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Cited by 321Stroke Rehabilitation and RecoveryMedical Practices and RehabilitationAcute Ischemic Stroke Management

The impact of stroke: are people with aphasia different to those without?

Hilari, Katerina·2011·Disability and Rehabilitation
DOI 10.3109/09638288.2010.508829
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Abstract

PURPOSE: Stroke rehabilitation programmes aim to improve functional outcomes and quality of life. This study explored long-term outcomes in a cohort of people admitted to two acute stroke units with stroke. Comparisons were drawn between people with aphasia (PWA) and people without aphasia. METHODS: People admitted to hospital with a first stroke were assessed at 2-weeks, 3-months and 6-months post-stroke. Measures included: the Barthel Index for Activities of Daily Living (ADL), the Frenchay Aphasia Screening Test, the General Health Questionnaire-12 for emotional well-being and the Stroke and Aphasia Quality of Life Scale-39g. Extended ADL and social support were also measured at 3 and 6 months, with the Frenchay Activities Index and the Social Support Survey, respectively. RESULTS: Of 126 eligible participants, 96(76%) took part and 87(69%) were able to self-report. Self-report data are reported here. Although outcomes improved significantly across time, at 6 months people continued to experience substantial functional limitations (16% aphasic; 32% dependent on basic ADL); participation limitations (79% ≤30 on the FAI); high psychological distress (45%) and compromised quality of life (54% ≤4 on the SAQOL-39g). Levels of social support remained relatively stable. Though at 3-months post-stroke PWA were significantly more likely to experience high psychological distress (93% versus 50% for those without), across time, there were no significant differences between PWA and those without on psychological distress and also ADL and social support. There were, however, significant differences on extended ADL (F(1,68) = 7.80, p < 0.01) and quality of life (F(1,69) = 6.30, p < 0.05). CONCLUSION: PWA participated in fewer activities and reported worse quality of life after stroke than people without aphasia, even when their physical abilities, well-being and social support were comparable. Implications for clinical practice and future research are discussed.

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  • Post-stroke aphasia is frequently associated with cognitive-linguistic difficulties that impact directly on psychosocial well-being.

    “As post-stroke aphasia is frequently associated with cognitive-linguistic difficulties impacting directly on psychosocial well-being (Hilari, 2011)”

    From “Giving yourself some breathing room…”: an exploration of group meditation for people with aphasia (2021) · cites this paper as Hilari, 2011

    The Discussion (p. 10) and Abstract (p. 2) report less participation and worse quality of life among stroke survivors with aphasia; the comparisons section (p. 13) identifies communication-demanding activities as particularly affected. Our copy does not establish the claimed cognitive-linguistic difficulties or show that they directly cause poorer psychosocial well-being. (LLM, conf=0.82)

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Research works printed but not linked: 1

  1. [1]1. Wade DT. Stroke (acute cerebrovascular disease). In: Stevens A, Raftery J. (eds). Health care needs assessments reviews. Oxford: Radcliffe Medical Press; 1994

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Authors
Hilari, K.
Affiliations
City, University of London (GB)
Corresponding author
Hilari, Katerina
ORCID
Hilari, Katerina
Venue
Disability and Rehabilitation
Publisher
Informa UK Limited
Published
2011-01
Volume
33
Issue
3
Pages
211-218
ISSN
  • 0963-8288 (ISSN-L)
  • 1464-5165
DOI
10.3109/09638288.2010.508829
OpenAlex
W1993542140
Cited by
321
References
33
Citations by year
2026: 16 · 2025: 35 · 2024: 30 · 2023: 23 · 2022: 23 · 2021: 29 · 2020: 26 · 2019: 25 · 2018: 17 · 2017: 17 · 2016: 14 · 2015: 14 · 2014: 17 · 2013: 14 · 2012: 14
FWCI
11.29
Type
journal article
Language
en
Open access
closed
Locations
  • Disability and Rehabilitation (publishedVersion)
  • PubMed (publishedVersion)
  • City Research Online (City University London) (acceptedVersion)
Topics
  • Health Sciences › Medicine › Rehabilitation › Stroke Rehabilitation and Recovery
  • Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
  • Health Sciences › Medicine › Epidemiology › Acute Ischemic Stroke Management
Keywords
stroke, aphasia, long-term outcomes, quality of life, activities of daily living, psychological distress, social support, stroke rehabilitation
MeSH terms
Stroke Rehabilitation, Activities of Daily Living, Adaptation, Psychological, Aged, Aged, 80 and over, Analysis of Variance, Aphasia, Female, Humans, Male, Middle Aged, Quality of Life, Reference Values, Severity of Illness Index, Social Support, Time Factors, Cohort Studies, Treatment Outcome, Risk Assessment, Stroke

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