eHealth for inflammatory bowel disease self-management – the patient perspective
Abstract
Background Electronic health (eHealth) solutions may help address the growing pressure on IBD outpatient services as they encompass a component of self-management. However, information regarding patients' attitudes towards the use of eHealth solutions in IBD is lacking. Objective The aim of this study was to evaluate eHealth technology use and explore the perspectives of IBD patients on what constitutes the ideal eHealth solution to facilitate self-management. Methods A mixed methods qualitative and quantitative analysis of the outcomes of a discussion forum and an online survey conducted at a tertiary hospital in Melbourne, Australia between November 2015 and January 2016 was undertaken. Results Eighteen IBD patients and parents participated in the discussion forum. IBD patients expressed interest in eHealth tools that are convenient and improve access to care, communication, disease monitoring and adherence. Eighty six patients with IBD responded to the online survey. A majority of patients owned a mobile phone (98.8%), had access to the internet (97.7%), and felt confident entering data onto a phone or computer (73.3%). Most patients (98.8%) were willing to use at least one form of information and communication technology to help manage their IBD. Smartphone apps and internet websites were the two most preferred technologies to facilitate IBD self-management. Conclusions This study demonstrates the willifngness of patients to engage with eHealth as a potential solution to…
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Participants have indicated receptivity to virtual health technologies.
“participants have indicated receptivity to this approach (74).”
From The 2023 Impact of Inflammatory Bowel Disease in Canada: Mental Health and Inflammatory Bowel Disease (2023) · cites this paper as [74]
Cites
Eysenbach, G. (2005) · Journal of Medical Internet Research · doi:10.2196/jmir.7.1.e11 · Cited by 2,524 · see citing works
Eysenbach, G. (2001) · Journal of Medical Internet Research · doi:10.2196/jmir.3.2.e20 · Cited by 2,449 · see citing works
Self-management interventions for chronic illness
Newman, S. P., Steed, L., & Mulligan, K. (2004) · The Lancet · doi:10.1016/s0140-6736(04)17277-2 · Cited by 993 · see citing works
Computer and Internet Use in the United States: 2003
Day, J. C., Janus, A. L., & Davis, J. T. (2005) · Cited by 978 · see citing works
Is Patient Activation Associated With Outcomes of Care for Adults With Chronic Conditions?
Mosen, D. M., Schmittdiel, J. A., Hibbard, J. H., Sobel, D. S., Remmers, C., & Bellows, J. (2007) · Journal of Ambulatory Care Management · doi:10.1097/00004479-200701000-00005 · Cited by 478 · see citing works
Analysis of variance (ANOVA) comparing means of more than two groups
Kim, H.-Y. (2014) · Restorative Dentistry & Endodontics · doi:10.5395/rde.2014.39.1.74 · Cited by 415 · see citing works
Elkjær, M., Shuhaibar, M., Burisch, J. M., Bailey, Y., Scherfig, H., Laugesen, B., Avnstrøm, S., Langholz, E., O'Morain, C. A., Lynge, E., et al. (2010) · Gut · doi:10.1136/gut.2010.220160 · Cited by 308 · see citing works
Jackson, C., Clatworthy, J., Robinson, A., & Horne, R. (2009) · The American Journal of Gastroenterology · doi:10.1038/ajg.2009.685 · Cited by 287 · see citing works
Patient Engagement and the Design of Digital Health
Birnbaum, F. A., Lewis, D. M., Rosen, R. K., & Ranney, M. L. (2015) · Academic Emergency Medicine · doi:10.1111/acem.12692 · Cited by 255 · see citing works
Web-Based Interventions for Behavior Change and Self-Management: Potential, Pitfalls, and Progress
Murray, E. (2012) · Medicine 2.0 · doi:10.2196/med20.1741 · Cited by 219 · see citing works
Hilliard, M. E., Hahn, A. L., Ridge, A. K., Eakin, M. N., & Riekert, K. A. (2014) · JMIR mhealth and uhealth · doi:10.2196/mhealth.3599 · Cited by 140 · see citing works
Baars, J. E., Markus, T., Kuipers, E. J., & van der Woude, C. J. (2010) · Digestion · doi:10.1159/000253862 · Cited by 137 · see citing works
Schnall, R., Henry, S. B., Rojas, M., Travers, J. L., & Carballo‐Diéguez, A. (2015) · AIDS and Behavior · doi:10.1007/s10461-014-0984-8 · Cited by 134 · see citing works
EHealth Technologies in Inflammatory Bowel Disease: A Systematic Review.
