Cited by 243Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

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Issues in Dementia Caregiving: Effects on Mental and Physical Health, Intervention Strategies, and Research Needs

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Sörensen, Silvia, Conwell, Yeates·2011·The American Journal of Geriatric Psychiatry

DOI 10.1097/jgp.0b013e31821c0e6ePMC PMC3774150

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Caregiving and the stress process: an overview of concepts and their measures
Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990) · The Gerontologist · doi:10.1093/geront/30.5.583 · Cited by 4,810
Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis.
Pinquart, M., & Sörensen, S. (2003) · Psychology and Aging · doi:10.1037/0882-7974.18.2.250 · Cited by 2,857
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Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003) · Psychological Bulletin · doi:10.1037/0033-2909.129.6.946 · Cited by 1,734
Gender Differences in Caregiver Stressors, Social Resources, and Health: An Updated Meta-Analysis
Pinquart, M., & Sorensen, S. (2006) · The Journals of Gerontology Series B: Psychological Sciences and Social Sciences · doi:10.1093/geronb/61.1.p33 · Cited by 1,213
Correlates of Physical Health of Informal Caregivers: A Meta-Analysis
Pinquart, M., & Sörensen, S. (2007) · The Journals of Gerontology Series B · doi:10.1093/geronb/62.2.p126 · Cited by 1,132
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Meta‐Analysis of Psychosocial Interventions for Caregivers of People with Dementia
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Gaugler, J. E., Duval, S., Anderson, K. A., & Kane, R. L. (2007) · BMC Geriatrics · doi:10.1186/1471-2318-7-13 · Cited by 883
Helping caregivers of persons with dementia: which interventions work and how large are their effects?
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Items 101–200 of 243

“It’s just part of life”: African American daughters caring for parents with dementia
McLennon, S. M., Anderson, J. G., Epps, F. R., & Rose, K. M. (2018) · Journal of Women & Aging · doi:10.1080/08952841.2018.1547002 · Cited by 9
“Alzheimer’s disease and related dementias have been called a “silent epidemic” in the African American community and contribute to increased mortality (Sorenson & Conwell, 2011).”
Background
Factors Associated with the Health and Well-being of Dementia Caregivers
Cox, C. (2012) · Current Translational Geriatrics and Experimental Gerontology Reports · doi:10.1007/s13670-012-0033-2 · Cited by 11
Associations Across Caregiver and Care Recipient Symptoms: Self-Organizing Map and Meta-analysis
Voutilainen, A., Ruokostenpohja, N., & Välimäki, T. H. (2017) · The Gerontologist · doi:10.1093/geront/gnw251 · Cited by 9
“Prolonged caregiving produces multiple outcomes in physical and psychosocial health (Sörensen & Conwell, 2011).”
Background
Persons living with dementia and caregivers' communication preferences for receiving a dementia diagnosis
Wollney, E. N., Bylund, C. L., Bedenfield, N., Parker, N. D., Rosselli, M., Curiel, R. E., Kitaigorodsky, M., & Armstrong, M. J. (2024) · PEC Innovation · doi:10.1016/j.pecinn.2024.100253 · Cited by 8
“Care modifications and resources for PLWD can also offer caregivers respite and ease burden and depression [56].”
Background
Assessing the psychometric performance of the EQ-5D-5L among informal caregivers of people with dementia
Sokolova, V. D., Faller, J., Asfia, S. K. B. M., & Engel, L. (2024) · Quality of Life Research · doi:10.1007/s11136-024-03737-6 · Cited by 9
Designing for those who are Overlooked - Investigating long-term Impacts of Social Robotics for People with Advanced Dementia, Caregivers and Relatives in a Secured Care Environment
Raß, E., Unbehaun, D., Aal, K., Tandler, J., Lenz, G., & Wulf, V. (2025) · Proceedings of the ACM on Human-Computer Interaction · doi:10.1145/3701190 · Cited by 8
“…a broader view of dementia, including the significant emotional and organizational challenges faced by caregivers, advocates a move away from deterministic perceptions and promotes a focus on well-being and individual needs to better understand and care for PwAD and their families ([106], [107]).”
Healthcare Complexities in Neurodegenerative Proteinopathies: A Narrative Review
Fereshtehnejad, S., & Lökk, J. (2025) · Healthcare · doi:10.3390/healthcare13151873 · Cited by 11
“Mobility difficulties, cognitive decline, mood, and behavioral problems are common features that significantly increase caregiving demands [123,124].”
