Meta-analysis: Caregiver and youth uncertainty in pediatric chronic illness
Open accessAbstract
Objective: To conduct a systematic review on the construct of illness uncertainty in caregivers and youth as related to the following: demographic and illness variables, psychological functioning, illness-related distress, and reaction/coping style. Methods: A meta-analysis was conducted with articles assessing the associations between illness uncertainty and variables of interest that were published between November 1983 and June 2016 ( n = 58). Results: Psychological functioning and illness-related distress had primarily medium effect sizes. Demographic and illness variables had small effect sizes. More positive and fewer negative reaction/coping styles were associated with less illness uncertainty, with primarily small effects. Conclusions: Illness uncertainty may be an important factor that influences psychological functioning and distress and coping in the context of pediatric chronic illness. However, additional research is needed to determine more precise mean effect sizes, as well as the potential efficacy of intervention to address uncertainty. adolescents, children, chronic illness, coping skills and adjustment, meta-analysis, parents, psychosocial functioning.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
A meta-analysis found parents who report their child's condition as more uncertain tend to report higher levels of anxiety.
“a meta-analysis finding parents who report their child's condition as more uncertain tend to report higher levels of anxiety (Szulczewski et al., 2017).”
From Parental Anxiety and Posttraumatic Stress Symptoms in Pediatric Food Allergy. (2021) · cites this paper as Szulczewski et al., 2017
Cites
Statistical Power Analysis for the Behavioral Sciences
Muller, K. E., & Cohen, J. (1989) · Technometrics · doi:10.2307/1270020 · Cited by 99,588 · see citing works
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: the PRISMA statement
Moher, D., Liberati, A., Tetzlaff, J., Altman, D. G., & for the PRISMA Group (2009) · BMJ · doi:10.1136/bmj.b2535 · Cited by 83,823 · see citing works
Podsakoff, P. M., MacKenzie, S. B., Lee, J.-Y., & Podsakoff, N. P. (2003) · Journal of Applied Psychology · doi:10.1037/0021-9010.88.5.879 · Cited by 82,194 · see citing works
Statistical power analysis for the behavioral sciences
Cohen, J. (1990) · Computers Environment and Urban Systems · doi:10.1016/0198-9715(90)90050-4 · Cited by 65,406 · see citing works
Measuring inconsistency in meta-analyses
Higgins, J. P. T., Thompson, S. G., Deeks, J. J., & Altman, D. G. (2003) · BMJ · doi:10.1136/bmj.327.7414.557 · Cited by 63,139 · see citing works
Preferred reporting items for systematic reviews and meta-analyses: the PRISMA Statement.
(2009) · PubMed Central · Cited by 44,859 · see citing works
Eysenck, H. J. (1985) · Behaviour Research and Therapy · doi:10.1016/0005-7967(85)90087-7 · Cited by 32,026 · see citing works
“Stress: appraisal and coping,”
Folkman, S. (2013) · Encyclopedia of Behavioral Medicine · doi:10.1007/978-1-4419-1005-9_215 · Cited by 27,833 · see citing works
Cochrane Handbook for Systematic Reviews of Interventions: Cochrane Book Series
(2008) · doi:10.1002/9780470712184 · Cited by 25,048 · see citing works
Preferred Reporting Items for Systematic Reviews and Meta-Analyses: The PRISMA Statement
Moher, D., Liberati, A., Tetzlaff, J., & Altman, D. G. (2009) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2009.06.005 · Cited by 19,575 · see citing works
Borenstein, M., Hedges, L. V., Higgins, J. P. T., & Rothstein, H. R. (2009) · doi:10.1002/9780470743386 · Cited by 14,225 · see citing works
Borenstein, M., Hedges, L. V., Higgins, J. P. T., & Rothstein, H. R. (2021) · doi:10.1002/9781119558378 · Cited by 9,799 · see citing works
De Los Reyes, A., & Kazdin, A. E. (2005) · Psychological Bulletin · doi:10.1037/0033-2909.131.4.483 · Cited by 2,548 · see citing works
Byrt, T., Bishop, J., & Carlin, J. B. (1993) · Journal of Clinical Epidemiology · doi:10.1016/0895-4356(93)90018-v · Cited by 2,179 · see citing works
Reconceptualization of the Uncertainty in Illness Theory
Mishel, M. H. (1990) · Journal of Nursing Scholarship · doi:10.1111/j.1547-5069.1990.tb00225.x · Cited by 1,040 · see citing works
Effects of Pediatric Chronic Physical Disorders on Child and Family Adjustment
Wallander, J. L., & Varni, J. W. (1998) · Journal of Child Psychology and Psychiatry · doi:10.1111/1469-7610.00302 · Cited by 716 · see citing works
Coping flexibility and psychological adjustment to stressful life changes: A meta-analytic review.
Cheng, C., Lau, H.-P. B., & Chan, M.-P. S. (2014) · Psychological Bulletin · doi:10.1037/a0037913 · Cited by 664 · see citing works
Agreement Among Parents, Teachers, and Children on Internalizing and Externalizing Behavior Problems
Stanger, C., & Lewis, M. (1993) · Journal of Clinical Child Psychology · doi:10.1207/s15374424jccp2201_11 · Cited by 457 · see citing works
Critical appraisal of published research: introductory guidelines.
