Development of the Quality of Life in Epilepsy Inventory
Abstract
Summary: We developed an instrument to measure health‐related quality of life (HRQOL) in epilepsy. A 99‐item inventory was constructed from the RAND 36‐Item Health Survey (generic core), with 9 additional generic items, 48 epilepsy‐targeted items, and 6 other items concerning attitudes toward epilepsy and self‐esteem. We administered the 99‐item inventory to 304 adults with epilepsy at 25 epilepsy centers. Patients and patient‐designated proxies completed the inventory and were retested 1–91 days later. A multitrait scaling analysis of these data led to retention of 86 items distributed in 17 multiitem scales (Cronbach's alpha ranged from 0.78 to 0.92). Factor analysis of the 17 multiitem scales yielded four underlying dimensions of health: an epilepsy‐targeted dimension, a cognitive factor, mental health, and physical health. Construct validity was supported by significant patient‐proxy correlations for all scales and correlations between neuropsychologic tests and self‐reported emotional and cognitive function (all p values < 0.05). There were significant negative correlations between the four factor scores derived from the HRQOL scales and neurotoxicity, systemic toxicity, and health care utilization (except for the correlation between mental health factor and health care utilization; all p values < 0.05). Patients who were seizure‐free in the preceding year reported better HRQOL for the overall score, three of the four factor scores, and 8 of the 17 scale scores than did patients with a high frequency of seizures. Relative validity analysis showed that the epilepsy‐targeted factor and three of its four component scales were more sensitive to categorization of patients by severity of seizure frequency and type than scales tapping physical health, mental health, or cognitive function. These cross‐sectional data support the reliability and validity of this measure of HRQOL in epilepsy. The addition of an epilepsy‐targeted supplement to the generic core improved the sensitivity to severity of epilepsy. The 86 items included in the field testing were supplemented by three additional items to form the Quality of Life in Epilepsy (QOLIE‐89) inventory.
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The most commonly used scale for assessing HRQoL was the Quality of Life in Epilepsy-31/-31-P/-89 (QOLIE-31/31-P/-89).
“The most commonly used scale for assessing HRQoL was the Quality of Life in Epilepsy-31/-31-P/-89 (QOLIE-31/31-P/-89). 51,52”
From Cochrane systematic review and meta-analysis of the impact of psychological treatments for people with epilepsy on health-related quality of life (2018) · cites this paper as [52]
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Luoni, C., Bisulli, F., Canevini, M. P., Sarro, G. D., Fattore, C., Galimberti, C. A., Gatti, G., Neve, A. L., Muscas, G., Specchio, L. M., et al. (2011) · Epilepsia · doi:10.1111/j.1528-1167.2011.03325.x · Cited by 286 · see citing works
“…of medication (AEP), and depressive symptoms (BDI-II) have all been shown to be reliable and valid both in their original form (Baker et al., 1994; Devinsky et al., 1995; Beck et al., 1996; Baker et al., 1997) and in the Italian-language version (Beghi et al., 2005; Ghisi et al., 2006; Tozzi et…”
MethodRao, D., Choi, S. W., Victorson, D. E., Bode, R. K., Peterman, A. H., Heinemann, A. W., & Cella, D. F. (2009) · Quality of Life Research · doi:10.1007/s11136-009-9475-1 · Cited by 282 · see citing works
Development of the Quality of Life in Epilepsy Inventory for Adolescents: The QOLIE‐AD‐48
Cramer, J. A., Westbrook, L. E., Devinsky, O., Perrine, K. R., Glassman, M. B., & Camfield, C. (1999) · Epilepsia · doi:10.1111/j.1528-1157.1999.tb00828.x · Cited by 275 · see citing works
Self-citationDeterminants of quality of life in epilepsy
Loring, D. W., Meador, K. J., & Lee, G. P. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.08.019 · Cited by 260 · see citing works
Self-citationMay, T. W., & Pfäfflin, M. (2002) · Epilepsia · doi:10.1046/j.1528-1157.2002.23801.x · Cited by 251 · see citing works
Initial outcomes in the Multicenter Study of Epilepsy Surgery
Spencer, S. S., Berg, A. T., Vickrey, B. G., Sperling, M. R., Bazil, C. W., Shinnar, S., Langfitt, J. T., Walczak, T. S., Pacia, S. V., Ebrahimi, N. B., et al. (2003) · Neurology · doi:10.1212/01.wnl.0000098937.35486.a3 · Cited by 239 · see citing works
Self-citationAdverse antiepileptic drug effects
Perucca, P., Carter, J., Vahle, V. J., & Gilliam, F. G. (2009) · Neurology · doi:10.1212/01.wnl.0000345667.45642.61 · Cited by 237 · see citing works
Effects of chronic exercise on feelings of energy and fatigue: A quantitative synthesis.