What Types of Burden Experienced by Family Caregivers of Dementia Patients Are Related to Their Life Satisfaction?
Ju, Y. J., Kim, W., Kim, E., & Lee, S. Y. (2022) · The Journals of Gerontology Series A · doi:10.1093/gerona/glac183 · Cited by 8
QUALITY OF LIFE AND ITS ASSOCIATED FACTORS AMONG MENTAL PATIENTS’ FAMILIES
Sharif-Ghaziani, Z., Chanzanagh, H. E., Khesht-Masjedi, M. F., & Baghaie, M. (2015) · Cited by 8
A mindfulness-based intervention adapted to dementia caregivers: A study protocol for a randomized clinical control trial
Antoniou, R., Toli, D. G., Lerner, H., Callahan, P. M., Coble, R., Ortiz, B. L., Sideman, A. B., Shdo, S. M., LEVENSON, R. W., Ferreira, N. B., et al. (2022) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.1062452 · Cited by 8
“Evidence suggests that caregivers of persons with dementia are experiencing long-term, intensive stress (Connell et al., 2001; Sörensen and Conwell, 2011; George et al., 2020).”
Background
Supporting caregivers of people with dementia: insights from Demensia KITA mobile application online content development
Rashid, N. S. A., Marzuki, M. F. M., Abdullah, N. N., Mohamad, M., Takshe, A. A., Yunus, R. M., & Chen, X. W. (2024) · Scientific Reports · doi:10.1038/s41598-024-69947-7 · Cited by 8
“The domains and outcomes of the NGT session align with existing literature 29,38,43,44 , and highlight the emotional and mental support needs of Malaysian caregivers who care for people with dementia.”
Method
Spouses of individuals living with mild cognitive impairment or dementia in the United States: A descriptive, population‐based study
Torres, J. M., Romero, K. R. F., Kotwal, A., Chen, R., Hill‐Jarrett, T. G., Mitchell, U. A., & Glymour, M. M. (2023) · Alzheimer s & Dementia · doi:10.1002/alz.13555 · Cited by 7
Relationships Among Caregiving, Income, Gender, and Health: A Cross-Sectional Examination of a Representative Sample of Older Americans
Wharton, T., & Zivin, K. (2016) · Journal of Social Service Research · doi:10.1080/01488376.2016.1239597 · Cited by 7
Effects of strength‐based intervention on health outcomes of family caregivers of persons with dementia: A study protocol
Yu, D. S. F., Cheng, S., Chow, E. O.-W., Kwok, T. C. Y., & McCormack, B. G. (2020) · Journal of Advanced Nursing · doi:10.1111/jan.14470 · Cited by 7
A Pilot Study of the Benefits of Traditional and Mindful Community Gardening For Urban Older Adults' Subjective Well-Being
Okvat, H. A. (2011) · Cited by 7
Caregiver Sleep Quality and Depression: The Roles of Dementia Caregiving, Support Availability, and Rural–Urban Contexts
Moon, H. E., Rote, S. M., Folker, A. E., & Sites, K. W. (2025) · The Gerontologist · doi:10.1093/geront/gnaf120 · Cited by 6
Socio-Demographic Factors Linked to Psychological Well-Being in Dementia Caregivers
Tatomirescu, L. F., Glavce, C. S., Prada, G. I., Borosanu, A., & Turcu, S. (2025) · Healthcare · doi:10.3390/healthcare13172235 · Cited by 7
Impact of additional community services provision on dementia caregiver burden: an interrupted time-series analysis of 12-year interRAI assessments in Hong Kong
Chan, C. Y., Chau, P. Y. K., Yeoh, E., & Wong, E. L. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-057221 · Cited by 6
Older adults’ social participation and social relationship and association with partner’s cognition: a latent profile analysis
Yuan, Y., Peng, C., Lin, Y., & Qu, S. (2023) · China Population and Development Studies · doi:10.1007/s42379-023-00148-x · Cited by 6
“Furthermore, caregivers to spouses/partners living with dementia are at increased risks of stress, depression, worse subjective well-being, amongst a variety of adverse health-related outcomes (Sörensen & Conwell, 2011).”
