Identifying Unmet Needs of Family Dementia Caregivers: Results of the Baseline Assessment of a Cluster-Randomized Controlled Intervention Trial
Open accessAbstract
Background: Caregivers providing informal care for people with dementia (PwD) often report unmet needs, burden, and health impairments. Optimal support for family dementia caregivers will likely benefit from better understanding and assessment of the prevalence and types of caregivers’ unmet needs and associated socio-demographic and clinical characteristics. Objective: The present study investigates 1) the number and types of caregivers’ unmet needs, 2) socio-demographic and clinical characteristics of both PwD and caregivers, and 3) caregivers’ burden and health-related outcomes that are related to caregivers’ unmet needs. Methods: The present analyses are based on cross-sectional data of n = 226 dyads of caregivers and their community-dwelling PwD participating in a comprehensive standardized, computer-based caregivers’ needs assessment within a general practitioner (GP)-based, cluster-randomized intervention trial. Results: A total of n = 505 unmet needs were identified for n = 171 caregivers from the intervention group at baseline. Only 24.3% caregivers reported no unmet need ( n = 55), whereas 75.7% caregivers had at least one unmet need ( n = 171). Caregivers had on average 2.19 unmet needs ( mean = 2.19, SD = 2.15). Specifically, 53.1% of caregivers had one up to three unmet needs ( n = 120), 18.6% ( n = 42) had three up to six unmet needs, and 4.0% ( n = 9) had more than six unmet needs. Discussion: Our results underline the importance of a comprehensive needs assessment for family dementia caregivers to develop and implement concepts that can provide family dementia caregivers with optimal support.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The general unmet needs of caregivers might be a better predictor for care than caregiver burden.
“However, our results makes an unique contribution to dementia research in Latin America by underlying that the general unmet needs of caregivers might be a better predictor for care and thus should be taken into account [12].”
From Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges (2025) · cites this paper as [12]
The Discussion (page unavailable) says caregivers’ unmet needs should be assessed to guide targeted support, and the Results link unmet needs with several dimensions of caregiver burden. The paper does not establish that unmet needs predict care better than caregiver burden; its analyses examine their association rather than compare their predictive value. (LLM, conf=0.86)
Experimental — accuracy not yet measuredUnmet needs are not limited to people with dementia; caregivers also have their own set of needs that, if neglected, can exacerbate the caregiving burden.
“Unmet needs are not limited to PWD; caregivers also have their own set of needs that, if neglected, can exacerbate the caregiving burden [11, 12].”
From Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges (2025) · cites this paper as [12]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
WARE, J. E., KOSINSKI, M., & KELLER, S. D. (1996) · Medical Care · doi:10.1097/00005650-199603000-00003 · Cited by 17,392 · cited 1× · see citing works
“For the present analysis, the variables under investigation concerning caregivers were age, sex, relation to the PwD, education, hours spent for caregiving, employment status, income per month, caregiver burden (Berlin inventory of caregivers’ burden with dementia patients- BIZAD [30]), physical and mental health (12-…”
MethodThe brief symptom inventory: an introductory report.
