Caregivers of people with severe mental illness in the COVID-19 pandemic

Multidisciplinary research priorities for the COVID-19 pandemic: a call for action for mental health science

Holmes, E. A., O'Connor, R. C., Perry, V. H., Tracey, I., Wessely, S., Arseneault, L., Ballard, C., Christensen, H., Cohen Silver, R., Everall, I., et al. (2020) · The Lancet Psychiatry · doi:10.1016/s2215-0366(20)30168-1 · Cited by 5,715 · see citing works

Patients with mental health disorders in the COVID-19 epidemic

Yao, H., Chen, J.-H., & Xu, Y.-F. (2020) · The Lancet Psychiatry · doi:10.1016/s2215-0366(20)30090-0 · Cited by 1,393 · see citing works

Families Living with Severe Mental Illness: A Literature Review

Saunders, J. C. (2003) · Issues in Mental Health Nursing · doi:10.1080/01612840305301 · Cited by 388 · see citing works

Family interventions in early psychosis: specificity and effectiveness

Onwumere, J., Bebbington, P., & Kuipers, E. (2011) · Epidemiology and Psychiatric Sciences · doi:10.1017/s2045796011000187 · Cited by 120 · see citing works

Families and Mental Disorders: From Burden to Empowerment

Lefley, H. P. (2006) · Psychiatric Services · doi:10.1176/appi.ps.57.3.424 · Cited by 31 · see citing works

Families of Children with a Mental Disorder

Gowers, S., & Bryan, C. (2004) · doi:10.1002/0470024712.ch7 · Cited by 7 · see citing works

Time for united action on depression: a Lancet–World Psychiatric Association Commission

Herrman, H., Patel, V., Kieling, C., Berk, M., Buchweitz, C., Cuijpers, P., Furukawa, T. A., Kessler, R. C., Kohrt, B. A., Maj, M., et al. (2022) · The Lancet · doi:10.1016/s0140-6736(21)02141-3 · Cited by 1,104 · see citing works

Mental burden and its risk and protective factors during the early phase of the SARS-CoV-2 pandemic: Systematic review and meta-analyses

Kunzler, A. M., Röthke, N., Günthner, L., Stoffers-Winterling, J., Tüscher, O., Coenen, M., Rehfuess, E., Schwarzer, G., Binder, H., Schmucker, C., et al. (2021) · Globalization and Health · doi:10.1186/s12992-021-00670-y · Cited by 262 · see citing works

The COVID‐19 pandemic impact on wellbeing and mental health in people with psychotic and bipolar disorders

Barrett, E. A., Simonsen, C., Aminoff, S. R., Hegelstad, W. T. V., Lagerberg, T. V., Melle, I. S., Mork, E., & Romm, K. L. (2022) · Brain and Behavior · doi:10.1002/brb3.2559 · Cited by 29 · see citing works

Stress and Burden among Caregivers of Persons with Bipolar Affective Disorder During the COVID-19 Pandemic in India

Sandya, P. D., Shetty, K. V., Jaise, J., Manikappa, S. K., & Pai, N. B. (2022) · Asian Journal of Social Health and Behavior · doi:10.4103/shb.shb_158_21 · Cited by 26 · see citing works

Care difficulties and burden during COVID‐19 pandemic lockdowns among caregivers of people with schizophrenia: A cross‐sectional study

Yasuma, N., Yamaguchi, S., Ogawa, M., Shiozawa, T., Abe, M., Igarashi, M., Kawaguchi, T., Sato, S., Nishi, D., Kawakami, N., et al. (2021) · Neuropsychopharmacology Reports · doi:10.1002/npr2.12171 · Cited by 25 · see citing works

Psychosocial Effects of the COVID-19 Pandemic on Patients With Schizophrenia and Their Caregivers

Caqueo‐Urízar, A., Alfonso Urzúa, M., Ponce-Correa, F., & Ferrer‐Urbina, R. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.729793 · Cited by 18 · see citing works

Perceived stigma, common mental disorders and associated factors among primary caregivers of adult patients with mental illness attending at public hospitals, Harari regional state, Eastern Ethiopia: A multicenter cross-sectional study

Nigussie, K., Tesfaye, D., Bete, T., & Asfaw, H. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1024228 · Cited by 17 · see citing works

Locked out during COVID-19 lockdown—an online survey of relatives of people with psychotic and bipolar disorders in Norway

Aminoff, S. R., Mork, E., Barrett, E. A., Simonsen, C., Hegelstad, W. T. V., Lagerberg, T. V., Melle, I. S., & Romm, K. L. (2022) · BMC Public Health · doi:10.1186/s12889-022-12625-y · Cited by 16 · see citing works

