Core outcomes in aphasia treatment research: an e-Delphi consensus study of international aphasia researchers
Abstract
Purpose: The purpose of this article is to identify outcome constructs that aphasia researchers consider essential to measure in all aphasia treatment research. Method: Purposively sampled researchers were invited to participate in a 3-round e-Delphi exercise. In Round 1, an open-ended question was used to elicit important outcome constructs; responses were analyzed using inductive content analysis. In Rounds 2 and 3, participants rated the importance of each outcome using a 9-point rating scale. Outcomes reaching predefined consensus criteria were further analyzed using International Classification of Functioning, Disability and Health coding. Results: Eighty researchers commenced Round 1, with 72 completing the entire survey. High response rates (≥ 85%) were achieved in subsequent rounds. Consensus was reached on 6 outcomes: (a) language functioning in modalities relevant to study aims, (b) impact of treatment from the perspective of the person with aphasia (PWA), (c) communication-related quality of life, (d) satisfaction with intervention from the perspective of the PWA, (e) satisfaction with ability to communicate from the perspective of the PWA, and (f) satisfaction with participation in activities from the perspective of the PWA. Conclusions: Consensus was reached that it is essential to measure language function and specific patient-reported outcomes in all aphasia treatment research. These results will contribute to the development of a core outcome set.
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Wallace and colleagues proposed a core outcome set for aphasia that defines a minimum group of outcomes for routine administration.
“Wallace and colleagues proposed a core outcome set (COS)13,15–18 for aphasia, specifying a minimum set of outcomes that should be administered to persons with aphasia as standard practice (i.e., WAB, The Scenario Test, General Health Questionnaire-12, SAQOL-39g) to increase consistency.”
From Benchmarks of Significant Change After Aphasia Rehabilitation (2019) · cites this paper as [16]
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A how-to guide to aphasia services: celebrating Professor Linda Worrall’s contribution to the field
Wallace, S. J., Baker, C., Brandenburg, C., Bryant, L., Dorze, G. L., Power, E., Pritchard, M., Rose, M. L., Rose, T., Ryan, B., et al. (2019) · Aphasiology · doi:10.1080/02687038.2019.1609774
Self-citationSantos, T. O., Schwarz, A. L., Uy, M., & Richter, A. (2025) · Aphasiology · doi:10.1080/02687038.2025.2542306
Northcott, S., Comer, A., Devane, N., Behn, N., Roper, A., Bohan, J. K., & Hilari, K. (2026) · Aphasiology · doi:10.1080/02687038.2026.2663794
- Authors
- Wallace, S. J., Worrall, L., Rose, T., & Le Dorze, G.
- Affiliations
- The University of Queensland (AU)
- University of Montreal, Quebec, Canada
- Venue
- American Journal of Speech-Language Pathology
- Published
- 2016-12
- Volume
- 25
- Issue
- 4S
- Pages
- S729-S742
- ISSN
- 1058-0360 (ISSN-L)
- 1558-9110
- OpenAlex
- W2566888218
- Cited by
- 54
- References
- 48
- Citations by year
- 2026: 3 · 2025: 4 · 2024: 3 · 2023: 5 · 2022: 7 · 2021: 5 · 2020: 7 · 2019: 9 · 2018: 7 · 2017: 2 · 2016: 2
- FWCI
- 19.06
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- American Journal of Speech-Language Pathology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Sociology and Political Science › Delphi Technique in Research
- Life Sciences › Neuroscience › Cognitive Neuroscience › Neurobiology of Language and Bilingualism
- Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
- Keywords
- aphasia, aphasia rehabilitation, core outcome set, outcome measures, patient-reported outcomes, language functioning, treatment satisfaction, International Classification of Functioning, Disability and Health, Delphi consensus
- MeSH terms
- Aphasia, Delphi Technique, Humans, Quality of Life, Research, Consensus
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