What Can the Experiences of People With an Intellectual Disability Tell Us About the Desirable Attributes of a Mental Health Professional?
Open accessAbstract
Introduction: Mental health professionals have reported that they have limited knowledge, skills, and confidence in the area of intellectual disability mental health. This article aims to learn from the experiences of people with intellectual disability about the attributes that may assist mainstream mental health professionals to provide them with a quality mental health service. Methods: Six people with intellectual disability participated in an interview or focus group. Thematic analysis was undertaken applying the Intellectual Disability Mental Health Core Competencies Framework. Results: The findings supported previous research for the need for mental health professionals to be adaptable, able to communicate, and work with a person’s support network. The study reinforced the need for professionals to undertake professional development in the area but also suggested that people with intellectual disability be included as educators and as peer workers. New attributes were identified, including the need for mental health professionals to be able to build rapport and trust through demonstrating their experience and respect for working with people with intellectual disability, and their ability to understand trauma and how it may influence mental health needs. Conclusions: The attributes identified in the study could be used to inform an intellectual disability mental health workforce development framework.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
The use of easy-read information, sign language, non-face-to-face communication, such as via the telephone, not overloading the service user with verbal information, and use of virtual reality have been suggested as preferred methods of communication for this population.
“The use of easy-read information, sign language, non-face-to-face communication, such as via the telephone, not overloading the service user with verbal information, and use of virtual reality have been suggested as preferred methods of communication for this population.26,52”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [26]
Tailored services, which are person-centred, flexible, and family-centred, are highly regarded.
“Tailored services, which are person-centred, flexible, and family-centred, are highly regarded.26,72–77”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [26]
A joined-up approach, in which the sharing of inter-agency information is key, may help alleviate service users' healthcare fears.
“A joined-up approach, in which the sharing of inter-agency information is key, may help alleviate service users’ healthcare fears.26,36”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [26]
People with intellectual disabilities and/or autism value healthcare professionals, their support network, and other professionals who work closely with them and who have specialist knowledge and experience of working with people who have intellectual disabilities.
“People with intellectual disabilities and/or autism value healthcare professionals, their support network, and other professionals who work closely with them and who have specialist knowledge and experience of working with people who have intellectual disabilities.26,67–72”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [26]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414 · cited 1× · see citing works
“Thematic analysis (Braun & Clarke, 2006) was undertaken to identify themes relating to workforce attributes.”
MethodQualitative research in health care: Assessing quality in qualitative research
Mays, N. (2000) · BMJ · doi:10.1136/bmj.320.7226.50 · Cited by 3,742 · see citing works
American Journal of Mental Retardation
(2014) · Encyclopedia of Special Education · doi:10.1002/9781118660584.ese0112 · Cited by 1,856 · see citing works
Prevalence of intellectual disability: a meta-analysis of population-based studies
Maulik, P. K., Mascarenhas, M. N., Mathers, C. D., Dua, T., & Saxena, S. (2011) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2010.12.018 · Cited by 1,770 · see citing works
Mental ill-health in adults with intellectual disabilities: prevalence and associated factors
Cooper, S., Smiley, E., Morrison, J. M., Williamson, A., & Allan, L. (2006) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.106.022483 · Cited by 1,338 · see citing works
Lloyd-Evans, B., Mayo-Wilson, E., Harrison, B., Istead, H., Brown, E., Pilling, S., Johnson, S., & Kendall, T. (2014) · BMC Psychiatry · doi:10.1186/1471-244x-14-39 · Cited by 558 · cited 1× · see citing works
“However, currently there is inconclusive evidence about the effects of peer support for people with mental ill health and further research is required in this area (Lloyd-Evans et al., 2014).”
BackgroundMedical disorders of adults with mental retardation: a population study.
