Health data poverty: an assailable barrier to equitable digital health care
Open accessAbstract
Data-driven digital health technologies have the power to transform health care. If these tools could be sustainably delivered at scale, they might have the potential to provide everyone, everywhere, with equitable access to expert-level care, narrowing the global health and wellbeing gap. Conversely, it is highly possible that these transformative technologies could exacerbate existing health-care inequalities instead. In this Viewpoint, we describe the problem of health data poverty: the inability for individuals, groups, or populations to benefit from a discovery or innovation due to a scarcity of data that are adequately representative. We assert that health data poverty is a threat to global health that could prevent the benefits of data-driven digital health technologies from being more widely realised and might even lead to them causing harm. We argue that the time to act is now to avoid creating a digital health divide that exacerbates existing health-care inequalities and to ensure that no one is left behind in the digital era.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
High-performance medicine: the convergence of human and artificial intelligence
Topol, E. J. (2019) · Nature Medicine · doi:10.1038/s41591-018-0300-7 · Cited by 10,450 · see citing works
Fry, A., Littlejohns, T. J., Sudlow, C., Doherty, N., Adamska, L., Sprosen, T., Collins, R., & Allen, N. E. (2017) · American Journal of Epidemiology · doi:10.1093/aje/kwx246 · Cited by 3,979 · see citing works
Gebru, T., Morgenstern, J., Vecchione, B., Vaughan, J. W., Wallach, H., Daumé, H., & Crawford, K. (2018) · arXiv · doi:10.48550/arxiv.1803.09010 · Cited by 2,474
Gebru, T., Morgenstern, J., Vecchione, B., Vaughan, J. W., Wallach, H., III, H. D., & Crawford, K. (2021) · Communications of the ACM · doi:10.1145/3458723 · Cited by 2,469 · see citing works
The Missing Diversity in Human Genetic Studies
Sirugo, G., Williams, S. M., & Tishkoff, S. A. (2019) · Cell · doi:10.1016/j.cell.2019.02.048 · Cited by 1,516 · see citing works
Do no harm: a roadmap for responsible machine learning for health care
Wiens, J., Saria, S., Sendak, M., Ghassemi, M., Liu, V. X., Doshi-Velez, F., Jung, K., Heller, K., Kale, D., Saeed, M., et al. (2019) · Nature Medicine · doi:10.1038/s41591-019-0548-6 · Cited by 1,266 · see citing works
A clinically applicable approach to continuous prediction of future acute kidney injury
Tomašev, N., Glorot, X., Rae, J. W., Zielinski, M., Askham, H., Saraiva, A., Mottram, A., Meyer, C., Ravuri, S., Protsyuk, I., et al. (2019) · Nature · doi:10.1038/s41586-019-1390-1 · Cited by 1,086 · see citing works
Safran, C., Bloomrosen, M., Hammond, W. E., Labkoff, S., Markel-Fox, S., Tang, P. C., & Detmer, D. E. (2006) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m2273 · Cited by 707 · see citing works
Good intentions are not enough: how informatics interventions can worsen inequality
Veinot, T. C., Mitchell, H., & Ancker, J. S. (2018) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocy052 · Cited by 704 · see citing works
Global strategy on digital health
Dhingra, D., & Dabas, A. (2020) · Indian Pediatrics · doi:10.1007/s13312-020-1789-7 · Cited by 656 · see citing works
Machine Learning and Health Care Disparities in Dermatology
Adamson, A. S., & Smith, A. (2018) · JAMA Dermatology · doi:10.1001/jamadermatol.2018.2348 · Cited by 639 · see citing works
Crawford, A., & Serhal, E. (2020) · Journal of Medical Internet Research · doi:10.2196/19361 · Cited by 630 · see citing works
Khan, S. M., Liu, X., Nath, S., Korot, E., Faes, L., Wagner, S. K., Keane, P. A., Sebire, N. J., Burton, M. J., & Denniston, A. K. (2020) · The Lancet Digital Health · doi:10.1016/s2589-7500(20)30240-5 · Cited by 335 · see citing works
Self-citationEnrolling Pregnant Women: Issues in Clinical Research
Blehar, M. C., Spong, C. Y., Grady, C., et al. (2013) · Women s Health Issues · doi:10.1016/j.whi.2012.10.003 · Cited by 313 · see citing works
Kalkman, S., van Delden, J. J. M., Banerjee, A., Tyl, B., Mostert, M., & van Thiel, G. J. M. W. (2019) · Journal of Medical Ethics · doi:10.1136/medethics-2019-105651 · Cited by 301 · see citing works
Gender bias in research: how does it affect evidence based medicine?
