Do services meet the needs of people with dementia and carers living in the community? A scoping review of the international literature
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BACKGROUND: Providing effective support to the increasing number of people with dementia to remain at home is a challenge for families, health professionals, service providers, and governments worldwide. The aim of this paper was to summarize and disseminate the current international research evidence on the met and unmet needs of people with dementia and their carers, to inform researchers and policy-makers. METHOD: A scoping review methodology was used to guide a search of studies published between 2004 and 2015 using specified search terms; 27 studies relevant to the aim were included. A constant comparison approach was used to thematically analyze the data. RESULTS: Holistic needs encompassing basic human survival, medical, financial, and social needs were experienced by people with dementia and carers, regardless of country or methodology used to collect data. A gap was identified frequently between what was needed and the supports that were received; this gap encompassed quantity, quality, and flexibility of services underpinned by service delivery models. CONCLUSION: The needs of people with dementia and their carers were diverse and not always effectively met by the services designed to support them. Recommendations are offered to service providers, policy-makers, and researchers to support more effective service provision tailored to meet the needs of people with dementia and their carers while they are living in the community.
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Dissatisfaction with service quality, notably the lack of responsiveness and flexibility to the holistic needs of patient-caregiver dyads, was found in the international caregiver literature.
“Dissatisfaction with service quality, notably the lack of responsiveness and flexibility to the holistic needs of patient-caregiver dyads, was found in the international caregiver literature [13].”
From Towards defining quality in home care for persons living with dementia (2022) · cites this paper as [13]
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- Authors
- Morrisby, C., Joosten, A., & Ciccarelli, M.
- Affiliations
- Curtin University (AU)
- Corresponding author
- Morrisby, Claire
- Venue
- International Psychogeriatrics
- Publisher
- Elsevier BV
- Published
- 2018-01
- Volume
- 30
- Issue
- 1
- Pages
- 5-14
- ISSN
- 1041-6102 (ISSN-L)
- OpenAlex
- W2743034671
- Cited by
- 81
- References
- 49
- Citations by year
- 2026: 6 · 2025: 11 · 2024: 7 · 2023: 9 · 2022: 20 · 2021: 13 · 2020: 9 · 2019: 6
- FWCI
- 0.62
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- International Psychogeriatrics (publishedVersion, cc-by-nc-nd)
- PubMed (publishedVersion)
- Research Bank (Australian Catholic University) (submittedVersion)
- eSpace (Curtin University) (submittedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Health Sciences › Health Professions › General Health Professions › Aging, Elder Care, and Social Issues
- Keywords
- dementia, caregivers, community-dwelling people with dementia, unmet needs, service gaps, service delivery models, home care support, service delivery, family caregivers
- MeSH terms
- Aged, Dementia, Home Care Services, Humans, Social Support, Caregivers, Outcome Assessment, Health Care, Qualitative Research, Independent Living
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