Jackson, B. D., Gray, K., Knowles, S. R., & De Cruz, P. (2016) · Journal of Crohn's and Colitis · doi:10.1093/ecco-jcc/jjw059 · Cited by 126 · see citing works
Self-citationWolters, F. J., Rüssel, M. G., Sijbrandij, J., Schouten, L. J., Odes, S., Riis, L., Munkholm, P., Bodini, P., O'Morain, C. A., Mouzas, I. A., et al. (2005) · Gut · doi:10.1136/gut.2005.072793 · Cited by 123 · see citing works
Siegel, C. A. (2011) · Gut · doi:10.1136/gutjnl-2011-300988 · Cited by 115 · see citing works
Medication-Taking Behavior in a Cohort of Patients with Inflammatory Bowel Disease
Bernal, I., Domènech, E., García-Planella, E., Marín, L., Mañosa, M., Navarro, M., Cabré, E., & Gassull, M. A. (2006) · Digestive Diseases and Sciences · doi:10.1007/s10620-006-9444-2 · Cited by 108 · see citing works
McCombie, A., Gearry, R., Andrews, J., Mulder, R., & Mikocka-Walus, A. (2016) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000567 · Cited by 100 · see citing works
Pedersen, N. K., Elkjær, M., Ďuricová, D., Burisch, J. M., Dobrzanski, C., Andersen, N. N., Jess, T., Bendtsen, F., Langholz, E., Leotta, S., et al. (2012) · Alimentary Pharmacology & Therapeutics · doi:10.1111/apt.12043 · Cited by 100 · see citing works
Con, D., & Cruz, P. P. D. (2016) · JMIR mhealth and uhealth · doi:10.2196/mhealth.4874 · Cited by 99 · see citing works
Self-citationVinding, K. K., Elsberg, H., Thorkilgaard, T., Bélard, E., Pedersen, N. K., Elkjær, M., Marker, D., Carlsen, K., Burisch, J. M., & Munkholm, P. (2015) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000619 · Cited by 89 · see citing works
Murphy, E. V. (2014) · PubMed · Cited by 88 · see citing works
Høie, O., Schouten, L. J., Wolters, F. J., Solberg, I. C., Riis, L. B., Mouzas, I., Politi, P., Odes, S. H., Langholz, E., Vatn, M., et al. (2006) · Gut · doi:10.1136/gut.2006.101519 · Cited by 82 · see citing works
Atreja, A., Khan, S., Rogers, J., Otobo, E. O., Patel, N., Ullman, T. A., Colombel, J. F., Moore, S. M., & Sands, B. E. (2015) · JMIR Research Protocols · doi:10.2196/resprot.4042 · Cited by 75 · see citing works
Acceptance of Telemanagement is High in Patients With Inflammatory Bowel Disease
Cross, R. K., Arora, M., & Finkelstein, J. (2006) · Journal of Clinical Gastroenterology · doi:10.1097/00004836-200603000-00006 · Cited by 71 · see citing works
Potential Use of Telemedicine to Provide Outpatient Care for Inflammatory Bowel Disease
Krier, M. J., Kaltenbach, T. R., McQuaid, K. R., & Soetikno, R. M. (2011) · The American Journal of Gastroenterology · doi:10.1038/ajg.2011.329 · Cited by 63 · see citing works
Telemedicine in Inflammatory Bowel Disease
Aguas, M., del Hoyo, J., Bebia, P., Faubel, R., Barrios, A., Bastida, G., Valdivieso, B., & Nos, P. (2014) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000241 · Cited by 63 · see citing works
Cross, R. K., Jambaulikar, G. D., LANGENBERG, P. W., Tracy, J. K., Collins, J. F., Katz, J., Regueiro, M. D., Schwartz, D. A., & Quinn, C. C. (2015) · Contemporary Clinical Trials · doi:10.1016/j.cct.2015.03.006 · Cited by 59 · see citing works
Tae, C. H., Jung, S.-A., Moon, H. S., Seo, J.-A., Song, H. K., Moon, C. M., Kim, S., Shim, K., & Jung, H. (2015) · Journal of Clinical Gastroenterology · doi:10.1097/mcg.0000000000000431 · Cited by 51 · see citing works
Increasing Patient Activation Could Improve Outcomes for Patients with Inflammatory Bowel Disease
Shah, S. L., & Siegel, C. A. (2015) · Inflammatory Bowel Diseases · doi:10.1097/mib.0000000000000575 · Cited by 30 · see citing works
Jackson, B. D., Con, D., Liew, D., & Cruz, P. P. D. (2017) · Scandinavian Journal of Gastroenterology · doi:10.1080/00365521.2017.1278785 · Cited by 27 · see citing works
Self-citationSpiegel, B. M. R. (2016) · The American Journal of Gastroenterology · doi:10.1038/ajg.2016.68 · Cited by 26 · see citing works
Talking about life and IBD: A paradigm for improving patient–physician communication
Mitchell, R., Kremer, A., Westwood, N., Younge, L., & Ghosh, S. K. (2008) · Journal of Crohn s and Colitis · doi:10.1016/j.crohns.2008.07.002 · Cited by 26 · see citing works
Hommel, K. A., Gray, W. N., Hente, E. A., Loreaux, K., Ittenbach, R. F., Maddux, M. H., Baldassano, R. N., Sylvester, F. A., Crandall, W., Doarn, C. R., et al. (2015) · Contemporary Clinical Trials · doi:10.1016/j.cct.2015.05.013 · Cited by 24 · see citing works
Telephone reminders reduced the non-attendance rate in a gastroenterology outpatient clinic.