Beange, H. P., McElduff, A., & Baker, W. (1995) · PubMed · Cited by 482 · see citing works
The International Journal of Health Planning and Management
Young, D. W., McCarthy, S. M., Barrett, D., Kenagy, J. W., & Pinakiewicz, D. C. (2006) · The International Journal of Health Planning and Management · doi:10.1002/(issn)1099-1751 · Cited by 454 · see citing works
Cooper, S., McLean, G., Guthrie, B., McConnachie, A., Mercer, S. W., Sullivan, F., & Morrison, J. (2015) · BMC Family Practice · doi:10.1186/s12875-015-0329-3 · Cited by 446 · cited 2× · see citing works
“People with an intellectual disability represent approximately 1–2% of the population (Maulik, Mascarenhas, Mathers, Dua, & Saxena, 2011; Wen, 1997) and compared to the general population experience very poor health status characterized by multiple morbidities (Cooper et al., 2015), premature mortality (Florio & Troll…”
BackgroundVereenooghe, L., & Langdon, P. E. (2013) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2013.08.030 · Cited by 240 · cited 1× · see citing works
“However, research has shown that some mental health professionals perceive that psychological interventions are ineffective in a person with cognitive impairment (Vereenooghe & Langdon, 2013).”
BackgroundWhittle, E. L., Fisher, K. R., Reppermund, S., Lenroot, R., & Trollor, J. N. (2017) · Journal of Mental Health Research in Intellectual Disabilities · doi:10.1080/19315864.2017.1408724 · Cited by 222 · see citing works
Self-citationByles, J. (2016) · International perspectives on aging · doi:10.1007/978-1-4939-6466-6_5 · Cited by 183 · see citing works
Barry, M. M., Allegrante, J. P., Lamarre, M.-C., Auld, M. E., & Taub, A. (2009) · Global Health Promotion · doi:10.1177/1757975909104097 · Cited by 168 · see citing works
Ziviani, J., Lennox, N., Allison, H., Lyons, M., & Del Mar, C. (2004) · Journal of Intellectual & Developmental Disability · doi:10.1080/13668250412331285163 · Cited by 132 · see citing works
Mapping capacity in the health sector: a conceptual framework
LaFond, A., Brown, L. F., & Macintyre, K. (2002) · The International Journal of Health Planning and Management · doi:10.1002/hpm.649 · Cited by 120 · see citing works
Mortality among a Cohort of Persons with an Intellectual Disability in New South Wales, Australia
Florio, T., & Trollor, J. N. (2015) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/jar.12190 · Cited by 93 · cited 1× · see citing works
“…to the general population experience very poor health status characterized by multiple morbidities (Cooper et al., 2015), premature mortality (Florio & Trollor, 2015; NSWOmbudsman, 2013), and elevated rates of physical and mental health problems (Beange, McElduff, & Baker, 1995; Cooper,…”
BackgroundSelf-citationLunsky, Y., Lin, E. H. B., Balogh, R., Klein-Geltink, J., Wilton, A. S., & Kurdyak, P. A. (2012) · The Canadian Journal of Psychiatry · doi:10.1177/070674371205701004 · Cited by 80 · cited 2× · see citing works
“people with an intellectual disability and co-occurring mental ill health (illness) are higher users across the health-care sector including, for example, primary care, ambulatory care, and emergency hospital care (Howlett, Florio, Xu, & Trollor, 2015; Lunsky et al., 2012; Weise, Pollack, Britt, & Trollor, 2016).”
BackgroundCarer participation in mental health service delivery
Cleary, M. L., Freeman, A., & Walter, G. (2006) · International Journal of Mental Health Nursing · doi:10.1111/j.1447-0349.2006.00422.x · Cited by 72 · see citing works
Competencies for effective public health nutrition practice: a developing consensus
Hughes, R. (2004) · Public Health Nutrition · doi:10.1079/phn2003574 · Cited by 72 · cited 1× · see citing works
“Existing research suggests that workforce attributes may be important because they can provide a framework on which to base workforce development activities (Barry, Allegrante, Lamarre, Auld, & Taub, 2009; Brownie, Bahnisch, & Thomas, 2011; Hughes, 2004; Nelson & Graves, 2011).”
BackgroundLennox, N. G., & Chaplin, R. (1996) · Australian & New Zealand Journal of Psychiatry · doi:10.3109/00048679609065044 · Cited by 69 · cited 2× · see citing works
“Research indicates that mental health professionals have limited confidence, knowledge, and skills to meet the needs of people with an intellectual disability (Lennox & Chaplin, 1995, 1996; Man, Kangas, Trollor, & Sweller, 2016; Torr et al., 2008; Weise & Trollor, 2017).”
