Meanings of living at home on a ventilator
Abstract
Meanings of living at home on a ventilator Nine adults were interviewed in order to illuminate the meanings of being dependent on a ventilator and living at home. The data were analysed using a phenomenological‐hermeneutic method inspired by the philosophy of Ricoeur. Five main themes emerged through the analysis: experiencing home as a safe and comfortable space from which to reach out, experiencing the body as being frail, brave and resilient, striving to live in the present, surrendering oneself to and trusting others, and experiencing technology as a burden and a relief to the lived body. Meanings of being home on a ventilator were interpreted as maintaining autonomy and persistence in interaction with the ventilator and other human beings and being able to rise above yourself and your personal boundaries in order to live a good life. These meanings indicate that aesthetic and ethical values impact on the lived body. They are bound up with experiencing a vital force and interdependency, bringing safety and courage into daily life.
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Participants find it difficult to make an informed choice in favour of invasive home mechanical ventilation and are willing to have more decision-making support.
“Specifically, it indicates that participants find it difficult to make an informed choice in favour of invasive HMV, willing to have more decision-making support [11–13].”
From Life Experiences in Neuromuscular Tracheotomized Patients in Times of Covid-19 (2023) · cites this paper as [12]
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- Authors
- Lindahl, B., Sandman, P., & Rasmussen, B. H.
- Affiliations
- Umeå University (SE)
- Corresponding author
- Lindahl, Berit
- Venue
- Nursing Inquiry
- Publisher
- Wiley
- Published
- 2003-03
- Volume
- 10
- Issue
- 1
- Pages
- 19-27
- ISSN
- 1320-7881 (ISSN-L)
- 1440-1800
- OpenAlex
- W2128810989
- Cited by
- 64
- References
- 25
- Citations by year
- 2026: 1 · 2023: 3 · 2022: 1 · 2019: 3 · 2018: 2 · 2017: 3 · 2016: 3 · 2014: 3 · 2013: 2 · 2012: 5
- FWCI
- 9.45
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Nursing Inquiry (publishedVersion)
- PubMed (publishedVersion)
- Borås Academic Digital Archive (University of Borås) (submittedVersion)
- Lund University Publications (Lund University) (submittedVersion)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Health Professions › Occupational Therapy › Assistive Technology in Communication and Mobility
- Social Sciences › Psychology › Experimental and Cognitive Psychology › Phenomenology and Existential Philosophy
- Keywords
- mechanical ventilation, living at home, meaning of home, lived body, body image, frailty, interpersonal trust, autonomy, interdependence, vital force, care ethics, phenomenology of illness
- MeSH terms
- Adaptation, Psychological, Adult, Aged, Female, Home Care Services, Humans, Male, Middle Aged, Quality of Life, Respiration, Artificial, Sweden
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