Holdcroft, A. (2007) · Journal of the Royal Society of Medicine · doi:10.1177/014107680710000102 · Cited by 298 · see citing works
Presenting machine learning model information to clinical end users with model facts labels
Sendak, M. P., Gao, M., Brajer, N., & Balu, S. (2020) · npj Digital Medicine · doi:10.1038/s41746-020-0253-3 · Cited by 279 · see citing works
Dermatologic Health Disparities
Buster, K. J., Stevens, E. I., & Elmets, C. A. (2012) · Dermatologic Clinics · doi:10.1016/j.det.2011.08.002 · Cited by 244 · see citing works
Board on Health Sciences Policy, & Board on Health Care Services (2009) · National Academies Press eBooks · doi:10.17226/12458 · Cited by 240 · see citing works
Geographic Distribution of US Cohorts Used to Train Deep Learning Algorithms
Kaushal, A., Altman, R., & Langlotz, C. (2020) · JAMA · doi:10.1001/jama.2020.12067 · Cited by 239 · see citing works
Clinical Trial Participants’ Views of the Risks and Benefits of Data Sharing
Mello, M. M., Lieou, V., & Goodman, S. N. (2018) · New England Journal of Medicine · doi:10.1056/nejmsa1713258 · Cited by 237 · see citing works
Sheridan, R., Martin-Kerry, J., Hudson, J., Parker, A., Bower, P., & Knapp, P. (2020) · Trials · doi:10.1186/s13063-020-4197-3 · Cited by 223 · see citing works
Racial disparities in melanoma survival
Dawes, S. M., Tsai, S., Gittleman, H. R., Barnholtz‐Sloan, J. S., & Bordeaux, J. S. (2016) · Journal of the American Academy of Dermatology · doi:10.1016/j.jaad.2016.06.006 · Cited by 197 · see citing works
Under-representation of minority ethnic groups in research--call for action
Redwood, S., & Gill, P. S. (2013) · British Journal of General Practice · doi:10.3399/bjgp13x668456 · Cited by 182 · see citing works
The Dataset Nutrition Label: A Framework To Drive Higher Data Quality Standards
Holland, S., Hosny, A., Newman, S., Joseph, J., & Chmielinski, K. (2018) · arXiv · doi:10.48550/arxiv.1805.03677 · Cited by 175 · see citing works
Practical guidance on artificial intelligence for health-care data
Ghassemi, M., Naumann, T., Schulam, P., Beam, A. L., Chen, I. Y., & Ranganath, R. (2019) · The Lancet Digital Health · doi:10.1016/s2589-7500(19)30084-6 · Cited by 159 · see citing works
How to Get Older People Included in??Clinical Studies
Witham, M. D., & McMurdo, M. E. T. (2007) · Drugs & Aging · doi:10.2165/00002512-200724030-00002 · Cited by 119 · see citing works
Quantifying additional COVID-19 symptoms will save lives
Menni, C., Sudre, C. H., Steves, C. J., Sebastien Ourselin, A., & Spector, T. D. (2020) · The Lancet · doi:10.1016/s0140-6736(20)31281-2 · Cited by 92 · see citing works
Health informatics and health equity: improving our reach and impact
Veinot, T. C., Ancker, J. S., & Henry, S. B. (2019) · Journal of the American Medical Informatics Association · doi:10.1093/jamia/ocz132 · Cited by 90 · see citing works
Lee, E. W. J., & Viswanath, K. (2020) · Journal of Medical Internet Research · doi:10.2196/16377 · Cited by 74 · see citing works
Five Safes: designing data access for researchPreprint
Desai, T., Ritchie, F., & Welpton, R. (2016) · RePEc: Research Papers in Economics · Cited by 66 · see citing works
The normal range: it is not normal and it is not a range
Whyte, M., & Kelly, P. A. (2018) · Postgraduate Medical Journal · doi:10.1136/postgradmedj-2018-135983 · Cited by 65 · see citing works
Ethical issues in health research in children
Fernandez, C. V., & Canadian Paediatric Society (CPS) (2008) · Paediatrics & Child Health · doi:10.1093/pch/13.8.707 · Cited by 56 · see citing works
Widespread smell testing for COVID-19 has limited application – Authors' reply
Menni, C., Sudre, C. H., Steves, C. J., et al. (2020) · The Lancet · doi:10.1016/s0140-6736(20)32316-3 · Cited by 6 · see citing works
Flagged first, then by citations
Research works printed but not linked: 2
- Chen IY, Pierson E, Rose S, Joshi S, Ferryman K, Ghassemi M. Ethical machine learning in health care. ArXiv 2020; published online Oct 8. https://arXiv:2009.10576 (preprint).
- Mitchell M, Wu S, Zaldivar A, et al. Model cards for model reporting. ArXiv 2019; published online Jan 14. https://arXiv:1810.03993v2 (preprint).
Cited by
Sorted by citations
Collins, G. S., Moons, K. G. M., Dhiman, P., Riley, R. D., Beam, A. L., Van Calster, B., Ghassemi, M., Liu, X., Reitsma, J. B., van Smeden, M., et al. (2024) · BMJ · doi:10.1136/bmj-2023-078378 · Cited by 4,718 · see citing works
“92 One important aspect of fairness is ensuring that the data used to develop or evaluate prediction models are representative and diverse, and that limitations of data bias are acknowledged, dealt with, and mitigated during model development.”