Derogatis, L. R., & Melisaratos, N. (1983) · Psychological Medicine · doi:10.1017/s0033291700048017 · Cited by 6,650 · see citing works
Caregiver burden among dementia patient caregivers: A review of the literature
Etters, L., Goodall, D., & Harrison, B. E. (2008) · Journal of the American Academy of Nurse Practitioners · doi:10.1111/j.1745-7599.2008.00342.x · Cited by 1,112 · see citing works
Caregiver burden for informal caregivers of patients with dementia: a systematic review
Chiao, C. ‐., Wu, H. ‐., & Hsiao, C. ‐. (2015) · International Nursing Review · doi:10.1111/inr.12194 · Cited by 829 · see citing works
Predictors of caregiver burden in caregivers of individuals with dementia
Kim, H., Chang, M., Rose, K., & Kim, S. (2012) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2011.05787.x · Cited by 573 · see citing works
The Bayer Activities of Daily Living Scale (B-ADL)
Hindmarch, I., Lehfeld, H., de Jongh, P., & Erzigkeit, H. (1998) · Dementia and Geriatric Cognitive Disorders · doi:10.1159/000051195 · Cited by 466 · see citing works
Multivariate models of subjective caregiver burden in dementia: A systematic review
van der Lee, J., Bakker, T. J. E. M., Duivenvoorden, H. J., & Dröes, R.-M. (2014) · Ageing Research Reviews · doi:10.1016/j.arr.2014.03.003 · Cited by 372 · see citing works
Hearing Their Voice: A Systematic Review of Dementia Family Caregivers’ Needs
McCabe, M., You, E., & Tatangelo, G. (2016) · The Gerontologist · doi:10.1093/geront/gnw078 · Cited by 300 · see citing works
Ornstein, K., & Gaugler, J. E. (2012) · International Psychogeriatrics · doi:10.1017/s1041610212000737 · Cited by 294 · see citing works
Validität und Reliabilität einer deutschen Version der Geriatrischen Depressionsskala (GDS)
Gauggel, S., & Birkner, B. (1999) · Zeitschrift für Klinische Psychologie und Psychotherapie · doi:10.1026//0084-5345.28.1.18 · Cited by 236 · see citing works
Effectiveness and Safety of Dementia Care Management in Primary Care: A Randomized Clinical Trial
Thyrian, J. R., Hertel, J., Wucherer, D., Eichler, T., Michalowsky, B., Dreier-Wolfgramm, A., Zwingmann, I., Kilimann, I., Teipel, S., & Hoffmann, W. (2017) · JAMA Psychiatry · doi:10.1001/jamapsychiatry.2017.2124 · Cited by 190 · see citing works
Self-citationHughes, T. B., Black, B. S., Albert, M., Gitlin, L. N., Johnson, D. M., Lyketsos, C. G., & Samus, Q. M. (2014) · International Psychogeriatrics · doi:10.1017/s1041610214001240 · Cited by 171 · see citing works
Eichler, T. S., Thyrian, J. R., Hertel, J., Köhler, L., Wucherer, D., Dreier, A., Michalowsky, B., Teipel, S. J., & Hoffmann, W. U. (2014) · Journal of Alzheimer s Disease · doi:10.3233/jad-140354 · Cited by 119 · see citing works
Self-citationThyrian, J. R., Fiß, T., Dreier, A., Böwing, G., Angelow, A., Lueke, S., Teipel, S. J., Fleßa, S., Grabe, H. J., Freyberger, H. J., et al. (2012) · Trials · doi:10.1186/1745-6215-13-56 · Cited by 119 · see citing works
Self-citationMeasuring dementia carers' unmet need for services - an exploratory mixed method study
Stirling, C., Andrews, S., Croft, T., Vickers, J. C., Turner, P. A., & Robinson, A. (2010) · BMC Health Services Research · doi:10.1186/1472-6963-10-122 · Cited by 114 · see citing works
Rates of formal diagnosis of dementia in primary care: The effect of screening
Eichler, T. S., Thyrian, J. R., Hertel, J., Michalowsky, B., Wucherer, D., Dreier, A., Kilimann, I., Teipel, S. J., & Hoffmann, W. U. (2015) · Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring · doi:10.1016/j.dadm.2014.11.007 · Cited by 91 · see citing works
Self-citationNegative Caregiving Effects Among Caregivers of Veterans With Dementia
Bass, D. M., Judge, K. S., Snow, A. L., WILSON, N. L., Looman, W. J., McCarthy, C. A., Morgan, R. O., Ablorh-Odjidja, C., & Kunik, M. E. (2012) · American Journal of Geriatric Psychiatry · doi:10.1097/jgp.0b013e31824108ca · Cited by 90 · see citing works
Perceived unmet needs of informal caregivers of people with dementia in Singapore
Vaingankar, J. A., Subramaniam, M., Picco, L., Eng, G. K., Shafie, S., Sambasivam, R., Zhang, Y. J., Sagayadevan, V., & Chong, S. A. (2013) · International Psychogeriatrics · doi:10.1017/s1041610213001051 · Cited by 89 · see citing works
Practical clinical tool to monitor dementia symptoms: the HABC-Monitor