Mental Health among Older Adults with Caregiving Needs: The Role of Social Networks
Tang, F., Jang, H., Mulvaney, E. A., Lee, J. S., Musa, D., & Beach, S. R. (2019) · Social Work Research · doi:10.1093/swr/svz013 · Cited by 6
Virtual mentalizing imagery therapy for Spanish language Latino family dementia caregivers: A feasibility and acceptability study
Ramirez-Gomez, L. A., Johnson, J. K., Ritchie, C. S., Meyer, A. K., Tan, E., Madarasmi, S., Gutierrez‐Ramirez, P., Aldarondo-Hernández, C., Mischoulon, D., Banerjee, S., et al. (2023) · Frontiers in Psychology · doi:10.3389/fpsyg.2023.961835 · Cited by 6
“AD/ADRD family caregivers exhibit high levels of stress and depression (Sörensen and Conwell, 2011; Haley et al., 2020), and have a OPEN ACCESS”
Background
Using Telehealth to Deliver Cognitive Behavioral Treatment of Insomnia to a Caregiver of a Person With Alzheimer’s Disease
Roth, A. J., Curtis, A. F., Rowe, M. A., & McCrae, C. S. (2022) · Journal of Cognitive Psychotherapy · doi:10.1891/jcpsy-d-20-00055 · Cited by 9
Development and Initial Evaluation of Web-Based Cognitive Behavioral Therapy for Insomnia in Rural Family Caregivers of People With Dementia (NiteCAPP): Mixed Methods Study
McCrae, C. S., Curtis, A. F., Stearns, M. A., Nair, N., Golzy, M., Shenker, J. I., Beversdorf, D. Q., Cottle, A., & Rowe, M. A. (2023) · JMIR Aging · doi:10.2196/45859 · Cited by 5
“Rural caregivers have less access to care due to significant shortages of both primary and specialty care providers in rural areas [7,8] and are also at disproportionate risk for poverty and unemployment [2], which further limits their access.”
Background
Clinical Validation of the Nursing Diagnosis Caregiver Role Strain in the Czech Republic
Zeleníková, R., Kozáková, R., & Jarošová, D. (2014) · International Journal of Nursing Knowledge · doi:10.1111/2047-3095.12020 · Cited by 6
“The explosion of caregiver research over the last 15 years is a hopeful sign that help is on the way for chronically ill older adults and those who provide their care in the community (Sörensen & Conwell, 2011).”
Background
Sharing in the life of the person with disability: A Ghanaian perspective
Owusu‐Ansah, F. E. (2015) · African Journal of Disability · doi:10.4102/ajod.v4i1.185 · Cited by 6
“The nature and extent of the impact is moderated by factors such as the caregiver’s age, cultural background (Sörensen & Conwell 2011; Wallhagen & Yamamoto-Mitani 2006), attachment (Ainsworth 1989), intrapersonal resources or vulnerabilities, financial status, health or disability status, as well…”
Background
Mobile App Psychoeducation for Dementia Caregivers In Vietnam: A Randomized Controlled Trial
Nguyen, T. T. T., Vu, L. D. T., Nguyen, T. A., Truong, K. T., Thai, T. T., Than, T. H. N., & Nguyen, H. T. (2025) · Journal of Multidisciplinary Healthcare · doi:10.2147/jmdh.s557573 · Cited by 6
Perceptions of Dementia and Dementia Care Among African Immigrants in Minnesota: Insights From Community Conversations
Nkimbeng, M. J., Yam, H., Aswani, T., Russell, W. N., Shippee, T. P., & Gaugler, J. E. (2024) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbae094 · Cited by 5
Designing a mobile application to promote physical activity in spousal care partners of persons living with dementia and their care-recipient
Kuzmik, A., Rodriguez, M., Hannan, J., & Boltz, M. P. (2024) · Dementia · doi:10.1177/14713012241272878 · Cited by 5
“Prolonged periods of intense care often lead to high rates of stress-related health problems (S¨orensen & Conwell, 2011).”
Self-Care for Family Carers: Can the Alexander Technique help?
Wolverson, E., Glover, L., & Clappison, D. J. (2022) · Complementary Therapies in Clinical Practice · doi:10.1016/j.ctcp.2022.101546 · Cited by 5
Caregiving Outcomes of Sub/Urban and Rural Caregivers: The Powerful Tools for Caregivers Program
Kim, D., Peterson, N., & Lee, J. E. (2022) · Clinical Gerontologist · doi:10.1080/07317115.2022.2090878 · Cited by 5
“Prior interventions and systemic reviews suggested that the use of positive coping strategies improved caregivers’ psychological well-being and reduced caregiver burden (Chen, Huang, Yeh, Huang, & Chen, 2015; Hawken, Turner-Cobb, & Barnett, 2018; Sörensen & Conwell, 2011).”
