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Cited by 8Spinal Cord Injury ResearchMedical Practices and RehabilitationMusculoskeletal pain and rehabilitation

Psychological distress and user experiences with health care provision in persons living with spinal cord injury for more than 20 years

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Jakimovska, V M, Kostovski, E, Biering-Sørensen, F, Lidal, I B·2017·Spinal Cord
DOI 10.1038/sc.2017.29
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Abstract

Study design Descriptive cross-sectional and retrospective study.Objectives To gain more insight into the long-term health status in persons with traumatic spinal cord injury (SCI), especially perceived psychological distress as well as self-reports of utilization of healthcare services.Setting Sunnaas Rehabilitation Hospital, Norway.Methods In total, 147 persons with SCI were examined for more than 20 years and interviewed (in 2004/2005) using a self-administrated questionnaire and General Health Questionnaire (GHQ-20). Descriptive statistics and a logistic regression analysis were conducted to identify variables associated with psychological distress.Results Most participants had received SCI follow-up health services at least once after initial rehabilitation; 34% were satisfied, 51% neutral and 18% unsatisfied with the health services provided. Concerning psychological distress, 34 persons were cases according to the GHQ-20. The cases did not differ from non-cases concerning demography, time since injury, injury aetiology, injury severity, marital status or employment status. The regression analysis revealed that cases were associated (P<0.05) with more use of SCI-specific follow-ups.Conclusion In a 20+ years' post-injury SCI population, psychological distress is common and associated with the use of follow-up services. The varying satisfaction of people with SCI about healthcare services is notable, as is the finding that 20% of people with paraplegia did not use specific SCI follow-up services. The experiences of people with SCI with healthcare services need further investigation, and there is also a need for studies that examine the effects of interventions aimed at improving services and patient satisfaction.

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Authors
Jakimovska, V. M., Kostovski, E., Biering-Sørensen, F., & Lidal, I. B.
Affiliations
  • University of Oslo (NO)
  • Sunnaas sykehus (NO)
Corresponding author
Kostovski, E
ORCID
Venue
Spinal Cord
Publisher
Springer Science and Business Media LLC
Published
2017-03-21
Volume
55
Issue
9
Pages
864-869
ISSN
  • 1362-4393 (ISSN-L)
  • 1476-5624
DOI
10.1038/sc.2017.29
OpenAlex
W2598630767
Cited by
8
References
38
Citations by year
2024: 1 · 2021: 3 · 2020: 1 · 2019: 1 · 2018: 2
FWCI
0.86
Type
journal article
Language
en
Open access
Licence
www.springer.com/tdm (tdm)
Locations
  • Spinal Cord (publishedVersion)
  • PubMed (publishedVersion)
  • Research at the University of Copenhagen (University of Copenhagen) (submittedVersion)
  • NORA - Norwegian Open Research Archives (submittedVersion, other-oa)
Funders
EkstraStiftelsen Helse og Rehabilitering (Stiftelsen Dam)
Topics
  • Health Sciences › Medicine › Pathology and Forensic Medicine › Spinal Cord Injury Research
  • Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
  • Health Sciences › Medicine › Pharmacology › Musculoskeletal pain and rehabilitation
Keywords
spinal cord injury, psychological distress, health care utilization, patient satisfaction, follow-up care, paraplegia
MeSH terms
Adult, Aged, Aged, 80 and over, Chronic Disease, Cross-Sectional Studies, Female, Follow-Up Studies, Health Status, Humans, Interviews as Topic, Male, Middle Aged, Patient Acceptance of Health Care, Retrospective Studies, Spinal Cord Injuries, Stress, Psychological, Logistic Models, Young Adult, Self Report

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