Monahan, Boustani, Alder, Galvin, J. E., Perkins, A. J., Healey, Chehresa, Shepard, Bubp, Frame, et al. (2012) · Clinical Interventions in Aging · doi:10.2147/cia.s30663 · Cited by 78 · see citing works
Meaney, A. M., Croke, M., & Kirby, M. (2005) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.1284 · Cited by 76 · see citing works
Eichler, T. S., Thyrian, J. R., Dreier, A., Wucherer, D., Köhler, L., Fiß, T., Böwing, G., Michalowsky, B., & Hoffmann, W. U. (2013) · International Psychogeriatrics · doi:10.1017/s1041610213001786 · Cited by 70 · see citing works
Self-citationThe emotional ramifications of unmet need in dementia caregiving
Gaugler, J. E., Anderson, K. A., Leach, C. R., Smith, C. D., Schmitt, F. A., & Mendiondo, M. S. (2004) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/153331750401900605 · Cited by 69 · see citing works
The Carers' Needs Assessment for Dementia (CNA-D): development, validity and reliability
Wancata, J., Krautgartner, M., Berner, J., Alexandrowicz, R. W., Unger, A., Kaiser, G., Marquart, B., & Weiß, M. (2005) · International Psychogeriatrics · doi:10.1017/s1041610205001699 · Cited by 68 · see citing works
Cohen-Mansfield, J., & Frank, J. (2008) · The Gerontologist · doi:10.1093/geront/48.4.505 · Cited by 68 · see citing works
Dementia Care and General Physicians - a Survey on Prevalence, Means, Attitudes and Recommendations
Thyrian, J. R., & Hoffmann, W. U. (2012) · Central European Journal of Public Health · doi:10.21101/cejph.a3751 · Cited by 55 · see citing works
Self-citationBangerter, L. R., Griffin, J. M., Zarit, S. H., & Havyer, R. (2019) · Journal of Applied Gerontology · doi:10.1177/0733464817705959 · Cited by 54 · see citing works
Berliner Inventar zur Angehörigenbelastung - Demenz (BIZA-D)
Zank, S., Schacke, C., & Leipold, B. (2006) · Zeitschrift für Klinische Psychologie und Psychotherapie · doi:10.1026/1616-3443.35.4.296 · Cited by 49 · see citing works
Eichler, T. S., Thyrian, J. R., Fredrich, D., Köhler, L., Wucherer, D., Michalowsky, B., Dreier, A., & Hoffmann, W. U. (2014) · International Psychogeriatrics · doi:10.1017/s1041610214000830 · Cited by 46 · see citing works
Self-citationZwingmann, I., Hoffmann, W. U., Michalowsky, B., Dreier, A., Hertel, J., Wucherer, D., Eichler, T. S., Kilimann, I., Thiel, F., Teipel, S. J., et al. (2017) · Aging & Mental Health · doi:10.1080/13607863.2017.1399341 · Cited by 39 · see citing works
Self-citationCarer assessment: continuing tensions and dilemmas for social care practice
Seddon, D., & Robinson, C. (2014) · Health & Social Care in the Community · doi:10.1111/hsc.12115 · Cited by 38 · see citing works
Mansfield, E., Boyes, A. W., Bryant, J., & Sanson‐Fisher, R. (2017) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.4642 · Cited by 38 · see citing works
Overlooking Informal Dementia Caregivers' Burden
Riedel, O., Klotsche, J., & Wïttchen, H. (2016) · Research in Gerontological Nursing · doi:10.3928/19404921-20160531-02 · Cited by 35 · see citing works
Screening for cognitive impairment in dementia — the DemTect procedure
Calabrese, P., & Kessler, J. (2000) · European Neuropsychopharmacology · doi:10.1016/s0924-977x(00)80495-2 · Cited by 29 · see citing works
Dreier, A., Thyrian, J. R., Eichler, T. S., & Hoffmann, W. U. (2015) · Nurse Education Today · doi:10.1016/j.nedt.2015.07.024 · Cited by 28 · see citing works
Self-citationRelatives’ burden of caring for people screened positive for dementia in primary care
Thyrian, J. R., Winter, P., Eichler, T. S., Reimann, M., Wucherer, D., Dreier, A., Michalowsky, B., Zarm, K., & Hoffmann, W. U. (2016) · Zeitschrift für Gerontologie und Geriatrie · doi:10.1007/s00391-016-1119-9 · Cited by 28 · see citing works
Self-citationBerger, F., Sramko, C. A., Frölich, L., & Calabrese, P. (2000) · European Neuropsychopharmacology · doi:10.1016/s0924-977x(00)80494-0 · Cited by 19 · see citing works
Psychotherapie mit älteren pflegenden Angehörigen
Wilz, G., & Pfeiffer, K. (2017) · Der Nervenarzt · doi:10.1007/s00115-017-0410-3 · Cited by 12 · see citing works
Eichler, T. S., Thyrian, J. R., Hertel, J., Richter, S., Michalowsky, B., Wucherer, D., Dreier, A., Kilimann, I., Teipel, S. J., & Hoffmann, W. U. (2017) · Current Alzheimer Research · doi:10.2174/1567205014666170908095707 · Cited by 4 · see citing works
Self-citation
Flagged first, then by citations
1 of the 39 references couldn’t be matched to a known paper.
