Mainstream In‐Patient Mental Health Care for People with Intellectual Disabilities: Service User, Carer and Provider Experiences
Abstract
Background Government guidelines promote the use of mainstream mental health services for people with intellectual disabilities whenever possible. However, little is known about the experiences of people with intellectual disabilities who use such services. Materials and Methods Face‐to‐face interviews with service users, carers and community nurses were completed and analysed on a case by case basis using interpretative phenomenological analysis. The results were followed up in focus groups with service providers. Results Positive aspects included the provision of respite, particularly for carers, and good basic care. These were outweighed by a perception of the admission as disempowering and lacking in flexible treatment provision. Accessing help emerged as a major problem, as well as the prospect of staff neglecting the specific needs of people with intellectual disabilities. Conclusions While there were some indications of improvements in line with recent policies and guidance, mainstream services seem a long way off realizing aims of easy accessibility, person‐centred practices and active partnership with intellectual disability services.
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Some people with intellectual disabilities and/or autism find the clinical environment daunting, owing to unpleasant or alarming noises, odours, and bright lights.
“Some people with intellectual disabilities and/or autism find the clinical environment daunting,63,64 owing to unpleasant or alarming noises, odours, and bright lights.31,65”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [64]
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- Authors
- Donner, B., Mutter, R., & Scior, K.
- Affiliations
- North East London NHS Foundation Trust (GB)
- University of East London (GB)
- University College London (GB)
- ORCID
- Scior, Katrina
- Venue
- Journal of Applied Research in Intellectual Disabilities
- Publisher
- Wiley
- Published
- 2010-04-15
- Volume
- 23
- Issue
- 3
- Pages
- 214-225
- ISSN
- 0952-9608 (ISSN-L)
- 1360-2322
- 1468-3148
- OpenAlex
- W2054206555
- Cited by
- 62
- References
- 27
- Citations by year
- 2026: 2 · 2025: 3 · 2024: 1 · 2023: 1 · 2022: 2 · 2021: 7 · 2020: 6 · 2019: 3 · 2018: 8 · 2017: 7 · 2016: 3 · 2015: 9 · 2014: 4 · 2013: 1 · 2012: 3
- FWCI
- 1.90
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Applied Research in Intellectual Disabilities (publishedVersion)
- UCL Discovery (University College London) (submittedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Social Sciences › Psychology › Clinical Psychology › Psychiatric care and mental health services
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- intellectual disability, psychiatric inpatient care, service user experiences, caregiver experiences, community nurses, respite care, access to mental health care, person-centred care, deinstitutionalization, intellectual disability services
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