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The impact of endometriosis upon quality of life: a qualitative analysis

Jones, Georgina, Jenkinson, Crispin, Kennedy, Stephen·2004·Journal of Psychosomatic Obstetrics & Gynecology

DOI 10.1080/01674820400002279

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Abstract

OBJECTIVE: to explore and describe the impact of endometriosis upon quality of life. SETTING: Nuffield Department of Obstetrics and Gynaecology, University of Oxford. DESIGN: qualitative study. SAMPLE: twenty-four women with a laparoscopic diagnosis of endometriosis. METHODS: face to face, individual, in-depth interviews. RESULTS: analysis of the data revealed 15 descriptive categories. Pain, physical functioning, role performance, social functioning, emotional well-being, relationship with the medical profession, treatment, sexual intercourse, energy and vitality, employment and infertility were found to be a particular concern for women with endometriosis. Physical appearance, lack of control and powerlessness, feelings of social isolation and concerns that their daughters might develop endometriosis were new areas found to be negatively affected by the condition. CONCLUSIONS: the impact of endometriosis-associated symptoms upon quality of life is multidimensional and more complex than just negatively affecting psychosocial parameters. Conducting in-depth interviews to explore the subjective experiences of patients with endometriosis enabled the diverse areas of quality of life to be identified. Adopting a qualitative methodology is essential for item generation on disease specific health status questionnaires.

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Authors: Jones, G., Jenkinson, C., & Kennedy, S.
Affiliations: University of Oxford (GB)
ORCID: Jones, Georgina
Jenkinson, Crispin
Kennedy, Stephen
Venue: Journal of Psychosomatic Obstetrics & Gynecology
Publisher: Informa UK Limited
Published: 2004-01
Volume: 25
Issue: 2
Pages: 123-133
ISSN: 0167-482X (ISSN-L)
1743-8942
DOI: 10.1080/01674820400002279
OpenAlex: W2042159399
Cited by: 291
References: 32
Citations by year: 2026: 10 · 2025: 19 · 2024: 18 · 2023: 25 · 2022: 21 · 2021: 19 · 2020: 23 · 2019: 11 · 2018: 20 · 2017: 12 · 2016: 13 · 2015: 15 · 2014: 13 · 2013: 11 · 2012: 9
FWCI: 3.90
Type: journal article
Language: en
Open access: closed
Locations: Journal of Psychosomatic Obstetrics & Gynecology (publishedVersion)
PubMed (publishedVersion)
Topics: Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
Health Sciences › Medicine › Psychiatry and Mental health › Psychosomatic Disorders and Their Treatments
Life Sciences › Agricultural and Biological Sciences › Ecology, Evolution, Behavior and Systematics › Plant and fungal interactions
Keywords: endometriosis, quality of life, patient experience, chronic pelvic pain, physical function, social functioning, emotional well-being, infertility, employment, sexual intercourse, social isolation, powerlessness, item generation
MeSH terms: Adult, Dyspareunia, Employment, Endometriosis, Female, Humans, Pain, Laparoscopy, Quality of Life, Surveys and Questionnaires, Severity of Illness Index

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The impact of endometriosis upon quality of life: a qualitative analysis

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