Puetz, T. W., O’Connor, P. J., & Dishman, R. K. (2006) · Psychological Bulletin · doi:10.1037/0033-2909.132.6.866 · Cited by 236 · see citing works
Measuring Health-Related Quality of Life in Older Patient Populations
Hickey, A., Barker, M., McGee, H. M., & O’Boyle, C. A. (2005) · PharmacoEconomics · doi:10.2165/00019053-200523100-00002 · Cited by 236 · see citing works
“Other amples include the MSQOL-54[24] and the QOL in validated measures such as the SIP, the QWB and Epilepsy Inventory (QOLIE-89).[85] Such an apthe EQ-5D were in evidence to a lesser extent.”
MethodHealth-related quality of life outcomes measures
Andresen, E. M., & Meyers, A. R. (2000) · Archives of Physical Medicine and Rehabilitation · doi:10.1053/apmr.2000.20621 · Cited by 226 · see citing works
Ronen, G. M., Streiner, D. L., Rosenbaum, P., & Canadian Pediatric Epilepsy Network (2003) · Epilepsia · doi:10.1046/j.1528-1157.2003.46302.x · Cited by 228 · see citing works
Psychiatric comorbidity, health, and function in epilepsy
Gilliam, F. G., Hečimović, H., & Sheline, Y. I. (2003) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2003.10.003 · Cited by 222 · see citing works
“evaluated 257 patients from 25 epilepsy centers in the United States with the Quality of Life in Epilepsy Inventory (QOLIE)-89 [12], as well as objective tests of memory, verbal abilities, spatial functions, psychomotor, and cognitive processing speed, cognitive flexibility, and mood [13].”
BackgroundHermann, B. P., Vickrey, B. G., Hays, R. D., Cramer, J. A., Devinsky, O., Meador, K. J., Perrine, K. R., Myers, L. W., & Ellison, G. W. (1996) · Epilepsy Research · doi:10.1016/0920-1211(96)00024-1 · Cited by 218 · see citing works
Self-citationValidation of a New Quality of Life Measure for Children with Epilepsy
Sabaz, M., Cairns, D. R., Lawson, J. A., Nheu, N., Bleasel, A. F., & Bye, A. M. E. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb00240.x · Cited by 213 · see citing works
Epilepsy and employment: Literature review
Smeets, V. M. J., van Lierop, B. A. G., Vanhoutvin, J. F. G., Aldenkamp, A. P., & Nijhuis, F. J. N. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.02.006 · Cited by 214 · see citing works
The Multicenter Study of Epilepsy Surgery: Recruitment and Selection for Surgery
Berg, A. T., Vickrey, B. G., Langfitt, J. T., Sperling, M. R., Walczak, T. S., Shinnar, S., Bazil, C. W., Pacia, S. V., & Spencer, S. S. (2003) · Epilepsia · doi:10.1046/j.1528-1157.2003.24203.x · Cited by 212 · see citing works
Self-citationRisk Factors for Poor Health‐Related Quality of Life in Adolescents with Epilepsy
Devinsky, O., Westbrook, L. E., Cramer, J. A., Glassman, M. B., Perrine, K. R., & Camfield, C. (1999) · Epilepsia · doi:10.1111/j.1528-1157.1999.tb01588.x · Cited by 212 · see citing works
Self-citationThe influence of comorbid depression on quality of life for people with epilepsy
Cramer, J. A., Blum, D. E., Reed, M. L., & Fanning, K. M. (2003) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2003.07.009 · Cited by 212 · see citing works
Self-citationQuality-of-life trajectories in epilepsy: A review of the literature
Jacoby, A., & Baker, G. A. (2008) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.11.013 · Cited by 211 · see citing works
“Zeber and colleagues found QOLIE-89 scores to be significantly reduced by comorbid depression for all types of seizures [104].”
