The associations of chronic condition type and individual characteristics with transition readiness
Abstract
Objective Identifying differences in transition readiness according to chronic condition is essential for understanding whether special emphasis within specific populations is warranted. Youth with chronic conditions (type 1 diabetes, Turner syndrome, spina bifida, autism spectrum disorder [ASD]) representing various types of impairments were compared with youth without chronic conditions. It was hypothesized that differences would be observed according to condition type, with youth with cognitive/behavioral conditions showing less readiness than youth with other conditions and youth without chronic conditions showing the highest levels of transition readiness.Methods Patients (N = 163) ages 12 to 22 were recruited via outpatient clinics at a large freestanding children's hospital. Demographic characteristics (age, sex, race, and maternal education), health literacy, perceptions about health care responsibility, importance and confidence about transfer to adult health care, and the Transition Readiness Assessment Questionnaire (TRAQ) were included.Results Significant differences in transition readiness were found according to condition type; youth with ASD had the lowest transition readiness scores. Patient and family characteristics and condition were predictors of TRAQ scores and self-perceived readiness to take responsibility for health care and transfer to adult care. Item-level analysis indicated that medication, appointment-keeping, and activities of daily living accounted for differences in TRAQ scores according to condition.Conclusions Disparities in transition readiness were detected across condition types, with potentially modifiable mechanisms identified to address gaps in readiness for youth transferring to adult health care systems. Developing interventions that assist providers in addressing these modifiable characteristics might improve transition to adult health care for adolescents with various chronic conditions.
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Adolescent and young adults with TS have lower TRAQ scores than those without TS.
“Studies have shown adolescent and young adults with TS have lower TRAQ scores than those without TS.544,545”
From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [544]
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Tsevat, R. K., Ma, J., Duan, S. H., Chen, L., Tarn, D. M., & Ross, M. K. (2024) · The Journal of Allergy and Clinical Immunology In Practice · doi:10.1016/j.jaip.2024.09.017 · Cited by 1 · see citing works
Bibliometric analysis of transition readiness in adolescents with chronic diseases
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Transition Interventions and Clinical Strategies
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In‐iw, S., Lapwech, B., & Manaboriboon, B. (2020) · Pediatrics & Neonatology · doi:10.1016/j.pedneo.2020.10.005 · Cited by 1 · see citing works
Gowanus Canal and Public Policy
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Promoting Change amid Systemic Oppression
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Assessment of Transition Readiness in Adolescents with Rheumatic Diseases: A Cross-Sectional StudyPreprint
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Schwartz, L. A., Psihogios, A. M., & Fredericks, E. M. (2018) · Springer eBooks · doi:10.1007/978-3-319-72868-1_13
Transition Considerations for Turner Syndrome
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Backeljauw, P. F., & Corathers, S. D. (2020) · Springer eBooks · doi:10.1007/978-3-030-34150-3_16
Optimal Local Government and Public Service Provision
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Psychosoziale Aspekte in der Betreuung von Kindern und Jugendlichen mit Typ 1 Diabetes mellitus
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Clauss‐Ehlers, C. S. (2021) · Cambridge University Press eBooks · doi:10.1017/9781108678971.033
Community Psychology in Action
(2021) · Cambridge University Press eBooks · doi:10.1017/9781108678971.013
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O’Connor, P. A., Gillum, T. L., & Morse, G. S. (2021) · Cambridge University Press eBooks · doi:10.1017/9781108678971.006
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- Authors
- Beal, S. J., Riddle, I. K., Kichler, J. C., Duncan, A., Houchen, A., Casnellie, L., Woodward, J., & Corathers, S. D.
- Affiliations
- Cincinnati Children's Hospital Medical Center (US)
- Corresponding author
- Beal, Sarah J.
- ORCID
- Venue
- Academic Pediatrics
- Publisher
- Elsevier BV
- Published
- 2016-09
- Volume
- 16
- Issue
- 7
- Pages
- 660-667
- ISSN
- 1876-2859 (ISSN-L)
- OpenAlex
- W2460077803
- Cited by
- 117
- References
- 34
- Citations by year
- 2026: 3 · 2025: 2 · 2024: 13 · 2023: 11 · 2022: 12 · 2021: 44 · 2020: 13 · 2019: 10 · 2018: 4 · 2017: 3 · 2016: 2
- FWCI
- 13.15
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Academic Pediatrics (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Health Sciences › Medicine › Emergency Medicine › Hospital Admissions and Outcomes
- Keywords
- transition readiness, transition to adult care, chronic disease, autism spectrum disorder, type 1 diabetes, Turner syndrome, spina bifida, health literacy, health care responsibility, Transition Readiness Assessment Questionnaire, adolescents, health disparities, activities of daily living, medication management
- MeSH terms
- Autism Spectrum Disorder, Adolescent, Attitude to Health, Child, Diabetes Mellitus, Type 1, Female, Humans, Male, Perception, Self Concept, Turner Syndrome, Case-Control Studies, Spinal Dysraphism, Young Adult, Health Literacy, Transition to Adult Care
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