Cited by 582Intergenerational Family Dynamics and CaregivingNursing care and researchAging, Elder Care, and Social Issues

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Families Caring for Elders in Residence: Issues in the Measurement of Burden

Poulshock, S. W., Deimling, G. T.·1984·Journal of Gerontology

DOI 10.1093/geronj/39.2.230

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Abstract

This paper examines the concept of caregiving burden and urges a multidimensional perspective in which burden is viewed as a mediating force between the elders' impairments and the impact that caregiving has on the lives of caregivers and their families. The analysis underscores the need to apply the concept of burden to subjective interpretations by caregivers of the elders' different kinds of impairments including impairment of activities of daily living, cognitive incapacity, disruptive behavior, and lack of sociability. The analysis also demonstrates that a variety of less subjective effects of caregiving are important and measureable. These issues are elaborated and illustrated using data and findings from the Benjamin Rose Institute's survey of 614 families in which impaired elders resided with and were provided care by family members.

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Caregiver burden in HIV-positive and HIV-negative partners of men with AIDS.
Folkman, S., Chesney, M. A., Cooke, M., Boccellari, A., & al, E. (1994) · Journal of Consulting and Clinical Psychology · doi:10.1037//0022-006x.62.4.746 · Cited by 134
Assessment of Burden in Partners of Stroke Patients With the Sense of Competence Questionnaire
Reimer, W. J. M. S. O., de Haan, R. J., Pijnenborg, J. M. A., Limburg, M., & van den Bos, G. A. M. (1998) · Stroke · doi:10.1161/01.str.29.2.373 · Cited by 112
“Perceived burden was shown to have a major impact on the lives of caregivers.(15,16)”
Background
La Entrevista de Carga del Cuidador. Utilidad y validez del concepto de carga
Montorio, I., de Trocóniz, M. I. F., López‐López, A., & Colodrón, M. S. (1998) · Anales de Psicología · Cited by 111
Living with the mentally ill: Effects on the health and functioning of other household members
Gallagher, S. K., & Mechanic, D. (1996) · Social Science & Medicine · doi:10.1016/0277-9536(95)00296-0 · Cited by 110
Psychotropic Drug Use among Caregivers of Patients with Dementia
Clipp, E. C., & George, L. K. (1990) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.1990.tb03496.x · Cited by 111
Psychoeducational interventions for family caregivers: Preliminary efficacy data
Lovett, S. B., & Gallagher-Thompson, D. E. (1988) · Behavior Therapy · doi:10.1016/s0005-7894(88)80005-4 · Cited by 111
Life Events as Correlates of Burden in Spouse Caregivers of Persons with Alzheimer's Disease
Russo, J. E., & VITALIANO, P. P. (1995) · Experimental Aging Research · doi:10.1080/03610739508253985 · Cited by 106
Understanding burden differences between men and women caregivers: the contribution of care-recipient problem behaviors
Bédard, M., Kuzik, R., Chambers, L. A., Molloy, D. W., Dubois, S. J., & Lever, J. A. (2005) · International Psychogeriatrics · doi:10.1017/s1041610204000857 · Cited by 104
“The functional status of the care-recipient, and especially its multidimensional nature (Poulshock and Deimling, 1984), is a key determinant of caregiver burden.”
Background
An Eye-Tracking Assistive Device Improves the Quality of Life for ALS Patients and Reduces the Caregivers’ Burden
Hwang, C., Weng, H.-H., Wang, L.-F., Tsai, C., & Chang, H. (2014) · Journal of Motor Behavior · doi:10.1080/00222895.2014.891970 · Cited by 103
“The Caregiver Burden Scale (CBS) is a validated questionnaire for caregivers (Poulshock & Deimling, 1984; Robinson, 1983; Zarit, Reever, & Bach-Peterson (1980).”
Method
Stresses and Satisfactions of Family Caregivers to Older Stroke Patients
Kinney, J. M., Stephens, M. A. P., Franks, M. M., & Norris, V. K. (1995) · Journal of Applied Gerontology · doi:10.1177/073346489501400101 · Cited by 103
Multidimensional determinants of family caregiver burden in Alzheimer's disease
Park, M., Sung, M., Kim, S. K., Kim, S., & Lee, D. Y. (2015) · International Psychogeriatrics · doi:10.1017/s1041610215000460 · Cited by 101
“…dementia and their influence have been explained by several models, for example, the Lazarus and Folkman (1984) stress-appraisal-coping model, the Poulshock and Deimling (1984) two-dimensional model of psychosocial morbidity, the Haley et al. (1987) stress and coping model, or the Pearlin et al.…”
Method
Marital History and the Prior Relationship as Predictors of Positive and Negative Outcomes among Wife Caregivers
Kramer, B. J. (1993) · Family Relations · doi:10.2307/585336 · Cited by 100
Stress is in the eye of the beholder:reconceptualizing the measurement of carer burden
Nolan, M., Grant, G. G., & Ellis, N. C. (1990) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.1990.tb01853.x · Cited by 99
Psychosocial Predictors of Distress in Parents of Children Undergoing Stem Cell or Bone Marrow Transplantation
Phipps, S. (2005) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsi002 · Cited by 98
“It was adapted from a measure designed for use with families providing care to elderly relatives suffering from Alzheimer’s disease or other dementia (Poulshock & Deimling, 1984) but is applicable to any situation in which a family member is caring for a chronically ill loved one.”
Method
Attachment Style and Emotion Regulation in Dementia Patients and their Relation to Caregiver Burden
Magai, C., & Cohen, C. I. (1998) · The Journals of Gerontology Series B · doi:10.1093/geronb/53b.3.p147 · Cited by 98

Authors: Poulshock, S. W., & Deimling, G. T.
Affiliations: Benjamin Rose Institute on Aging (US)
Case Comprehensive Cancer Center (US)
ORCID: Deimling, G. T.
Venue: Journal of Gerontology
Publisher: Oxford University Press (OUP)
Published: 1984-03-01
Volume: 39
Issue: 2
Pages: 230-239
ISSN: 0022-1422 (ISSN-L)
DOI: 10.1093/geronj/39.2.230
OpenAlex: W2016101351
Cited by: 582
References: 0
Citations by year: 2026: 3 · 2025: 5 · 2024: 4 · 2023: 5 · 2022: 7 · 2021: 5 · 2020: 4 · 2019: 4 · 2018: 8 · 2017: 9 · 2016: 12 · 2015: 6 · 2014: 12 · 2013: 13 · 2012: 9
FWCI: 50.47
Type: journal article
Language: en
Open access: closed
Locations: Journal of Gerontology (publishedVersion)
PubMed (publishedVersion)
Topics: Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Life-span and Life-course Studies › Aging, Elder Care, and Social Issues
Keywords: caregiver burden, family caregivers, older adults, activities of daily living, cognitive impairment, disruptive behavior, sociability, family caregiving
MeSH terms: Activities of Daily Living, Aged, Attitude, Behavior, Cognition, Family, Home Nursing, Humans

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Families Caring for Elders in Residence: Issues in the Measurement of Burden

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