“That Should Be Left to Doctors, That’s What They are There For!”—Exploring the Reflexivity and Trust of Young Adults When Seeking Health Information
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This paper explores the health information-seeking practices of healthy young adults and how they assess and rank sources of information through a qualitative study. The findings show that participants (a) are strongly committed to searching for information about health and lifestyle, especially via the Internet; (b) healthcare professionals were perceived as the most reliable source of health information and advice; (c) online health information, although frequently accessed and experienced as empowering, is seen as a potentially unreliable source. Findings evidence how becoming better informed about health-related topics plays a pivotal role in individuals' lives, most notably by using the Internet. Participants were able to reflect about what it means to know about health. The construction of trust regarding health information involved a heuristic process vis-à-vis source reliability and perceived credibility that places doctors as the most trustworthy medium of medical advice and health information. We conclude that participants' trust toward professionals suggests the preference and need for more personalized care; and it is a response to the ambiguity and uncertainty that permeates the health information landscape, particularly that which is web-based.
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Self-diagnosing symptoms while remaining anonymous, such as by posting in online health forums, was popular.
“Self-diagnosing symptoms while remaining anonymous such as by posting in online health forums was popular [37, 50] for a number of reasons.”
The overwhelming amount of information online can result in the masking of credible sources.
“The overwhelming amount of information online can also result in the masking of credible sources [50].”
This impacts patients' ability to depend on information and causes the public to find the internet less reliable than other sources of information such as HCPs.
“This impacts patients’ ability to depend on information and causes the public to find the internet less reliable than other sources of information such as HCPs [50].”
Most patients viewed their research as a complementary information source to be used alongside treatment from their HCP.
“However, most patients viewed their research as a complementary information source to be used alongside treatment from their HCP [30, 36, 47, 49, 50].”
HCPs appear to be the most valuable source of health information.
“HCP’s thus appear to be the most valuable source of health information [50].”
Most studies emphasised that, regardless of the popularity of online self-diagnosis, the majority of respondents valued HCPs' opinions more, understood their explanations of diagnoses better, and had more trust in them.
“Most studies emphasised that, regardless of the popularity of online self-diagnosis, the majority of respondents valued HCP’s opinions more, understood their explanations of diagnoses better, and had more trust in them [30, 50].”
The internet is not seen as a replacement for visiting a HCP, but as offering a complimentary source of information.
“The internet is not seen as a replacement for visiting a HCP, but as offering a complimentary source of information [30, 50, 51].”
Cites
The Discovery of Grounded Theory
Glaser, B., & Strauss, A. (1967) · Routledge eBooks · doi:10.4324/9780203793206-1 · Cited by 26,060 · see citing works
The Discovery of Grounded Theory: Strategies for Qualitative Research
Glaser, B. G., & Strauss, A. L. (2017) · Aldine (Routledge reprint) · doi:10.4324/9780203793206 · Cited by 25,789 · see citing works
Modernity and Self-Identity: Self and Society in the Late Modern Age
Giddens, A. (2020) · Routledge eBooks · doi:10.4324/9781003060963-59 · Cited by 13,393 · see citing works
Modernity and Self-Identity: Self and Society in the Late Modern Age.
Gluck, M., & Giddens, A. (1993) · History and Theory · doi:10.2307/2505354 · Cited by 3,681 · see citing works
Gosby, J. R. (2000) · Journal of Advanced Nursing · doi:10.1046/j.1365-2648.2000.t01-7-01210.x · Cited by 2,001 · see citing works
The digital native – myth and reality
Selwyn, N. (2009) · Aslib Proceedings · doi:10.1108/00012530910973776 · Cited by 749 · see citing works
How do patients evaluate and make use of online health information?
