Transition to adult services
Abstract
The lack of focus on young people as a group with particular healthcare needs in medical training and the health service underpins the difficulty that we have experienced as a profession in improving transition in the UK. This article discusses current progress towards improving training in young people's health in the UK, the evidence base for transitional care in young people with chronic conditions with interventions that focus on staffing, service delivery and young people, a practice based approach for transitional care in young people with learning difficulties and complex needs, the need for monitoring and evaluation of transitional care, and the challenge of funding.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Adolescents (not only TS individuals) have reported that it takes at least four to five visits before they trust a particular doctor.
“To this point, adolescents (not only TS individuals) have reported that it takes at least four to five visits before they trust a particular doctor.552”
From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [552]
Transitioning care to an adult TS team may not be feasible in many centers and regions due to lack of access to specialists who have knowledge and training in TS care and/or inadequate funding to support streamlined transition processes and resources.
“Transitioning care to an adult TS team may not be feasible in many centers and regions due to lack of access to specialists who have knowledge and training in TS care and/or inadequate funding to support streamlined transition processes and resources.532,548,550,552”
From Clinical practice guidelines for the care of girls and women with Turner syndrome. (2024) · cites this paper as [552]
Cites
Emerging adulthood: A theory of development from the late teens through the twenties.
Arnett, J. J. (2000) · American Psychologist · doi:10.1037/0003-066x.55.5.469 · Cited by 16,843 · see citing works
Improving the transition between paediatric and adult healthcare: a systematic review
Crowley, R., Wolfe, I., Lock, K., & McKee, M. (2011) · Archives of Disease in Childhood · doi:10.1136/adc.2010.202473 · Cited by 649 · see citing works
Sawicki, G. S., Lukens-Bull, K., Yin, X., Demars, N., Huang, I.-C., Livingood, W., Reiss, J., & Wood, D. (2011) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsp128 · Cited by 592 · see citing works
Franklin, V. L., Waller, A., Pagliari, C., & Greene, S. A. (2006) · Diabetic Medicine · doi:10.1111/j.1464-5491.2006.01989.x · Cited by 543 · see citing works
Reid, G. J., Irvine, M. J., McCrindle, B. W., Sananes, R., Ritvo, P. G., Siu, S. C., & Webb, G. D. (2004) · PEDIATRICS · doi:10.1542/peds.113.3.e197 · Cited by 495 · see citing works
Borus, J. S., & Laffel, L. M. (2010) · Current Opinion in Pediatrics · doi:10.1097/mop.0b013e32833a46a7 · Cited by 348 · see citing works
Getting into adolescent heads: An essential update
Goldenring, J. M., & Rosen, D. S. (2008) · Contemporary pediatrics · Cited by 345 · see citing works
A Multicenter Randomized Controlled Trial of Motivational Interviewing in Teenagers With Diabetes
Channon, S., Huws-Thomas, M. V., Rollnick, S., Hood, K., Cannings-John, R. L., Rogers, C. E., & Gregory, J. W. (2007) · Diabetes Care · doi:10.2337/dc06-2260 · Cited by 338 · see citing works
Nakhla, M. M., Daneman, D., To, T. M., Paradis, G., & Guttmann, A. (2009) · PEDIATRICS · doi:10.1542/peds.2009-0041 · Cited by 309 · see citing works
Holmes‐Walker, D. J., Llewellyn, A. C., & Farrell, K. (2007) · Diabetic Medicine · doi:10.1111/j.1464-5491.2007.02152.x · Cited by 295 · see citing works
Transitioning From Pediatric to Adult Care
Weissberg-Benchell, J. A., Wolpert, H. A., & Anderson, B. J. (2007) · Diabetes Care · doi:10.2337/dc07-1249 · Cited by 270 · see citing works
Health Risk Behaviors in Adolescents With Chronic Conditions
Surı́s, J.-C., Michaud, P., Akré, C., & Sawyer, S. M. (2008) · PEDIATRICS · doi:10.1542/peds.2008-1479 · Cited by 255 · see citing works
Walleghem, N. V., MacDonald, C. A., & Dean, H. (2008) · Diabetes Care · doi:10.2337/dc07-2247 · Cited by 249 · see citing works
McDonagh, J. E. R., Southwood, T. R. E., Shaw, K. L., & on behalf of the British Society of Paediatric and Adolescent Rheumatology (2006) · Lara D. Veeken · doi:10.1093/rheumatology/kel198 · Cited by 237 · see citing works
