The DOI matches its Crossref record; 31 of the 32 references it cites were found in a registry or an index.
The impact of endometriosis upon quality of life: a qualitative analysis
Abstract
OBJECTIVE: to explore and describe the impact of endometriosis upon quality of life. SETTING: Nuffield Department of Obstetrics and Gynaecology, University of Oxford. DESIGN: qualitative study. SAMPLE: twenty-four women with a laparoscopic diagnosis of endometriosis. METHODS: face to face, individual, in-depth interviews. RESULTS: analysis of the data revealed 15 descriptive categories. Pain, physical functioning, role performance, social functioning, emotional well-being, relationship with the medical profession, treatment, sexual intercourse, energy and vitality, employment and infertility were found to be a particular concern for women with endometriosis. Physical appearance, lack of control and powerlessness, feelings of social isolation and concerns that their daughters might develop endometriosis were new areas found to be negatively affected by the condition. CONCLUSIONS: the impact of endometriosis-associated symptoms upon quality of life is multidimensional and more complex than just negatively affecting psychosocial parameters. Conducting in-depth interviews to explore the subjective experiences of patients with endometriosis enabled the diverse areas of quality of life to be identified. Adopting a qualitative methodology is essential for item generation on disease specific health status questionnaires.
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In the citing paper
“Such studies have also shown that endometriosis symptoms negatively impact patients’ social wellbeing, affecting relationships, lowering self-esteem, and leading to a feeling of loss of control (3, 22, 23).”
From Quantification of the impact of endometriosis symptoms on health-related quality of life and work productivity (2011) · cites this paper as [3]
In the citing paper
“Qualitative studies have shown that endometriosis symptoms have a substantial impact on the physical, emotional, and social wellbeing of patients, who are affected during the most productive years of their lives (5-12).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [5]
In the citing paper
“For endometriosis, there is paucity of data in that regard, although qualitative studies document patient-reported negative experiences at work (5).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [5]
Citations
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Self-citation
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Cited by
Sorted by citations
The social and psychological impact of endometriosis on women's lives: a critical narrative review
Culley, L. A., Law, C., Hudson, N., Denny, E., Mitchell, H., Baumgarten, M. N., & Raine‐Fenning, N. (2013) · Human Reproduction Update · doi:10.1093/humupd/dmt027 · Cited by 732
Impact of endometriosis on women’s lives: a qualitative study
Moradi, M., Parker, M. A., Sneddon, A., López, V., & Ellwood, D. A. (2014) · BMC Women s Health · doi:10.1186/1472-6874-14-123 · Cited by 525
Impact of endometriosis on quality of life and mental health:Pelvic pain makes the difference
Facchin, F., Barbara, G., Saita, E., Mosconi, P., Roberto, A., Fedele, L., & Vercellini, P. (2015) · Journal of Psychosomatic Obstetrics & Gynecology · doi:10.3109/0167482x.2015.1074173 · Cited by 468
Assessing research gaps and unmet needs in endometriosis
As‐Sanie, S., Black, R., Giudice, L. C., Valbrun, T. G., Gupta, J., Jones, B., Laufer, M. R., Milspaw, A. T., Missmer, S. A., Norman, A., et al. (2019) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2019.02.033 · Cited by 347
Fourquet, J., Báez, L., Figueroa, M., Iriarte, R. I., & Flores, I. (2011) · Fertility and Sterility · doi:10.1016/j.fertnstert.2011.04.095 · Cited by 262
“Such studies have also shown that endometriosis symptoms negatively impact patients’ social wellbeing, affecting relationships, lowering self-esteem, and leading to a feeling of loss of control (3, 22, 23).”
Background
Metadata
- Authors
- Jones, G., Jenkinson, C., & Kennedy, S.
- Affiliations
- University of Oxford (GB)
- Venue
- Journal of Psychosomatic Obstetrics & Gynecology
- Publisher
- Informa UK Limited
- Published
- 2004-01
- Volume
- 25
- Issue
- 2
- Pages
- 123-133
- ISSN
- 0167-482X (ISSN-L)
- 1743-8942
- OpenAlex
- W2042159399
- Cited by
- 291
- References
- 32
- Citations by year
- 2026: 10 · 2025: 19 · 2024: 18 · 2023: 25 · 2022: 21 · 2021: 19 · 2020: 23 · 2019: 11 · 2018: 20 · 2017: 12 · 2016: 13 · 2015: 15 · 2014: 13 · 2013: 11 · 2012: 9
- FWCI
- 3.90
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Psychosomatic Obstetrics & Gynecology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
- Health Sciences › Medicine › Psychiatry and Mental health › Psychosomatic Disorders and Their Treatments
- Life Sciences › Agricultural and Biological Sciences › Ecology, Evolution, Behavior and Systematics › Plant and fungal interactions
- Keywords
- endometriosis, quality of life, patient experience, chronic pelvic pain, physical function, social functioning, emotional well-being, infertility, employment, sexual intercourse, social isolation, powerlessness, item generation
- MeSH terms
- Adult, Dyspareunia, Employment, Endometriosis, Female, Humans, Pain, Laparoscopy, Quality of Life, Surveys and Questionnaires, Severity of Illness Index
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