Research works printed but not linked: 1
- [1]Prince M, Comas-Herrera A, Knapp M, Guerchet M, Karagiannidou M (2016) The role of primary care in the dementia healthcare system In World Alzheimer Report 2016. Improving healthcare for people living with dementia, Prince M, Comas-Herrera A, Knapp M, Guerchet M, Karagiannidou M eds. Alzheimer’s Disease International, London, pp. 21– 46.
Cited by
Sorted by citations
Giebel, C. M., Gabbay, M., Shrestha, N., Ruíz, G. J. S., Reilly, S., White, R. G., Liu, G., Allen, D., & Zuluaga, M. I. (2024) · International Journal for Equity in Health · doi:10.1186/s12939-024-02106-6 · Cited by 60 · see citing works
Kokorelias, K. M., Gignac, M. A. M., Naglie, G., Rittenberg, N., MacKenzie, J., D'Souza, S. J., & Cameron, J. I. (2020) · Disability and Rehabilitation · doi:10.1080/09638288.2020.1788655 · Cited by 56 · see citing works
Khanassov, V., Rojas‐Rozo, L., Sourial, R., Yang, X. Q., & Vedel, I. (2021) · BMC Family Practice · doi:10.1186/s12875-021-01528-3 · Cited by 41 · see citing works
Virtual Support Groups for Informal Caregivers of Individuals With Dementia
Armstrong, M. J., & Slande Alliance (2019) · Alzheimer Disease & Associated Disorders · doi:10.1097/wad.0000000000000349 · Cited by 38 · see citing works
Gonella, S., Mitchell, G., Bavelaar, L., Conti, A., Vanalli, M., Basso, I., & Cornally, N. (2021) · Palliative Medicine · doi:10.1177/02692163211066733 · Cited by 41 · see citing works
Prevalence and type of unmet needs experienced by carers of people living with dementia
Mansfield, E., Cameron, E. C., Boyes, A. W., Carey, M. L., Nair, B., Hall, A. E., & Sanson-Fisher, R. W. (2023) · Aging & Mental Health · doi:10.1080/13607863.2022.2053833 · Cited by 32 · see citing works
Structures for the care of people with dementia: a European comparison
Schmachtenberg, T., Monsees, J., & Thyrian, J. R. (2022) · BMC Health Services Research · doi:10.1186/s12913-022-08715-7 · Cited by 29 · see citing works
Self-citationstudy group DemStepCare, Bablok, I., Binder, H., Stelzer, D., Kaier, K., Graf, E., Wangler, J., Janský, M., Löhr, M., Schulz, M., et al. (2021) · BMC Geriatrics · doi:10.1186/s12877-021-02114-z · Cited by 24 · see citing works
Werner, P., Tur‐Sinai, A., & AboJabel, H. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18073688 · Cited by 21 · see citing works
Janssen, N., Handels, R. L. H., Köhler, S., Gonçalves‐Pereira, M., Marques, M. J., Irving, K., Hopper, L., Bieber, A., Orrell, M. W., Selbæk, G., et al. (2020) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2020.05.009 · Cited by 20 · see citing works
Mattos, E. B. T., Oliveira, J. ́. S., & Novelli, M. M. P. C. (2020) · Revista Brasileira de Geriatria e Gerontologia · doi:10.1590/1981-22562020023.200189 · Cited by 22 · see citing works
Bouldin, E. D., Taylor, C. A., Knapp, K. A., Miyawaki, C. E., Mercado, N. R., Wooten, K. G., & McGuire, L. C. (2020) · International Psychogeriatrics · doi:10.1017/s1041610220001635 · Cited by 16 · see citing works
Giebel, C. M., Talbot, C. V., Wharton, E., Lorenz‐Dant, K., Gonzalez, A. S., Cannon, J., Tetlow, H., Lion, K., & Thyrian, J. R. (2022) · Aging & Mental Health · doi:10.1080/13607863.2022.2084510 · Cited by 16 · see citing works