Jeppesen, M. H., & Ainsworth, M. A. (2015) · PubMed · Cited by 20 · see citing works
van Mierlo, T., Fournier, R., & Fedorak, R. (2015) · JMIR mhealth and uhealth · doi:10.2196/mhealth.3987 · Cited by 13 · see citing works
Where weʼre going, we donʼt need appointments: The future of telemedicine in IBD
Patil, S. A., & Cross, R. K. (2012) · Inflammatory Bowel Diseases · doi:10.1002/ibd.23014 · Cited by 9 · see citing works
The Patient of the Future: Participatory Medicine and Enabling Technologies
Gibbons, M. C., & Shaikh, Y. (2015) · Health informatics · doi:10.1007/978-3-319-20765-0_17 · Cited by 5 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Patients' perspectives on digital health tools
Madanian, S., Nakarada‐Kordic, I., Reay, S., & Chetty, T. (2023) · PEC Innovation · doi:10.1016/j.pecinn.2023.100171 · Cited by 252 · see citing works
Papamichael, K., Afif, W., Drobne, D., Dubinsky, M. C., Ferrante, M., Irving, P. M., Kamperidis, N., Kobayashi, T., Kotze, P. G., Lambert, J., et al. (2022) · The Lancet. Gastroenterology & hepatology · doi:10.1016/s2468-1253(21)00223-5 · Cited by 171 · see citing works
Digital Health Apps in the Clinical Care of Inflammatory Bowel Disease: Scoping Review
Yin, A. L., Hachuel, D., Pollak, J. P., Scherl, E., & Estrin, D. L. (2019) · Journal of Medical Internet Research · doi:10.2196/14630 · Cited by 103 · see citing works
Cowie, J., Calveley, E., Bowers, G., & Bowers, J. (2018) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph15050896 · Cited by 89 · see citing works
Fischer, F., & Kleen, S. (2020) · Journal of Medical Internet Research · doi:10.2196/17691 · Cited by 55 · see citing works
Yu, Q., Xu, L., Li, L., Zhi, M., Gu, Y., Wang, X., Guo, H., Li, Y., Fan, Y., Yang, B., et al. (2019) · BMC Gastroenterology · doi:10.1186/s12876-019-1011-3 · Cited by 50 · see citing works
Self-Efficacy and the Impact of Inflammatory Bowel Disease on Patients' Daily Lives
Sheehan, J. L., Greene-Higgs, L., Swanson, L., Higgins, P., Krein, S. L., Waljee, A. K., Saini, S. D., Berinstein, J. A., Mellinger, J. L., Piette, J. D., et al. (2023) · Clinical and Translational Gastroenterology · doi:10.14309/ctg.0000000000000577 · Cited by 44 · see citing works
Con, D., Andrew, B., Nicolaides, S., van Langenberg, D. R., & Vasudevan, A. (2021) · Intestinal Research · doi:10.5217/ir.2020.00146 · Cited by 41 · see citing works
Self-citationCon, D., van Langenberg, D. V., & Vasudevan, A. (2021) · World Journal of Gastroenterology · doi:10.3748/wjg.v27.i38.6476 · Cited by 31 · see citing works
Self-citationGraff, L. A., Geist, R., Kuenzig, M. E., Benchimol, E. I., Kaplan, G. G., Windsor, J. W., Bitton, A., Coward, S., Jones, J. L., Lee, K., et al. (2023) · Journal of the Canadian Association of Gastroenterology · doi:10.1093/jcag/gwad012 · Cited by 30 · see citing works
“Importantly, they have the potential to broaden access to these behavioural interventions to facilitate disease self-management (72), and participants have indicated receptivity to this approach (74).”
