Sickle Cell Disease Pain in Children and Adolescents: Change in Pain Frequency and Coping Strategies Over Time
Abstract
Examined 9-month follow-up data obtained from children and adolescents with sickle cell disease (SCD) and their parents participating in a longitudinal study of pain coping strategies. Of 87 subjects completing the baseline assessment of pain coping strategies, 70 (80%) of their parents completed a structured pain interview assessing their child's health care use and activity reduction during painful episodes over the follow-up period. Regression analyses controlling for age and pain frequency revealed that baseline Coping Attempts were associated with higher levels of school, household, and social activity during painful episodes. Baseline Passive Adherence was associated with more frequent health care contacts during the subsequent 9 months. Increases in Negative Thinking over time were associated with further increases in health care contacts during the follow-up period. Comparing pain coping strategies assessed at baseline to pain coping strategies measured at follow-up revealed that pain coping strategies were relatively stable over time for younger children but changed more for adolescents.
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- Authors
- Gil, K. M., Thompson, R. J., Keith, B. R., Tota-Faucette, M., Noll, S., & Kinney, T. R.
- Affiliations
- Duke Medical Center (US)
- Corresponding author
- Gil, Karen M.
- Venue
- Journal of Pediatric Psychology
- Publisher
- Oxford University Press (OUP)
- Published
- 1993
- Volume
- 18
- Issue
- 5
- Pages
- 621-637
- ISSN
- 0146-8693 (ISSN-L)
- 1465-735X
- OpenAlex
- W2103010076
- Cited by
- 143
- References
- 0
- Citations by year
- 2026: 1 · 2024: 2 · 2023: 1 · 2022: 4 · 2021: 1 · 2020: 3 · 2019: 7 · 2018: 6 · 2017: 3 · 2016: 1 · 2015: 5 · 2014: 4 · 2013: 7 · 2012: 2
- FWCI
- 2.60
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Pediatric Psychology (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institutes of Health (5r29hl039124-05, 5p60hl028391-15)
- National Heart, Lung, and Blood Institute (P60HL-28391, NHLBI HL28391, NHLBI HL39124)
- Topics
- Health Sciences › Medicine › Genetics › Hemoglobinopathies and Related Disorders
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
- Keywords
- sickle cell disease, pain coping, pain frequency, children and adolescents, negative thinking, health care utilization, parental attitudes
- MeSH terms
- Adaptation, Psychological, Adolescent, Anemia, Sickle Cell, Child, Female, Follow-Up Studies, Humans, Male, Pain Measurement, Personality Assessment, Personality Development, Sick Role
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