The DOI matches its Crossref record; 31 of the 32 references it cites were found in a registry or an index.
The impact of endometriosis upon quality of life: a qualitative analysis
Abstract
OBJECTIVE: to explore and describe the impact of endometriosis upon quality of life. SETTING: Nuffield Department of Obstetrics and Gynaecology, University of Oxford. DESIGN: qualitative study. SAMPLE: twenty-four women with a laparoscopic diagnosis of endometriosis. METHODS: face to face, individual, in-depth interviews. RESULTS: analysis of the data revealed 15 descriptive categories. Pain, physical functioning, role performance, social functioning, emotional well-being, relationship with the medical profession, treatment, sexual intercourse, energy and vitality, employment and infertility were found to be a particular concern for women with endometriosis. Physical appearance, lack of control and powerlessness, feelings of social isolation and concerns that their daughters might develop endometriosis were new areas found to be negatively affected by the condition. CONCLUSIONS: the impact of endometriosis-associated symptoms upon quality of life is multidimensional and more complex than just negatively affecting psychosocial parameters. Conducting in-depth interviews to explore the subjective experiences of patients with endometriosis enabled the diverse areas of quality of life to be identified. Adopting a qualitative methodology is essential for item generation on disease specific health status questionnaires.
Overview
Integrity signals
Registry
Cites
Statistics
Verification
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
In the citing paper
“Such studies have also shown that endometriosis symptoms negatively impact patients’ social wellbeing, affecting relationships, lowering self-esteem, and leading to a feeling of loss of control (3, 22, 23).”
From Quantification of the impact of endometriosis symptoms on health-related quality of life and work productivity (2011) · cites this paper as [3]
In the citing paper
“Qualitative studies have shown that endometriosis symptoms have a substantial impact on the physical, emotional, and social wellbeing of patients, who are affected during the most productive years of their lives (5-12).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [5]
In the citing paper
“For endometriosis, there is paucity of data in that regard, although qualitative studies document patient-reported negative experiences at work (5).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [5]
Citations
Cites
Wagner, H. R., Glaser, B. G., & Strauss, A. L. (1968) · Social Forces · doi:10.2307/2575405 · Cited by 46,525
The Discovery of Grounded Theory; Strategies for Qualitative Research
Glaser, B. G., Strauss, A. L., & Strutzel, E. (1968) · Nursing Research · doi:10.1097/00006199-196807000-00014 · Cited by 39,449
(1998) · Sage eBooks · Cited by 38,631
Basics of Qualitative Research: Grounded Theory Procedures and Techniques.
Ellis, C., Strauss, A., & Corbin, J. M. (1992) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2074814 · Cited by 29,296
Basics of Qualitative Research: Grounded Theory Procedures and Techniques
Long, D. R., Strauss, A., & Corbin, J. M. (1993) · Modern Language Journal · doi:10.2307/328955 · Cited by 17,625
Taylor, K. M. G., Nettleton, S., & Harding, G. (2010) · Taylor & Francis eBooks · doi:10.4324/9780203381175_chapter_9 · Cited by 14,642
Qualitative research in health care: Assessing quality in qualitative research
Mays, N. (2000) · BMJ · doi:10.1136/bmj.320.7226.50 · Cited by 3,742