BackgroundDonner, B., Mutter, R., & Scior, K. (2010) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/j.1468-3148.2009.00527.x · Cited by 62 · see citing works
Multiple exposure to life events and clinical psychopathology in adults with intellectual disability
Tsakanikos, E., Bouras, N., Costello, H., & Holt, G. (2006) · Social Psychiatry and Psychiatric Epidemiology · doi:10.1007/s00127-006-0128-1 · Cited by 59 · see citing works
Lennox, N. G., & Chaplin, R. (1995) · Australian & New Zealand Journal of Psychiatry · doi:10.3109/00048679509064978 · Cited by 56 · cited 2× · see citing works
“Research indicates that mental health professionals have limited confidence, knowledge, and skills to meet the needs of people with an intellectual disability (Lennox & Chaplin, 1995, 1996; Man, Kangas, Trollor, & Sweller, 2016; Torr et al., 2008; Weise & Trollor, 2017).”
BackgroundWeise, J. C., & Trollor, J. N. (2017) · Journal of Intellectual & Developmental Disability · doi:10.3109/13668250.2017.1310825 · Cited by 46 · cited 3× · see citing works
“Research indicates that mental health professionals have limited confidence, knowledge, and skills to meet the needs of people with an intellectual disability (Lennox & Chaplin, 1995, 1996; Man, Kangas, Trollor, & Sweller, 2016; Torr et al., 2008; Weise & Trollor, 2017).”
BackgroundResultSelf-citationHowlett, S., Florio, T., Xu, H., & Trollor, J. N. (2014) · Australian & New Zealand Journal of Psychiatry · doi:10.1177/0004867414536933 · Cited by 45 · see citing works
Self-citationParkes, C., Samuels, S., Hassiotis, A., Lynggaard, H., & Hall, I. (2007) · British Journal of Learning Disabilities · doi:10.1111/j.1468-3156.2006.00419.x · Cited by 38 · see citing works
Lunsky, Y., & Gracey, C. D. (2009) · Journal of Intellectual Disabilities · doi:10.1177/1744629509336483 · Cited by 37 · cited 1× · see citing works
“People with an intellectual disability and their support networks have also previously identified communication as a barrier to access mental health services (Donner, Mutter, & Scior, 2010; Lunsky & Gracey, 2009).”
BackgroundPsychiatric Care of Adults with Intellectual Disabilities: Changing Perceptions Over a Decade
Torr, J. J., Lennox, N. G., Cooper, S., Rey‐Conde, T., Ware, R. S., Galea, J., & Gomez, M. T. (2008) · Australian & New Zealand Journal of Psychiatry · doi:10.1080/00048670802345474 · Cited by 37 · cited 4× · see citing works
“Research indicates that mental health professionals have limited confidence, knowledge, and skills to meet the needs of people with an intellectual disability (Lennox & Chaplin, 1995, 1996; Man, Kangas, Trollor, & Sweller, 2016; Torr et al., 2008; Weise & Trollor, 2017).”
BackgroundInfluentialMan, J., Kangas, M., Trollor, J. N., & Sweller, N. (2016) · Clinical Psychologist · doi:10.1111/cp.12092 · Cited by 33 · cited 2× · see citing works
“These findings complement discipline-specific research which reveals insufficient education and training in intellectual disability mental health for psychiatrists and psychologists, especially in the areas of assessment, diagnosis, and treatment (Lennox & Chaplin, 1995, 1996; Man et al., 2016; Torr et al., 2008).”
BackgroundSelf-citationA conceptual framework for intelligence-based public health nutrition workforce development
Hughes, R. (2003) · Public Health Nutrition · doi:10.1079/phn2003467 · Cited by 31 · cited 2× · see citing works
“coordinated, and multilevel approach is needed that targets individuals, organizations, systems, and the broader environmental context (Hughes, 2003; LaFond, Brown, & Macintyre, 2002; Skinner, Roche, O’Connor, Pollard, & Todd, 2005).”