Further Adaptations and Reflections by an Assertive Community Treatment Team to Serve Clients with Severe Mental Illness During COVID-19

Couser, G. P., Taylor-Desir, M. J., Lewis, S., & Griesbach, T. J. (2021) · Community Mental Health Journal · doi:10.1007/s10597-021-00860-3 · Cited by 13 · see citing works

Prevalence of insomnia and its association with quality of life in caregivers of psychiatric inpatients during the COVID-19 pandemic: a network analysis

Chen, P., Zhao, Y., An, F., Li, X.-H., Lam, M. I., Lok, K.-I., Wang, Y., Li, J.-X., Su, Z., Cheung, T. C. C., et al. (2023) · BMC Psychiatry · doi:10.1186/s12888-023-05194-w · Cited by 12 · see citing works

Deepening Depression in Women Balancing Work–Life Responsibilities and Caregiving during the COVID-19 Pandemic: Findings from Gender-Specific Face-to-Face Street Interviews Conducted in Italy

Giusti, L., Mammarella, S., Vecchio, S. D., Salza, A., CASACCHIA, M., & Roncone, R. (2023) · Behavioral Sciences · doi:10.3390/bs13110892 · Cited by 10 · see citing works

Mental Health Family Carer Experiences during COVID-19: A Rapid Scoping Review of the International Literature

Walters, C., & Petrakis, M. (2022) · The British Journal of Social Work · doi:10.1093/bjsw/bcac242 · Cited by 10 · see citing works

Prevalence and sociodemographic configurations of anxiety and depression among caregivers of individuals with mental illness: A meta-analysis and qualitative comparative analysis

Chen, Y., Zhang, L., Zhang, S., Zhang, J., Hong, Y., Li, Q., & Zhou, Y. (2025) · Journal of Affective Disorders · doi:10.1016/j.jad.2025.01.129 · Cited by 9 · see citing works

COVID-19 lockdown – who cares? The first lockdown from the perspective of relatives of people with severe mental illness

Mork, E., Aminoff, S. R., Barrett, E. A., Simonsen, C., Hegelstad, W. T. V., Lagerberg, T. V., Melle, I. S., & Romm, K. L. (2022) · BMC Public Health · doi:10.1186/s12889-022-13458-5 · Cited by 7 · see citing works

‘It feels meaningful’: How informal mental health caregivers in an LGBTQ community interpret their work and their role

Worrell, S., Waling, A., Anderson, J., Lyons, A., Pepping, C. A., & Bourne, A. H. (2023) · Culture Health & Sexuality · doi:10.1080/13691058.2023.2256833 · Cited by 7 · see citing works

Affiliate stigma among primary caregivers of adult patients with severe mental illness: a facility-based cross-sectional study in Addis Ababa, Ethiopia

Handebo, F., Kassim, F. M., Tessema, S. A., & Amare, H. (2025) · BMC Psychiatry · doi:10.1186/s12888-025-07004-x · Cited by 7 · see citing works

Common Mental Disorders Among Informal Primary Caregivers of Adults With Mental Illness During the Coronavirus Disease 2019 Epidemic in Eastern Ethiopia: A Cross-Sectional Study

Abdeta, T., & Desalegn, D. (2021) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2021.676379 · Cited by 7 · see citing works

Care coordination for people living with serious mental illness: understanding the caregiver's perspective

Obegu, P., Nicholls, K., & Alberti, M. (2025) · Frontiers in Health Services · doi:10.3389/frhs.2024.1473235 · Cited by 5 · see citing works

Effect of the Caregivers-to-Caregivers Training Programme on informed caregivers of persons with mental disorders: A pilot study

Jiang, Y. L., Yin, F., Lv, Z. Y., Hou, H. B., Yang, B. X., Liu, Q., Fu, S.-Y., Zhang, J., & Wang, X. Q. (2023) · International Journal of Social Psychiatry · doi:10.1177/00207640231207572 · Cited by 4 · see citing works

Families supporting people with mental health challenges during the COVID-19 pandemic: learnings from a co-designed and co-delivered study

Walters, C., Solich, H., Lawn, S., McDonald, E., & Petrakis, M. (2024) · International Journal of Care and Caring · doi:10.1332/23978821y2024d000000043 · Cited by 4 · see citing works

Knowledge Families Hold: Co‐Production and Co‐Research With Mental Health Family Carers in Understanding Experiences During the COVID‐19 Pandemic

