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Families Caring for Elders in Residence: Issues in the Measurement of Burden
Abstract
This paper examines the concept of caregiving burden and urges a multidimensional perspective in which burden is viewed as a mediating force between the elders' impairments and the impact that caregiving has on the lives of caregivers and their families. The analysis underscores the need to apply the concept of burden to subjective interpretations by caregivers of the elders' different kinds of impairments including impairment of activities of daily living, cognitive incapacity, disruptive behavior, and lack of sociability. The analysis also demonstrates that a variety of less subjective effects of caregiving are important and measureable. These issues are elaborated and illustrated using data and findings from the Benjamin Rose Institute's survey of 614 families in which impaired elders resided with and were provided care by family members.
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“This psychological morbidity is strongly associated with caregivers’ coping strategies [12, 13], such that support and healthy coping strategies are associated with less stress and burden [14–16].”
From Feasibility and acceptability of an acceptance and commitment therapy intervention for caregivers of adults with Alzheimer’s disease and related dementias (2021) · cites this paper as [14]
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Pinquart, M., & Sörensen, S. (2003) · Psychology and Aging · doi:10.1037/0882-7974.18.2.250 · Cited by 2,857
Family caregivers of people with dementia
Brodaty, H., & Donkin, M. (2009) · Dialogues in Clinical Neuroscience · doi:10.31887/dcns.2009.11.2/hbrodaty · Cited by 1,644
“Poulshock and Deimling model of caregiver strain (modified).(29) Predisposing”
BackgroundPinquart, M., & Sörensen, S. (2003) · The Journals of Gerontology: Series B · doi:10.1093/geronb/58.2.p112 · Cited by 1,108
Given, C. W., Given, B. A., Stommel, M., Collins, C. E., King, S., & Franklin, S. (1992) · Research in Nursing & Health · doi:10.1002/nur.4770150406 · Cited by 893
Issues of Race, Ethnicity, and Culture in Caregiving Research: A 20-Year Review (1980-2000)
Dilworth‐Anderson, P., Williams, I. C., & Gibson, B. E. (2002) · The Gerontologist · doi:10.1093/geront/42.2.237 · Cited by 784
Metadata
- Authors
- Poulshock, S. W., & Deimling, G. T.
- Affiliations
- Benjamin Rose Institute on Aging (US)
- Case Comprehensive Cancer Center (US)
- ORCID
- Deimling, G. T.
- Venue
- Journal of Gerontology
- Publisher
- Oxford University Press (OUP)
- Published
- 1984-03-01
- Volume
- 39
- Issue
- 2
- Pages
- 230-239
- ISSN
- 0022-1422 (ISSN-L)
- OpenAlex
- W2016101351
- Cited by
- 582
- References
- 0
- Citations by year
- 2026: 3 · 2025: 5 · 2024: 4 · 2023: 5 · 2022: 7 · 2021: 5 · 2020: 4 · 2019: 4 · 2018: 8 · 2017: 9 · 2016: 12 · 2015: 6 · 2014: 12 · 2013: 13 · 2012: 9
- FWCI
- 50.47
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Gerontology (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Life-span and Life-course Studies › Aging, Elder Care, and Social Issues
- Keywords
- caregiver burden, family caregivers, older adults, activities of daily living, cognitive impairment, disruptive behavior, sociability, family caregiving
- MeSH terms
- Activities of Daily Living, Aged, Attitude, Behavior, Cognition, Family, Home Nursing, Humans
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