Fowkes, F. G., & Fulton, P. M. (1991) · British medical journal · doi:10.1136/bmj.302.6785.1136 · Cited by 350 · see citing works
Association between adherence and glycemic control in pediatric type 1 diabetes: a meta-analysis
Hood, K. K., Peterson, C. M., Rohan, J. M., & Drotar, D. (2009) · Pediatrics · doi:10.1542/peds.2009-0207 · Cited by 347 · see citing works
Perceived Uncertainty and Stress in Illness
Mishel, M. H. (1984) · Research in Nursing & Health · doi:10.1002/nur.4770070304 · Cited by 300 · see citing works
Parents?? Perception of Uncertainty Concerning Their Hospitalized Child
Mishel, M. H. (1983) · Nursing Research · doi:10.1097/00006199-198311000-00002 · Cited by 248 · see citing works
Uncertainty in Childhood Illness: A Synthesis of the Parent and Child Literature
Stewart, J. L., & Mishel, M. H. (2000) · Research and theory for nursing practice · doi:10.1891/0889-7182.14.4.299 · Cited by 161 · see citing works
Franck, L. S., Wray, J., Gay, C., Dearmun, A. K., Lee, K., & Cooper, B. A. (2015) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2014.06.011 · Cited by 146 · see citing works
The illness uncertainty concept: A review
Wright, L. J., Afari, N., & Zautra, A. (2009) · Current Pain and Headache Reports · doi:10.1007/s11916-009-0023-z · Cited by 142 · see citing works
Neville, K. (1998) · Journal of Pediatric Oncology Nursing · doi:10.1177/104345429801500106 · Cited by 134 · see citing works
Development and Validation of the Parent Experience of Child Illness
Bonner, M. J., Hardy, K. K., Guill, A. B., McLaughlin, C., Schweitzer, H., & Carter, K. (2005) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsj034 · Cited by 130 · see citing works
Parental anxiety and stress during children’s hospitalisation: The StayClose study
Wray, J., Lee, K., Dearmun, N., & Franck, L. S. (2011) · Journal of Child Health Care · doi:10.1177/1367493511408632 · Cited by 127 · see citing works
Mullins, L. L., Wolfe-Christensen, C. B., Pai, A. L. H., Carpentier, M. Y., Gillaspy, S. R., Cheek, J., & Page, M. C. (2007) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsm044 · Cited by 127 · see citing works
Santacroce, S. J. (2002) · Journal of Pediatric Oncology Nursing · doi:10.1177/104345420201900305 · Cited by 118 · see citing works
Burke, K., Muscara, F., McCarthy, M., Dimovski, A., Hearps, S., Anderson, V., & Walser, R. (2014) · Families, Systems, & Health · doi:10.1037/fsh0000012 · Cited by 107 · see citing works
Maurice‐Stam, H., Oort, F. J., Last, B. F., & Grootenhuis, M. A. (2008) · Psycho-Oncology · doi:10.1002/pon.1260 · Cited by 97 · see citing works
Serious illness in childhood: the different threats of cancer and diabetes from a parent perspective
Boman, K. K., Viksten, J., Kogner, P., & Samuelsson, U. (2004) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2004.05.043 · Cited by 95 · see citing works
Posttraumatic Stress and General Distress Among Parents of Children Surviving a Brain Tumor
Fuemmeler, B. F., Mullins, L. L., & Marx, B. P. (2001) · Children s Health Care · doi:10.1207/s15326888chc3003_1 · Cited by 90 · see citing works
Lipinski, S. E., Lipinski, M. J., Biesecker, L. G., & Biesecker, B. B. (2006) · American Journal of Medical Genetics Part C Seminars in Medical Genetics · doi:10.1002/ajmg.c.30107 · Cited by 86 · see citing works
Maurice‐Stam, H., Grootenhuis, M. A., Brons, P., Caron, H. N., & Last, B. F. (2005) · Pediatric Blood & Cancer · doi:10.1002/pbc.20661 · Cited by 83 · see citing works
Fedele, D. A., Hullmann, S. E., Chaffin, M. J., Kenner, C. A., Fisher, M. J., Kirk, K., Eddington, A. R., Phipps, S., McNall‐Knapp, R. Y., & Mullins, L. L. (2013) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jst010 · Cited by 81 · see citing works
Paternal reactions to a child with epilepsy: uncertainty, coping strategies, and depression
Mu, P. (2005) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2004.03300.x · Cited by 80 · see citing works
Gil, K. M., Mishel, M. H., Belyea, M. J., Germino, B. B., Porter, L. S., & Clayton, M. F. (2006) · International Journal of Behavioral Medicine · doi:10.1207/s15327558ijbm1304_3 · Cited by 78 · see citing works
Mullins, L. L., Fedele, D. A., Chaffin, M. J., Hullmann, S. E., Kenner, C. A., Eddington, A. R., Phipps, S., & McNall‐Knapp, R. Y. (2012) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jss093 · Cited by 78 · see citing works
Mullins, L. L., Chaney, J. M., Pace, T. M., & Hartman, V. L. (1997) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/22.6.871 · Cited by 76 · see citing works
Hoff, A. L., Mullins, L. L., Gillaspy, S. R., Page, M. C., Pelt, J. C. V., & Chaney, J. M. (2005) · Families Systems & Health · doi:10.1037/1091-7527.23.3.329 · Cited by 69 · see citing works
Ye, Z. J., Guan, H. J., Wu, L. H., Xiao, M. Y., Luo, D. M., & Quan, X. M. (2015) · Cancer Nursing · doi:10.1097/ncc.0000000000000220 · Cited by 66 · see citing works
Suorsa, K. I., Mullins, A. J., Tackett, A., Reyes, K. J. S., Austin, P., Baskin, L., Bernabé, K., Cheng, E. Y., Fried, A., Frimberger, D., et al. (2015) · Journal of Urology · doi:10.1016/j.juro.2015.06.104 · Cited by 64 · see citing works
Pai, A. L. H., Mullins, L. L., Drotar, D., Burant, C., Wagner, J., & Chaney, J. M. (2006) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsl021 · Cited by 64 · cited 2× · see citing works
“A subsequent factor analysis of the Child Uncertainty in Illness Scale revealed factors (e.g., unpredictability and lack of understanding) consistent with Mishel’s illness uncertainty model and adult illness uncertainty measures (Pai et al., 2007).”