Transition to adult care: experiences and expectations of adolescents with a chronic illness
Tuchman, L. K., Slap, G. B., & Britto, M. T. (2008) · Child Care Health and Development · doi:10.1111/j.1365-2214.2008.00844.x · Cited by 230 · see citing works
Cadario, F., Prodam, F., Bellone, S., Trada, M., Binotti, M., Trada, M., Allochis, G., Baldelli, R., Esposito, S., Bona, G., et al. (2008) · Clinical Endocrinology · doi:10.1111/j.1365-2265.2008.03467.x · Cited by 229 · see citing works
Sanci, L. A. (2000) · BMJ · doi:10.1136/bmj.320.7229.224 · Cited by 203 · see citing works
Franklin, V. L., Greene, A., Waller, A., Greene, S. A., & Pagliari, C. (2008) · Journal of Medical Internet Research · doi:10.2196/jmir.962 · Cited by 188 · see citing works
Kieckhefer, G. M., & Trahms, C. M. (2002) · PubMed · Cited by 182 · see citing works
Assessment of transition readiness skills and adherence in pediatric liver transplant recipients
Fredericks, E. M., Dore‐Stites, D., Well, A. M., Magee, J. C., Freed, G. L., Shieck, V. L., & Lopez, M. J. (2010) · Pediatric Transplantation · doi:10.1111/j.1399-3046.2010.01349.x · Cited by 180 · see citing works
An Internet-Based Program to Improve Self-Management in Adolescents With Type 1 Diabetes
Mulvaney, S. A., Rothman, R. L., Wallston, K. A., Lybarger, C. K., & Dietrich, M. S. (2009) · Diabetes Care · doi:10.2337/dc09-1881 · Cited by 171 · see citing works
Kennedy, I. (2010) · Digital Education Resource Archive (University College London) · Cited by 168 · see citing works
Jonathan, M., & Richardson, A. (2008) · Tizard Learning Disability Review · doi:10.1108/13595474200800036 · Cited by 162 · see citing works
van Staa, A., van der Stege, H. A., Jedeloo, S., Moll, H. A., & Hilberink, S. R. (2010) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2010.07.009 · Cited by 154 · see citing works
Dovey‐Pearce, G., Hurrell, R., May, C. R., Walker, C., & Doherty, Y. (2005) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2005.00577.x · Cited by 152 · see citing works
McLaughlin, S. E., Diener‐West, M., Indurkhya, A., Rubin, H. R., Heckmann, R., & Boyle, M. (2008) · PEDIATRICS · doi:10.1542/peds.2007-2217 · Cited by 147 · see citing works
Commentary: applying the BMJ's guidelines on educational interventions.
Ker, J. (2000) · PubMed · Cited by 140 · see citing works
McDonagh, J. E. R., Shaw, K. L., & Southwood, T. R. E. (2006) · Journal of Child Health Care · doi:10.1177/1367493506060203 · Cited by 135 · see citing works
Transition from pediatric to adult services: are we getting it right?
Kennedy, A. D. M., & Sawyer, S. M. (2008) · Current Opinion in Pediatrics · doi:10.1097/mop.0b013e328305e128 · Cited by 134 · see citing works
McPherson, M. E., Thaniel, L., & Minniti, C. P. (2009) · Pediatric Blood & Cancer · doi:10.1002/pbc.21974 · Cited by 130 · see citing works
Lurie, S., Shemesh, E., Sheiner, P. A., Emre, S., Tindle, H. L., Melchionna, L., & Shneider, B. L. (2000) · Pediatric Transplantation · doi:10.1034/j.1399-3046.2000.00110.x · Cited by 123 · see citing works
Brown, J. D., & Wissow, L. S. (2008) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2008.06.018 · Cited by 120 · see citing works
Young people’s satisfaction of transitional care in adolescent rheumatology in the UK
Shaw, K. L., Southwood, T. R. E., McDonagh, J. E. R., & the British Society of Paediatric and Adolescent Rheumatology (2006) · Child Care Health and Development · doi:10.1111/j.1365-2214.2006.00698.x · Cited by 119 · see citing works
Wells, A., & Zebrack, B. (2007) · Social Work in Health Care · doi:10.1300/j010v46n02_01 · Cited by 114 · see citing works
McDonagh, J. E. R., Southwood, T. R. E., & Shaw, K. L. (2004) · Lara D. Veeken · doi:10.1093/rheumatology/keh163 · Cited by 111 · see citing works
Donkervoort, M., Wiegerink, D. J. H. G., van Meeteren, J., et al. (2008) · Developmental Medicine & Child Neurology · doi:10.1111/j.1469-8749.2008.03115.x · Cited by 104 · see citing works
(2006) · Child Care Health and Development · doi:10.1111/j.1365-2214.2006.00652_1.x · Cited by 101 · see citing works
Telfair, J., Alexander, L. R., Loosier, P. S., Alleman-Velez, P. L., & Simmons, J. (2004) · Journal of Health Care for the Poor and Underserved · doi:10.1353/hpu.2004.0049 · Cited by 100 · see citing works
Assessment of knowledge in adolescents with inflammatory bowel disease using a novel transition tool