BackgroundInfluentialGralnek, I. M., Hays, R. D., Kilbourne, A. M., Rosen, H. R., Keeffe, E. B., Artinian, L., Kim, S., Lazarovici, D., Jensen, D. M., Busuttil, R. W., et al. (2000) · The American Journal of Gastroenterology · doi:10.1016/s0002-9270(00)02168-7 · Cited by 206 · see citing works
Self-citationThe association of mood with quality of life ratings in epilepsy
Tracy, J. I., Dechant, V., Sperling, M. R., Cho, R., & Glosser, D. S. (2006) · Neurology · doi:10.1212/01.wnl.0000242582.83632.73 · Cited by 204 · see citing works
Ryvlin, P., Gilliam, F. G., Nguyen, D. K., Colicchio, G., Iudice, A., Tinuper, P., Zamponi, N., Aguglia, U., Wagner, L., Minotti, L., et al. (2014) · Epilepsia · doi:10.1111/epi.12611 · Cited by 192 · see citing works
Elliott, I., Lach, L., & Smith, M. L. (2005) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2005.07.004 · Cited by 191 · see citing works
Measuring stigma in children with epilepsy and their parents: instrument development and testing
AUSTIN, J. K., MacLeod, J. R., Dunn, D. W., Shen, J., & Perkins, S. M. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.04.008 · Cited by 191 · see citing works
Clinically important change in quality of life in epilepsy
Wiebe, S. (2002) · Journal of Neurology Neurosurgery & Psychiatry · doi:10.1136/jnnp.73.2.116 · Cited by 189 · see citing works
Perceived Impact of Childhood‐onset Epilepsy on Quality of Life as an Adult
Sillanpää, M. L., Haataja, L. M., & Shinnar, S. (2004) · Epilepsia · doi:10.1111/j.0013-9580.2004.44203.x · Cited by 184 · see citing works
“We chose these scales rather than an epilepsy QOL scale such as the QOLIE (6,10,13,14), as in our experience in other research studies, the QOLIE, although an excellent QOL measure of those with active epilepsy, was not a very good QOL measure in patients with epilepsy who were seizure free and off medications for man…”
BackgroundInfluentialKanner, A. M., Barry, J. J., Gilliam, F., Hermann, B., & Meador, K. J. (2010) · Epilepsia · doi:10.1111/j.1528-1167.2010.02582.x · Cited by 182 · see citing works
“HRQOL measures were obtained with the Quality of Life in Epilepsy-89 (QOLIE-89) (Devinsky et al., 1995).”
MethodSelf-citationFactors influencing on quality of life in people with epilepsy
Guekht, A. B., Mitrokhina, T. V., Лебедева, А. В., Dzugaeva, F. K., Мильчакова, Л. Е., Ob, L., Feygina, A. A., & Гусев, Е. И. (2006) · Seizure · doi:10.1016/j.seizure.2006.10.011 · Cited by 178 · see citing works
Early and late cognitive changes following temporal lobe surgery for epilepsy
Rausch, R., Kraemer, S., Pietras, C. J., Le, M., Vickrey, B. G., & Passaro, E. A. (2003) · Neurology · doi:10.1212/01.wnl.0000048203.23766.a1 · Cited by 177 · see citing works
Self-citationKwan, P., Yu, E., Leung, H., León, T., & Mychaskiw, M. A. (2008) · Epilepsia · doi:10.1111/j.1528-1167.2008.01938.x · Cited by 176 · see citing works
“QOLIE-31 is an abbreviated version of QOLIE-89, one of the most widely adopted epilepsy-specific quality-of-life instruments (Devinsky et al., 1995).”