Self-citationShaw, C. A., Williams, K. N., Perkhounkova, Y., Hein, M., & Coleman, C. (2020) · Clinical Gerontologist · doi:10.1080/07317115.2020.1729917 · Cited by 16 · see citing works
Barriers to accessing and receiving mental health care for paid and unpaid carers of older adults
Giebel, C. M., Prato, L., Metcalfe, S., & Barrow, H. (2024) · Health Expectations · doi:10.1111/hex.14029 · Cited by 14 · see citing works
Dreyer, J., Bergmann, J. M., Köhler, K., Hochgraeber, I., Pinkert, C., Roes, M., Thyrian, J. R., Wiegelmann, H., & Holle, B. (2022) · BMC Geriatrics · doi:10.1186/s12877-022-03310-1 · Cited by 14 · see citing works
Self-citationKlein, O. A., Boekholt, M., Afrin, D., Dornquast, C., Dreier, A., Keller, A., Michalowsky, B., Zwingmann, I., Teipel, S. J., Thyrian, J. R., et al. (2021) · Trials · doi:10.1186/s13063-021-05290-w · Cited by 14 · see citing works
Self-citationKim, B., Lee, Y., Noh, J., & Kim, T. H. (2021) · BMC Public Health · doi:10.1186/s12889-021-11768-8 · Cited by 13 · see citing works
Sánchez‐Martínez, V., Cauli, O., & Corchón, S. (2024) · Diseases · doi:10.3390/diseases12110292 · Cited by 15 · see citing works
Park, M.-B., & Kim, S. (2021) · Archives of Gerontology and Geriatrics · doi:10.1016/j.archger.2021.104558 · Cited by 12 · see citing works
Physician-Assisted Suicide in Dementia: Paradoxes, Pitfalls and the Need for Prudence
Rajkumar, R. P. (2021) · Frontiers in Sociology · doi:10.3389/fsoc.2021.815233 · Cited by 11 · see citing works
Padci pri starejših in vpliv pandemije covida-19
Simon, M. R., & Kralj, M. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_09 · Cited by 10 · see citing works
Han, A., Oster, R. A., Yuen, H. K., Jenkins, J., Hawkins, J., & Edwards, L. (2025) · JMIR Formative Research · doi:10.2196/67545 · Cited by 11 · see citing works
Acceptability and Effectiveness of a Dementia-Care Program Delivered by Community-Based Agency Staff
Gitlin, L. N., Cigliana, J., Krauss, M. J., Jacobsen, H. A., & Piersol, C. V. (2024) · The Gerontologist · doi:10.1093/geront/gnae045 · Cited by 10 · see citing works
Kontrimienė, A., Sauserienė, J., Liseckienė, I., Valius, L., & Jaruševičienė, L. (2019) · International Journal of Mental Health Systems · doi:10.1186/s13033-019-0311-x · Cited by 10 · see citing works
Mailani, F., Febriyana, I., Rahman, D., Sarfika, R., & Muliantino, M. R. (2024) · Jurnal NERS · doi:10.20473/jn.v19i1.49247 · Cited by 9 · see citing works
Giebel, C. M., & Heath, B. (2023) · Aging & Mental Health · doi:10.1080/13607863.2023.2197845 · Cited by 9 · see citing works
Chester, H., Beresford, R., Clarkson, P., Entwistle, C., Gillan, V., Hughes, J., Orrell, M. W., Pitts, R., Russell, I. T., Symonds, E., et al. (2021) · Aging & Mental Health · doi:10.1080/13607863.2020.1870204 · Cited by 9 · see citing works
Huang, H., Liao, Y.-T., Kung, P., Shyu, Y. L., Hsu, W., & Hsu, J. (2024) · BMC Geriatrics · doi:10.1186/s12877-024-05316-3 · Cited by 8 · see citing works