Benchimol, E. I., Walters, T. D., Kaufman, M. E., Frost, K., Fiedler, K. B., Chinea, Z., & Zachos, M. (2010) · Inflammatory Bowel Diseases · doi:10.1002/ibd.21464 · Cited by 99 · see citing works
Stewart, D., Stavness, C., King, G. A., et al. (2006) · Physical & Occupational Therapy In Pediatrics · doi:10.1080/j006v26n04_02 · Cited by 98 · see citing works
Hilderson, D., Saidi, A. S., Deyk, K. V., et al. (2009) · Pediatric Cardiology · doi:10.1007/s00246-009-9442-1 · Cited by 95 · see citing works
Transition from paediatric to adult services: experiences of HIV-positive adolescents
Miles, K., Edwards, S., & Clapson, M. (2004) · AIDS Care · doi:10.1080/09540120410001665312 · Cited by 94 · see citing works
Robertson, L. P., McDonagh, J. E. R., Southwood, T. R., & Shaw, K. L. (2005) · Annals of the Rheumatic Diseases · doi:10.1136/ard.2004.032292 · Cited by 93 · see citing works
Clinical Changes of Patients with Cystic Fibrosis during Transition from Pediatric to Adult Care
Dugueperoux, I., Tamalet, A., Sermet‐Gaudelus, I., Bourgeois, M. L., Gérardin, M., Desmazes-Dufeu, N., & Hubert, D. (2008) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2008.03.005 · Cited by 91 · see citing works
Transitional care for adolescents with juvenile idiopathic arthritis: a Delphi study
Shaw, K. L. (2004) · British journal of rheumatology · doi:10.1093/rheumatology/keh216 · Cited by 86 · see citing works
Earning trust and losing it: adolescents' views on trusting physicians.
Klostermann, B. K., Slap, G. B., Nebrig, D., Tivorsak, T. L., & Britto, M. T. (2005) · PubMed · Cited by 85 · see citing works
Improving the Delivery of Adolescent Clinical Preventive Services Through Skills-Based Training
Lustig, J. L., Ozer, E. M., Adams, S. H., Wibbelsman, C. J., Fuster, C. D., Bonar, R. W., & Irwin, C. E. (2001) · PEDIATRICS · doi:10.1542/peds.107.5.1100 · Cited by 84 · see citing works
Wiener, L. S., Battles, H. B., Ryder, C., & Zobel, M. (2007) · Social Work in Health Care · doi:10.1300/j010v46n01_01 · Cited by 81 · see citing works
Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care
Zack, J., Jacobs, C. P., Keenan, P. M., Harney, K. M., Woods, E. R., Colin, A. A., & Emans, S. J. (2003) · Pediatric Pulmonology · doi:10.1002/ppul.10342 · Cited by 75 · see citing works
Dimensions of the Transition Service Coordinator Role
BETZ, C. L., & Redcay, G. (2005) · Journal for Specialists in Pediatric Nursing · doi:10.1111/j.1744-6155.2005.00010.x · Cited by 73 · see citing works
How Adult Specialists Deal with the Principles of a Successful Transition
Surı́s, J.-C., Akré, C., & Rutishauser, C. (2009) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2009.05.011 · Cited by 67 · see citing works
McDonagh, J. E. R., Minnaar, G., Kelly, K., et al. (2006) · Acta Paediatrica · doi:10.1080/08035250500449858 · Cited by 66 · see citing works
The challenges and opportunities for transitional care research
McDonagh, J. E. R., & Kelly, D. A. (2010) · Pediatric Transplantation · doi:10.1111/j.1399-3046.2010.01343.x · Cited by 65 · see citing works
Young adults in children's hospitals: why are they there?
Lam, P., Fitzgerald, B. B., & Sawyer, S. M. (2005) · The Medical Journal of Australia · doi:10.5694/j.1326-5377.2005.tb06755.x · Cited by 61 · see citing works
Mulvaney, S. A., Rothman, R. L., Osborn, C. Y., Lybarger, C. K., Dietrich, M. S., & Wallston, K. A. (2010) · Patient Education and Counseling · doi:10.1016/j.pec.2010.09.018 · Cited by 56 · see citing works
Maturity and adherence in adolescent and young adult heart recipients
Stilley, C. S., Lawrence, K., Bender, A., Olshansky, E. F., Webber, S. A., & Dew, M. A. (2006) · Pediatric Transplantation · doi:10.1111/j.1399-3046.2005.00473.x · Cited by 52 · see citing works
Preparing for adulthood: Health care transition counseling for youth with arthritis
Scal, P. B., Horvath, K. J., & Garwick, A. W. (2008) · Arthritis Care & Research · doi:10.1002/art.24088 · Cited by 52 · see citing works
Adolescent Medicine in Pediatric Practice: A Survey of Practice and Training
Key, J. D., Marsh, L. D., & Darden, P. M. (1995) · The American Journal of the Medical Sciences · doi:10.1097/00000441-199502000-00005 · Cited by 48 · see citing works
The fifth UK paediatric diabetes services survey: meeting guidelines and recommendations?
