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Uncovering Health Care Inequalities among Adults with Intellectual and Developmental Disabilities
Abstract
Even as attention is drawn to the increasing number of individuals who experience health inequalities in the United States, little is known about the health inequalities experienced by individuals with intellectual and developmental disabilities. Current disability research mainly focuses on physical disabilities. This article discusses the health disparities experienced by individuals with intellectual and developmental disabilities.The authors conducted focus groups with parents/guardians, self-advocates, and community support professionals and key informant interviews with health care professionals to assess the needs of this less frequently documented population. Results from this study indicate that individuals with intellectual and developmental disabilities face health care disparities and inequities in four areas: access, knowledge, communication, and quality.
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“Long waiting times are a major cause of anxiety and stress.25,32,45,78,79”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [78]
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Ali, A., Scior, K., Ratti, V., Strydom, A., King, M., & Hassiotis, A. (2013) · PLoS ONE · doi:10.1371/journal.pone.0070855 · Cited by 334
“Health professionals frequently exhibited negative attitudes and behaviour towards individuals with intellectual disability [7], [15], [16], including questioning whether the person was worthy of surgical treatment, due to discriminatory judgements about the person’s quality of life [16], [19].”
BackgroundDoherty, A. J., Atherton, H., Boland, P., Hastings, R., Hives, L., Hood, K., James-Jenkinson, L., Leavey, R., Randell, E., Reed, J., et al. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101030 · Cited by 244
“Long waiting times are a major cause of anxiety and stress.(25,32,45,78,79)”
BackgroundAnderson, L., Humphries, K., McDermott, S. W., Marks, B., Sisirak, J., & Larson, S. A. (2013) · Intellectual and developmental disabilities · doi:10.1352/1934-9556-51.5.385 · Cited by 207
“When a provider was identified, lengthy wait times for appointments were common (Ward et al., 2010).”
Health Care Access for Adults With Intellectual and Developmental Disabilities: A Scoping Review
Williamson, H. J., Contreras, G. M., Rodriguez, E. S., Smith, J. L., & Perkins, E. A. (2017) · OTJR Occupational Therapy Journal of Research · doi:10.1177/1539449217714148 · Cited by 111
Birth outcomes among US women with intellectual and developmental disabilities
Akobirshoev, I., Parish, S. L., Mitra, M., et al. (2017) · Disability and health journal · doi:10.1016/j.dhjo.2017.02.010 · Cited by 81
Metadata
- Authors
- Ward, R. L., Nichols, A. D., & Freedman, R. I.
- Affiliations
- SUNY Fredonia (US)
- Venue
- Health & Social Work
- Publisher
- Oxford University Press (OUP)
- Published
- 2010-11-01
- Volume
- 35
- Issue
- 4
- Pages
- 280-290
- ISSN
- 0360-7283 (ISSN-L)
- 1545-6854
- OpenAlex
- W2098928216
- Cited by
- 110
- References
- 0
- Citations by year
- 2026: 1 · 2025: 6 · 2024: 4 · 2023: 2 · 2022: 8 · 2021: 10 · 2020: 11 · 2019: 9 · 2018: 7 · 2017: 12 · 2016: 10 · 2015: 7 · 2014: 7 · 2013: 10 · 2012: 5
- FWCI
- 4.75
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Health & Social Work (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Social Sciences › Sociology and Political Science › Disability Rights and Representation
- Social Sciences › Education › Inclusion and Disability in Education and Sport
- Keywords
- health care disparities, intellectual and developmental disabilities, health disparities, health care access, health knowledge, health communication, quality of care, self-advocates, parents and guardians, healthcare workers
- MeSH terms
- Adult, Developmental Disabilities, Chronic Disease, Community Health Services, Female, Health Services Accessibility, Humans, Male, Massachusetts, Intellectual Disability, Parents, Patient Advocacy, Comorbidity, Caregivers, Focus Groups, Needs Assessment, Healthcare Disparities
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