Implementing a Clinic-Based Telehealth Support Service (FamilyStrong) for Family Caregivers of Individuals with Grade IV Brain Tumors
Open accessAbstract
Background: Nearly 3 million U.S. family caregivers support someone with cancer. However, oncology clinic-based service lines that proactively screen, assess, and support cancer caregivers are nearly nonexistent. Objective: To examine first-year experiences of a nurse-led clinic-based telehealth support service (FamilyStrong) for family caregivers of patients with recently diagnosed grade IV brain tumors. Methods: This is a retrospective evaluation of operational outcomes from initial implementation of the FamilyStrong Service, developed in partnership with Caregiver and Bereavement Support Services at the University of Alabama at Birmingham (UAB) and the UAB Center for Palliative and Supportive Care. From August 2018 to December 2019, 53 family caregivers were proactively identified and enrolled by a palliative care nurse, working approximately one day/week, who performed monthly caregiver distress thermometer screenings by phone and provided emotional, educational, problem-solving, and referral support. Results: Enrolled family caregivers were a mean age of 53.5 years and mostly female (62.3%), full- or part-time employed (67.9%), and the patient's spouse/partner (79.3%). Caregivers provided support 6.7 days/week for 11.2 hours/day. The palliative care nurse performed 235 distress screenings and provided support that included 68 documented instances of emotional, problem-solving, and educational support, 41 nurse-facilitated communications with the neuro-oncology team about…
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The CONSORT reporting guideline was adhered to for trial conduct and reporting.
“The Consolidated Standards of Reporting Trials (CONSORT) reporting guideline22 was adhered to for trial conduct and reporting.”
From Palliative Care Coaching for Family Caregivers of Patients With Advanced Cancer (2026) · cites this paper as [22]
Cites
Interventions with Family Caregivers of Cancer Patients: Meta-Analysis of Randomized Trials
Northouse, L. L., Katapodi, M. C., Song, L., Zhang, L., & Mood, D. W. (2010) · CA: A Cancer Journal for Clinicians · doi:10.3322/caac.20081 · Cited by 857 · see citing works
Possin, K. L., Merrilees, J. J., Dulaney, S., Bonasera, S. J., Chiong, W., Lee, K., Hooper, S. M., Allen, I. E., Braley, T., Bernstein, A., et al. (2019) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2019.4101 · Cited by 272 · see citing works
Long, A., Halkett, G. K. B., Lobb, E. A., Shaw, T., Hovey, E., & Nowak, A. K. (2016) · Neuro-Oncology Practice · doi:10.1093/nop/npv039 · Cited by 46 · see citing works
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Dionne‐Odom, J. N., Azuero, A., Taylor, R. A., Dosse, C., Bechthold, A. C., Currie, E., Reed, R. D., Harrell, E. R., Engler, S., Ejem, D. B., et al. (2022) · Cancer · doi:10.1002/cncr.34044 · Cited by 67 · see citing works
Self-citationLoughan, A. R., Willis, K. D., Braun, S. E., Rodin, G., Lanoye, A., Davies, A. E., Svikis, D., Mazzeo, S., Malkin, M., & Thacker, L. (2022) · Journal of Neuro-Oncology · doi:10.1007/s11060-022-03988-8 · Cited by 29 · see citing works
“In view of the significant emotional distress reported by caregivers [36] and the obstacles they face in accessing mental health services [37, 38].”
BackgroundPalliative Care Coaching for Family Caregivers of Patients With Advanced Cancer
Odom, J. N., Azuero, A., Taylor, R. A., Young Pierce, J., McGowen, C. L., Pisu, M., Rocque, G., Reed, R. D., Wells, R., Gazaway, S., et al. (2026) · JAMA Network Open · doi:10.1001/jamanetworkopen.2026.19807
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- Authors
- Dionne-Odom, J. N., Williams, G. R., Warren, P. P., Tims, S., Huang, C.-H. S., Taylor, R. A., Ledbetter, L., Lever, T., Mitchell, K., Thompson, M., Dosse, C., Engler, S., Holmes, A., Connelley, B., Hicks, J., Bakitas, M. A., Nabors, B., & Tucker, R.
- Affiliations
- University of Alabama at Birmingham (US)
- University of Alabama at Birmingham Hospital (US)
- Corresponding author
- Dionne-Odom, J. Nicholas
- ORCID
- Venue
- Journal of Palliative Medicine
- Publisher
- SAGE Publications
- Published
- 2021-03-01
- Volume
- 24
- Issue
- 3
- Pages
- 347-353
- ISSN
- 1096-6218 (ISSN-L)
- 1557-7740
- PMC
- PMC7894044
- OpenAlex
- W3045822422
- Cited by
- 34
- References
- 3
- Citations by year
- 2026: 7 · 2025: 6 · 2024: 4 · 2023: 4 · 2022: 10 · 2021: 3
- FWCI
- 6.57
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Palliative Medicine (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Cancer Institute (K08CA234225, R37CA252868)
- National Institute of Nursing Research (R00NR015903)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Medicine › Oncology › Cancer survivorship and care
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- family caregivers, nurse-led clinics, caregiver support, palliative care, advance care planning, neuro-oncology, caregiver burden
- MeSH terms
- Brain Neoplasms, Family, Female, Humans, Male, Middle Aged, Palliative Care, Retrospective Studies, Caregivers, Telemedicine
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