Gosden, C., Edge, J., Holt, R. I. G., et al. (2010) · Archives of Disease in Childhood · doi:10.1136/adc.2009.176925 · Cited by 46 · see citing works
Sanci, L. A., Coffey, C., Patton, G. C., & Bowes, G. (2005) · Medical Education · doi:10.1111/j.1365-2929.2005.02172.x · Cited by 36 · see citing works
Factors affecting pediatric residents' intentions to screen for high risk behaviors
Middleman, A. B., Binns, H. J., & DuRant, R. H. (1995) · Journal of Adolescent Health · doi:10.1016/1054-139x(94)00187-j · Cited by 30 · see citing works
Does Adult-Onset Diabetes Mellitus Begin in Childhood?: The Bogalusa Heart Study
Berenson, G. S., Radhakrishnamurthy, B., Bao, W., & Srinivasan, S. R. (1995) · The American Journal of the Medical Sciences · doi:10.1097/00000441-199512000-00014 · Cited by 21 · see citing works
Do paediatricians provide brief intervention for adolescents who smoke?
Milne, B., & Towns, S. J. (2007) · Journal of Paediatrics and Child Health · doi:10.1111/j.1440-1754.2007.01112.x · Cited by 15 · see citing works
Allen, D. A., Cohen, D. R., Robling, M. R., et al. (2010) · Cited by 8 · see citing works
Adolescent Exploratory Behavior—What Do Trainees Know?
Dieppe, C., Kumar, M. T., & CROME, I. B. (2008) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2008.03.001 · Cited by 8 · see citing works
Watanabe, A., Shaw, K. L., Rankin, E. C. C., et al. (2010) · Archives of Disease in Childhood · doi:10.1136/adc.2010.186338.143 · Cited by 3 · see citing works
Current practice with regard to 'seeing adolescents on their own' during outpatient consultations
Mappa, P., Baverstock, A., Finlay, F., & Verling, W. (2010) · International Journal of Adolescent Medicine and Health · doi:10.1515/ijamh.2010.22.2.301 · Cited by 2 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Clinical practice guidelines for the care of girls and women with Turner syndrome.
Gravholt, C. H., Andersen, N. H., Christin-Maitre, S., Davis, S. M., Duijnhouwer, A., Gawlik, A., Maciel-Guerra, A. T., Gutmark-Little, I., Fleischer, K., Hong, D., et al. (2024) · European Journal of Endocrinology · doi:10.1093/ejendo/lvae050 · Cited by 224 · see citing works
Murray, C. B., Murphy, L. K., Jordan, A., Owens, M. T., McLeod, D., & Palermo, T. M. (2022) · The Journal of Pain · doi:10.1016/j.jpain.2022.02.010 · Cited by 21 · see citing works
- Authors
- Gleeson, H., & Turner, G.
- Affiliations
- Leicester Royal Infirmary (GB)
- Northumbria Healthcare NHS Foundation Trust (GB)
- Corresponding author
- Gleeson, Helena
- Venue
- Archives of disease in childhood - Education & practice edition
- Publisher
- BMJ
- Published
- 2011-10-06
- Volume
- 97
- Issue
- 3
- Pages
- 86-92
- ISSN
- 1743-0585 (ISSN-L)
- 1743-0593
- OpenAlex
- W2188810567
- Cited by
- 75
- References
- 67
- Citations by year
- 2026: 1 · 2025: 3 · 2024: 5 · 2023: 4 · 2022: 3 · 2020: 4 · 2019: 7 · 2018: 11 · 2017: 9 · 2016: 5 · 2015: 12 · 2014: 6 · 2013: 3 · 2012: 2
- FWCI
- 0.65
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Archives of Disease in Childhood Education & Practice (publishedVersion)
- PubMed (publishedVersion)
- HighWire Press Open Archive (submittedVersion)
- Topics
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Health Professions › General Health Professions › Child and Adolescent Health
- Health Sciences › Medicine › Emergency Medicine › Hospital Admissions and Outcomes
- Keywords
- transition to adult services, adolescent health, care transitions, chronic disease, learning difficulties, complex needs, medical training, health care delivery, staffing, monitoring and evaluation, funding, practice-oriented approach
- MeSH terms
- Adolescent, Adolescent Medicine, Chronic Disease, Continuity of Patient Care, Persons with Disabilities, Disabled Persons, Health Services Needs and Demand, Humans, Learning Disabilities, Physician-Patient Relations, Models, Organizational, Patient-Centered Care, Adolescent Development, Young Adult, Transition to Adult Care
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
