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Cited by 115Childhood Cancer Survivors' Quality of LifeCancer survivorship and careFamily Support in Illness

The DOI matches its Crossref record; 35 of the 35 references it cites were found in a registry or an index.

Psychosocial Challenges and Resource Needs of Young Adult Cancer Survivors: Implications for Program Development

D’Agostino, Norma Mammone, Edelstein, Kim·2013·Journal of Psychosocial Oncology
DOI 10.1080/07347332.2013.835018
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Abstract

Young adult (YA) cancer survivors have specific needs because of their age and life stage. The authors investigated the challenges and resource needs of YA survivors, exploring the influence of age at diagnosis (i.e., diagnosis during childhood vs. young adulthood) and the diagnosis of a brain tumor. The authors conducted four focus groups with YA survivors (N = 22, age 18-35), treated for brain tumors or other cancers in childhood (mean age at diagnosis ± SD: brain, 10.7 ± 2.86; other cancers, 10.5 ± 3.51) or as YAs (brain, 23.5 ± 4.04; other cancers, 25.6 ± 4.10). Transcripts of audiotaped sessions were coded using thematic analysis. Common challenges across the groups included physical appearance, fertility, late effects, social relationships, and changing priorities. Childhood cancer survivors struggled with identity formation, social isolation, and health care transitions. Concerns specific to survivors diagnosed as YAs included financial independence and protecting parents. Childhood brain tumor survivors struggled with cognitive deficits, limited career options, and poor social skills, whereas brain tumor survivors diagnosed as YAs emphasized cognitive decline, loss of autonomy, and living with an incurable disease. Despite the unique challenges identified, all groups described similar resource needs including peer support, age-specific information, and having health care providers proactively raise salient issues. Young adult cancer survivors have many similar psychosocial and information needs regardless of age at or type of diagnosis that differ from those of pediatric and older adult survivors. With improved survival rates, the small number of YA in any one institution will grow. It will become increasingly important to create comprehensive, age-appropriate YA programs that address overlapping and unique needs of survivors at this life stage.

Overview

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Crossref · 10.1080/07347332.2013.835018

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Research works printed but not linked: 1

  1. Palmer S., 2009, Cancer Forum, 33, 22

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Metadata

Authors
D’Agostino, N. M., & Edelstein, K.
Affiliations
Ontario Institute for Cancer Research (CA)
ORCID
Venue
Journal of Psychosocial Oncology
Publisher
Informa UK Limited
Published
2013-11
Volume
31
Issue
6
Pages
585-600
ISSN
  • 0734-7332 (ISSN-L)
  • 1540-7586
DOI
10.1080/07347332.2013.835018
OpenAlex
W2005309242
Cited by
115
References
35
Citations by year
2026: 7 · 2025: 8 · 2024: 8 · 2023: 9 · 2022: 15 · 2021: 10 · 2020: 11 · 2019: 10 · 2018: 8 · 2017: 12 · 2016: 7 · 2015: 7 · 2014: 3
FWCI
5.29
Type
journal article
Language
en
Open access
closed
Locations
  • Journal of Psychosocial Oncology (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
  • Social Sciences › Psychology › Clinical Psychology › Family Support in Illness
Keywords
young adult cancer survivors, psychosocial problems, resource requirements, childhood cancer survivors, brain tumor survivors, age at diagnosis, fertility concerns, late effects of cancer treatment, social isolation, care transitions, cognitive impairment, peer support, identity construction
MeSH terms
Adaptation, Psychological, Adolescent, Adult, Age Factors, Brain Neoplasms, Female, Humans, Male, Neoplasms, Tape Recording, Program Development, Focus Groups, Survivors, Needs Assessment, Qualitative Research, Young Adult

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