MethodPsychometric Properties of the Herth Hope Index in Adolescents and Young Adults With Cancer
Phillips, C. R., Haase, J. E., Kintner, E. K., Monahan, P. O., & Azzouz, F. (2007) · Journal of Nursing Measurement · doi:10.1891/106137407780851769 · Cited by 63 · see citing works
Checklist for the evaluation of research articles
DuRant, R. H. (1994) · Journal of Adolescent Health · doi:10.1016/1054-139x(94)90381-6 · Cited by 59 · see citing works
Hoff, A. L., Mullins, L. L., Chaney, J. M., Hartman, V. L., & Domek, D. B. (2002) · Research and theory for nursing practice · doi:10.1891/rtnp.16.4.223.53023 · Cited by 57 · see citing works
Santacroce, S. J., Asmus, K., Kadan‐Lottick, N. S., & Grey, M. J. (2009) · Journal of Pediatric Oncology Nursing · doi:10.1177/1043454209340325 · Cited by 57 · see citing works
Families of Chinese children with malignancy: The factors impact on mother's anxiety
Mu, P., Ma, F.-C., Ku, S.-M., Shu, H.-Q., Hwang, B., & Kuo, B. I. (2001) · Journal of Pediatric Nursing · doi:10.1053/jpdn.2000.25325 · Cited by 56 · see citing works
Families of Children With Cancer: The Impact on Anxiety Experienced by Fathers
Mu, P., Ma, F.-C., Hwang, B., & Chao, Y.-M. Y. (2002) · Cancer Nursing · doi:10.1097/00002820-200202000-00012 · Cited by 55 · see citing works
Uncertainty in Adolescents and Young Adults With Cancer
Decker, C. L., Haase, J. E., & Bell, C. J. (2007) · Oncology nursing forum · doi:10.1188/07.onf.681-688 · Cited by 54 · see citing works
Test of a conceptual model of uncertainty in children and adolescents with cancer
Stewart, J. L., Mishel, M. H., Lynn, M. R., & Terhorst, L. A. (2010) · Research in Nursing & Health · doi:10.1002/nur.20374 · Cited by 52 · see citing works
Uncertainty and Coping in Fathers of Children with Cancer
Sterken, D. J. (1996) · Journal of Pediatric Oncology Nursing · doi:10.1177/104345429601300206 · Cited by 50 · see citing works
Hommel, K. A., Chaney, J. M., Wagner, J. L., White, M. M., Hoff, A. L., & Mullins, L. L. (2003) · Children s Health Care · doi:10.1207/s15326888chc3201_4 · Cited by 50 · see citing works
Carpentier, M. Y., Mullins, L. L., Chaney, J. M., & Wagner, J. L. (2006) · Children s Health Care · doi:10.1207/s15326888chc3502_3 · Cited by 47 · see citing works
Illness Uncertainty and Quality of Life in Children With Cancer
Fortier, M. A., Batista, M. L., Wahi, A., Kain, A. S., Strom, S., & Sender, L. S. (2013) · Journal of Pediatric Hematology/Oncology · doi:10.1097/mph.0b013e318290cfdb · Cited by 46 · see citing works
Grootenhuis, M. A., & Last, B. F. (1997) · Journal of Psychosocial Oncology · doi:10.1300/j077v15n01_04 · Cited by 46 · see citing works
Chaney, J. M., Gamwell, K. L., Baraldi, A. N., Ramsey, R. R., Cushing, C. C., Mullins, A. J., Gillaspy, S. R., Jarvis, J. N., & Mullins, L. L. (2016) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsw004 · Cited by 46 · see citing works
Tackett, A. P., Cushing, C. C., Suorsa, K. I., Mullins, A. J., Gamwell, K. L., Mayes, S., McNall‐Knapp, R. Y., Chaney, J. M., & Mullins, L. L. (2015) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsv093 · Cited by 42 · see citing works
Psychological, Academic, and Work Functioning in College Students with Childhood-Onset Asthma
Carpentier, M. Y., Mullins, L. L., & Pelt, J. C. V. (2007) · Journal of Asthma · doi:10.1080/02770900601182418 · Cited by 37 · see citing works
Parenting Stress in Mothers of Children with Congenital Heart Disease
Lee, S., Yoo, J.-S., & Yoo, I.-Y. (2007) · Asian Nursing Research · doi:10.1016/s1976-1317(08)60014-6 · Cited by 36 · see citing works
White, M. M., Chaney, J. M., Mullins, L. L., Wagner, J. L., Hommel, K. A., Andrews, N. R., & Jarvis, J. N. (2005) · Rehabilitation Psychology · doi:10.1037/0090-5550.50.3.224 · Cited by 36 · see citing works
Ps, T., Kirschbaum, M., Harbaugh, B. L., & Anderson, K. (1996) · American Journal of Critical Care · doi:10.4037/ajcc1996.5.2.140 · Cited by 35 · see citing works
He, S., You, L., Zheng, J., & Bi, Y.-L. (2015) · Cancer Nursing · doi:10.1097/ncc.0000000000000279 · Cited by 34 · see citing works
Health-related Quality of Life in College Students with and without Childhood-Onset Asthma
Fedele, D. A., Mullins, L. L., Eddington, A. R., Ryan, J. L., Junghans, A. N., & Hullmann, S. E. (2009) · Journal of Asthma · doi:10.3109/02770900903184229 · Cited by 33 · see citing works
Mullins, L. L., Chaney, J. M., Balderson, B. H. K., & Hommel, K. A. (2000) · International Journal of Rehabilitation and Health · doi:10.1023/a:1012999205376 · Cited by 31 · see citing works
Measuring parental uncertainty during the diagnosis phase of serious illness in a child
Santacroce, S. J. (2001) · Journal of Pediatric Nursing · doi:10.1053/jpdn.2001.20547 · Cited by 30 · see citing works
Predictors of Maternal Depression for Families Having a Child With Epilepsy
Mu, P., Wong, T., Chang, K., & Kwan, S. (2001) · Journal of Nursing Research · doi:10.1097/01.jnr.0000347569.07435.73 · Cited by 30 · see citing works
“Being Mindful”: Does it Help Adolescents and Young Adults Who Have Completed Cancer Treatment?