Rashid, N. S. A., Marzuki, M. F. M., Abdullah, N. N., Mohamad, M., Takshe, A. A., Yunus, R. M., & Chen, X. W. (2024) · Scientific Reports · doi:10.1038/s41598-024-69947-7 · Cited by 8 · see citing works
Shankar, R., Bundele, A., & Mukhopadhyay, A. (2025) · MethodsX · doi:10.1016/j.mex.2025.103272 · Cited by 8 · see citing works
Giebel, C. M., Halpin, K., Tottie, J., O’Connell, L., & Carton, J. (2023) · Dementia · doi:10.1177/14713012231159156 · Cited by 5 · see citing works
Profile of informal rural Appalachian caregivers of patients with chronic illnesses
Smith, J. L., Chung, M. L., Miller, J., Biddle, M., Schuman, D. L., Rayens, M. K., Lennie, T. A., Smalls, B. L., Hammash, M., Mudd‐Martin, G., et al. (2021) · The Journal of Rural Health · doi:10.1111/jrh.12560 · Cited by 5 · see citing works
Biernetzky, O. A., Thyrian, J. R., Boekholt, M., Berndt, M., Hoffmann, W., Teipel, S. J., & Kilimann, I. (2025) · JMIR Aging · doi:10.2196/59942 · Cited by 4 · see citing works
Self-citationGottschalk, S., Neubert, L., König, H., & Brettschneider, C. (2021) · Dementia · doi:10.1177/14713012211008306 · Cited by 4 · see citing works
Cariñanos-Ayala, S., Zarandona, J., Durán‐Sáenz, I., & Arrue, M. (2023) · Nurse Education in Practice · doi:10.1016/j.nepr.2023.103711 · Cited by 4 · see citing works
Hamilton, G., Azuma, T., Lowes, S., Gallagher, M., & Volk, K. (2023) · Journal of Palliative Medicine · doi:10.1089/jpm.2022.0534 · Cited by 4 · see citing works
Empowering Dementia Caregivers
Ko, E., Rose, K. M., & Wright, K. (2024) · Clinical Nurse Specialist · doi:10.1097/nur.0000000000000803 · Cited by 4 · see citing works
Minyo, M. J., Powers, S. M., Bass, D. M., Cannon, R. M., Maslow, K., Fete, Z., & Huth, M. (2025) · Alzheimer s & Dementia Translational Research & Clinical Interventions · doi:10.1002/trc2.70092 · Cited by 3 · see citing works
Gonella, S. S. M., Giulio, P. D., Olagnero, J. M., Quaranta, D., Nagliati, G., Dimonte, V., & Campagna, S. (2026) · BMC Geriatrics · doi:10.1186/s12877-026-07201-7 · Cited by 3 · see citing works
Gibson, C. E., Goeman, D., Pond, D. C., Yates, M. W., & Hutchinson, A. M. (2024) · Australian Journal of Primary Health · doi:10.1071/py24071 · Cited by 3 · see citing works
Shen, W. H., Chang, L., Huang, Y., & Wang, J. (2024) · International Journal of Older People Nursing · doi:10.1111/opn.12624 · Cited by 4 · see citing works
The Carers’ Needs Assessment for Dementia (CNA-D): a validation study in the Italian population
Zucca, M., Rubino, E., Vacca, A., Martino, P. D., Caglio, M., Marcinnò, A., Bo, M., & Rainero, I. (2021) · Neurological Sciences · doi:10.1007/s10072-021-05285-0 · Cited by 3 · see citing works
Unmet Needs in Dementia Care: The Predictive Role of Caregiver Challenges
Bertola, L., da Mata, F., Ramos, A. A., Godoy, C., de Faria, F. M., Lucchetta, R., de Oliveira Junior, H. A., & Ferri, C. P. (2025) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.70164 · Cited by 2 · see citing works
“However, our results makes an unique contribution to dementia research in Latin America by underlying that the general unmet needs of caregivers might be a better predictor for care and thus should be taken into account [12].”