BackgroundSimonsen, C., Sundet, K. S., Vaskinn, A., Birkenaes, A. B., Engh, J. A., Hansen, C. F., Jónsdóttir, H., Ringen, P. A., Opjordsmoen, S., Friis, S., et al. (2008) · Bipolar Disorders · doi:10.1111/j.1399-5618.2007.00492.x · Cited by 177 · see citing works
Sabaz, M., Cairns, D. R., Lawson, J. A., Bleasel, A., & Bye, A. M. E. (2001) · Epilepsia · doi:10.1046/j.1528-1157.2001.25200.x · Cited by 175 · see citing works
Long‐Term Outcome After Epilepsy Surgery
Spencer, S. S. (1996) · Epilepsia · doi:10.1111/j.1528-1157.1996.tb00032.x · Cited by 172 · see citing works
McEwan, M. J., Espie, C. A., METCALFE, J., Brodie, M. J., & WILSON, M. T. (2003) · Seizure · doi:10.1016/s1059-1311(03)00080-3 · Cited by 168 · see citing works
Characterizing Neurodynamic Changes Before Seizures
Quyen, M. L. V., Martinerie, J. M., Navarro, V., Baulac, M., & Varela, F. J. (2001) · Journal of Clinical Neurophysiology · doi:10.1097/00004691-200105000-00001 · Cited by 167 · see citing works
“For patients with intractable epilepsy, this unpredictability of seizure is responsible for enhanced risk for sudden, unexpected death (Cockerell et al., 1994) or morbidity (Buck et al., 1997) and represents a major factor of quality of life (Devinsky et al., 1995).”
BackgroundMarkand, O. N., Salanova, V., Whelihan, E., & Emsley, C. L. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb00238.x · Cited by 166 · see citing works
Differential cognitive and behavioral effects of carbamazepine and lamotrigine
Meador, K. J., Loring, D. W., Ray, P. G., Murro, A. M., King, D. W., Perrine, K. R., Vázquez, B., & Kiolbasa, T. A. (2001) · Neurology · doi:10.1212/wnl.56.9.1177 · Cited by 166 · see citing works
Self-citationHealth‐related quality of life over time since resective epilepsy surgery
Spencer, S. S., Berg, A. T., Vickrey, B. G., Sperling, M. R., Bazil, C. W., Haut, S. R., Langfitt, J. T., Walczak, T. S., & Devinsky, O. (2007) · Annals of Neurology · doi:10.1002/ana.21131 · Cited by 161 · see citing works
Self-citationCommission on Outcome Measurement in Epilepsy, 1994–1997: Final Report
Baker, G. A., Camfield, C. S., Camfield, P. R., Cramer, J. A., Elger, C. E., Johnson, A. L., da Silva, A. M., Meinardi, P. H., Munari, C., Perucca, E., et al. (1998) · Epilepsia · doi:10.1111/j.1528-1157.1998.tb01361.x · Cited by 161 · see citing works
Self-citationDeep brain and cortical stimulation for epilepsy
Sprengers, M., Vonck, K. E. J., Carrette, E., Marson, A. G., & Boon, P. (2017) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd008497.pub3 · Cited by 159 · see citing works
Patient-oriented outcome assessment after temporal lobectomy for refractory epilepsy
Gilliam, F. G., Kuzniecky, R., Meador, K. J., Martin, R. C., Sawrie, S. M., Viikinsalo, M., Morawetz, R. B., & Faught, E. (1999) · Neurology · doi:10.1212/wnl.53.4.687 · Cited by 158 · see citing works
Self-citationMcAuley, J. W., Long, L., Heise, J., Kirby, T. E., Buckworth, J., Pitt, C., Lehman, K. J., Moore, J. L., & Reeves, A. L. (2001) · Epilepsy & Behavior · doi:10.1006/ebeh.2001.0271 · Cited by 157 · see citing works
Differential cognitive and behavioral effects of topiramate and valproate
Meador, K. J., Loring, D. W., Hulihan, J. F., Kamin, M., & Karim, R. (2003) · Neurology · doi:10.1212/01.wnl.0000063308.22506.19 · Cited by 154 · see citing works
Self-citationCramer, J. A., Blum, D. E., Fanning, K. M., & Reed, M. L. (2004) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2004.01.010 · Cited by 154 · see citing works
“The self-report questionnaire included demographic, health care utilization, and health insurance coverage items, as well as the Seizure Severity Scale [9] and QOLIE-89 [10] (data from these instruments are reported elsewhere).”
