:10.5897/jnbh.9000002 · Cited by 19
Evaluation of a collar-mounted accelerometer for detecting seizure activity in dogs
Muñana, K. R., Nettifee, J. A., Griffith, E. H., Early, P. J., & Yoder, N. C. (2020) · Journal of Veterinary Internal Medicine · doi:10.1111/jvim.15760 · Cited by 19
ESEEG: An Efficient Epileptic Seizure Detection using EEG signals based on Machine Learning Algorithms
AbdElminaam, D. S., Fahmy, A. G., Ali, Y. M., El-Din, O. A. D., aly, A. R., & Heidar, M. (2022) · International Mobile, Intelligent, and Ubiquitous Computing Conference (MIUCC) · doi:10.1109/miucc55081.2022.9781762 · Cited by 18
Epilepsy and sleep characteristics are associated with diminished 24‐h memory retention in older adults with epilepsy
Sarkis, R. A., Lam, A. D., Pavlova, M. K., Locascio, J. J., Putta, S., Puri, N., Pham, J., Yih, A., Marshall, G. A., & Stickgold, R. (2023) · Epilepsia · doi:10.1111/epi.17707 · Cited by 18
Functional correlates of cognitive performance and working memory in temporal lobe epilepsy: Insights from task-based and resting-state fMRI
Fajardo-Valdez, A., Camacho-Téllez, V., Rodríguez‐Cruces, R., Gomar, M. L. G., Pasaye, E. H., & Concha, L. (2024) · PLoS ONE · doi:10.1371/journal.pone.0295142 · Cited by 18
Social-cognitive predictors of vocational outcomes in transition youth with epilepsy: Application of social cognitive career theory.
Sung, C. Y. Y., & Connor, A. (2017) · Rehabilitation Psychology · doi:10.1037/rep0000161 · Cited by 18
Epilepsy and law
Beran, R. G. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.12.006 · Cited by 18
Diverse perspectives on developments in epilepsy surgery
Wilson, S. J., & Engel, J. (2010) · Seizure · doi:10.1016/j.seizure.2010.10.028 · Cited by 18
Exploration of Age and Sex Differences in Depressive Symptoms and Illness Attitudes for Youth With Epilepsy and Juvenile Rheumatic Disease
Ryan, J. L., Ramsey, R. R., Fedele, D. A., Wagner, J. L., Smith, G. M., & Chaney, J. M. (2012) · Journal of Child Neurology · doi:10.1177/0883073811431109 · Cited by 17
Contribution of autobiographic memory impairment to subjective memory complaints in focal epilepsy
Rayner, G., Siveges, B., Allebone, J., Pieters, J., & Wilson, S. J. (2019) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2019.106636 · Cited by 17
Domain‐specific relationships of subjective and objective cognition in epilepsy
Hohmann, L., Berger, J., Kastell, S., & Holtkamp, M. (2023) · Epilepsia · doi:10.1111/epi.17624 · Cited by 17

Authors: Fisher, R. S., Vickrey, B. G., Gibson, P., Hermann, B., Penovich, P., Scherer, A., & Walker, S.
Affiliations: Barrow Neurological Institute (US)
University of California, Los Angeles (US)
University of Wisconsin–Madison (US)
Minnesota Epilepsy Group (US)
Epilepsy Foundation (US)
Hoechst Marion Roussel (United States) (US)
Corresponding author: Fisher, Robert S
ORCID: Fisher, Robert S
Vickrey, Barbara G
Gibson, Patricia
Hermann, Bruce
Penovich, Patricia
Venue: Epilepsy Research
Publisher: Elsevier BV
Published: 2000-08
Volume: 41
Issue: 1
Pages: 39-51
ISSN: 0920-1211 (ISSN-L)
DOI: 10.1016/s0920-1211(00)00126-1
OpenAlex: W2171266607
Cited by: 438
References: 52
Citations by year: 2026: 10 · 2025: 9 · 2024: 15 · 2023: 21 · 2022: 17 · 2021: 25 · 2020: 23 · 2019: 19 · 2018: 13 · 2017: 15 · 2016: 19 · 2015: 27 · 2014: 23 · 2013: 23 · 2012: 17
FWCI: 6.51
Type: journal article
Language: en
Open access: closed
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: Epilepsy Research (publishedVersion)
PubMed (publishedVersion)
Funders: Epilepsy Foundation
Topics: Health Sciences › Medicine › Clinical Neurology › Epilepsy research and treatment
Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pharmacological Effects and Toxicity Studies
Health Sciences › Medicine › Psychiatry and Mental health › Mental Health Treatment and Access
Keywords: epilepsy, patient perspectives, subjective experience, seizure control, complex partial seizures, seizure frequency, fear of seizures, cognitive impairment, psychosocial problems
MeSH terms: Adolescent, Adult, Age Factors, Aged, Attitude to Health, Educational Status, Employment, Epilepsy, Female, Humans, Income, Male, Marriage, Middle Aged, Surveys and Questionnaires, Socioeconomic Factors, United States, Case-Control Studies, Epilepsy, Complex Partial, Databases as Topic

About these checks

Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.

Statistics and arithmetic are recomputed, not judged.

Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.

What counts as a claim ›How we measure confidence ›How we check this ›

Are you an author, or do you see a problem with this page? Request a review

The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions

Abstract

Overview

Integrity signals

Verification

Claims the paper makes

Claims other papers make about this one

Citations

Cites

Cited by

Related

Metadata

Record

About these checks