Bushell, D., Jones, C., & Moro, C. (2023) · Frontiers in Dementia · doi:10.3389/frdem.2023.1156863 · Cited by 2 · see citing works
Keefer, A., Dietzel, N., Kolominsky‐Rabas, P. L., & Graessel, E. (2025) · Journal of Alzheimer s Disease · doi:10.1177/13872877251314060 · Cited by 2 · see citing works
Epidemiološke ocene prevalence demence v Sloveniji
Lovrečić, B., & Lovrečić, M. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_01 · Cited by 2 · see citing works
Kornder, N., Lindner, N., Ehm, M., Rachor, F., Shan, C. W., Bösner, S., & van der Wardt, V. (2025) · BMC Family Practice · doi:10.1186/s12875-025-02952-5 · Cited by 2 · see citing works
Akyol, M. A., Küçükgüçlü, Ö., Söylemez, B. A., Şentürk, S. G., & GÜL, B. (2023) · Etkili Hemşirelik Dergisi · doi:10.46483/jnef.1327432 · Cited by 2 · see citing works
Marx, Y., Bauer, A., Frese, T., & Unverzagt, S. (2024) · Journal of Family Medicine and Primary Care · doi:10.4103/jfmpc.jfmpc_551_24 · Cited by 1 · see citing works
Klein, F., Möllerherm, J., Geschke, K., Fellgiebel, A., Wangler, J., Schulz, M., Janský, M., Kronmüller, K., & Löhr, M. (2025) · Psychiatrische Praxis · doi:10.1055/a-2515-9576 · Cited by 1 · see citing works
The cost of non-drug interventions that improve function and reduce dementia-related behaviors
Jutkowitz, E., Pizzi, L. T., Shewmaker, P., Alarid‐Escudero, F., Epstein-Lubow, G. P., Gaugler, J. E., & Gitlin, L. N. (2025) · BMC Geriatrics · doi:10.1186/s12877-025-06532-1 · Cited by 1 · see citing works
Pelayanan Pastoral kepada Anggota Keluarga yang Hidup Bersama Orang dengan Demensia
Pardede, L. S. (2021) · Dunamis Jurnal Teologi dan Pendidikan Kristiani · doi:10.30648/dun.v5i2.426
(2020) · The Egyptian Family Medicine Journal/The Egyptian Family Medicine Journal · doi:10.21608/efmj.2020.137837
Structures for the care of people with dementia: A European comparisonPreprint
Schmachtenberg, T., Monsees, J., & Thyrian, J. R. (2022) · Research Square · doi:10.21203/rs.3.rs-1253889/v1
Self-citationKim, B., Lee, Y., Noh, J., & Kim, T. H. (2020) · Research Square · doi:10.21203/rs.3.rs-53533/v1
Unterstützungsbedürfnisse pflegender Angehöriger von Menschen mit Demenz
Sonntag, J., Schwaizer, C., & Kreyer, C. (2022) · Pflege · doi:10.1024/1012-5302/a000920
Dolgotrajni covid-19/postcovidni sindrom in kognitivne motnje
Lovrečić, B., Lovrečić, M., & Grkman, L. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_06
(2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_00
Breme neformalnih oskrbovalcev oseb z demenco v času covida-19
Lovrečić, B., Lovrečić, M., & Mavrič, N. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_08
Dinamika nevropsihiatričnih simptomov pri osebah z demenco v povezavi s pandemijo in covidom-19
Lovrečić, B., Lovrečić, M., & Grkman, L. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_05
Duševno zdravje neformalnih družinskih oskrbovalcev oseb z demenco
Lovrečić, B., Lovrečić, M., & Cizl, M. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_07
Javnozdravstveni izzivi demence
Lovrečić, B., Lovrečić, M., Sambt, J., Grkman, L., Simon, M. R., Mavrič, N., Sedlak, S., Jelenc, M., Cizl, M., Kralj, M., et al. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966
Poznavanje demence med splošno javnostjo
Lovrečić, B., Lovrečić, M., & Mavrič, N. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_02
Dolgotrajna oskrba ljudi z demenco
Mali, J. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_03
Ekonomsko breme demence v Sloveniji glede na rutinske podatkovne zbirke zdravstvenega varstva