Walters, C., McDonald, E., Sheers, C., Hawkins, K., Solich, H., Anderson, J., Simic, N., Moore, D., Stevenson, T., Lawn, S., et al. (2024) · Health Expectations · doi:10.1111/hex.70093 · Cited by 4 · see citing works

Family Caregivers of Persons Living with Mental Health Conditions

Bakhshy, A. (2021) · Indian Journal of Social Psychiatry · doi:10.4103/ijsp.ijsp_319_21 · Cited by 4 · see citing works

Online mindfulness-based stress reduction improves anxiety and depression status and quality of life in caregivers of patients with severe mental disorders

Duan, D., Wang, H., Tong, L., Ruan, J., Qizhu, W. A. N. G., Chen, Z., Ye, R. U. A. N., & Bao, T. (2024) · Journal of Zhejiang University (Medical Sciences) · doi:10.3724/zdxbyxb-2023-0555 · Cited by 3 · see citing works

Evaluation of perceived family burden, care burden and quality of life of caregivers during the pandemic period

Yıldız, S., Kılıçaslan, A. K., Kurt, O., & Korkmaz, S. (2021) · The Annals of Clinical and Analytical Medicine · doi:10.4328/acam.20501 · Cited by 3 · see citing works

Challenges Experienced by Family Caregivers of Individuals With Severe Mental Illness During the COVID-19 Pandemic: An Integrative Review

Joung, J., & Shin, S. (2023) · Journal of Psychosocial Nursing and Mental Health Services · doi:10.3928/02793695-20230110-01 · Cited by 2 · see citing works

Special issue editorial: Personalized medicine in psychiatry in the COVID-19 era: Fighting the impact of the pandemic on mental health

Perna, G., Cuniberti, F., & Nemeroff, C. B. (2021) · Personalized Medicine in Psychiatry · doi:10.1016/j.pmip.2021.100077 · Cited by 2 · see citing works

The audience impact of an ethnodrama based on the lived experiences of family caregivers of loved ones with a mental illness

Snow, S., Segalowitz, N. S., D’Amico, M., & Mongerson, E. (2023) · Drama Therapy Review · doi:10.1386/dtr_00131_1 · Cited by 1 · see citing works

Online Support Group: Ways to Care for the Caregivers during the Pandemic

Maritska, Z., Nudhar, L., Prananjaya, B. A., Liansari, R. A. M., Parisa, N., Suryani, P. R., Hartanti, M. D., Fathia, R., Triyoga, A., Ramadhan, M. H. A., et al. (2023) · Annals of Indian Psychiatry · doi:10.4103/aip.aip_189_22 · Cited by 1 · see citing works

Stigma and Psychological Help-Seeking Among Caregivers of Individuals with Chronic Mental Illness

Uslu, S., & Aydın, A. (2025) · Psikiyatride Guncel Yaklasimlar - Current Approaches in Psychiatry · doi:10.18863/pgy.1723223 · Cited by 1 · see citing works

Autobiographical memory specificity to attachment-related cues improves in major depression during initial psychodynamic treatment

Nowak, J. A., Nagy, E., Orth, M., Friederich, H., & Nikendei, C. (2026) · Psychotherapy Research · doi:10.1080/10503307.2026.2650153 · Cited by 1 · see citing works

A Positive Cognitive Behavior Therapy based Intervention with a Caregiver of a Patient with Mental Illness Amidst the Covid-19 Pandemic: A Case Study

Khurana, R., & Kumar, N. (2021) · International Journal of Current Research and Review · doi:10.31782/ijcrr.2021.131242 · Cited by 1 · see citing works

Training for Mental Health Volunteers of People Living with Schizophrenia in the COVID-19 Pandemic in Bangkalan City

Santoso, J. D. C. A., Manafe, J. S., Rahmawati, D. T., Gautama, S. M., & Karimah, A. (2023) · Jurnal Psikiatri Surabaya · doi:10.20473/jps.v12i2.42008 · Cited by 1 · see citing works

Empathy, emotional intelligence and cohabitant caregiver stress: caring for persons with severe mental health disorders

Stovall, J., Daniels, L. B., & Slifka, L. M. (2023) · International Journal of Care and Caring · doi:10.1332/239788221x16903916006520 · Cited by 1 · see citing works

Prevalence and factors associated with fear of COVID-19 in military personnel during the second epidemic wave in Peru

