Cited by 171Dementia and Cognitive Impairment ResearchNursing care and researchPalliative Care and End-of-Life Issues

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Correlates of objective and subjective measures of caregiver burden among dementia caregivers: influence of unmet patient and caregiver dementia-related care needs

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Hughes, Travonia B., Black, Betty S., Albert, Marilyn, Gitlin, Laura N., Johnson, Deirdre M., Lyketsos, Constantine G., Samus, Quincy M.·2014·International Psychogeriatrics

DOI 10.1017/s1041610214001240PMC PMC4283462

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Abstract

BACKGROUND: This study examines the relationship of unmet dementia-related care needs of community-dwelling persons, and their caregivers (CGs), to measures of caregiver burden. METHODS: Cross-sectional baseline data were analyzed from participants in a dementia care coordination trial of community-residing persons with dementia (PWD) (n = 254) and their caregivers (n = 246). Participants were recruited from Northwest Baltimore, Maryland. The Zarit Burden Inventory (ZBI) was used to measure subjective caregiver burden. Objective burden was measured by estimating the total hours per week spent doing things for the PWD and/or how many hours CGs missed paid work in the prior month due to caregiving responsibilities. The Johns Hopkins Dementia Care Needs Assessment was used to identify unmet dementia-related care needs. Bivariate and multivariate linear regressions examined the relationship of unmet needs, demographic, clinical, or functional characteristics with caregiver burden measures. RESULTS: In adjusted multivariable models, patient neuropsychiatric symptoms and caregiver unmet emotional needs explained 22% of the variance in ZBI scores. In adjusted multivariable models, caregiver need for respite, patient functional dependency, and caregiver unmet specialty medical needs explained 26% of the variance in the hours per week spent caregiving. PWD's level of functional dependency was the sole correlate of missed time at work, explaining 11% of the variance. CONCLUSIONS: Addressing potentially modifiable unmet caregiver needs may reduce subjective and objective caregiver burden.

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Authors: Hughes, T. B., Black, B. S., Albert, M., Gitlin, L. N., Johnson, D. M., Lyketsos, C. G., & Samus, Q. M.
Affiliations: Johns Hopkins University (US)
Corresponding author: Samus, Quincy M.
ORCID: Albert, Marilyn
Gitlin, Laura N.
Lyketsos, Constantine G.
Samus, Quincy M.
Venue: International Psychogeriatrics
Publisher: Elsevier BV
Published: 2014-11
Volume: 26
Issue: 11
Pages: 1875-1883
ISSN: 1041-6102 (ISSN-L)
DOI: 10.1017/s1041610214001240
PMC: PMC4283462
OpenAlex: W2085222118
Cited by: 171
References: 22
Citations by year: 2026: 5 · 2025: 10 · 2024: 13 · 2023: 10 · 2022: 23 · 2021: 33 · 2020: 25 · 2019: 9 · 2018: 21 · 2017: 9 · 2016: 7 · 2015: 6
FWCI: 5.59
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by-nc-nd
www.elsevier.com/tdm/userlicense/1.0/ (tdm)
www.elsevier.com/legal/tdmrep-license (tdm)
creativecommons.org/licenses/by-nc-nd/4.0/ (vor, 3713 d)
Locations: International Psychogeriatrics (publishedVersion, cc-by-nc-nd)
PubMed (publishedVersion)
Europe PMC (PubMed Central) (acceptedVersion)
PubMed Central (acceptedVersion)
Funders: National Institute on Aging (T32AG027668)
National Institute of Mental Health (K01MH085142)
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Health Sciences › Nursing › Research and Theory › Nursing care and research
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
Keywords: caregiver burden, dementia caregivers, unmet care needs, objective burden, subjective burden, Zarit Burden Inventory, neuropsychiatric symptoms, respite care, functional dependencies
MeSH terms: Aged, Aged, 80 and over, Cross-Sectional Studies, Dementia, Female, Health Services Needs and Demand, Humans, Male, Surveys and Questionnaires, Baltimore, Caregivers, Cost of Illness

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Correlates of objective and subjective measures of caregiver burden among dementia caregivers: influence of unmet patient and caregiver dementia-related care needs

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