Caregiver burden and bereavement among family caregivers who lost terminally ill cancer patients
Abstract
Objective Family caregivers (FCs) in China provide hospice care to terminally ill cancer patients; however, few studies have been conducted in China on caregiver burden and bereavement experiences as a process that continues over time. The purpose of this study was to identify the main elements of caring and bereavement experiences for FCs caring for patients diagnosed with terminal cancer. Method Twenty in-depth qualitative semistructured interviews were conducted with FCs providing care in a hospice unit in Shenzhen, Southern China. Interview transcripts were analyzed via thematic content analysis. Result A framework based on the following eight principal themes was developed through content analysis of our FC interviews: symptoms of the illness, the truth-telling process, attitudes toward death, the "color" of death, social and professional support, the moment of death, and grief and loss. Significance of results The analysis showed that caregiving may positively or negatively influence the bereavement process.
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The important roles performed by informal caregivers and their unmet needs are associated with significant caregiver burden.
“The important roles performed by informal caregivers and their unmet needs are associated with significant caregiver burden (CB) [9–12].”
From Caregiver burden among family caregivers of incurable cancer patients in two eastern Mediterranean countries (2021) · cites this paper as [12]
Cites
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Underutilization of Mental Health Services Among Bereaved Caregivers With Prolonged Grief Disorder
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The prevalence, comorbidity and risks of prolonged grief disorder among bereaved Chinese adults
He, L., Tang, S., Yu, W., Xu, W., Xie, Q., & Wang, J. (2014) · Psychiatry Research · doi:10.1016/j.psychres.2014.05.022 · Cited by 153 · see citing works
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Alsirafy, S. A., Nagy, R., Hassan, A. D., Fawzy, R., Abdelhafeez, A. A. M., Husein, M. O., Almashiakhi, M. A., Alabdullateef, S. H., Alghamdi, S. A., & Elyamany, A. M. (2021) · BMC Palliative Care · doi:10.1186/s12904-021-00857-5 · Cited by 30 · see citing works
- Authors
- Tang, Y.
- Affiliations
- Shenzhen University (CN)
- Corresponding author
- Tang, Yong
- ORCID
- Tang, Yong
- Venue
- Palliative and Supportive Care
- Publisher
- Cambridge University Press (CUP)
- Published
- 2019-01-31
- Volume
- 17
- Issue
- 5
- Pages
- 515-522
- ISSN
- 1478-9515 (ISSN-L)
- 1478-9523
- OpenAlex
- W2885547590
- Cited by
- 29
- References
- 3
- Citations by year
- 2026: 3 · 2025: 3 · 2024: 11 · 2023: 3 · 2022: 4 · 2021: 5
- FWCI
- 2.63
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Palliative & Supportive Care (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- caregiver burden, bereavement, family caregivers, terminal cancer, hospice care, grief and loss, truth-telling, attitudes toward death, social support, professional support, moment of death, disease symptoms
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Attitude to Death, Bereavement, China, Female, Humans, Interviews as Topic, Male, Middle Aged, Neoplasms, Caregivers, Cost of Illness, Terminally Ill, Qualitative Research
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