Factors Influencing Medical Information Seeking Among African American Cancer Patients
Abstract
Qualitative research methods were used to explore factors that may affect medical information seeking, treatment engagement, and emotional adjustment among African American cancer patients. Focus group findings suggest that an array of cultural and socioeconomic factors plays important roles in the behavior of African American cancer patients. Participants described a number of important barriers and facilitators of medical information seeking and treatment participation. Factors linked to the health care-related behaviors and adjustment of African American cancer patients included limited knowledge and misinformation about cancer, mistrust of the medical community, concerns about privacy, lack of insurance, religious beliefs, and emotional issues such as fear and stigma associated with seeking emotional support. Recommendations are made that may assist mental and physical health providers in improving patient information and mental and physical health outcomes of African American cancer patients.
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Religious fatalism is associated with worse compliance with screening and treatment recommendations.
“religious fatalism is associated with worse compliance with screening and treatment recommendations,17, 18”
From Religion, spirituality, and physical health in cancer patients: A meta‐analysis (2015) · cites this paper as [17]
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“Information needs were also associated with information sources, information-seeking context, and search processes [5, 38].”
Self-citationReasons for family involvement in elective surgical decision‐making in Taiwan: a qualitative study
Lin, M., Huang, C., & Chen, C. (2016) · Journal of Clinical Nursing · doi:10.1111/jocn.13600 · Cited by 25 · see citing works
Guo, Y., Cheng, T. C., & Lee, H. Y. (2019) · Social Work in Public Health · doi:10.1080/19371918.2019.1649226 · Cited by 25 · see citing works
“Distrusting physicians as a key barrier hindering African American women to seek breast cancer screenings has been widely discussed in prior studies (Matthews et al., 2002; Peek et al., 2008).”
BackgroundAccommodating Ethnic Diversity
Lorenz, K., Ettner, S. L., Rosenfeld, K. E., et al. (2004) · Medical Care · doi:10.1097/01.mlr.0000135830.13777.9c · Cited by 25 · see citing works
Jiang, Y., Sereika, S. M., Bender, C. M., Brufsky, A., & Rosenzweig, M. Q. (2016) · Oncology nursing forum · doi:10.1188/16.onf.180-189 · Cited by 24 · see citing works
“Patient-centered communication should ensure not only that adequate information is delivered to the patient, but also that the patient fully understands what she may want to know regarding her newly diagnosed illness (Mazor et al., 2013).”
BackgroundLee, J. H., Clarke, R. I., & Rossi, S. (2015) · Journal of Information Science · doi:10.1177/0165551515618594 · Cited by 24 · see citing works
“In addition to hundreds of studies examining the above factors, many studies look at information behaviour at the juxtaposition of two or more of these aspects, such as women seeking health-related information [19] or African-American cancer patients [20], to list a few examples.”
BackgroundWilliams-Piehota, P. A., Mccormack, L. A., Treiman, K., & Bann, C. (2008) · Health Education Research · doi:10.1093/her/cyn011 · Cited by 24 · see citing works
“by on March 16, 2010 http://her.oxfordjournals.org Downloaded from [10], types of information sought [10, 11] and barriers to health information seeking [12, 13 ].”
BackgroundThe impact of fear versus state empathy on persuasion and social stigma
Peng, L., Shen, L., Vanderbilt, R. R., Kim, Y., & Foley, K. A. (2018) · Media Psychology · doi:10.1080/15213269.2018.1535321 · Cited by 23 · see citing works
Meiklejohn, J. A., Arley, B., Pratt, G., Valery, P. C., & Bernardes, C. M. (2019) · Rural and Remote Health · doi:10.22605/rrh4789 · Cited by 24 · see citing works
Parental Information Seeking Following a Positive Newborn Screening for Cystic Fibrosis
Dillard, J. P., Shen, L., Robinson, J. D., et al. (2010) · Journal of Health Communication · doi:10.1080/10810730.2010.522226 · Cited by 23 · see citing works
- Authors
- Matthews, A. K., Sellergren, S. A., Manfredi, C., & Williams, M.
- Affiliations
- University of Chicago (US)
- University of Illinois Chicago (US)
- Northwestern University (US)
- ORCID
- Matthews, Alicia K.
- Venue
- Journal of Health Communication
- Publisher
- Informa UK Limited
- Published
- 2002-05
- Volume
- 7
- Issue
- 3
- Pages
- 205-219
- ISSN
- 1081-0730 (ISSN-L)
- 1087-0415
- OpenAlex
- W2062414365
- Cited by
- 233
- References
- 0
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 2 · 2023: 7 · 2022: 13 · 2021: 13 · 2020: 12 · 2019: 9 · 2018: 8 · 2017: 10 · 2016: 27 · 2015: 9 · 2014: 15 · 2013: 13 · 2012: 9
- FWCI
- 13.94
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Health Communication (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Health Professions › General Health Professions › Patient-Provider Communication in Healthcare
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Keywords
- health information seeking, cancer, cultural factors, socioeconomic factors, treatment engagement, emotional adjustment, health misinformation, privacy concerns, lack of insurance, religious beliefs, emotional support, barriers and facilitators
- MeSH terms
- Adult, Aged, Black or African American, Female, Humans, Information Services, Male, Middle Aged, Neoplasms, Patient Acceptance of Health Care, Patient Education as Topic, Physician-Patient Relations, United States, Patient Satisfaction, Focus Groups
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Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
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