The DOI matches its Crossref record; 5 of the 5 references it cites were found in a registry or an index.
Delay in the diagnosis of endometriosis: a survey of women from the USA and the UK
Abstract
We investigated the length of time between the onset of pain symptoms and the surgical diagnosis of endometriosis in women from the UK and the USA. A total of 218 women with surgically confirmed disease, recruited through endometriosis self-help groups, completed a postal questionnaire. The mean +/- SD delay in diagnosis for women from the USA was 11.73 +/- 9.05 years, significantly higher than the equivalent delay of 7.96 +/- 7.92 years for women from the UK (P < 0.01). The stage of disease did not effect the length of time between the onset of symptoms and diagnosis. Therefore there is considerable delay in the diagnosis of endometriosis for women from both the UK and the USA. Efforts to reduce this delay are required to minimize the suffering of women with this disease.
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In the citing paper
“This study thus confirms a worrisome trend and worldwide public health problem: patients with endometriosis endure symptoms for years without being diagnosed (8-12, 27-29).”
From Patients’ report on how endometriosis affects health, work, and daily life (2010) · cites this paper as [27]
In the citing paper
“others indicate that it can last up to 10 to 12 years in the United States (6, 7)”
From Diagnostic experience among 4,334 women reporting surgically diagnosed endometriosis (2009) · cites this paper as [7]
Citations
Cites
Revised American Fertility Society Classification of Endometriosis: 1985
(1985) · Fertility and Sterility · doi:10.1016/s0015-0282(16)48430-x · Cited by 1,803
The lag time between onset of symptoms and diagnosis of rheumatoid arthritis
Chan, K. A., Felson, D. T., Yood, R. A., & Walker, A. M. (1994) · Arthritis & Rheumatism · doi:10.1002/art.1780370606 · Cited by 146
Menstrual symptoms in women with pelvic endometriosis
Mahmood, T. A., Templeton, A., THOMSON, L., & FRASER, C. (1991) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.1991.tb10370.x · Cited by 129
Age of onset of pain symptoms in non-twin sisters concordant for endometriosis
Kennedy, S., Hadfield, R., Mardon, H., & Barlow, D. (1996) · Human Reproduction · doi:10.1093/humrep/11.2.403 · Cited by 63
Self-citationWhat is important to the patient with endometriosis?
Kennedy, S. J. (1991) · PubMed · Cited by 25
Self-citation
Cited by
Sorted by citations
Giudice, L. C., & Kao, L. C. (2004) · The Lancet · doi:10.1016/s0140-6736(04)17403-5 · Cited by 3,166
Giudice, L. C. (2010) · New England Journal of Medicine · doi:10.1056/nejmcp1000274 · Cited by 1,924
Nnoaham, K. E., Hummelshoj, L., Webster, P., d’Hooghe, T., de Cicco Nardone, F., de Cicco Nardone, C., Jenkinson, C., Kennedy, S. H., & Zondervan, K. T. (2011) · Fertility and Sterility · doi:10.1016/j.fertnstert.2011.05.090 · Cited by 1,584
Self-citationESHRE guideline for the diagnosis and treatment of endometriosis
Kennedy, S., Bergqvist, A., Chapron, C., D’Hooghe, T., Dunselman, G., Greb, R., Hummelshoj, L., Prentice, A., & Saridogan, E. (2005) · Human Reproduction · doi:10.1093/humrep/dei135 · Cited by 1,584
Self-citationRecurrence of endometriosis and its control
Guo, S.-W. (2009) · Human Reproduction Update · doi:10.1093/humupd/dmp007 · Cited by 719
Metadata
- Authors
- Hadfield, R., Mardon, H., Barlow, D., & Kennedy, S.
- Affiliations
- John Radcliffe Hospital (GB)
- Corresponding author
- Kennedy, S.
- Venue
- Human Reproduction
- Publisher
- Oxford University Press (OUP)
- Published
- 1996-04-01
- Volume
- 11
- Issue
- 4
- Pages
- 878-880
- ISSN
- 0268-1161 (ISSN-L)
- 1460-2350
- OpenAlex
- W2161529162
- Cited by
- 517
- References
- 5
- Citations by year
- 2026: 17 · 2025: 20 · 2024: 37 · 2023: 16 · 2022: 32 · 2021: 21 · 2020: 36 · 2019: 29 · 2018: 24 · 2017: 22 · 2016: 19 · 2015: 20 · 2014: 19 · 2013: 22 · 2012: 29
- FWCI
- 2.83
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Human Reproduction (publishedVersion)
- PubMed (publishedVersion)
- Funders
- Age UK
- Topics
- Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
- Health Sciences › Medicine › Obstetrics and Gynecology › Gynecological conditions and treatments
- Health Sciences › Medicine › Obstetrics and Gynecology › Ectopic Pregnancy Diagnosis and Management
- Keywords
- endometriosis, delayed diagnosis, pain symptoms, disease stage, cross-national comparison, women's health, self-help groups
- MeSH terms
- Adult, Endometriosis, England, Female, Humans, Time Factors, United States
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