Autistic Self Advocacy in the Developmental Disability Movement
Abstract
When dealing with political disputes between conflicting stakeholders, scholars must not only decide between different answers to controversial policy problems—they must also pick between different...
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That change is reflected in advocacy, in the media and public debate, and in arguments about the nature of autism science itself.
“That change is reflected in advocacy (e.g. Ne’eman & Bascom, 2020; Rottier & Gernsbacher, 2020), in the media and public debate (e.g. Silberman, 2015), and in arguments about the nature of autism science itself (e.g. Milton, 2014a; Pellicano, 2020; Raymaker, 2020).”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Ne’eman & Bascom, 2020
Cites
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Ethical Advocacy Across the Autism Spectrum: Beyond Partial Representation
McCoy, M. S., Liu, E. Y., Lutz, A. S. F., & Sisti, D. A. (2020) · The American Journal of Bioethics · doi:10.1080/15265161.2020.1730482 · Cited by 72 · see citing works
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Research works printed but not linked: 1
- National Council on Disability (, 2015, Home and community-based services: Creating systems for success at home, at work and in the community
Cited by
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Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science
Pellicano, E., & den Houting, J. (2022) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.13534 · Cited by 744 · see citing works
A capabilities approach to understanding and supporting autistic adulthood
Pellicano, E., Fatima, U., Hall, G., Heyworth, M., Lawson, W., Lilley, R., Mahony, J., & Stears, M. (2022) · Nature Reviews Psychology · doi:10.1038/s44159-022-00099-z · Cited by 237 · see citing works
Kapp, S. K. (2023) · Education Sciences · doi:10.3390/educsci13020106 · Cited by 146 · see citing works
Ne’eman, A., & Pellicano, E. (2022) · Human Development · doi:10.1159/000524277 · Cited by 67 · see citing works
“…concerned with severe disability, investing considerable resources into advocating for more resources for long-term services and supports, augmentative and alternative communication and other needs that are most acute among autistic people with the most severe impairments (Ne’eman & Bascom, 2020).”
BackgroundSelf-citationWhen Disability Is Defined by Behavior, Outcome Measures Should Not Promote “Passing”
(2021) · AMA Journal of Ethics · doi:10.1001/amajethics.2021.569 · Cited by 56 · see citing works
Self-citationNeurodiversity-Affirming Applied Behavior Analysis
Allen, L. L., Mellon, L. S., Syed, N. Y., Johnson, J. F., & Bernal, A. J. (2024) · Behavior Analysis in Practice · doi:10.1007/s40617-024-00918-0 · Cited by 49 · see citing works
Language Matters in British Newspapers: A Participatory Analysis of the Autism UK Press Corpus
Karaminis, T. N., Botha, M., Longley, S., Waldock, K. E., Storey, S., Strachan, K., Ransom, N., & Pellicano, E. (2024) · Autism in Adulthood · doi:10.1089/aut.2023.0105 · Cited by 9 · see citing works
The Autism Intervention Research Network on Physical Health Autistic Researcher Review Board
Brown, H. M., Dwyer, P. S. R., Gassner, D. L., Onaiwu, M. G., Kapp, S. K., Ne'eman, A., Ryan, J. G., Waisman, T., & Williams, Z. J. (2022) · PEDIATRICS · doi:10.1542/peds.2020-049437f · Cited by 9 · see citing works
Self-citationFrom Harm to Healing: Building the Future of ABA with Autistic Voices
Johnson, J. F. (2025) · Societies · doi:10.3390/soc15030072 · Cited by 7 · see citing works
“For families without the means to pay out of pocket, ABA may become the default option simply because it is one of the few interventions covered by insurance, regardless of whether it aligns with their values or the specific needs of their child [22,28].”
How to build resiliency in autistic individuals: an implication to advance mental health
Ghanouni, P., Raphael, R., Seaker, L., & Casey, A. (2024) · BMC Psychology · doi:10.1186/s40359-024-01916-1 · Cited by 7 · see citing works
“Although such strategies are mainly perceived to be used by individuals, it should be noted that the requirement to self-advocate is primarily due to existing issues in service access [40, 41].”