Patterson, P., & McDonald, F. E. J. (2015) · Journal of Pediatric Oncology Nursing · doi:10.1177/1043454214563401 · Cited by 27 · see citing works
Fedele, D. A., Ramsey, R. R., Ryan, J. L., Bonner, M. S., Mullins, L. L., Jarvis, J. N., & Chaney, J. M. (2011) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0b013e318210ff2c · Cited by 27 · see citing works
Stewart, J. L., Lynn, M. R., & Mishel, M. H. (2010) · Nursing Research · doi:10.1097/nnr.0b013e3181d1a8d5 · Cited by 27 · see citing works
Knapp, C. A., Hinojosa, M. S., Baron-Lee, J., Curtis, C. M., & Huang, I. (2014) · Journal of Palliative Medicine · doi:10.1089/jpm.2013.0604 · Cited by 24 · see citing works
Carpentier, M. Y., Mullins, L. L., Wagner, J. L., Wolfe-Christensen, C. B., & Chaney, J. M. (2007) · Children s Health Care · doi:10.1080/02739610701335027 · Cited by 23 · see citing works
Page, M. C., Fedele, D. A., Pai, A. L. H., Anderson, J., Wolfe-Christensen, C., Ryan, J. L., & Mullins, L. L. (2012) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsr055 · Cited by 23 · see citing works
The Parent Experience of Caring for a Child with Mitochondrial Disease
Senger, B., Ward, L. D., Barbosa‐Leiker, C., & Bindler, R. C. M. (2015) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2015.08.007 · Cited by 22 · see citing works
Uncertainty in Illness and the Future
Yarcheski, A. (1988) · Western Journal of Nursing Research · doi:10.1177/019394598801000404 · Cited by 17 · see citing works
Williams, L. K., Drew, S. E., Luca, C. R. D., & McCarthy, M. (2013) · Journal of Psychosocial Oncology · doi:10.1080/07347332.2013.835019 · Cited by 16 · see citing works
Assessing Ambiguity at the Family–Nurse Boundary Interface in Pediatric Health Crisis
Tomlinson, P. S., & Harbaugh, B. L. (2004) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2004.11.004 · Cited by 13 · see citing works
Fedele, D. A., Ryan, J. L., Ramsey, R. R., Grant, D. M., Bonner, M. S., Stermer, S. P., Mullins, L. L., Jarvis, J. N., & Chaney, J. M. (2012) · Rehabilitation Psychology · doi:10.1037/a0027003 · Cited by 13 · see citing works
Factor structure of the parent perception of uncertainty scale in parents of children with cancer
Molzon, E. S., Brannon, E. E., Fedele, D. A., Grant, D. M., Suorsa, K. I., & Mullins, L. L. (2014) · Psycho-Oncology · doi:10.1002/pon.3574 · Cited by 12 · see citing works
Ryan, J. L., Ramsey, R. R., Fedele, D. A., Wagner, J. L., Chaney, J. M., & Mullins, L. L. (2011) · Children s Health Care · doi:10.1080/02739615.2011.617237 · Cited by 12 · see citing works
Wolfe-Christensen, C. B., Isenberg, J. C., Mullins, L. L., Carpentier, M. Y., & Almstrom, C. (2008) · Children s Health Care · doi:10.1080/02739610802151514 · Cited by 11 · see citing works
Staveski, S. L., Parveen, V. P., Madathil, S. B., Kools, S. M., & Franck, L. S. (2015) · Cardiology in the Young · doi:10.1017/s1047951115002164 · Cited by 11 · see citing works
Uncertainty and Coping in Fathers of Children with Cancer
Mishel, M. H. (1996) · Journal of Pediatric Oncology Nursing · doi:10.1177/104345429601300207 · Cited by 10 · see citing works
Hullmann, S. E., Eddington, A. R., Molzon, E. S., & Mullins, L. L. (2013) · International Journal of Adolescent Medicine and Health · doi:10.1515/ijamh-2013-0004 · Cited by 6 · see citing works
Predicting Factors of Uncertainty in Illness Among Children with Leukemia Undergoing Chemotherapy
Tiwaree, C., Kantawng, S., Wonghongkul, T., & Lertwatthanawilat, W. (2016) · Pacific Rim International Journal of Nursing Research · Cited by 4 · see citing works
Lee-Jones, C., Humphris, G., Dixon, R., & Bebbington Hatcher, M. (1997) · Psycho-Oncology · doi:10.1002/(sici)1099-1611(199706)6:2 · Cited by 1 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Towards a model of uncertainty distress in the context of Coronavirus (COVID-19)
Freeston, M., Tiplady, A., Mawn, L., Bottesi, G., & Thwaites, S. (2020) · The Cognitive Behaviour Therapist · doi:10.1017/s1754470x2000029x · Cited by 221 · see citing works
Diagnostic uncertainty in youth with chronic pain and their parents
Neville, A., Jordan, A., Beveridge, J. K., Pincus, T., & Noel, M. (2019) · The Journal of Pain · doi:10.1016/j.jpain.2019.03.004 · Cited by 124 · see citing works
Massazza, A., Kienzler, H., Mitwalli, S., Tamimi, N., & Giacaman, R. (2022) · Journal of Mental Health · doi:10.1080/09638237.2021.2022620 · Cited by 95 · see citing works