Valladares-Garrido, D., Domínguez-Troncos, H., Picón-Reátegui, C. K., Valdiviezo-Morales, C. G., Vera-Ponce, V. J., Failoc‐Rojas, V. E., Pereira-Victorio, C. J., León‐Figueroa, D. A., & Valladares-Garrido, M. J. (2024) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2024.1309957 · Cited by 1 · see citing works

Det, du ikke ved, får pårørende ondt af. Om pårørende til psykisk syge i en coronatid

Eckardt, J. P. (2021) · Tidsskrift for psykisk helsearbeid · doi:10.18261/issn.1504-3010-2021-02-15

Impact of COVID-19 Lock Down on Quality of Life among Primary Caregivers of Individuals with Schizophrenia in Rural Areas

Utomo, U., Mulyadi, E., & Susilawati, E. F. (2023) · Open Access Macedonian Journal of Medical Sciences · doi:10.3889/oamjms.2023.10750

Family Care-givers as Essential Partners in Care: Lessons from a Time of Covid-19

Levasseur, M. A., & Morin, M. (2023) · The British Journal of Social Work · doi:10.1093/bjsw/bcad020

Overcoming challenges in COVID-19 pandemic: A perspective in adaptation of the community mental health service in a teaching hospital

Taib, N. I. A., Midin, M., & Daud, T. I. M. (2023) · AIP conference proceedings · doi:10.1063/5.0127766

When they provide the care

Hines-Martin, V. P. (2024) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2024.04.001

Additional file 1 of Mental burden and its risk and protective factors during the early phase of the SARS-CoV-2 pandemic: systematic review and meta-analyses

Kunzler, A. M., Röthke, N., Günthner, L., Stoffers-Winterling, J. M., Tüscher, O., Coenen, M., Rehfuess, E., Schwarzer, G., Binder, H., Schmucker, C. M., et al. (2021) · Figshare · doi:10.6084/m9.figshare.14337735

Additional file 1 of Prevalence of insomnia and its association with quality of life in caregivers of psychiatric inpatients during the COVID-19 pandemic: a network analysis

Chen, P., Zhao, Y.-J., 安凤荣, Li, X.-H., Lam, M. I., Lok, K.-I., Wang, Y.-Y., Li, J.-X., Su, Z., Cheung, T. C. C., et al. (2023) · Figshare · doi:10.6084/m9.figshare.24564170

Additional file 2 of Mental burden and its risk and protective factors during the early phase of the SARS-CoV-2 pandemic: systematic review and meta-analyses

Kunzler, A. M., Röthke, N., Günthner, L., Stoffers-Winterling, J. M., Tüscher, O., Coenen, M., Rehfuess, E., Schwarzer, G., Binder, H., Schmucker, C. M., et al. (2021) · Figshare · doi:10.6084/m9.figshare.14337738

Psychological Mechanisms and Mental Health in the Face of Current Conflicts and Crises

(2025) · Frontiers research topics · doi:10.3389/978-2-8325-6890-3

Basic care tasks and caregiver stress among family caregivers of adults with mental illness: The moderating role of online video-based learning

Hua, Z. (2026) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2026.152135

Challenges Experienced by Family Caregivers of Individuals With Severe Mental Illness During the COVID-19 Pandemic: An Integrative Review

Joung, J., & Shin, S. (2023) · Journal of Psychosocial Nursing and Mental Health Services · doi:10.3928/02793695-20230110-01 · Cited by 2 · see citing works

Depression, Stress, Anxiety, and Family Burden in Caregivers of Patients with Preexisting Severe Mental Illness and Their Coping Strategies during Omicron Wave of COVID-19 Pandemic

Thakur, M. R., Patil, V., Shakya, P., & Sood, M. (2024) · Indian Journal of Social Psychiatry · doi:10.4103/ijsp.ijsp_326_23

Caregiver burden among relatives of individuals with severe mental illness: a qualitative systematic review

Jacobsen, N. B., Nørgaard, B., & Marcussen, M. (2026) · Nordic Journal of Psychiatry · doi:10.1080/08039488.2026.2687768 · Cited by 1 · see citing works

Impact of COVID-19 pandemic on relapse of individuals with severe mental illness and their caregiver's burden

Nooraeen, S., Bazargan‐Hejazi, S., Naserbakht, M., Vahidi, C., Shojaerad, F., Mousavi, S. S., & Malakouti, S. K. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1086905 · Cited by 8 · see citing works

Posttraumatic Stress Symptoms, Quality of Life, and Stress Burden in Caregivers of Patients With Severe Mental Illness: An Underestimated Health Concern

Rady, A. M., Mouloukheya, T., & Gamal, E. (2021) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2021.623499 · Cited by 27 · see citing works