Sillence, E., Briggs, P., Harris, P. R., & Fishwick, L. (2007) · Social Science & Medicine · doi:10.1016/j.socscimed.2007.01.012 · Cited by 676 · see citing works
Consumerism, reflexivity and the medical encounter
Lupton, D. A. (1997) · Social Science & Medicine · doi:10.1016/s0277-9536(96)00353-x · Cited by 611 · see citing works
Effects of Online Health Sources on Credibility and Behavioral Intentions
Hu, Y., & Sundar, S. S. (2009) · Communication Research · doi:10.1177/0093650209351512 · Cited by 414 · see citing works
Examining the Dimensions of Cancer-Related Information Seeking and Scanning Behavior
Niederdeppe, J., Hornik, R., Kelly, B., Frosch, D. L., Romantan, A., Stevens, R. S., Barg, F. K., Weiner, J. L., & Schwartz, J. S. (2007) · Health Communication · doi:10.1080/10410230701454189 · Cited by 396 · see citing works
Beck, F., Richard, J., Nguyen‐Thanh, V., Montagni, I., Parizot, I., & Renahy, É. (2014) · Journal of Medical Internet Research · doi:10.2196/jmir.2934 · Cited by 363 · see citing works
Nettleton, S., Burrows, R., & O'Malley, L. (2005) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2005.00466.x · Cited by 259 · see citing works
Illness and Internet Empowerment: Writing and Reading Breast Cancer in Cyberspace
Pitts, V. L. (2004) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/1363459304038794 · Cited by 231 · see citing works
Dedding, C. W. M., van Doorn, R. K., Winkler, L. M., & Reis, R. (2010) · Social Science & Medicine · doi:10.1016/j.socscimed.2010.10.017 · Cited by 178 · see citing works
Medical specialists’ accounts of the impact of the Internet on the doctor/patient relationship
Broom, A. F. (2005) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/1363459305052903 · Cited by 150 · see citing works
Inquiring Minds Acquiring Wellness: Uses of Online and Offline Sources for Health Information
Dobransky, K. M., & Hargittai, E. (2011) · Health Communication · doi:10.1080/10410236.2011.585451 · Cited by 142 · see citing works
Fergie, G., Hilton, S., & Hunt, K. (2015) · Health Expectations · doi:10.1111/hex.12430 · Cited by 134 · see citing works
Everyday health and the internet: a mediated health perspective on health information seeking
Kivits, J. (2009) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2008.01153.x · Cited by 121 · see citing works
E-Scaped Medicine? Information, Reflexivity and Health
Nettleton, S., & Burrows, R. (2003) · Critical Social Policy · doi:10.1177/0261018303023002003 · Cited by 116 · see citing works
Ruppel, E. K. (2015) · Journal of Health Communication · doi:10.1080/10810730.2015.1058438 · Cited by 82 · see citing works
Genuis, S. K. (2012) · Journal of the American Society for Information Science and Technology · doi:10.1002/asi.22691 · Cited by 78 · see citing works
Walsh, A. M., Hamilton, K., White, K. M., & Hyde, M. K. (2015) · BMC Health Services Research · doi:10.1186/s12913-015-0793-4 · Cited by 71 · see citing works
Probing, Impelling, But Not Offending Doctors
Chiu, Y. (2011) · Qualitative Health Research · doi:10.1177/1049732311417455 · Cited by 68 · see citing works
Bastos, J., Peleteiro, B., Pinto, H., Marinho, A., Guimarães, J. T., Ramos, E., Vecchia, C. L., Barros, H., & Lunet, N. (2012) · Digestive and Liver Disease · doi:10.1016/j.dld.2012.11.009 · Cited by 49 · see citing works
Cohn, A. C., & Richters, J. (2012) · International Journal of Sexual Health · doi:10.1080/19317611.2012.719852 · Cited by 35 · see citing works
Health(y) Citizenship: Technology, Work and Narratives of Responsibility
Wyatt, S., Harris, R., & Wathen, C. N. (2010) · Palgrave Macmillan UK eBooks · doi:10.1057/9780230292543_1 · Cited by 14 · see citing works