Zentner, D., Celermajer, D. S., Gentles, T. L., d’Udekem, Y., Ayer, J. G., Blue, G. M., Bridgman, C., Burchill, L. J., Cheung, M. M. H., Cordina, R., et al. (2019) · Heart Lung and Circulation · doi:10.1016/j.hlc.2019.09.010 · Cited by 71 · see citing works
Sharkey, C. M., Bakula, D. M., Baraldi, A. N., Perez, M. N., Suorsa, K. I., Chaney, J. M., & Mullins, L. L. (2017) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsx145 · Cited by 69 · see citing works
SMITH, L. B., Liu, X., Johnson, S. B., Tamura, R., Larsson, H. E., Ahmed, S. T., Veijola, R., Haller, M. J., Akolkar, B., Hagopian, W., et al. (2018) · Pediatric Diabetes · doi:10.1111/pedi.12674 · Cited by 53 · see citing works
Arias‐Rojas, M., Carreño-Moreno, S., & Posada, C. (2019) · Revista Latino-Americana de Enfermagem · doi:10.1590/1518-8345.3185.3200 · Cited by 52 · see citing works
Variability in Cerebral Palsy Diagnosis
Aravamuthan, B. R., Fehlings, D. L., Shetty, S., Fahey, M. C., Gilbert, L. A., Tilton, A. H., & Kruer, M. C. (2021) · PEDIATRICS · doi:10.1542/peds.2020-010066 · Cited by 50 · see citing works
Perceived diagnostic uncertainty in pediatric chronic pain
Pincus, T., Noel, M., Jordan, A., & Serbic, D. (2018) · Pain · doi:10.1097/j.pain.0000000000001180 · Cited by 43 · see citing works
Towards a model of uncertainty distress in the context of Coronavirus (Covid-19)Preprint
Freeston, M. H., Tiplady, A., Mawn, L., Bottesi, G., & Thwaites, S. (2020) · doi:10.31234/osf.io/v8q6m · Cited by 44 · see citing works
Tutelman, P. R., Chambers, C. T., Urquhart, R., Fernandez, C. V., Heathcote, L. C., Noel, M. E., Flanders, A., Guilcher, G. M. T., Schulte, F., Stinson, J., et al. (2019) · Psycho-Oncology · doi:10.1002/pon.5170 · Cited by 36 · see citing works
Heathcote, L. C., Loecher, N., Simon, P. J., Spunt, S. L., Jordan, A. L., Tutelman, P. R., Cunningham, S. J., Schapira, L., & Simons, L. E. (2020) · Psychology and Health · doi:10.1080/08870446.2020.1836180 · Cited by 34 · see citing works
Illness Uncertainty Longitudinally Predicts Distress Among Caregivers of Children Born With DSD
Roberts, C. M., Sharkey, C. M., Bakula, D. M., Perez, M. N., Delozier, A. M., Austin, P. F., Baskin, L. S., Chan, Y.-M., Cheng, E. Y., Diamond, D. A., et al. (2020) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsaa069 · Cited by 29 · see citing works
Child and Family Perspectives on Adjustment to and Coping With Pediatric Inflammatory Bowel Disease
Easterlin, M. C., Berdahl, C. T., Rabizadeh, S., Spiegel, B. M. R., Agoratus, L., Hoover, C. G., & Dudovitz, R. (2020) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000002693 · Cited by 27 · see citing works
Parental uncertainty about transferring their adolescent with congenital heart disease to adult care
Burström, Å., Mora, M. A., Öjmyr‐Joelsson, M., Sparud‐Lundin, C., Rydberg, A., Hanséus, K., Frenckner, B. P., Nisell, M., Moons, P., & Bratt, E. (2018) · Journal of Advanced Nursing · doi:10.1111/jan.13852 · Cited by 26 · see citing works
Family Perspectives on Newborn Screening for X-Linked Adrenoleukodystrophy in California
Schwan, K., Youngblom, J. H., Weisiger, K., Kianmahd, J., Waggoner, R., & Fanos, J. H. (2019) · International Journal of Neonatal Screening · doi:10.3390/ijns5040042 · Cited by 26 · see citing works
A Review of Psychosocial Factors of Marfan Syndrome: Adolescents, Adults, Families, and Providers
Nielsen, C., Ratiu, I., Esfandiarei, M., Chen, A. C., & Tierney, E. S. S. (2019) · Journal of Pediatric Genetics · doi:10.1055/s-0039-1693663 · Cited by 25 · see citing works
Basile, N. L., Chardon, M. L., Peugh, J., Edwards, C. S., Szulczewski, L., Morrison, C. F., Nagarajan, R., El‐Sheikh, A., Chaney, J. M., Pai, A. L. H., et al. (2021) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsab065 · Cited by 24 · see citing works
Milatz, F., Klotsche, J., Niewerth, M., Sengler, C., Windschall, D., Kallinich, T., Dressler, F., Trauzeddel, R., Holl, R. W., Foeldvari, I., et al. (2024) · Arthritis Research & Therapy · doi:10.1186/s13075-024-03312-x · Cited by 27 · see citing works
Sharkey, C. M., Perez, M. N., Bakula, D. M., Grant, D. M., & Mullins, L. L. (2018) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2018.08.002 · Cited by 22 · see citing works
Parental Anxiety and Posttraumatic Stress Symptoms in Pediatric Food Allergy.
Roberts, K., Meiser-Stedman, R., Brightwell, A., & Young, J. (2021) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsab012 · Cited by 21 · see citing works
Hydronephrosis After Pyeloplasty: “Will It Go Away?”