BackgroundSkinner, N., ROCHE, A. M., O’Connor, J., Polard, Y., & Todd, C. (2005) · Cited by 27 · see citing works
Core Competencies in Advanced Training: What Supervisors Say About Graduate Training
Nelson, T. S., & Graves, T. (2010) · Journal of Marital and Family Therapy · doi:10.1111/j.1752-0606.2010.00216.x · Cited by 27 · cited 1× · see citing works
“Existing research suggests that workforce attributes may be important because they can provide a framework on which to base workforce development activities (Barry, Allegrante, Lamarre, Auld, & Taub, 2009; Brownie, Bahnisch, & Thomas, 2011; Hughes, 2004; Nelson & Graves, 2011).”
BackgroundWeise, J. C., Fisher, K. R., & Trollor, J. N. (2017) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/jar.12407 · Cited by 27 · cited 6× · see citing works
“…they provided unique insights into the core attributes of mental professionals that had not previously been identified by clinical experts (Weise et al., 2017a), and with family and support persons of people with an intellectual disability and co-occurring mental ill health (Weise et al., 2017b).”
BackgroundResultInfluentialSelf-citationWeise, J. C., Pollack, A., Britt, H. C., & Trollor, J. N. (2016) · Journal of Intellectual Disability Research · doi:10.1111/jir.12301 · Cited by 24 · see citing works
Self-citationWeise, J. C., Fisher, K. R., & Trollor, J. N. (2017) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/jar.12420 · Cited by 17 · cited 6× · see citing works
“…they provided unique insights into the core attributes of mental professionals that had not previously been identified by clinical experts (Weise et al., 2017a), and with family and support persons of people with an intellectual disability and co-occurring mental ill health (Weise et al., 2017b).”
BackgroundResultInfluentialSelf-citationCurrent Models of Health Service Delivery for People with Intellectual Disability: Literature review
Giuntoli, G., Newton, B., & Fisher, K. R. (2024) · UNSWorks (University of New South Wales, Sydney, Australia) · doi:10.26190/unsworks/25758 · Cited by 10 · see citing works
Self-citationBrownie, S. M., Bahnisch, M., & Thomas, J. (2011) · Charles Sturt University Research Output (CRO) · Cited by 9 · see citing works
Mental Health Nursing and Clinical Supervision
White, E., & Winstanley, J. (2006) · International Journal of Mental Health Nursing · doi:10.1111/inm.2006.15.issue-3 · Cited by 2 · see citing works
Flagged first, then by citations
4 of the 42 references couldn’t be matched to a known paper.
Research works printed but not linked: 2
- Mays, N., & Pope, C. (2000). Assessing quality in qualitative research. British Medical Journal, 320(7226), 50-52.
- O'Brien, A., & Rose, J. (2010). Improving mental health services for people with intellectual disabilities: service users' views. Advances in Mental Health and Intellectual Disabilities, 4(4), 40-47.
Cited by
Sorted by citations
Doherty, A. J., Atherton, H., Boland, P., Hastings, R., Hives, L., Hood, K., James-Jenkinson, L., Leavey, R., Randell, E., Reed, J., et al. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101030 · Cited by 244 · see citing works
“A joinedup approach, in which the sharing of interagency information is key, may help alleviate service users’ healthcare fears.(26,36) Tailored services, which are personcentred, flexible, and familycentred, are highly regarded.”
BackgroundMethodDevelopment and dissemination of a core competency framework
Trollor, J. N., Eagleson, C., Weise, J. C., & McKay, R. (2017) · The Journal of Mental Health Training Education and Practice · doi:10.1108/jmhtep-04-2017-0028 · Cited by 16 · see citing works
Self-citationKouroupa, A., Hassiotis, A., Hamza, L., Courtenay, K., Hall, I., Langdon, P. E., Taggart, L., Crossey, V., Lloyd‐Evans, B., & Morant, N. J. (2023) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/jar.13129 · Cited by 14 · see citing works
“They often reported feeling ‘neglected’, ‘small’ or ‘not even there’ in their contacts with professionals (Weise et al., 2018).”