Qualitative Research: Qualitative interviews in medical research
Britten, N. (1995) · BMJ · doi:10.1136/bmj.311.6999.251 · Cited by 1,670
Morbidity statistics from general practice
Frølund, F. (1986) · PubMed Central · Cited by 568
Delay in the diagnosis of endometriosis: a survey of women from the USA and the UK
Hadfield, R., Mardon, H., Barlow, D., & Kennedy, S. (1996) · Human Reproduction · doi:10.1093/oxfordjournals.humrep.a019270 · Cited by 517
Self-citationCronin, L., Guyatt, G. H., Griffith, L. E., Wong, E. Y. L., Azziz, R., Futterweit, W., Cook, D., & Dunaif, A. E. (1998) · The Journal of Clinical Endocrinology & Metabolism · doi:10.1210/jcem.83.6.4990 · Cited by 355
Development of an endometriosis quality-of-life instrument: The Endometriosis Health Profile-30
Jones, G. (2001) · Obstetrics & Gynecology · doi:10.1016/s0029-7844(01)01433-8 · Cited by 334
Self-citationBalasch, J., Creus, M. T., Fábregues, F., Carmona, F., Ordï, J., Martínez‐Román, S., & Vanrell, J. A. (1996) · Human Reproduction · doi:10.1093/humrep/11.2.387 · Cited by 278
Jenkinson, C., Brennan, C. A., Fitzpatrick, R. M., Bromberg, M. B., & Swash, M. (1999) · Journal of Neurology · doi:10.1007/bf03161085 · Cited by 134
Self-citationIrritable bowel syndrome in the gynecological clinic: Survey of 798 new referrals
Prior, A., Wilson, K., Whorwell, P. J., & Faragher, E. B. (1989) · Digestive Diseases and Sciences · doi:10.1007/bf01536698 · Cited by 114
Low, W. Y., Edelmann, R. J., & Sutton, C. (1993) · Journal of Psychosomatic Research · doi:10.1016/0022-3999(93)90077-s · Cited by 109
Peveler, R., Edwards, J., Daddow, J., & Thomas, E. (1996) · Journal of Psychosomatic Research · doi:10.1016/0022-3999(95)00521-8 · Cited by 107
Health Services Research Methods
Shi, L. (1996) · Cited by 101
Endometriosis, pelvic pain, and psychological functioning
Waller, K. G., & Shaw, R. W. (1995) · Fertility and Sterility · doi:10.1016/s0015-0282(16)57484-6 · Cited by 88
Do gastrointestinal symptoms vary with the menstrual cycle?
Moore, J. A., Barlow, D., Jewell, D. P., & Kennedy, S. (1998) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.1998.tb10014.x · Cited by 76
Self-citationFukaya, T., Hoshiai, H., & Yajima, A. (1993) · American Journal of Obstetrics and Gynecology · doi:10.1016/0002-9378(93)90650-8 · Cited by 57
Endometriosis : current understanding and management
Shaw, R. W. (1995) · Medical Entomology and Zoology · Cited by 41
Bipolar mood disorder and endometriosis: preliminary findings
(1987) · American Journal of Psychiatry · doi:10.1176/ajp.144.12.1588 · Cited by 39
Emotional Aspects of Endometriosis: A Physician??s Perspective
Jones, K. P. (1988) · Clinical Obstetrics & Gynecology · doi:10.1097/00003081-198812000-00013 · Cited by 39
Components of type a behavior and the first-year prognosis of a myocardial infarction
Julkunen, J., Idänpään-Heikkilä, U., & Saarinen, T. (1993) · Journal of Psychosomatic Research · doi:10.1016/0022-3999(93)90119-z · Cited by 36
Relationship between endometriosis and affective disorder
Walker, E., Katon, W. J., Jones, L. M., & Russo, J. E. (1989) · American Journal of Psychiatry · doi:10.1176/ajp.146.3.380 · Cited by 30
Psychosocial aspects of endometriosis: A review
Low, W. Y., & Edelmann, R. J. (1991) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.3109/01674829109077986 · Cited by 29
Qualitative methods in health services research
Murphy, E. L., & Dingwall, R. W. J. (1998) · Nottingham Trent University's Institutional Repository (Nottingham Trent Repository) · Cited by 26
What is important to the patient with endometriosis?