Carpenter, C. P., Tolley, E. A., Tourville, E., Sharadin, C., Giel, D. W., & Gleason, J. M. (2018) · Urology · doi:10.1016/j.urology.2018.08.010 · Cited by 20 · see citing works
Sharkey, C. M., Bakula, D. M., Wolfe-Christensen, C. B., Austin, P. F., Baskin, L. S., Bernabé, K. J., Chan, Y.-M., Cheng, E. Y., Delozier, A. M., Diamond, D. A., et al. (2018) · Hormone Research in Paediatrics · doi:10.1159/000495422 · Cited by 18 · see citing works
McKoane, A., & Sherman, D. K. (2022) · Health Psychology Review · doi:10.1080/17437199.2022.2086899 · Cited by 15 · see citing works
Milatz, F., Albrecht, K., Minden, K., Marschall, U., Klotsche, J., & Callhoff, J. (2024) · Pediatric Rheumatology · doi:10.1186/s12969-023-00948-y · Cited by 16 · see citing works
Illness Uncertainty in Parents of Children with Juvenile Idiopathic Arthritis
Pearce, C., Newman, S. P., & Mulligan, K. (2021) · ACR Open Rheumatology · doi:10.1002/acr2.11238 · Cited by 16 · see citing works
Friedman, D., Kaskas, M. M., Quittner, A. L., Smith, B. A., & Georgiopoulos, A. M. (2022) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.937189 · Cited by 15 · see citing works
Petrongolo, J. L., Zelikovsky, N., Keegan, R. M., Furth, S. L., & Knight, A. (2019) · Journal of Clinical Psychology in Medical Settings · doi:10.1007/s10880-019-09617-3 · Cited by 15 · see citing works
Impacts of paediatric chronic pain on parents: A qualitative study
Ngo, D., Aouad, P., Goodison‐Farnsworth, M., Gorrie, A., Kenmuir, T., & Jaaniste, T. (2022) · Child Care Health and Development · doi:10.1111/cch.13079 · Cited by 14 · see citing works
Pereira, T. L., Wichaikhum, O., Nantsupawat, A., Rajendrana, P., Baladram, S., & Shorey, S. (2024) · International Journal of Mental Health Nursing · doi:10.1111/inm.13417 · Cited by 18 · see citing works
Yoo, J. C., Halley, M. C., Lown, E. A., Yank, V. A., Ort, K., Cowan, M. J., Dorsey, M. J., Smith, H., Iyengar, S., Scalchunes, C., et al. (2018) · Journal of Allergy and Clinical Immunology · doi:10.1016/j.jaci.2018.10.017 · Cited by 14 · see citing works
“Tell it as it is”: How Sisom prompts children and parents to discuss their cancer experience
Tsimicalis, A., Rennick, J. E., May, S. L., Stinson, J., Sarkis, B., Séguin, K., Siedlikowski, M., Choquette, A., & Louli, J. (2019) · Cancer Reports · doi:10.1002/cnr2.1173 · Cited by 14 · see citing works
Illness uncertainty among patients with COVID‐19 in the Mobile Cabin Hospital
Dong, L., Chen, L., & Ding, S. (2021) · Nursing Open · doi:10.1002/nop2.924 · Cited by 12 · see citing works
Intolerance of uncertainty and protective parenting in mothers of children with food allergy
Steiner, E. M., Dahlquist, L. M., Power, T. G., & Bollinger, M. E. (2019) · Children s Health Care · doi:10.1080/02739615.2019.1650362 · Cited by 12 · see citing works
Young Minds: Mental Health and Transitional Care in Adolescent and Young Adult Rheumatology
Palman, J., & McDonagh, J. E. R. (2020) · Open Access Rheumatology Research and Reviews · doi:10.2147/oarrr.s228083 · Cited by 12 · see citing works
Turkish adaptation of the Mishel uncertainty in illness scale‐community form
Çal, A., & Avci, İ. A. (2021) · Perspectives In Psychiatric Care · doi:10.1111/ppc.12874 · Cited by 11 · see citing works
Galtieri, L. R., Perez, M. N., & Barakat, L. P. (2024) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsae014 · Cited by 8 · see citing works
Dijkstra, J. N., Rasing, N. B., Boon, H. T. M., Altena-Rensen, S., Cup, E. H. C., Lanser, A., Siemann, I. J., van Engelen, B. G. M., Erasmus, C. E., & Voermans, N. C. (2024) · European Journal of Paediatric Neurology · doi:10.1016/j.ejpn.2024.04.006 · Cited by 8 · see citing works
Determinants and Consequences of Parental Uncertainty in Childhood Cancer: A Systematic Review
Taqyah, C., Abidin, F. A., & Iskandarsyah, A. (2025) · Cancer Management and Research · doi:10.2147/cmar.s538600 · Cited by 8 · see citing works
Yu, P., Zhang, W., Li, S., Luo, X., Chen, H., & Mi, J. (2024) · BMC Psychiatry · doi:10.1186/s12888-024-05883-0 · Cited by 8 · see citing works
Psychosocial Risk Profiles Among American and Dutch Families Affected by Pediatric Cancer
Sharkey, C. M., Schepers, S. A., Drake, S., Pai, A. L. H., Mullins, L. L., & Grootenhuis, M. A. (2020) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsaa012 · Cited by 8 · see citing works
Mapping the Patient Experience in a Pediatric Hemophilia Unit: Our Patient Journey
Berrueco, R., Caballero, N., López-Tierling, M., Benedicto, C., González‐Anleo, C., Rodríguez-Nieva, N., Nadal, D., Vinyets, J., & Jabalera, M. (2024) · Journal of Clinical Medicine · doi:10.3390/jcm13206235 · Cited by 7 · see citing works
Parenting Children with Cystic Fibrosis: Developmental Acquisition of Expertise
