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Cited by 71Neurogenetic and Muscular Disorders ResearchMuscle Physiology and DisordersMedical Practices and Rehabilitation

The DOI matches its Crossref record; 51 of the 51 references it cites were found in a registry or an index.

Disability, coping and quality of life in individuals with muscular dystrophy: a prospective study over five years

Nätterlund, Birgitta, Gunnarsson, Lars-Gunnar, Ahlström, Gerd·2000·Disability and Rehabilitation
DOI 10.1080/09638280050200278
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Abstract

PURPOSE: The present study investigates progressive muscular dystrophy over a five year period. The purpose is twofold: to describe changes over time and to investigate relations between disability, coping and quality of life. METHOD: The study group comprised 45 adults (16 men and 29 women), with an average age of 44 years. All were assessed in 1991 and 1996, with the following instruments: the ADL staircase, the Self-report ADL, the Mental Adjustment to Cancer scale, the Sickness Impact Profile and the Psychosocial well-being questionnaire (Kaasa). RESULTS: Increasing disability was accompanied by an increase in dependence on others and a significant deterioration of health-related quality of life and with regard to 'Satisfaction'. The predominant type of coping was 'Fighting spirit', whilst 'Fatalism' showed the greatest decline over time. 'Ambulation' and the ADL staircase correlated with 'Physical index' on the SIP. Correlations between disability, coping and quality of life were moderate. The results can serve as a basis for planning and evaluation of recurring rehabilitation for persons with MD.

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Crossref · 10.1080/09638280050200278

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Metadata

Authors
Nätterlund, B., Gunnarsson, L.-G., & Ahlström, G.
Affiliations
  • Uppsala University (SE)
  • Örebro University Hospital (SE)
  • Linköping University (SE)
ORCID
Venue
Disability and Rehabilitation
Publisher
Informa UK Limited
Published
2000-01
Volume
22
Issue
17
Pages
776-785
ISSN
  • 0963-8288 (ISSN-L)
  • 1464-5165
DOI
10.1080/09638280050200278
OpenAlex
W2142610955
Cited by
71
References
51
Citations by year
2025: 3 · 2024: 1 · 2022: 2 · 2021: 2 · 2019: 2 · 2018: 2 · 2017: 1 · 2016: 1 · 2015: 5 · 2014: 5 · 2013: 5 · 2012: 1
FWCI
0.61
Type
journal article
Language
en
Open access
closed
Locations
  • Disability and Rehabilitation (publishedVersion)
  • PubMed (publishedVersion)
  • Lund University Publications (Lund University) (submittedVersion)
Topics
  • Health Sciences › Medicine › Genetics (clinical) › Neurogenetic and Muscular Disorders Research
  • Life Sciences › Biochemistry, Genetics and Molecular Biology › Molecular Biology › Muscle Physiology and Disorders
  • Health Sciences › Health Professions › Physical Therapy, Sports Therapy and Rehabilitation › Medical Practices and Rehabilitation
Keywords
muscular dystrophy, disability, coping, health-related quality of life, activities of daily living, ambulation, fatalism, fighting spirit, psychosocial well-being, rehabilitation planning, adults with chronic illness
MeSH terms
Activities of Daily Living, Adaptation, Psychological, Adult, Disability Evaluation, Female, Humans, Male, Muscular Dystrophies, Prospective Studies, Quality of Life, Surveys and Questionnaires, Self-Assessment

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