BackgroundInfluentialIntellectual disability healthcare in Australia: Progress , challenges, and future directions
Brooker, K., Greef, R. D., Trollor, J. N., Franklin, C., & Weise, J. C. (2024) · Journal of Policy and Practice in Intellectual Disabilities · doi:10.1111/jppi.12497 · Cited by 14 · see citing works
Self-citationKarlsen, K., Munkhaugen, E. K., Fossum, H. K., Bakken, T. L., & Kildahl, A. N. (2024) · Journal of Applied Research in Intellectual Disabilities · doi:10.1111/jar.13315 · Cited by 12 · see citing works
A call for trauma‐informed dental care for individuals with intellectual disabilities
Kildahl, A. N., Berggren, T., Rønneberg, A., Molnes, C. S. Y., & Nordgarden, H. (2024) · Special Care in Dentistry · doi:10.1111/scd.12959 · Cited by 8 · see citing works
Weise, J. C., Mohan, A., Walsh, J., & Trollor, J. N. (2020) · Journal of Mental Health Research in Intellectual Disabilities · doi:10.1080/19315864.2020.1856243 · Cited by 6 · see citing works
Self-citationEvaluation of an intellectual disability mental health core competency framework
Eagleson, C., Weise, J. C., Cvejic, R. C., & Trollor, J. N. (2022) · The Journal of Mental Health Training Education and Practice · doi:10.1108/jmhtep-05-2021-0051 · Cited by 4 · see citing works
Self-citationBaldwin, P. A., Rasmussen, V., Trollor, J. N., Zhao, J. L., Anderson, J., Christensen, H. M., & Boydell, K. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18052473 · Cited by 3 · see citing works
“ID itself poses a barrier to traditional therapies, which are designed and evaluated in neurotypical individuals [9,10], and many clinicians feel they lack the ability or training to provide appropriate care [11], which is important for effective engagement [12].”
BackgroundSelf-citationEe, J. P., Lim, J. M., Kroese, B. S., & Rose, J. (2021) · Journal of Policy and Practice in Intellectual Disabilities · doi:10.1111/jppi.12392 · Cited by 3 · see citing works
Whittle, E. L., Fisher, K. R., Srasuekbul, P., & Trollor, J. N. (2024) · British Journal of Learning Disabilities · doi:10.1111/bld.12575 · Cited by 3 · see citing works
Self-citationWrein, D. (2019) · UEL Research Repository (University of East London) · doi:10.15123/uel.87570
The Users’ and the Families’ Perspectives
Bakken, T. L. (2025) · Springer eBooks · doi:10.1007/978-3-031-95318-7_9
Smith, C. A., Derbyshire, J., & Johnson, D. (2025) · Journal of Criminological Research Policy and Practice · doi:10.1108/jcrpp-03-2025-0026
- Authors
- Weise, J., Fisher, K. R., Whittle, E., & Trollor, J. N.
- Affiliations
- UNSW Sydney (AU)
- Corresponding author
- Trollor, Julian N
- Venue
- Journal of Mental Health Research in Intellectual Disabilities
- Publisher
- Informa UK Limited
- Published
- 2018-05-17
- Volume
- 11
- Issue
- 3
- Pages
- 183-202
- ISSN
- 1931-5864 (ISSN-L)
- 1931-5872
- OpenAlex
- W2803969590
- Cited by
- 14
- References
- 42
- Citations by year
- 2025: 2 · 2024: 4 · 2023: 1 · 2022: 1 · 2021: 2 · 2020: 2 · 2019: 1 · 2017: 1
- FWCI
- 1.20
- Type
- journal article
- Language
- en
- Open access
- green
- hdl.handle.net
- Licence
- cc-by-nc-nd
- Locations
- Journal of Mental Health Research in Intellectual Disabilities (publishedVersion)
- UNSWorks (University of New South Wales, Sydney, Australia) (submittedVersion, cc-by-nc-nd)
- Funders
- National Health and Medical Research Council (APP1056128)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Social Sciences › Sociology and Political Science › Inclusion and Disability in Education and Sport
- Keywords
- intellectual disability, mental health professionals, professional qualities, service user perspectives, professional development, peer support workers, trauma, social support networks, workforce development, communication skills, adaptability
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review