MethodSelf-citationSeizure anticipation in human neocortical partial epilepsy
Navarro, V., Martinerie, J. M., Quyen, M. L. V., Clémenceau, S., Adam, C., Baulac, M., & Varela, F. J. (2002) · Brain · doi:10.1093/brain/awf048 · Cited by 153 · see citing works
Cognitive and behavioral effects of lamotrigine and topiramate in healthy volunteers
Meador, K. J., Loring, D. W., Vahle, V. J., Ray, P. G., Werz, M. A., Fessler, A. J., Ogrocki, P. K., Schoenberg, M. R., Miller, J. M., & Kustra, R. P. (2005) · Neurology · doi:10.1212/01.wnl.0000165994.46777.be · Cited by 152 · see citing works
Self-citationWorsening of quality of life after epilepsy surgery
Langfitt, J. T., Westerveld, M., Hamberger, M. J., Walczak, T. S., Cicchetti, D., Berg, A. T., Vickrey, B. G., Barr, W., Sperling, M. R., Masur, D., et al. (2007) · Neurology · doi:10.1212/01.wnl.0000264000.11511.30 · Cited by 150 · see citing works
Self-citationAgreement between self reports and proxy reports of quality of life in epilepsy patients
Hays, R. D., Vickrey, B. G., Hermann, B. P., Perrine, K. R., Cramer, J. A., Meador, K. J., Spritzer, K. L., & Devinsky, O. (1995) · Quality of Life Research · doi:10.1007/bf01833609 · Cited by 146 · see citing works
Self-citationSeizure prediction by nonlinear EEG analysis
Lehnertz, K., Mormann, F., Kreuz, T., Andrzejak, R. G., Rieke, C., David, P., & Elger, C. E. (2003) · IEEE Engineering in Medicine and Biology Magazine · doi:10.1109/memb.2003.1191451 · Cited by 149 · see citing works
“Together with other suitable prevention techniques—e.g., electrical interventions [5] or biofeedback operant conditioning [6]—this would reduce morbidity [7] and mortality [8] and of course would greatly improve the quality of life for epilepsy patients [ 9 ].”
BackgroundSubjective versus objective memory change after temporal lobe epilepsy surgery
Sawrie, S. M., Martin, R. C., Kuzniecky, R., Faught, E., Morawetz, R. B., Jamil, F., Viikinsalo, M., & Gilliam, F. G. (1999) · Neurology · doi:10.1212/wnl.53.7.1511 · Cited by 145 · see citing works
Quality of Life in Psychogenic Nonepileptic Seizures
Szaflarski, J. P., Hughes, C., Szaflarski, M., Ficker, D. M., Cahill, W. T., Li, M., & Privitera, M. (2003) · Epilepsia · doi:10.1046/j.1528-1157.2003.35302.x · Cited by 145 · see citing works
“The mean QOLIE-89 overall and subscale scores for epilepsy patients in our sample are similar to the data reported in the original QOLIE-89 study (2).”
BackgroundMethodResultInfluentialGıovagnolı, A. R., & AVANZINI, G. (1999) · Epilepsia · doi:10.1111/j.1528-1157.1999.tb00797.x · Cited by 139 · see citing works
Elixhauser, A., Leidy, N. K., Meador, K. J., Means, E. D., & Willian, M. K. (1999) · Epilepsy Research · doi:10.1016/s0920-1211(99)00036-4 · Cited by 137 · see citing works
Self-citationRonen, G. M., Streiner, D. L., & Rosenbaum, P. (2003) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-1-36 · Cited by 137 · see citing works
Validation of the Quality of Life in Childhood Epilepsy Questionnaire in American epilepsy patients
Sabaz, M., Lawson, J. A., Cairns, D. R., Duchowny, M. S., Resnick, T. J., Dean, P. M., & Bye, A. M. E. (2003) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2003.08.012 · Cited by 136 · see citing works
Meador, K. J., Kapur, R., Loring, D. W., Kanner, A. M., & Morrell, M. J. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.01.012 · Cited by 136 · see citing works
Self-citationCritical review of the responsive neurostimulator system for epilepsy
Jobst, B. C., & Thomas, G. (2015) · Medical Devices Evidence and Research · doi:10.2147/mder.s62853 · Cited by 133 · see citing works
Effect of Levetiracetam on Epilepsy‐Related Quality of Life
