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Cited by 70Childhood Cancer Survivors' Quality of LifeCancer survivorship and careFamily Support in Illness

Adolescents and young adults with cancer: barriers in access to psychosocial support

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Holland, Lucy R., Walker, Rick, Henney, Roslyn, Cashion, Christine E., Bradford, Natalie K.·2021·Journal of Adolescent and Young Adult Oncology
DOI 10.1089/jayao.2020.0027
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Abstract

Purpose: Adolescents and young adults (AYAs) experience cancer at a time of significant developmental transition. Both disease and treatment impact psychosocial well-being in significant, persistent ways. While the impacts are now described, and the need for psychosocial care is increasingly well recognized, to date, the barriers in access to care have not been well delineated. This is essential to understand to facilitate access to appropriate care and improve outcomes. Methods: This study explored the barriers in access to psychosocial care for young people. Semistructured, audio-recorded interviews were undertaken with 16 AYAs aged 15–25 years. Eligible participants were diagnosed within the previous 24 months and recruited through the Queensland Youth Cancer Service (QYCS). Transcribed interviews were analyzed using content analysis. Results: Barriers in access to support were related to person-centered, service-related, and systemic factors. Barriers experienced at diagnosis and during treatment were less common compared with barriers after treatment; these were significant and largely related to a lack of holistic, multidisciplinary survivorship care. Conclusion: Barriers in access to psychosocial care are multifactorial, although most can be addressed through health-service responses. Ensuring standardized referral and repeated introduction of psychosocial care for young people is imperative, regardless of location of treatment. Flexible services are especially important for patients treated across different facilities. The development of comprehensive post-treatment survivorship models of care is also essential. Continued evaluation of the experience of young people and the barriers they face is also crucial to ensure responsive service development and promote optimal care.

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  • The scalability of face-to-face survivorship interventions may be limited given the intensive resources involved for the health system and for young adults.

    “their scalability may be limited given the intensive resources involved for both: 1) the health system, which faces limitations regarding skilled personnel and mechanisms to sustain financial support to deliver such interventions; and 2) YAs, who are navigating several life demands during their survivorship period (e.g., re-engaging with family and occupational goals) [44, 45].”

    From A digital, coach-assisted intervention to address the psychosocial needs of young adult cancer survivors: Randomized controlled trial protocol and intervention adaptation process (2024) · cites this paper as [44]

    The Results and Discussion (page unavailable) report that barriers to psychosocial support were most common after treatment and included practical barriers for young people and gaps in available services. The paper does not assess the scalability of face-to-face interventions or attribute those gaps to shortages of skilled personnel or sustainable funding. (LLM, conf=0.83)

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Authors
Holland, L. R., Walker, R., Henney, R., Cashion, C. E., & Bradford, N. K.
Affiliations
  • Queensland University of Technology (AU)
  • The University of Queensland (AU)
  • Children's Health Queensland Hospital and Health Service (AU)
Corresponding author
Holland, Lucy R.
ORCID
Venue
Journal of Adolescent and Young Adult Oncology
Publisher
SAGE Publications
Published
2021-02-01
Volume
10
Issue
1
Pages
46-55
ISSN
  • 2156-5333 (ISSN-L)
  • 2156-535X
DOI
10.1089/jayao.2020.0027
OpenAlex
W3030567152
Cited by
70
References
30
Citations by year
2026: 16 · 2025: 6 · 2024: 8 · 2023: 17 · 2022: 13 · 2021: 9 · 2020: 1
FWCI
9.57
Type
journal article
Language
en
Open access
Licence
www.liebertpub.com/nv/resources-tools/text-and-data-mining-policy/121/ (tdm)
Locations
  • Journal of Adolescent and Young Adult Oncology (publishedVersion)
  • PubMed (publishedVersion)
  • QUT ePrints (Queensland University of Technology) (submittedVersion)
Topics
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
  • Health Sciences › Medicine › Oncology › Cancer survivorship and care
  • Social Sciences › Sociology and Political Science › Family Support in Illness
Keywords
adolescent and young adult cancer, psychosocial support, barriers to care, health care access, survivorship care, multidisciplinary care, referral, post-treatment care, psychosocial well-being
MeSH terms
Psychiatric Rehabilitation, Psychosocial Support Systems, Survivorship, Adolescent, Humans, Neoplasms, Referral and Consultation, Young Adult

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