The Going to Stay at Home program: Combining dementia caregiver training and residential respite care
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ABSTRACTBackground:Caring for persons with dementia is stressful for family caregivers. Caregiver training programs and respite care can reduce this stress and help maintain persons with dementia living longer in the community. We evaluated a program that combines caregiver training with a residential respite stay. METHODS: In total, 90 dyads of persons with dementia and their caregivers, in groups of 3-6 dyads, volunteered to participate in a five-day residential training program and were followed-up 6 and 12 months later. The primary outcome was caregiver depression; secondary outcomes were measures of caregiver burden, unmet needs, person with dementia behavioral symptoms, and the quality of life and function. RESULTS: Caregiver depression and burden were unchanged, despite decreasing function in persons with dementia. Caregivers' unmet needs and behavioral symptoms in persons with dementia decreased significantly. Compared to a group of persons with dementia admitted for routine residential respite care, there was a marked reduction in permanent placement over 12 months. CONCLUSIONS: The Going to Stay at Home Program is a feasible and practicable model with benefits for caregivers and persons with dementia. It may lead to delay in institutionalization and may be applicable to other chronic conditions.
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When present, dementia education and respite services reduced stress and enabled caregivers to make timely transitions to long-term care.
“When present, dementia education and respite services reduced stress and enabled caregivers to make timely transitions to long-term care (Gresham et al., 2018).”
From Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers. (2026) · cites this paper as Gresham et al., 2018
The Discussion reports no reduction in caregiver psychological distress or burden after the combined training and respite program. The Abstract reports fewer permanent placements over 12 months and says the program may delay institutionalization, rather than showing that it enabled timely transitions to long-term care. (LLM, conf=0.88)
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Experimental — accuracy not yet measuredMultidisciplinary teams and dementia-integrated care models in assisted living, skilled nursing settings, and cottage models of respite care were also positively viewed.
“Multidisciplinary teams and dementia-integrated care models in assisted living, skilled nursing settings, and cottage models of respite care were also positively viewed (Gresham et al., 2018; Harkin et al., 2020; Johannessen et al., 2019; Manis et al., 2021).”
From Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers. (2026) · cites this paper as Gresham et al., 2018
The Setting and Staff sections describe a cottage-based residential respite program with staff from several disciplines. In the Discussion (page not available), caregivers reported that the residential stay was beneficial and that time with staff was valuable. The paper does not report positive views of multidisciplinary teams as such or evaluate care models across assisted living and skilled nursing settings. (LLM, conf=0.86)
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- Authors
- Gresham, M., Heffernan, M., Brodaty, H., Haapala, I., Biggs, S., & Kurrle, S.
- Affiliations
- UNSW Sydney (AU)
- Corresponding author
- Gresham, Meredith
- Venue
- International Psychogeriatrics
- Publisher
- Elsevier BV
- Published
- 2018-11
- Volume
- 30
- Issue
- 11
- Pages
- 1697-1706
- ISSN
- 1041-6102 (ISSN-L)
- OpenAlex
- W2884499999
- Cited by
- 37
- References
- 32
- Citations by year
- 2026: 2 · 2025: 7 · 2024: 4 · 2023: 5 · 2022: 5 · 2021: 4 · 2020: 8 · 2019: 1 · 2018: 1
- FWCI
- 2.74
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- International Psychogeriatrics (publishedVersion, cc-by)
- PubMed (publishedVersion)
- Funders
- Australian Government
- Department of Social Services, Australian Government
- University of New South Wales
- Dementia Collaborative Research Centres, Australia
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Health Professions › General Health Professions › Geriatric Care and Nursing Homes
- Keywords
- dementia, family caregivers, caregiver education, caregiver depression, caregiver burden, unmet needs, behavioral symptoms, quality of life, community living, institutionalization
- MeSH terms
- Adult, Aged, Aged, 80 and over, Dementia, Female, Humans, Male, Middle Aged, Quality of Life, Respite Care, Program Evaluation, Caregivers
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