A Longitudinal Study of Use of an Interactive Health Communication System
Han, J. Y. (2011) · Health Communication · doi:10.1080/10410236.2011.578334 · Cited by 8 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Lu, X., Zhang, R., Wu, W., Shang, X., & Liu, M. (2018) · Journal of Medical Internet Research · doi:10.2196/jmir.9364 · Cited by 138 · see citing works
Influence of believed AI involvement on the perception of digital medical advice
Reis, M., Reis, F., & Kunde, W. (2024) · Nature Medicine · doi:10.1038/s41591-024-03180-7 · Cited by 130 · see citing works
Quinn, S., Bond, R., & Nugent, C. (2016) · Computers in Human Behavior · doi:10.1016/j.chb.2016.12.032 · Cited by 114 · see citing works
Farnood, A., Johnston, B., & Mair, F. S. (2020) · BMC Medical Informatics and Decision Making · doi:10.1186/s12911-020-01243-6 · Cited by 100 · see citing works
Exploring Online Health Information–Seeking Behavior Among Young Adults: Scoping Review
Stifjell, K., Sandanger, T. M., & Wien, C. N. (2025) · Journal of Medical Internet Research · doi:10.2196/70379 · Cited by 60 · see citing works
Jin, E., Ryoo, Y., Kim, W., & Song, Y. G. (2024) · Internet Research · doi:10.1108/intr-08-2023-0702 · Cited by 46 · see citing works
Relationship Between Internet Use and Change in Health Status: Panel Study of Young Adults
Hunsaker, A., Hargittai, E., & Micheli, M. (2020) · Journal of Medical Internet Research · doi:10.2196/22051 · Cited by 41 · see citing works
A qualitative study of online information-seeking preferences among cancer survivors
Budenz, A., Sleight, A. G., & Klein, W. M. P. (2021) · Journal of Cancer Survivorship · doi:10.1007/s11764-021-01082-y · Cited by 32 · see citing works
Gesser‐Edelsburg, A., Shahbari, N. A. E., Cohen, R., Halavi, A. M., Hijazi, R., Paz-Yaakobovitch, G., & Birman, Y. (2019) · Journal of Medical Internet Research · doi:10.2196/14105 · Cited by 26 · see citing works
Starčević, V. (2024) · Psychotherapy and Psychosomatics · doi:10.1159/000538149 · Cited by 25 · see citing works
Liu, J., & Kong, J. (2021) · Healthcare · doi:10.3390/healthcare9091133 · Cited by 20 · see citing works
Rao, N., Tighe, E. L., & Feinberg, I. Z. (2022) · JMIR Formative Research · doi:10.2196/34708 · Cited by 19 · see citing works
Resolving embarrassing medical conditions with online health information
Redston, S., de Botte, S., & Smith, C. (2018) · International Journal of Medical Informatics · doi:10.1016/j.ijmedinf.2018.03.010 · Cited by 17 · see citing works
Marcu, A., Black, G. B., & Whitaker, K. L. (2018) · Health Risk & Society · doi:10.1080/13698575.2018.1550742 · Cited by 15 · see citing works
Lehnert, J. D., Ellingson, M. K., Goryoka, G. W., Kasturi, R., Maier, E., & Chamberlain, A. T. (2017) · Journal of Public Health Management and Practice · doi:10.1097/phh.0000000000000537 · Cited by 13 · see citing works
Cyberchondria: Implications of online behavior and health anxiety as determinants
Zeine, R. R., Mohammed, D., Wilcox, S., Renee, C., Janke, C., Jarrett, N., Evangelopoulos, A., Serrano, C., Tabassum, N., Turner, N., et al. (2019) · Archives of Medicine and Health Sciences · doi:10.4103/amhs.amhs_108_19 · Cited by 13 · see citing works
Young adults’ needs when seeking first-line healthcare: A grounded theory design
Viktorsson, L., Törnvall, E., Falk, M., Wåhlin, I., & Yngman‐Uhlin, P. (2022) · PLoS ONE · doi:10.1371/journal.pone.0263963 · Cited by 11 · see citing works
Getting airtime: Exploring how patients shape the stories they tell health practitioners
Koopman, W. J., LaDonna, K. A., Kinsella, E. A., Venance, S. L., & Watling, C. (2021) · Medical Education · doi:10.1111/medu.14561 · Cited by 11 · see citing works
