Institutional trust and misinformation in the response to the 2018–19 Ebola outbreak in North Kivu, DR Congo: a population-based survey
Open accessAbstract
Background The current outbreak of Ebola in eastern DR Congo, beginning in 2018, emerged in a complex and violent political and security environment. Community-level prevention and outbreak control measures appear to be dependent on public trust in relevant authorities and information, but little scholarship has explored these issues. We aimed to investigate the role of trust and misinformation on individual preventive behaviours during an outbreak of Ebola virus disease (EVD).Methods We surveyed 961 adults between Sept 1 and Sept 16, 2018. We used a multistage sampling design in Beni and Butembo in North Kivu, DR Congo. Of 412 avenues and cells (the lowest administrative structures; 99 in Beni and 313 in Butembo), we randomly selected 30 in each city. In each avenue or cell, 16 households were selected using the WHO Expanded Programme on Immunization's random walk approach. In each household, one adult (aged ≥18 years) was randomly selected for interview. Standardised questionnaires were administered by experienced interviewers. We used multivariate models to examine the intermediate variables of interest, including institutional trust and belief in selected misinformation, with outcomes of interest related to EVD prevention behaviours.Findings Among 961 respondents, 349 (31·9%, 95% CI 27·4-36·9) trusted that local authorities represent their interest. Belief in misinformation was widespread, with 230 (25·5%, 21·7-29·6) respondents believing that the Ebola outbreak was not real. Low institutional trust and belief in misinformation were associated with a decreased likelihood of adopting preventive behaviours, including acceptance of Ebola vaccines (odds ratio 0·22, 95% CI 0·21-0·22, and 1·40, 1·39-1·42) and seeking formal health care (0·06, 0·05-0·06, and 1·16, 1·15-1·17).Interpretation The findings underscore the practical implications of mistrust and misinformation for outbreak control. These factors are associated with low compliance with messages of social and behavioural change and refusal to seek formal medical care or accept vaccines, which in turn increases the risk of spread of EVD.Funding The Harvard Humanitarian Initiative Innovation Fund.
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Trust was also related to decisions to adopt preventive measures such as Ebola vaccinations in the Democratic Republic of Congo.
“Trust was also related to decisions to adopt preventive measures such as Ebola vaccinations in the Democratic Republic of Congo 197 .”
From Using social and behavioural science to support COVID-19 pandemic response (2020) · cites this paper as [197]
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- Authors
- Vinck, P., Pham, P. N., Bindu, K. K., Bedford, J., & Nilles, E. J.
- Affiliations
- Harvard University (US)
- Anthrologica (GB)
- Corresponding author
- Vinck, Patrick
- Venue
- The Lancet Infectious Diseases
- Publisher
- Elsevier BV
- Published
- 2019-05
- Volume
- 19
- Issue
- 5
- Pages
- 529-536
- ISSN
- 1473-3099 (ISSN-L)
- OpenAlex
- W2924370385
- Cited by
- 595
- References
- 25
- Citations by year
- 2026: 69 · 2025: 49 · 2024: 51 · 2023: 87 · 2022: 101 · 2021: 115 · 2020: 98 · 2019: 25
- FWCI
- 170.25
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- The Lancet Infectious Diseases (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Sociology and Political Science › Misinformation and Its Impacts
- Health Sciences › Medicine › Infectious Diseases › Viral Infections and Outbreaks Research
- Social Sciences › Health › Vaccine Coverage and Hesitancy
- Keywords
- Ebola virus disease, institutional trust, misinformation, outbreak response, preventive behavior, health-seeking behavior, health communication, North Kivu, Beni, Butembo, conflict-affected settings, vaccine hesitancy
- MeSH terms
- Adolescent, Adult, Communication, Congo, Disease Outbreaks, Family Characteristics, Female, Humans, Health Knowledge, Attitudes, Practice, Male, Middle Aged, Patient Acceptance of Health Care, Surveys and Questionnaires, Hemorrhagic Fever, Ebola, Trust, Young Adult
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