Kennedy, S. J. (1991) · PubMed · Cited by 25
Self-citationThe Emotional Aspects of Endometriosis: What the Patient Expects from Her Doctor
Weinstein, K. (1988) · Clinical Obstetrics & Gynecology · doi:10.1097/00003081-198812000-00012 · Cited by 14
Lopès, P., Mensier, A., Fx, L., & Besse, O. (2025) · Ultrasound in Obstetrics and Gynecology · doi:10.1002/uog.70062 · Cited by 8
Research works printed but not linked: 7
- Kennedy S., 1991, Br J Clin Pract, 45, S8
- Low YL, 1993, J Psychosom Res, 40, 305
- Porter S. Qualitative Research. In Cormack DFS, ed. The Research Process in Nursing. Oxford: Blackwell Science, 1996:113–22
- Jenkinson C, 1998, The Parkinson's Disease Questionnaire: User Manual for the PDQ-39, PDQ-8, and PDQ Summary Index
- Cronin L, 1998, J Clin Endocrinol Metabol, 83, 1976
- Mays N, 2000, Br Med J, 320
- Bitzer J, 1999, J Fertil Reprod, 9, 27
Cited by
Sorted by citations
The social and psychological impact of endometriosis on women's lives: a critical narrative review
Culley, L. A., Law, C., Hudson, N., Denny, E., Mitchell, H., Baumgarten, M. N., & Raine‐Fenning, N. (2013) · Human Reproduction Update · doi:10.1093/humupd/dmt027 · Cited by 732
Impact of endometriosis on women’s lives: a qualitative study
Moradi, M., Parker, M. A., Sneddon, A., López, V., & Ellwood, D. A. (2014) · BMC Women s Health · doi:10.1186/1472-6874-14-123 · Cited by 525
Impact of endometriosis on quality of life and mental health:Pelvic pain makes the difference
Facchin, F., Barbara, G., Saita, E., Mosconi, P., Roberto, A., Fedele, L., & Vercellini, P. (2015) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.3109/0167482x.2015.1074173 · Cited by 468
Assessing research gaps and unmet needs in endometriosis
As‐Sanie, S., Black, R., Giudice, L. C., Valbrun, T. G., Gupta, J., Jones, B., Laufer, M. R., Milspaw, A. T., Missmer, S. A., Norman, A., et al. (2019) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2019.02.033 · Cited by 347
Fourquet, J., Báez, L., Figueroa, M., Iriarte, R. I., & Flores, I. (2011) · Fertility and Sterility · doi:10.1016/j.fertnstert.2011.04.095 · Cited by 262
“Such studies have also shown that endometriosis symptoms negatively impact patients’ social wellbeing, affecting relationships, lowering self-esteem, and leading to a feeling of loss of control (3, 22, 23).”
Background
Metadata
- Authors
- Jones, G., Jenkinson, C., & Kennedy, S.
- Affiliations
- University of Oxford (GB)
- Venue
- Journal of Psychosomatic Obstetrics & Gynecology
- Publisher
- Informa UK Limited
- Published
- 2004-01
- Volume
- 25
- Issue
- 2
- Pages
- 123-133
- ISSN
- 0167-482X (ISSN-L)
- 1743-8942
- OpenAlex
- W2042159399
- Cited by
- 291
- References
- 32
- Citations by year
- 2026: 10 · 2025: 19 · 2024: 18 · 2023: 25 · 2022: 21 · 2021: 19 · 2020: 23 · 2019: 11 · 2018: 20 · 2017: 12 · 2016: 13 · 2015: 15 · 2014: 13 · 2013: 11 · 2012: 9
- FWCI
- 3.90
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Psychosomatic Obstetrics & Gynecology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
- Health Sciences › Medicine › Psychiatry and Mental health › Psychosomatic Disorders and Their Treatments
- Life Sciences › Agricultural and Biological Sciences › Ecology, Evolution, Behavior and Systematics › Plant and fungal interactions
- Keywords
- endometriosis, quality of life, patient experience, chronic pelvic pain, physical function, social functioning, emotional well-being, infertility, employment, sexual intercourse, social isolation, powerlessness, item generation
- MeSH terms
- Adult, Dyspareunia, Employment, Endometriosis, Female, Humans, Pain, Laparoscopy, Quality of Life, Surveys and Questionnaires, Severity of Illness Index
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