The Role of Family as a Source of Health Information Among College Students
Cohen, K. S., Fallik, D., & Cappola, A. R. (2025) · Journal of Community Health · doi:10.1007/s10900-025-01448-8 · Cited by 9 · see citing works
Listen to Doctors, Friends, or Both? Embedded They Produce Thick Knowledge and Promote Health
Shin, E.-J., & Shim, J.-M. (2018) · Journal of Health Communication · doi:10.1080/10810730.2018.1554727 · Cited by 7 · see citing works
After encounters: revealing patients’ unseen work through their pathways to care
Humphris, R., Bradby, H., Padilla, B., Phillimore, J., Pemberton, S. A., & Samerski, S. (2020) · International Journal of Migration Health and Social Care · doi:10.1108/ijmhsc-07-2019-0066 · Cited by 6 · see citing works
Breast cancer knowledge & information seeking among African American women below screening age
Huq, M. R., Woodard, N., Okwara, L., McCarthy, S., & Knott, C. L. (2022) · Patient Education and Counseling · doi:10.1016/j.pec.2022.10.002 · Cited by 6 · see citing works
Weber, R. P., MacKenzie, W. I., & Lanius, C. L. (2022) · Journal of Applied Communication Research · doi:10.1080/00909882.2022.2143274 · Cited by 5 · see citing works
Damiano, A. D., Xie, W., & Fallen, R. (2023) · Emerging Trends in Drugs Addictions and Health · doi:10.1016/j.etdah.2023.100138 · Cited by 4 · see citing works
College students’ perceptions of COVID-19 conversations on social media
Damiano, A. D., & Catellier, J. R. A. (2022) · Journal of American College Health · doi:10.1080/07448481.2021.2024547 · Cited by 3 · see citing works
The effect of e-health information on nurse-patient encounters: Mutual feelings and perceptions
Barnoy, S., Melnikov, S., & Bar‐Tal, Y. (2018) · Current Psychology · doi:10.1007/s12144-018-9845-3 · Cited by 3 · see citing works
Enhancing Institutional Trust: Evidence from an Experimental Study with Adolescents in Italy
Sestini, E., Muscillo, A., Lombardi, G., Garbin, F., & Pin, P. (2025) · Social Indicators Research · doi:10.1007/s11205-024-03507-4 · Cited by 3 · see citing works
How access to online health information affects the dental hygiene client experience.
McKay, A. (2021) · PubMed Central · Cited by 3 · see citing works
Ding, W., & Wang, J. (2026) · Journal of Medical Internet Research · doi:10.2196/95072 · Cited by 2 · see citing works
Online Sağlik Bilgisi Arama Davranışında Sorunlar, Tutum ve Güvenilirlik Değişkenlerinin İncelenmesi
Şahin, Ö. E., & Yücel, A. (2021) · İletişim Kuram ve Araştırma Dergisi · doi:10.47998/ikad.807346 · Cited by 2 · see citing works
Everyday life information seeking: A systematic review with bibliometric analysis
Han, Z., Zhao, H., & Chen, J. (2024) · Journal of Librarianship and Information Science · doi:10.1177/09610006241285514 · Cited by 3 · see citing works
Senghor, A. S. (2020) · La Découverte eBooks · doi:10.3917/dec.senik.2020.01.0106 · Cited by 2 · see citing works
Pandey, J., Deo, P. N., Deshmukh, R. S., Shinde, S., & Bhosale, V. I. (2024) · Journal of the International Clinical Dental Research Organization · doi:10.4103/jicdro.jicdro_29_24 · Cited by 1 · see citing works
Public Trust in Different Sources of Information: Gaps in Rural Residents and Cancer Patients
Lee, W., Kim, E. M., Nemirovski, E. A., Kamprath, S., Masel, M. C., & Patel, D. I. (2025) · Healthcare · doi:10.3390/healthcare13060640 · Cited by 1 · see citing works
Collaborative attitudes and trust among medical and dental professionals in Saudi Arabia
Aboalshamat, K. T., Alzahrani, E., Maqlan, A., Almatrafi, A., & Alsulami, A. (2024) · PLoS ONE · doi:10.1371/journal.pone.0309744 · Cited by 1 · see citing works
Which Approaches and Methods Are Most Appropriate for Exploring Health Information Behaviour?