Cramer, J. A., Arrigo, C., Hammée, G. V., Gauer, L. J., Cereghino, J. J., & for the N132 Study Group (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb00255.x · Cited by 133 · see citing works
Self-citationMarten, F., Rodrigues, S., Benjamin, O., Richardson, M. P., & Terry, J. R. (2009) · Philosophical Transactions of the Royal Society A Mathematical Physical and Engineering Sciences · doi:10.1098/rsta.2008.0255 · Cited by 132 · see citing works
Cognitive and behavioral effects of antiepileptic drugs
Drane, D. L., & Meador, K. J. (2002) · Epilepsy & Behavior · doi:10.1016/s1525-5069(02)00502-9 · Cited by 132 · see citing works
Self-citationQuintas, R., Raggi, A., Giovannetti, A., Pagani, M., Sabariego, C., Cieza, A., & Leonardi, M. (2012) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2012.05.016 · Cited by 130 · see citing works
“The instruments used in the studies were the Quality of life in epilepsy inventory — QOLIE-89 [26] (N=4) and QOLIE-31 [27] (N=8), the World Health Organization Quality of Life — WHOQOL-BREF [28] (N=5), the Hospital Anxiety and Depression Scale — HADS [29] (N=7), the Center for Epidemiologic Studies Depression Scale —…”
MethodLowe, A. J., David, E., Kilpatrick, C. J., Matkovic, Z., Cook, M. J., Kaye, A. H., & O'Brien, T. J. (2004) · Epilepsia · doi:10.1111/j.0013-9580.2004.35903.x · Cited by 129 · see citing works
“The total and subscale QOLIE-89 scores were calculated for each patient (25).”
BackgroundInfluentialA review of health-related quality-of-life measures used in end-stage renal disease
Edgell, E. T., Coons, S. J., Carter, W. B., Kallich, J. D., Mapes, D., Damush, T. M., & Hays, R. D. (1996) · Clinical Therapeutics · doi:10.1016/s0149-2918(96)80049-x · Cited by 128 · see citing works
Self-citationMichaelis, R., Tang, V., Wagner, J. L., Modi, A. C., LaFrance, W. C., Goldstein, L. H., Lundgren, T., & Reuber, M. (2018) · Epilepsia · doi:10.1111/epi.13989 · Cited by 122 · see citing works
Psychopathology in children and adolescents with epilepsy: An investigation of predictive variables
Turky, A., Beavis, J. M., Thapar, A. K., & Kerr, M. P. (2007) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2007.08.003 · Cited by 126 · see citing works
Cortical and subcortical contributions to absence seizure onset examined with EEG/fMRI
Szaflarski, J. P., DiFrancesco, M. W., Hirschauer, T. J., Banks, C., Privitera, M., Gotman, J., & Holland, S. K. (2010) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2010.05.009 · Cited by 125 · see citing works
“These patients with so-called atypical or medication-refractory IGEs (R-IGEs) often face lifelong medication-resistant seizures and associated complications including low self-esteem, emotional and mood problems, and poor quality of life [6–8].”
BackgroundNeuropsychological and neurophysiologic effects of carbamazepine and levetiracetam
Meador, K. J., Gevins, A. S., Loring, D. W., McEvoy, L. K., Ray, P. G., Smith, M. E., Motamedi, G. K., Evans, B. M., & Baum, C. (2007) · Neurology · doi:10.1212/01.wnl.0000281104.55418.60 · Cited by 116 · see citing works
Self-citationVickrey, B. G., Berg, A. T., Sperling, M. R., Shinnar, S., Langfitt, J. T., Bazil, C. W., Walczak, T. S., Pacia, S. V., Kim, S., & Spencer, S. S. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb00239.x · Cited by 116 · see citing works
Self-citationThe Liverpool Adverse Events Profile: Relation to AED Use and Mood
Panelli, R. J., Kilpatrick, C. J., Moore, S. M., Matkovic, Z., D'Souza, W. J., & O'Brien, T. J. (2007) · Epilepsia · doi:10.1111/j.1528-1167.2006.00956.x · Cited by 115 · see citing works
“Assessing the range and severity of adverse events for one drug, or comparing effects between drugs, is complicated by the methodologic variations that occur between studies (Devinsky and Cramer, 2000).”
