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Measuring the Transition Readiness of Youth with Special Healthcare Needs: Validation of the TRAQ—Transition Readiness Assessment Questionnaire

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Sawicki, Gregory S., Lukens-Bull, Katryne, Yin, Xiaoping, Demars, Nathan, Huang, I-Chan, Livingood, William, Reiss, John, Wood, David·2011·Journal of Pediatric Psychology
DOI 10.1093/jpepsy/jsp128PMC PMC3415980
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Abstract

OBJECTIVE: The aim of this study was to develop the Transition Readiness Assessment Questionnaire (TRAQ), a measure of readiness for transition from pediatric to adult healthcare for youth with special health care needs (YSHCN). METHODS: We administered TRAQ to 192 YSHCN aged 16-26 years in three primary diagnostic categories, conducted factor analysis, and assessed differences in TRAQ scores by age, gender, race, and primary diagnosis type. RESULTS: Factor analysis identified two TRAQ domains with high internal consistency: Skills for Self-Management and Skills for Self-Advocacy. Each domain had high internal consistency. In multivariate regression models, older age and a primary diagnosis of an activity limiting physical condition were associated with higher scores in Self-Management, and female gender and a primary diagnosis of an activity limiting physical condition were associated with higher scores in Self-Advocacy. CONCLUSIONS: Our initial validation study suggests the TRAQ is a useful tool to assess transition readiness in YSHCN and to guide educational interventions by providers to support transition.

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  • The Transition Readiness Assessment Questionnaire 5.0 (TRAQ) is a 20-item validated measure used to examine knowledge and health-related skills.

    “The Transition Readiness Assessment Questionnaire 5.0 (TRAQ) is a 20-item validated measure which is used to examine knowledge and health-related skills (eg, appointment-keeping, managing medications and daily activities, communicating with providers).543”

    From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [543]

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Cited by

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Authors
Sawicki, G. S., Lukens-Bull, K., Yin, X., Demars, N., Huang, I.-C., Livingood, W., Reiss, J., & Wood, D.
Affiliations
Boston Children's Hospital (US)
ORCID
Venue
Journal of Pediatric Psychology
Publisher
Oxford University Press (OUP)
Published
2009-12-29
Volume
36
Issue
2
Pages
160-171
ISSN
  • 0146-8693 (ISSN-L)
  • 1465-735X
DOI
10.1093/jpepsy/jsp128
PMC
PMC3415980
OpenAlex
W2102163548
Cited by
592
References
7
Citations by year
2026: 36 · 2025: 36 · 2024: 46 · 2023: 38 · 2022: 39 · 2021: 54 · 2020: 51 · 2019: 55 · 2018: 36 · 2017: 45 · 2016: 38 · 2015: 40 · 2014: 32 · 2013: 18 · 2012: 12
FWCI
23.67
Type
journal article
Language
en
Open access
Locations
  • Journal of Pediatric Psychology (publishedVersion)
  • PubMed Central (publishedVersion)
  • PubMed (publishedVersion)
Funders
Eunice Kennedy Shriver National Institute of Child Health and Human Development (K23HD057146)
Topics
  • Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Childhood Cancer Survivors' Quality of Life
  • Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
Keywords
Transition Readiness Assessment Questionnaire, transition readiness, self-management skills, self-advocacy, questionnaire validation, factor structure, gender differences, age differences
MeSH terms
Adolescent, Adult, Chronic Disease, Continuity of Patient Care, Factor Analysis, Statistical, Female, Health Services, Health Services Needs and Demand, Humans, Male, Patient Advocacy, Regression Analysis, Self Care, Sex Factors, Self Efficacy, Needs Assessment

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