Paimre, M. (2019) · Communications in computer and information science · doi:10.1007/978-3-030-13472-3_14 · Cited by 1 · see citing works
Developing a brief online sexual health intervention for low socio-economic status female teenagers
McKellar, K. (2017) · Northumbria Research Link (Northumbria University)
Theron, M., Astle, B., Dixon, D., & Redmond, A. R. (2019) · Quality Advancement in Nursing Education - Avancées en formation infirmière · doi:10.17483/2368-6669.1174
Semantic Web technologies in the provision of personalised patient education
Quinn, S. (2018) · Ulster University Research Portal (Ulster University)
Araiza, A. M., & Freitas, A. L. (2020) · Collabra Psychology · doi:10.1525/collabra.259
Aquatic plants in Central Norway, more new finds.
Fremstad, E. (2011) · Blyttia
Yang, P., Yuan, D., Hu, X., & Guo, C. (2022) · doi:10.2196/preprints.44600
Una taxonomía de los mensajes sobre conductas saludables recordados por adultos en Chile
Peña-y-Lillo, M. (2023) · REVISTA ESPAÑOLA DE COMUNICACIÓN EN SALUD · doi:10.20318/recs.2023.7100
Galkin, K. A. (2024) · HUMANITIES OF THE SOUTH OF RUSSIA · doi:10.18522/2227-8656.2024.2.5
Age Disparity in the Association Between Internet Use and Trust in Doctors Among Chinese Adults
Yang, P., Yuan, D., Hu, X., Zhu, X., & Guo, C. (2025) · Journal of Gerontological Nursing · doi:10.3928/00989134-20250521-01
Morimoto, M. (2025) · Journal of Communications In Healthcare · doi:10.1080/17538068.2025.2577426
Flintham, L., Dack, C., Koumanov, F., Feil, E. J., & Ainsworth, B. (2025) · BMC Public Health · doi:10.1186/s12889-025-25375-4
Farnood, A., Johnston, B., & Mair, F. S. (2020) · Figshare · doi:10.6084/m9.figshare.13059289
Farnood, A., Johnston, B., & Mair, F. S. (2020) · Figshare · doi:10.6084/m9.figshare.13059295
Farnood, A., Johnston, B., & Mair, F. S. (2020) · Figshare · doi:10.6084/m9.figshare.13059292
Farnood, A., Johnston, B., & Mair, F. S. (2020) · Figshare · doi:10.6084/m9.figshare.13059286
Borji‐Navan, S., Doshmangir, L., & Mirghafourvand, M. (2026) · Health Promotion Perspectives · doi:10.34172/hpp.45710
- Authors
- Mendes, Á., Abreu, L., Vilar-Correia, M. R., & Borlido-Santos, J.
- Affiliations
- Universidade do Porto (PT)
- i3S – Instituto de Investigação e Inovação em Saúde, Universidade do Porto
- Venue
- Health Communication
- Publisher
- Informa UK Limited
- Published
- 2016-08-02
- Volume
- 32
- Issue
- 9
- Pages
- 1076-1081
- ISSN
- 1041-0236 (ISSN-L)
- 1532-7027
- OpenAlex
- W2479798557
- Cited by
- 53
- References
- 27
- Citations by year
- 2026: 2 · 2025: 7 · 2024: 7 · 2023: 2 · 2022: 6 · 2021: 5 · 2020: 9 · 2019: 5 · 2018: 6 · 2017: 2 · 2016: 1
- FWCI
- 8.68
- Type
- journal article
- Language
- en
- Open access
- green
- hdl.handle.net
- Licence
- other-oa
- Locations
- Health Communication (publishedVersion)
- PubMed (publishedVersion)
- Portuguese National Funding Agency for Science, Research and Technology (RCAAP Project by FCT) (submittedVersion, other-oa)
- Funders
- FCT/Ministério da Ciência, Tecnologia e Inovação - project “ Institute for Research and Innovation in Health Sciences“ (POCI-01-0145-FEDER-007274)
- FEDER (COMPETE 2020 - POCI, Portugal 2020)
- FCT (SFRH/BPD/88647/2012, SFRH/BD/78949/2011)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Physical Sciences › Computer Science › Information Systems › Information Retrieval and Search Behavior
- Keywords
- health information seeking, young adults, trust in health information, source reliability, online health information, physician-patient relationship, perceived credibility, heuristics, individualized care, health literacy
- MeSH terms
- Female, Humans, Male, Physicians, Reproducibility of Results, Internet, Trust, Qualitative Research, Consumer Health Information, Information Seeking Behavior
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