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The acceptability and feasibility of emailed parent questionnaires for medical and developmental surveillance after NICU discharge
Abstract
Objectives The following are the objectives of this study: (1) Assess the feasibility and acceptability of emailing parent-reported measures of infant health and development after NICU discharge. (2) Examine whether post-discharge questionnaire data helps identify infants most likely to benefit from specialized follow-up care. Study design Parents of 51 infants Results Questionnaire response was 48 (94%) at 44 weeks PMA and 46 (90%) at 6 months CA. 36 (70%) infants were assessed at 6 months; 72% had at least 1 adverse outcome. Poorer transition home, feeding problems, and special health care needs at 44 weeks PMA predicted adverse outcomes. Feeding problems, maternal depression, and lower infant health-related quality of life at 6 months CA correlated with adverse outcomes. Conclusions Emailed questionnaires after NICU discharge were feasible to implement and acceptable to families. Repeated post-discharge assessments may help identify infants at heightened health and developmental risk.
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Repeated post-discharge email follow-up questionnaires are a form of remote communication and support intervention.
“Another form of remote communication and support intervention is the repeated post-discharge email follow-up questionnaires (Litt et al., 2018).”
From Scoping review of interventions to support families with preterm infants post-NICU discharge (2022) · cites this paper as Litt et al., 2018
Repeated post-discharge email questionnaires may be feasible and acceptable to families.
“Repeated post-discharge email questionnaires may be feasible and acceptable to families, and offer an opportunity for remote assessment (Litt et al., 2018).”
From Scoping review of interventions to support families with preterm infants post-NICU discharge (2022) · cites this paper as Litt et al., 2018
Repeated post-discharge email questionnaires were feasible and acceptable to families.
“Repeated post-discharge email questionnaires were feasible and acceptable to families (Litt et al., 2018).”
From Scoping review of interventions to support families with preterm infants post-NICU discharge (2022) · cites this paper as Litt et al., 2018
Email questionnaires identified issues post-discharge, including challenges in transition to home, feeding problems, special health care needs, and maternal depression.
“The email questionnaires identified issues post-discharge, e.g., challenges in transition to home, feeding problems, special health care needs, and maternal depression.”
From Scoping review of interventions to support families with preterm infants post-NICU discharge (2022) · cites this paper as Litt et al., 2018
Issues identified from the email questionnaire were associated with adverse outcomes assessed at the 6 months corrected-age check-up visit.
“These issues identified from the questionnaire were associated with the adverse outcomes that were assessed at the 6 months corrected-age check-up visit (Litt et al., 2018).”
From Scoping review of interventions to support families with preterm infants post-NICU discharge (2022) · cites this paper as Litt et al., 2018
Repeated post-discharge email questionnaires may offer an opportunity for remote assessment.
“Repeated post-discharge email questionnaires may be feasible and acceptable to families, and offer an opportunity for remote assessment (Litt et al., 2018).”
From Scoping review of interventions to support families with preterm infants post-NICU discharge (2022) · cites this paper as Litt et al., 2018
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Cited by
Sorted by citations
Grunberg, V. A., Geller, P. A., Bonacquisti, A., & Patterson, C. A. (2019) · Journal of Perinatology · doi:10.1038/s41372-018-0282-9 · Cited by 79
Scoping review of interventions to support families with preterm infants post-NICU discharge
Griffith, T., Singh, A., Naber, M., Hummel, P., Bartholomew, C., Amin, S., White-Traut, R., & Garfield, L. (2022) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2022.08.014 · Cited by 76
Metadata
- Authors
- Litt, J. S., Agni, M., Jacobi-Polishook, T., Melvin, P., McCormick, M. C., Stewart, J. E., & Belfort, M. B.
- Affiliations
- Boston Children's Hospital (US)
- Beth Israel Deaconess Medical Center (US)
- Brigham and Women's Hospital (US)
- Corresponding author
- Litt, Jonathan S.
- ORCID
- Venue
- Journal of Perinatology
- Published
- 2017-12-22
- Volume
- 38
- Issue
- 4
- Pages
- 392-401
- ISSN
- 0743-8346 (ISSN-L)
- 1476-5543
- OpenAlex
- W2776193850
- Cited by
- 12
- References
- 0
- Citations by year
- 2024: 2 · 2023: 1 · 2022: 1 · 2021: 6 · 2019: 1 · 2018: 1
- FWCI
- 0.60
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Perinatology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Infant Development and Preterm Care
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Neonatal Respiratory Health Research
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Maternal and Neonatal Healthcare
- Keywords
- parent-reported outcomes, NICU discharge, very preterm infants, medical surveillance, child development monitoring, transition to home, feeding difficulties, special health care needs, maternal depression, Bayley-III, growth percentiles, feasibility and acceptability
- MeSH terms
- Boston, Feasibility Studies, Female, Gestational Age, Humans, Infant, Infant, Premature, Intensive Care Units, Neonatal, Male, Parents, Patient Acceptance of Health Care, Patient Discharge, Quality of Life, Surveys and Questionnaires, Telemedicine, Electronic Mail
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