Lovrečić, B., Sambt, J., Sedlak, S., & Jelenc, M. (2022) · ZRC SAZU, Založba ZRC eBooks · doi:10.3986/9789610506966_04
Klein, O. A., Thyrian, J. R., Boekholt, M., Lindner, M. C., Hoffmann, W. U., Teipel, S. J., & Kilimann, I. (2024) · doi:10.2196/preprints.59942
Self-citationMichalowsky, B., Rädke, A., Scharf, A., Mühlichen, F., Buchholz, M., Platen, M., Kleinke, F., Penndorf, P., Pfitzner, S., van den Berg, N., et al. (2024) · Journal of Alzheimer s Disease · doi:10.3233/jad-240025
Self-citationKlein, O. A., Boekholt, M., Afrin, D., Dornquast, C., Dreier, A., Keller, A., Michalowsky, B., Zwingmann, I., Teipel, S., Thyrian, J. R., et al. (2021) · Figshare · doi:10.6084/m9.figshare.14795555
Self-citationDreyer, J., Bergmann, J. M., Köhler, K., Hochgraeber, I., Pinkert, C., Roes, M., Thyrian, J. R., Wiegelmann, H., & Holle, B. (2022) · Figshare · doi:10.6084/m9.figshare.20786930
Self-citationAdditional file 1 of Structures for the care of people with dementia: a European comparison
Schmachtenberg, T., Monsees, J., & Thyrian, J. R. (2022) · Figshare · doi:10.6084/m9.figshare.21594006
Self-citationKhanassov, V., Rojas‐Rozo, L., Sourial, R., Yang, X. Q., & Vedel, I. (2021) · Figshare · doi:10.6084/m9.figshare.16625435
Ghafri, R. A., Ghafari, M. A., Ghafri, M. A., Sofy, A. R., Mohammed, M., & Sinawi, H. A. (2026) · Middle East Current Psychiatry · doi:10.1186/s43045-025-00612-z
Xiang, C., Shen, Y.-J., Zhuo, Y.-J., Zhao, X., & Qiao, B. (2026) · BMJ Open · doi:10.1136/bmjopen-2025-113468
Jutkowitz, E., Brown, D. L., Koeuth, S., Piersol, C. V., Cook, A., & Gitlin, L. N. (2026) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2026.106186
Minyo, M. J., Bass, D. M., & Judge, K. S. (2026) · The Gerontologist · doi:10.1093/geront/gnag110
Yous, M., Zhuang, R., Beaudry, N., Langdon, S., Lee, P., Norman, M., Sylvestre, S., Tomizawa, A., Kaasalainen, S., & McAiney, C. A. (2026) · SAGE Open Nursing · doi:10.1177/23779608261473148
- Authors
- Zwingmann, I., Michalowsky, B., Esser, A., Kaczynski, A., Monsees, J., Keller, A., Hertel, J., Wucherer, D., Thyrian, J. R., Eichler, T., Kilimann, I., Teipel, S., Dreier Wolfgramm, A., & Hoffmann, W.
- Affiliations
- German Center for Neurodegenerative Diseases (DE)
- Universitätsmedizin Greifswald (DE)
- University Medicine Greifswald
- Corresponding author
- Zwingmann, Ina
- ORCID
- Venue
- Journal of Alzheimer’s Disease
- Publisher
- SAGE Publications
- Published
- 2018-12-19
- Volume
- 67
- Issue
- 2
- Pages
- 527-539
- ISSN
- 1387-2877 (ISSN-L)
- 1875-8908
- PMC
- PMC6398541
- OpenAlex
- W2906233324
- Cited by
- 77
- References
- 39
- Citations by year
- 2026: 6 · 2025: 8 · 2024: 14 · 2023: 6 · 2022: 19 · 2021: 15 · 2020: 7 · 2019: 2
- FWCI
- 4.72
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Journal of Alzheimer s Disease (publishedVersion, cc-by-nc)
- Europe PMC (PubMed Central) (publishedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- DZNE Pub (submittedVersion, other-oa)
- Funders
- Kempe Foundation
- Deutsches Zentrum für Neurodegenerative Erkrankungen
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Keywords
- dementia caregiving, family caregivers
- MeSH terms
- Aged, Cross-Sectional Studies, Dementia, Female, Health Services Needs and Demand, Health Status, Humans, Male, Middle Aged, Quality of Life, Socioeconomic Factors, Caregivers, Cost of Illness, Independent Living, General Practitioners
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