Tluczek, A., Grob, R., Warne, E., Gorp, S. V., Greene, L., & Homa, K. A. (2022) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000001089 · Cited by 6 · see citing works
Larasati, I. A., Saktini, F., Winarni, T. I., Ediati, A., & Utari, A. (2023) · Belitung Nursing Journal · doi:10.33546/bnj.2379 · Cited by 6 · see citing works
Dushnicky, M. J., Scott, J., McCauley, D., Gorter, J. W., BEATTIE, K. A., & Batthish, M. (2021) · Journal of Transition Medicine · doi:10.1515/jtm-2021-0008 · Cited by 6 · see citing works
Alfadhly, A. F., Mohammed, A., Almalki, B. T., Alfaez, S. M., Mubarak, A. S., Alotaibi, E. A., Al-Omran, G. H., Almathami, J., Bazhair, N., AlShamrani, N. A., et al. (2024) · Journal of Family Medicine and Primary Care · doi:10.4103/jfmpc.jfmpc_1661_23 · Cited by 5 · see citing works
Pinquart, M. (2024) · Kindheit und Entwicklung · doi:10.1026/0942-5403/a000456 · Cited by 5 · see citing works
Maneekunwong, K., Srichantaranit, A., & Thampanichawat, W. (2021) · Journal of Health Research · doi:10.1108/jhr-01-2021-0008 · Cited by 5 · see citing works
Parents’ experiences of their child's assessment on an epilepsy surgery pathway: A qualitative study
Nelson, F., Gray, V., & Woolfall, K. (2021) · Seizure · doi:10.1016/j.seizure.2021.07.015 · Cited by 5 · see citing works
Albright, C., Limoges, J., & Rempel, G. R. (2023) · Journal of Clinical Nursing · doi:10.1111/jocn.16664 · Cited by 5 · see citing works
Advocating for a patient‐ and family centered care approach to management of short bowel syndrome
Kumpf, V. J., Neumann, M. L., & Kakani, S. R. (2023) · Nutrition in Clinical Practice · doi:10.1002/ncp.10966 · Cited by 4 · see citing works
Lv, M., Feng-Fang, Y., Wang, Y., & Zhen-Xu, H. (2023) · Frontiers in Medicine · doi:10.3389/fmed.2023.1088672 · Cited by 4 · see citing works
DeLone, A. M., George, A., Miller, M. E., Dattilo, T. M., Georgas, K. M., Patel, P., Mullins, L. L., & Cooper, S. (2024) · The Journal of Child Life Psychosocial Theory and Practice · doi:10.55591/001c.127276 · Cited by 3 · see citing works
The Impact of Early Attachment Styles on Chronic Illness Adjustment: A Qualitative Approach
Darbani, S. A., & Atapour, N. (2023) · Journal of Personality and Psychosomatic Research · doi:10.61838/kman.jppr.1.4.5 · Cited by 3 · see citing works
Death Literacy, Anxiety, and Uncertainty in Elderly’s Family Caregivers: A Cross-Sectional Study
Şahin, Z. A., Aydın, Ş., & Kına, V. (2025) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228251346910 · Cited by 3 · see citing works
Childhood hearing loss: An uncertain context for parenting
Greenhalgh, K. T., Mahler, N., Zimmer‐Gembeck, M. J., & Shanley, D. C. (2022) · Deafness & Education International · doi:10.1080/14643154.2022.2125626 · Cited by 3 · see citing works
Shen, H., Masingboon, K., & Samartkit, N. (2023) · Belitung Nursing Journal · doi:10.33546/bnj.2648 · Cited by 3 · see citing works
Jia, S., Wang, Z., Yang, Q., Guan, J., Yang, Y., & Min, L. (2025) · BMC Psychiatry · doi:10.1186/s12888-025-07211-6 · Cited by 2 · see citing works
Ishii, Y., & Endo, T. (2022) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.1006267 · Cited by 2 · see citing works
Parental Uncertainty Scale Factor Structure in Pediatric DSD With Ambiguous Genitalia
Basile, N. L., Dattilo, T. M., DeLone, A. M., Kraft, J. D., Edwards, C. S., Buchanan, C., Cheng, E. Y., Poppas, D. P., Wisniewski, A. B., & Mullins, L. L. (2023) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsad001 · Cited by 2 · see citing works
Liu, S., Chang, Y., Hwu, L., & Ku, M. (2023) · Healthcare · doi:10.3390/healthcare11101395 · Cited by 2 · see citing works
Varshney, J. U., & Kimport, K. (2022) · Women s Reproductive Health · doi:10.1080/23293691.2022.2081292 · Cited by 2 · see citing works
Coping with Chronic Illness and Medical Stress
Riccio, C. A., Maykel, C., Howell, M., & Bray, M. A. (2018) · Springer eBooks · doi:10.1007/978-3-030-00791-1_19 · Cited by 2 · see citing works
Cate‐Carter, T. D., Schnurr, K., Stinson, J., & McPherson, A. C. (2019) · Child Care Health and Development · doi:10.1111/cch.12678 · Cited by 2 · see citing works
Experiences of Adolescents Who Are Living with Inflammatory Bowel Disease
Holmes, E. A., Banwell, C. L., Lucas, R. M., Hawkes, J., Moore, D., & Harris, R. R. (2021) · Global Journal of Health Science · doi:10.5539/gjhs.v13n4p49 · Cited by 1 · see citing works
Xu, Y., Li, X., Tao, T., Guo, X., & Gao, W. (2024) · Pakistan Journal of Medical Sciences · doi:10.12669/pjms.40.9.7731 · Cited by 1 · see citing works
Xiang, Y., Ding, R., Yuan, B., Wu, J., Lu, Y., & Yang, X. (2025) · Systematic Reviews · doi:10.1186/s13643-025-02788-1 · Cited by 1 · see citing works
Kołecka, A. M., Borchet, J., & Bieleninik, Ł. (2025) · PLoS ONE · doi:10.1371/journal.pone.0323071 · Cited by 1 · see citing works
