Coping with illness-related problems and quality of life in adult individuals with muscular dystrophy
Abstract
Illness-related problems and coping were examined in 60 individuals with muscular dystrophy (MD) identified in a population survey of the county of Orebro, Sweden. In addition, the extent to which coping is related to quality of life (QoL) was investigated as was the impact of impairment and disability on the relation between coping and QoL. Emotion/appraisal-focused coping was utilized by respondents more than twice as often as problem-focused coping. High QoL was significantly correlated to "Stoic acceptance" and "Tried alternative treatment." Low QoL was associated with "Helpless/hopeless," "Anxious preoccupation," "Minimization," "Social comparison," "Establishment of control over everyday life," "Performs the task with the aid of an appliance" and "Accepts help or leaves it to others." When measures of impairment and disability were included in the analysis, the impact of these measures explained the association between coping and physical QoL by 16% to 43%.
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Psychological variables such as illness beliefs, coping methods and psychological flexibility account for variance in quality of life in muscle disease.
“Psychological variables such as illness beliefs,6 8 coping methods9–11 and psychological flexibility12 have been shown to account for variance in QoL.”
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- Authors
- Ahlström, G., & Sjöden, P.-O.
- Affiliations
- Örebro University (SE)
- Corresponding author
- Ahlström, Gerd
- ORCID
- Ahlström, Gerd
- Venue
- Journal of Psychosomatic Research
- Publisher
- Elsevier BV
- Published
- 1996-10
- Volume
- 41
- Issue
- 4
- Pages
- 365-376
- ISSN
- 0022-3999 (ISSN-L)
- OpenAlex
- W2140366467
- Cited by
- 73
- References
- 47
- Citations by year
- 2026: 1 · 2025: 1 · 2024: 2 · 2023: 1 · 2022: 2 · 2021: 1 · 2020: 1 · 2019: 2 · 2018: 6 · 2017: 2 · 2016: 1 · 2015: 1 · 2014: 2 · 2013: 3 · 2012: 2
- FWCI
- 2.63
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Psychosomatic Research (publishedVersion)
- PubMed (publishedVersion)
- Lund University Publications (Lund University) (submittedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Resilience and Mental Health
- Health Sciences › Medicine › Genetics › Neurogenetic and Muscular Disorders Research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- muscular dystrophy, coping, quality of life, emotion-focused coping, problem-focused coping, disability, physical impairment, anxiety, social comparison, helplessness
- MeSH terms
- Activities of Daily Living, Adaptation, Psychological, Adolescent, Adult, Aged, Child, Child, Preschool, Defense Mechanisms, Disability Evaluation, Female, Humans, Male, Middle Aged, Muscular Dystrophies, Problem Solving, Quality of Life, Sick Role, Sweden
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
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