BackgroundSelf-citationBrauer, M., Roth, G. A., Aravkin, A. Y., Zheng, P., Abate, K. H., Abate, Y. H., Abbafati, C., Abbasgholizadeh, R., Abbasi, M. A., Abbasian, M., et al. (2024) · The Lancet · doi:10.1016/s0140-6736(24)00933-4 · Cited by 2,884 · see citing works
Self-citationMoons, K. G. M., Damen, J. A. A., Kaul, T., Hooft, L., Andaur Navarro, C., Dhiman, P., Beam, A. L., Van Calster, B., Celi, L. A., Denaxas, S., et al. (2025) · BMJ · doi:10.1136/bmj-2024-082505 · Cited by 1,069 · see citing works
Self-citation(2024) · BMJ · doi:10.1136/bmj.q902 · Cited by 416 · see citing works
“92 One important aspect of fairness is ensuring that the data used to develop or evaluate prediction models are representative and diverse, and that limitations of data bias are acknowledged, dealt with, and mitigated during model development.”
Nasarian, E., Alizadehsani, R., Acharya, U. R., & Tsui, K.-L. (2024) · Information Fusion · doi:10.1016/j.inffus.2024.102412 · Cited by 207 · see citing works
An introduction to digital determinants of health
Chidambaram, S., Jain, B., Jain, U., Mwavu, R., Baru, R., Thomas, B., Greaves, F., Jayakumar, S., Jain, P., Rojo, M., et al. (2024) · PLOS Digital Health · doi:10.1371/journal.pdig.0000346 · Cited by 175 · see citing works
Addressing algorithmic bias and the perpetuation of health inequities: An AI bias aware framework
Agarwal, R., Bjarnadottir, M., Rhue, L., Dugas, M., Crowley, K., Clark, J., & Gao, G. (2023) · Health Policy and Technology · doi:10.1016/j.hlpt.2022.100702 · Cited by 170 · see citing works
González-Gonzalo, C., Thee, E. F., Klaver, C. C. W., Lee, A. Y., Schlingemann, R. O., Tufail, A., Verbraak, F., & Sánchez, C. I. (2022) · Progress in Retinal and Eye Research · doi:10.1016/j.preteyeres.2021.101034 · Cited by 103 · see citing works
Wu, J., Liu, X., Li, M., Li, W., Su, Z., Lin, S., Garay, L., Zhang, Z., Zhang, Y., Zeng, Q., et al. (2024) · NEJM AI · doi:10.1056/aira2400012 · Cited by 41 · see citing works
Self-citationTowards evidence-based practice 2.0: leveraging artificial intelligence in healthcare
Nilsen, P., Sundemo, D., Heintz, F., Neher, M., Nygren, J., Svedberg, P., & Petersson, L. (2024) · Frontiers in Health Services · doi:10.3389/frhs.2024.1368030 · Cited by 39 · see citing works
Foláyan, M. O., Ishola, A. G., Bhayat, A., El Tantawi, M., & Ndembi, N. (2025) · Frontiers in Public Health · doi:10.3389/fpubh.2025.1539805 · Cited by 25 · see citing works
Marchesi, R., Micheletti, N., I-Hsien Kuo, N., Barbieri, S., Jurman, G., & Osmani, V. (2025) · PLOS Computational Biology · doi:10.1371/journal.pcbi.1013080 · Cited by 29 · see citing works
- Authors
- Ibrahim, H., Liu, X., Zariffa, N., Morris, A. D., & Denniston, A. K.
- Affiliations
- University Hospitals Birmingham NHS Foundation Trust (GB)
- Health Data Research UK (GB)
- Corresponding author
- Denniston, Alastair K
- Venue
- The Lancet Digital Health
- Publisher
- Elsevier BV
- Published
- 2021-04
- Volume
- 3
- Issue
- 4
- Pages
- e260-e265
- ISSN
- 2589-7500 (ISSN-L)
- OpenAlex
- W3135721250
- Cited by
- 326
- References
- 34
- Citations by year
- 2026: 59 · 2025: 71 · 2024: 64 · 2023: 72 · 2022: 47 · 2021: 13
- FWCI
- 14.24
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- The Lancet Digital Health (publishedVersion, cc-by)
- PubMed (publishedVersion)
- University of Birmingham Research Portal (University of Birmingham) (publishedVersion, cc-by)
- Funders
- National Institute for Health and Care Research
- Department of Health and Social Care
- Medical Research Council (MC_PC_13040, MR/M501633/1)
- Topics
- Health Sciences › Medicine › Health Informatics › Artificial Intelligence in Healthcare and Education
- Social Sciences › Safety Research › Ethics and Social Impacts of AI
- Social Sciences › Health › Health disparities and outcomes
- Keywords
- data scarcity, health care inequality, digital divide, global health inequities
- MeSH terms
- Digital Technology, Diffusion of Innovation, Humans, Biomedical Technology, Healthcare Disparities, Datasets as Topic
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review