BackgroundRosenberg, E. C., Louik, J. B., Conway, E., Devinsky, O., & Friedman, D. (2017) · Epilepsia · doi:10.1111/epi.13815 · Cited by 114 · see citing works
Self-citationCarmichael, P., Popoola, J., John, I. C., Stevens, P. E., & Carmichael, A. R. (2000) · Quality of Life Research · doi:10.1023/a:1008933621829 · Cited by 114 · see citing works
Hermann, B. P., Seidenberg, M., Bell, B. D., Woodard, A. R., Rutecki, P. A., & Sheth, R. D. (2000) · Epilepsy & Behavior · doi:10.1006/ebeh.2000.0066 · Cited by 113 · see citing works
Self-citationHealth-Related Quality of Life After Epilepsy Surgery: A Swedish Multicenter Study
Malmgren, K., Sullivan, M., Ekstedt, G., Kullberg, G., & Kumlien, E. (1997) · Epilepsia · doi:10.1111/j.1528-1157.1997.tb01471.x · Cited by 113 · see citing works
Identifying depression in epilepsy in a busy clinical setting is enhanced with systematic screening
Friedman, D. E., Kung, D. H., Laowattana, S., Kass, J. S., Hrachovy, R. A., & Levin, H. S. (2009) · Seizure · doi:10.1016/j.seizure.2009.03.001 · Cited by 112 · see citing works
Health Status of People with Epilepsy Compared with a General Reference Population
Stavem, K., Loge, J. H., & Kaasa, S. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb01510.x · Cited by 111 · see citing works
“For instance, patients have been recruited from tertiary care institutions (6,22,26), epilepsy support groups (17,23), only patients taking AEDs (22,27), children or adolescents (28,29), epilepsy surgery patients (8), self-reported diagnosis of epilepsy (17,23), or had response rates under 50% (23).”
BackgroundMood, anxiety, and incomplete seizure control affect quality of life after epilepsy surgery
Altalib, H. H., Blackmon, K., Cong, X., Dziura, J. D., Atlas, L. Y., Vickrey, B. G., Berg, A. T., Bazil, C. W., Langfitt, J. T., Walczak, T. S., et al. (2014) · Neurology · doi:10.1212/wnl.0000000000000183 · Cited by 110 · see citing works
Self-citation
- Authors
- Devinsky, O., Vickrey, B. G., Cramer, J., Perrine, K., Hermann, B., Meador, K., & Hays, R. D.
- Affiliations
- New York University Langone Orthopedic Hospital (US)
- RAND Corporation (US)
- Yale University (US)
- University of Tennessee Health Science Center (US)
- Augusta University (US)
- University of California, Los Angeles (US)
- ORCID
- Venue
- Epilepsia
- Publisher
- Wiley
- Published
- 1995-11
- Volume
- 36
- Issue
- 11
- Pages
- 1089-1104
- ISSN
- 0013-9580 (ISSN-L)
- 1528-1167
- OpenAlex
- W2124800861
- Cited by
- 634
- References
- 73
- Citations by year
- 2026: 16 · 2025: 16 · 2024: 14 · 2023: 11 · 2022: 12 · 2021: 17 · 2020: 17 · 2019: 20 · 2018: 14 · 2017: 21 · 2016: 14 · 2015: 23 · 2014: 32 · 2013: 21 · 2012: 15
- FWCI
- 11.64
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Epilepsia (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Epilepsy research and treatment
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Social Sciences › Education › Health Education and Validation
- Keywords
- epilepsy, health-related quality of life, QOLIE-89, instrument development, RAND-36, patient-proxy agreement, construct validity, factor analysis, seizure frequency, epilepsy severity, mental health, cognitive function, physical health, health care utilization, neurotoxicity, self-esteem, attitudes toward epilepsy
- MeSH terms
- Adolescent, Adult, Aged, Attitude to Health, Epilepsy, Factor Analysis, Statistical, Female, Health Status, Humans, Male, Middle Aged, Personality Inventory, Psychometrics, Quality of Life, Self Concept, Severity of Illness Index, Reproducibility of Results, Prevalence
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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