Availability and acceptability of Canadian home and community-based services: perspectives of family caregivers of persons with dementia
Abstract
Thirty-five percent of Canadians over the age of 85 have dementia, and up to 90% of their home care is provided by family and friends. The purpose of this study was to explore the use and satisfaction with home and community-based services for persons with dementia from the perspectives of family caregivers. The study was conducted using an interpretive, descriptive, qualitative approach. Six focus groups (N = 36) and three personal interviews were conducted with rural and urban caregivers in Ontario, Manitoba, and Saskatchewan, Canada. Using Lubrosky's (1994) thematic analysis, the overarching themes identified were availability and acceptability of services. The findings suggest a need for an integrated continuing care model that includes the person living with dementia and their family caregivers as partners in care, addresses all of the determinants of health, and embraces sensitivity, diversity, flexibility, and supportive services to enhance the availability and acceptability of Canadian home and community-based services.
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Forbes and colleagues (2008) previously identified the availability and acceptability of formal services as central to positive home and community care experiences.
“While few frameworks for quality dementia home care exist for use in general health settings [18], Forbes and colleagues (2008) previously identified the availability and acceptability of formal services as central to positive home and community care experiences.”
From Towards defining quality in home care for persons living with dementia (2022) · cites this paper as Forbes et al., 2008
Supporting people with dementia in the community requires available and acceptable home care services.
“From an academic perspective, we confirm previous evidence that supporting people with dementia in the community requires available and acceptable home care services [16,26].”
From Towards defining quality in home care for persons living with dementia (2022) · cites this paper as [26]
The study's findings align with Forbes et al.'s earlier work showing that inflexible care contributes to dissatisfaction with care and perceived burden among family caregivers.
“Study findings align with what was found in Forbes et al.’s earlier work on inflexible care as contributing to dissatisfaction with care and perceived burden among family caregivers [26].”
From Towards defining quality in home care for persons living with dementia (2022) · cites this paper as [26]
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Morrisby, C., Joosten, A., & Ciccarelli, M. (2018) · International Psychogeriatrics · doi:10.1017/s1041610217001491 · Cited by 81 · see citing works
Towards defining quality in home care for persons living with dementia
Saragosa, M., Jeffs, L., Okrainec, K., & Kuluski, K. (2022) · PLOS ONE · doi:10.1371/journal.pone.0274269 · Cited by 10 · see citing works
- Authors
- Forbes, D. A., Markle-Reid, M., Hawranik, P., Peacock, S., Kingston, D., Morgan, D., Henderson, S., Leipert, B., & Jansen, S. L.
- Affiliations
- Western University (CA)
- University of Manitoba (CA)
- University of Alberta (CA)
- McMaster University (CA)
- University of Saskatchewan (CA)
- Corresponding author
- Forbes, Dorothy A.
- Venue
- Home Health Care Services Quarterly
- Publisher
- Informa UK Limited
- Published
- 2008-06-06
- Volume
- 27
- Issue
- 2
- Pages
- 75-99
- ISSN
- 0162-1424 (ISSN-L)
- 1545-0856
- OpenAlex
- W1982577239
- Cited by
- 46
- References
- 32
- Citations by year
- 2024: 1 · 2023: 1 · 2022: 3 · 2021: 5 · 2020: 2 · 2019: 8 · 2018: 1 · 2017: 2 · 2016: 1 · 2015: 6 · 2014: 3 · 2013: 1 · 2012: 4
- FWCI
- 1.87
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Home Health Care Services Quarterly (publishedVersion)
- PubMed (publishedVersion)
- Scholarship@Western (Western University) (submittedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Keywords
- dementia, family caregivers, home and community-based services, service availability, service acceptability, continuing care, integrated care model, caregiver satisfaction, older adults, health determinants, partnership in care
- MeSH terms
- Aged, 80 and over, Canada, Consumer Behavior, Dementia, Family, Female, Health Services Accessibility, Home Care Services, Humans, Male, Rural Population, Urban Population, Caregivers, Focus Groups
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