BackgroundLike Autism, Representation Falls on a Spectrum
Elster, N. R., & Parsi, K. P. (2020) · The American Journal of Bioethics · doi:10.1080/15265161.2020.1735871 · Cited by 5 · see citing works
Who Tweets for the autistic community? A natural language processing–driven investigation
Akbulut, C., & Bird, G. (2025) · Autism · doi:10.1177/13623613251325934 · Cited by 4 · see citing works
“…self-advocates have publicly contested this claim, defending the neurodiversity movement as one that is predicated upon the inclusion of all levels of disability (Des Roches Rosa, 2013; Ne’eman & Bascom, 2020), it remains a highly polarising topic in discussions of organisational representation.”
InfluentialDifferent Definitions of Developmental Disability and Implications for Outcomes
Ne’eman, A., & Clark, H. H. (2025) · JAMA Health Forum · doi:10.1001/jamahealthforum.2025.5642 · Cited by 3 · see citing works
Self-citationInfrastructuring Neurodiversity Publics: The Co-Design of an App for People with Autism
Moyà-Köhler, J., Barat-Auleda, O., Vallès-Peris, N., et al. (2024) · Scandinavian Journal of Disability Research · doi:10.16993/sjdr.1138 · Cited by 3 · see citing works
Autistic Adult Knowledge of the Americans with Disabilities Act and Employment-Related Rights
Schena, D. A., & Rosales, R. (2023) · Education Sciences · doi:10.3390/educsci13070748 · Cited by 2 · see citing works
Neurodiversity: Integrating evolutionary, philosophical, and sociocultural perspectives
Isacoff, N. M., Imanova, S., Kis-Herczegh, P., Toner, S., Urosevic, T., Varma, V., & Cunff, A. L. (2026) · Research in Autism · doi:10.1016/j.reia.2025.202783 · Cited by 3 · see citing works
Integrating Polyvagal Theory and the Neurodiversity Paradigm for Inclusive Practice
Dwan, S., & Brice, A. E. (2025) · Perspectives of the ASHA Special Interest Groups · doi:10.1044/2025_persp-24-00322
Ghanouni, P., Raphael, R., Seaker, L., & Casey, A. (2024) · Figshare · doi:10.6084/m9.figshare.26461787
Petri, G., & Watts, G. (2026) · Springer eBooks · doi:10.1007/978-3-031-40858-8_544-1
Disability Futures and Genetic Determinism and Posthumanism
Anilkumar, A. S., & Veerabathiran, R. (2026) · SpringerBriefs in modern perspectives on disability research. · doi:10.1007/978-981-95-8197-9_3
Petri, G., & Watts, G. (2026) · Springer eBooks · doi:10.1007/978-3-032-11375-7_544
- Authors
- Ne’eman, A., & Bascom, J.
- Affiliations
- Harvard University (US)
- Autistic Self Advocacy Network
- Corresponding author
- Ne’eman, Ari
- ORCID
- Ne’eman, Ari
- Venue
- The American Journal of Bioethics
- Publisher
- Informa UK Limited
- Published
- 2020-03-24
- Volume
- 20
- Issue
- 4
- Pages
- 25-27
- ISSN
- 1526-5161 (ISSN-L)
- 1536-0075
- OpenAlex
- W3013006092
- Cited by
- 22
- References
- 4
- Citations by year
- 2026: 5 · 2025: 4 · 2024: 5 · 2023: 2 · 2022: 3 · 2021: 2 · 2020: 1
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- The American Journal of Bioethics (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Safety Research › Disability Rights and Representation
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Keywords
- autistic self-advocacy, disability rights, stakeholder conflict, policy conflict, bioethics
- MeSH terms
- Autistic Disorder, Child, Developmental Disabilities, Humans, Intellectual Disability, Morals, Patient Advocacy
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