BackgroundDefining participatory health informatics – a scoping review
Denecke, K., Gabarrón, E., Petersen, C. C., & Merolli, M. (2021) · Informatics for Health and Social Care · doi:10.1080/17538157.2021.1883028 · Cited by 24 · see citing works
PCLiON: An Ontology for Data Standardization and Sharing of Prostate Cancer Associated Lifestyles
Chen, Y., Yu, C., Liu, X., Xi, T., Xu, G., Sun, Y., Zhu, F., & Shen, B. (2020) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2020.104332 · Cited by 24 · see citing works
Kim, A. H., Girgis, A., Cruz, P. P. D., Siegel, C. A., Karimi, N., Ruban, S. O., Sechi, A. J., Ng, W., Andrews, J. M., & Connor, S. J. (2020) · Journal of Medical Internet Research · doi:10.2196/15946 · Cited by 22 · see citing works
Zand, A., Nguyen, A. D., Reynolds, C. A., Khandadash, A., Esrailian, E., & Hommes, D. W. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph182211747 · Cited by 16 · see citing works
del Hoyo, J., Nos, P., Faubel, R., Bastida, G., Muñoz, D., Valero‐Pérez, E., Garrido‐Marín, A., Bella, P., de la Peña, B. R., Savini, C., et al. (2020) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph17061871 · Cited by 16 · see citing works
Chamorro‐de‐Vega, E., Romero-Jiménez, R. M., Escudero‐Vilaplana, V., Ais‐Larisgoitia, A., Matilla, M. E. L., González, C. M., Menchen, L. A., Baniandrés, O., Ibares-Frias, L., Lobo-Rodríguez, C., et al. (2022) · Journal of Medical Internet Research · doi:10.2196/37445 · Cited by 12 · see citing works
Understanding digital health ecosystem from Australian citizens’ perspective: A scoping review
Alvandi, A. O., Bain, C., & Burstein, F. (2021) · PLoS ONE · doi:10.1371/journal.pone.0260058 · Cited by 14 · see citing works
de la Torre, E., Montané, C., Rubio, O., Sampietro-Colom, L., Camacho-Mahamud, A., & Grau, I. (2025) · Journal of Medical Internet Research · doi:10.2196/71600 · Cited by 11 · see citing works
Pharmacies providing health services: Attitudes toward eHealth in Italy
Cobelli, N., Cassia, F., Zardini, A., & Kuppelwieser, V. G. (2023) · Journal of Retailing and Consumer Services · doi:10.1016/j.jretconser.2023.103568 · Cited by 11 · see citing works
Rohde, J. A., Fisher, E. B., Boynton, M. H., Freelon, D., Frohlich, D. O., Barnes, E. L., & Noar, S. M. (2022) · JMIR Formative Research · doi:10.2196/34960 · Cited by 11 · see citing works
Patient-ly Waiting: A Review of Patient-Centered Access to Inflammatory Bowel Disease Care in Canada
Mathias, H., van Zanten, S. V., Kits, O., Heisler, C., & Jones, J. (2018) · Journal of the Canadian Association of Gastroenterology · doi:10.1093/jcag/gwy001 · Cited by 9 · see citing works
Profiles of Web-based Portal Users with Inflammatory Bowel Disease
Noureldin, M., Newman, K. L., Higgins, P., Piette, J. D., Resnicow, K., Louissaint, J., Kenney, B. C., Berinstein, J. A., Waljee, A. K., Zhu, J., et al. (2023) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izad056 · Cited by 8 · see citing works
Lin, K., Cavadino, A., Ow, M., Douglas, M., & Serlachius, A. S. (2025) · Frontiers in Digital Health · doi:10.3389/fdgth.2025.1587765 · Cited by 7 · see citing works
Rubin, D. T., Torres, J., Dotan, I., Xu, L. T., Modesto, I., Woolcott, J. C., Gardiner, S. M., & Sands, B. E. (2023) · Inflammatory Bowel Diseases · doi:10.1093/ibd/izad247 · Cited by 6 · see citing works
COVID ‐19: A strong call for remote medicine in inflammatory bowel disease
Khorshid, M., Bakheet, N. G., Abdallah, S., Essam, M., & Cordie, A. (2020) · Journal of Digestive Diseases · doi:10.1111/1751-2980.12935 · Cited by 5 · see citing works
Cohen‐Mekelburg, S., Hodish, G., Ebner, D., Resnicow, K., Waljee, A. K., Saini, S. D., Hawley, S. T., DeJonckheere, M. J., Riehl, M. E., Naftaly, J. P., et al. (2026) · Digestive Diseases and Sciences · doi:10.1007/s10620-026-09858-x · Cited by 4 · see citing works
What do patients and informal caregivers value in IBD care? A narrative inquiry
Thomassen, B. J. M., Hendrix, E. M. B., Mujagic, Z., Smeets, F. G. M., de Jong, M. J., Gevers, T. J. G., Veldhuijzen, G., van der Horst, D., Scherpenzeel, M., Dijkstra, G. D. H., et al. (2025) · BMC Health Services Research · doi:10.1186/s12913-025-12823-5 · Cited by 4 · see citing works
The Application of Mobile Marketing in CRM in the Medical Sector
Grębosz, M., & Olender, M. (2018) · Handel Wewnętrzny · Cited by 3 · see citing works
Leveraging Virtual Technology to Conduct Clinical Trials in Inflammatory Bowel Disease.