Özkan, S., & Arslan, F. T. (2022) · Genel Tıp Dergisi · doi:10.54005/geneltip.1128563 · Cited by 1 · see citing works
Brotkin, S. M., Maslow, G., & Bonner, M. J. (2019) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsz080 · Cited by 1 · see citing works
What Your Educational Video Performance Can Tell You and Why You Should be Looking
Huber, J. F., Dexheimer, J. W., Lane, A., Williams, A., Badia, P., Davies, S. M., & Dandoy, C. E. (2023) · Transplantation and Cellular Therapy · doi:10.1016/s2666-6367(23)00547-x
Umstead, K. L., Woolford, S. W., Macnamara, E. F., Yanes, T., Brothers, K. B., Han, P. K. J., Sapp, J. C., Crenshaw, M. M., Price, C. S., & Biesecker, B. B. (2023) · Georgetown Medical Review · doi:10.52504/001c.68103
Lived Experiences of Adolescents with Asthma: Struggle to Maintain Daily Life
Suza, D. E., Setiawan, S., Asiah, A., & Sitohan, N. A. (2023) · Advances in health sciences research/Advances in Health Sciences Research · doi:10.2991/978-94-6463-202-6_21
Grand manuel de psycho-oncologie
Haegen, M. V. (2023) · Dunod eBooks · doi:10.3917/dunod.vande.2023.01.0465
Parental perspective on the psychological adjustment of children in cancer relapse or remission
Wechsler, A. M., Bragado‐Álvarez, C., Hernández-Lloreda, M. J., Lopes, L. F., & Perina, E. M. (2024) · Estudos de Psicologia (Campinas) · doi:10.1590/1982-0275202441e210164
Chuning, A. E., Dattilo, T. M., Sharkey, C. M., Fisher, R. S., Traino, K. A., Roberts, C. M., Chaney, J. M., & Mullins, L. L. (2025) · Journal of American College Health · doi:10.1080/07448481.2025.2541229
Milatz, F., Klotsche, J., Niewerth, M., Sengler, C., Windschall, D., Kallinich, T., Dressler, F., Trauzeddel, R., Holl, R. W., Foeldvari, I., et al. (2024) · Figshare · doi:10.6084/m9.figshare.25583962
Milatz, F., Albrecht, K., Minden, K., Marschall, U., Klotsche, J., & Callhoff, J. (2024) · Figshare · doi:10.6084/m9.figshare.24953096
Psychosocial Functioning of Youth with Hereditary Polyposis Syndromes and Their Caregivers
Maddux, M. H., Lawson, C. E., Stoecklein, N., & Attard, T. M. (2026) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2026.114988
Wang, W., Li, S., Wu, S., Tan, X., & Huang, J. (2026) · Journal of Pediatric Surgery · doi:10.1016/j.jpedsurg.2026.163280
Psychological impact of being a caregiver to children with infantile neuroaxonal dystrophy
Pereira, D. A., Marques, F. M. B. M., Allegretti, I., & Henna, E. (2026) · Arquivos de Neuro-Psiquiatria · doi:10.1055/s-0046-1825515
Mapping illness uncertainty in adolescents with cancer: A cross-sectional network analysis
Liu, F., & Wang, B. (2026) · European Journal of Oncology Nursing · doi:10.1016/j.ejon.2026.103294
Shen, S., Wang, Z., Huang, Y., Huang, H., Gong, C., Song, Y., Qi, W., Li, S., Liu, X., Zeng, J., et al. (2026) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2026.09.013
Covasso, S., Paoletti, G., Lorrot, M., Dugué, S., Cardin, S., Puppo, C., Chosidow, A., & Raffetin, A. (2026) · PLoS ONE · doi:10.1371/journal.pone.0357185
Li, X., Chen, S., Yang, Y., Wei, H., Chen, Q., Lu, F., & Shimpuku, Y. (2026) · Asia-Pacific Journal of Oncology Nursing · doi:10.1016/j.apjon.2026.101035
Triantafyllou, G., Pasalari, E., Kourti, A., Kanavaki, I., & Fessatou, S. (2026) · Clinical Child Psychology and Psychiatry · doi:10.1177/13591045261491090
- Authors
- Szulczewski, L., Mullins, L. L., Bidwell, S. L., Eddington, A. R., & Pai, A. L. H.
- Affiliations
- Cincinnati Children's Hospital Medical Center (US)
- Oklahoma State University (US)
- University of Oklahoma Health Sciences Center (US)
- Corresponding author
- Szulczewski, Lauren
- Venue
- Journal of Pediatric Psychology
- Publisher
- Oxford University Press (OUP)
- Published
- 2017-02-08
- Volume
- 42
- Issue
- 4
- Pages
- 395-421
- ISSN
- 0146-8693 (ISSN-L)
- 1465-735X
- PMC
- PMC6440270
- OpenAlex
- W2794695913
- Cited by
- 86
- References
- 88
- Citations by year
- 2026: 8 · 2025: 6 · 2024: 14 · 2023: 12 · 2022: 9 · 2021: 10 · 2020: 7 · 2019: 11 · 2018: 8 · 2017: 1
- FWCI
- 2.52
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Journal of Pediatric Psychology (publishedVersion)
- Europe PMC (PubMed Central) (publishedVersion)
- PubMed Central (publishedVersion)
- PubMed (publishedVersion)
- Funders
- NIH
- Topics
- Social Sciences › Sociology and Political Science › Family Support in Illness
- Health Sciences › Health Professions › Speech and Hearing › Adolescent and Pediatric Healthcare
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Keywords
- illness uncertainty, children with chronic illness, caregivers, adolescents, psychological functioning, coping styles, psychosocial adjustment
- MeSH terms
- Adaptation, Psychological, Adolescent, Child, Chronic Disease, Humans, Parents, Stress, Psychological, Caregivers, Uncertainty
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review