Behavioural Problems and Distress among Caregivers of People with Dementia
Abstract
This paper seeks to identify specific problem behaviours related to the distress experienced by informal caregivers of dementia victims. Analyses are conducted using a random sample of caregivers rather than a restricted clinical sample. Distress is measured in terms of both depression and caregiver burden. The findings reveal that specific behaviours on the part of the care receiver are strong correlates of the distress experienced by caregivers. In particular, aimlessness, aggressive behaviours, forgetfulness, and restlessness are correlated with heightened feelings of burden. Apathy or a lack of interest in daily activities is strongly correlated with both feelings of burden and depression. The identification of specific problem behaviours suggests where efforts should be placed in order to alleviate the distress experienced by informal caregivers.
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Studies on cancer and non-cancer caregivers showed perceived burden as an important predictor of psychological morbidity.
“Studies on cancer and non-cancer caregivers showed perceived burden as an important predictor of psychological morbidity [37, 38].”
From Systematic review of caregiver burden, unmet needs and quality-of-life among informal caregivers of patients with pancreatic cancer (2023) · cites this paper as [38]
Cites
Families Caring for Elders in Residence: Issues in the Measurement of Burden
Poulshock, S. W., & Deimling, G. T. (1984) · Journal of Gerontology · doi:10.1093/geronj/39.2.230 · Cited by 582 · cited 3× · see citing works
“Poulshock and Deimling (1984) and Deimling and Bass (1986) conducted factor analyses of 23 items focusing on symptoms of mental impairment and identified three factors: (1) cognitive incapacity (including items referring to forgetfulness and confusion); (2) impaired social functioning (with items…”
BackgroundMethodMorris, L. W., Morris, R. G., & Britton, P. G. (1988) · British Journal of Medical Psychology · doi:10.1111/j.2044-8341.1988.tb02784.x · Cited by 138 · cited 1× · see citing works
“(1982) identify night-time wandering, incontinence, violence, and apathy as being particularly difficult for carers while Morris et al. (1988) identify incontinence, overly demanding behaviour, and the need for constant supervision as the most problematic for carers.”
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Pinquart, M., & Sörensen, S. (2003) · The Journals of Gerontology: Series B · doi:10.1093/geronb/58.2.p112 · Cited by 1,108 · see citing works
Ornstein, K., & Gaugler, J. E. (2012) · International Psychogeriatrics · doi:10.1017/s1041610212000737 · Cited by 294 · see citing works
Feast, A., Moniz-Cook, E., Stoner, C., Charlesworth, G., & Orrell, M. (2016) · International Psychogeriatrics · doi:10.1017/s1041610216000922 · Cited by 290 · see citing works
Physical activity programs for persons with dementia
Forbes, D., Forbes, S., Morgan, D. G., Markle-Reid, M., Wood, J., & Culum, I. (2008) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd006489.pub2 · Cited by 194 · see citing works
Chong, E., Crowe, L., Mentor, K., Pandanaboyana, S., & Sharp, L. (2023) · Supportive Care in Cancer · doi:10.1007/s00520-022-07468-7 · Cited by 86 · see citing works
“Studies on cancer and non-cancer caregivers showed perceived burden as an important predictor of psychological morbidity [37, 38].”
The Impact of Work Interferences on Family Caregiver Outcomes
Colin Reid, R., Stajduhar, K. I., & Chappell, N. L. (2010) · Journal of Applied Gerontology · doi:10.1177/0733464809339591 · Cited by 66 · see citing works
Self-citationForbes, D. A., Markle-Reid, M., Hawranik, P., Peacock, S., Kingston, D., Morgan, D., Henderson, S., Leipert, B., & Jansen, S. L. (2008) · Home Health Care Services Quarterly · doi:10.1080/01621420802022548 · Cited by 46 · see citing works
Chappell, N. L., & Dujela, C. (2009) · The International Journal of Aging and Human Development · doi:10.2190/ag.69.3.d · Cited by 18 · see citing works
Self-citation
- Authors
- Chappell, N. L., & Penning, M.
- Affiliations
- University of Victoria (CA)
- Venue
- Ageing and Society
- Publisher
- Cambridge University Press (CUP)
- Published
- 1996-01
- Volume
- 16
- Issue
- 1
- Pages
- 57-73
- ISSN
- 0144-686X (ISSN-L)
- 1469-1779
- OpenAlex
- W2110728192
- Cited by
- 78
- References
- 2
- Citations by year
- 2025: 1 · 2023: 1 · 2022: 2 · 2021: 2 · 2020: 1 · 2017: 1 · 2016: 7 · 2015: 2 · 2014: 1 · 2013: 2 · 2012: 3
- FWCI
- 1.57
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Ageing and Society (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia, informal caregivers, caregiver distress, caregiver burden, depression, behavioral problems, apathy, aggression, forgetfulness, restlessness, caregiver well-being
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