Noor, N. M., & Siegel, C. A. (2023) · PubMed Central · Cited by 2 · see citing works
Wiest, I. C., Sicorello, M., Yesmembetov, K., Ebert, M. P., & Teufel, A. (2024) · Visceral Medicine · doi:10.1159/000534191 · Cited by 2 · see citing works
Pathophysiologic Basis of Connected Health Systems
Shaikh, Y., & Gibbons, M. C. (2023) · Journal of Medical Internet Research · doi:10.2196/42405 · Cited by 2 · see citing works
Fallesen, J. P., Krogh, M. L., Knudsen, T., Minet, L. R., Kjeldsen, J., & Skjøth, M. M. (2025) · Journal of Participatory Medicine · doi:10.2196/69093 · Cited by 1 · see citing works
Godecharle, E., Totté, K., van den Brink, W. J., Mujagic, Z., Zhang, J., West, R., van der Horst, D., Scherpenzeel, M., Scheithauer, T. P. M., van den Broek, T., et al. (2026) · Digestive Diseases and Sciences · doi:10.1007/s10620-026-10212-4 · Cited by 1 · see citing works
Chamorro‐de‐Vega, E., Romero-Jiménez, R. M., Escudero‐Vilaplana, V., Ais‐Larisgoitia, A., Lobato‐Matilla, E., González, C. M., Menchen, L. A., Baniandrés, O., Ibares-Frias, L., Lobo-Rodríguez, C., et al. (2022) · doi:10.2196/preprints.37445
Yılmaz, H., & Duman, A. E. (2021) · DergiPark (Istanbul University) · doi:10.32322/jhsm.1040280
Fallesen, J. P., Krogh, M. L., Knudsen, T., Minet, L. R., Kjeldsen, J., & Skjøth, M. M. (2024) · doi:10.2196/preprints.69093
Zhang, W., He, L., Shi, T., Gao, S., Zhao, Y., Wang, X., Xing, L., & Li, Y. (2024) · IEEE International Conference on Data Science in Cyberspace · doi:10.1109/dsc63484.2024.00018
- Authors
- Con, D., Jackson, B., Gray, K., & De Cruz, P.
- Affiliations
- The University of Melbourne (AU)
- Austin Hospital (AU)
- Department of Gastroenterology, Austin Hospital, Melbourne, Australia;
- Venue
- Scandinavian Journal of Gastroenterology
- Publisher
- Informa UK Limited
- Published
- 2017-06-09
- Volume
- 52
- Issue
- 9
- Pages
- 1-8
- ISSN
- 0036-5521 (ISSN-L)
- 1502-7708
- OpenAlex
- W2623267126
- Cited by
- 38
- References
- 38
- Citations by year
- 2026: 2 · 2025: 4 · 2024: 3 · 2023: 8 · 2022: 5 · 2021: 6 · 2020: 5 · 2019: 2 · 2018: 3
- FWCI
- 4.43
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Scandinavian Journal of Gastroenterology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Gutsy Group
- Ferring
- AbbVie
- University of Melbourne
- Gastroenterological Society of Australia
- National Health and Medical Research Council (NHMRC)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
- Life Sciences › Biochemistry, Genetics and Molecular Biology › Genetics › Inflammatory Bowel Disease
- Keywords
- e-health, inflammatory bowel disease, self-management, patient perspectives, patient attitudes, mobile application, technology adoption, disease surveillance, medication adherence, health care access, patient engagement
- MeSH terms
- Self-Management, Adolescent, Adult, Aged, Attitude to Health, Australia, Female, Humans, Male, Middle Aged, Surveys and Questionnaires, Inflammatory Bowel Diseases, Logistic Models, Telemedicine, Disease Management, Internet, Young Adult
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