Antidepressant Effects of a Multimodal Group Therapy Program for Mild Dementia: A Retrospective Evaluation of Clinical Routine Data
Bartels, C., Abdel‐Hamid, M., Wiltfang, J., Schneider, A., & Belz, M. (2022) · Journal of Alzheimer s Disease · doi:10.3233/jad-220578 · Cited by 5
You're Not Who You Used to Be
Young, S. W., Smith, M., Shafique, S., & Piamjariyakul, U. (2023) · Home Healthcare Now · doi:10.1097/nhh.0000000000001165 · Cited by 6
Evaluating Elements of the Care Partner Experience in Individuals Who Care for People with Alzheimer's Disease Across the Severity Spectrum
Callahan, L. F., Samsell, B. J., DiBenedetti, D. B., Frangiosa, T. L., Slota, C., Biggar, V. S., Paulsen, R., Lappin, D. R., Herring, W. L., & DeMuro, C. (2023) · Neurology and Therapy · doi:10.1007/s40120-023-00558-6 · Cited by 5
“Negative experiences of non-pro-fessional care partners may include ﬁnancial strain, job performance challenges, sacriﬁce of time, social isolation, harmful physical health outcomes, and emotional burdens [11, 12].”
Background
Screening for cognitive impairment in Arabic-speaking Hajj pilgrims
Alzahrani, A., Alhumaidi, F. S., Altowairqi, A. F., Almalki, W. A. H., & AlFadhli, I. (2019) · The Egyptian Journal of Neurology Psychiatry and Neurosurgery · doi:10.1186/s41983-019-0111-x · Cited by 5
The Experiences of Caregivers Caring for Loved Ones with Dementia
Wassman, M. E. (2012) · SOPHIA (St. Catherine University) · Cited by 5
Understanding the Multidimensionality of Caregiving Appraisal: A Concept Analysis
Wang, D., Rushton, S., Ledbetter, L., Graton, M., Ramos, K., Cary, M. P., Gray, T. F., & Hendrix, C. C. (2025) · Nursing Forum · doi:10.1155/nuf/6087774 · Cited by 4
“For example, a caregiver’s appraisal of the extent to which the caregiving role is burdensome can place additional stressors on the patient–caregiver dyad as a unit, which may lead to negative implications for the care-giver’s personal and family well-being [67, 139].”
Dementia Caregivers’ Perspectives on Technology’s Place in Care Practices: Mixed Methods Survey
Scott, J. A., Cepukenas, E., Himes, M., Anderson, K., Grewal, K., Mai, A., Yuter, S., & Simone, P. M. (2025) · JMIR Formative Research · doi:10.2196/69596 · Cited by 4
“Previous studies have identified primary stressors such as emotional outbursts or behavioral problems from PLWD as the strongest predictors of poor health outcomes among caregivers [7,22].”
Influential
Protective Role of Sustained Positive Emotions in Mitigating Negative Mood Responses Following Acute Laboratory Stressor in Middle‐Aged and Older Dementia Caregivers
Lin, R. S. Y., Crean, H. F., Gallegos, A. M., Quiñones-Cordero, M. M., Weber, M. T., Sörensen, S., Podgorski, C. A., Lin, F. V., & Heffner, K. L. (2025) · Stress and Health · doi:10.1002/smi.70056 · Cited by 5
Intervention for the Management of Neuropsychiatric Symptoms to Reduce Caregiver Stress: Protocol for the Mindful and Self-Compassion Care Intervention for Caregivers of Persons Living With Dementia
Travis, A., O’Donnell, A. E., Giraldo‐Santiago, N., Stone, S. M., Torres, D., Adler, S. R., Vranceanu, A., & Ritchie, C. S. (2024) · JMIR Research Protocols · doi:10.2196/58356 · Cited by 4
“Addressing a caregiver’s stress has the potential to mitigate risk for the exacerbation of the caregiver’s chronic health problems and to improve emotional and health outcomes for people living with ADRD [4,5].”
Thinking About It All Together: A Descriptive Analysis to Understand Comorbidities in People Living With Dementia
Zhang, Y., Deng, Z., Seaman, J. B., & Koleck, T. A. (2025) · Health Science Reports · doi:10.1002/hsr2.70449 · Cited by 4
Low-Tech Telemedicine Reduces Caregiver Burden and Improves Outcomes in Older Adults with Chronic Diseases: Results from a Prospective Study in Romania
Gherman, A., Stoicescu, E. R., Levai, C. M., Popoiu, C. M., & Hațegan, O. A. (2025) · Healthcare · doi:10.3390/healthcare13192442 · Cited by 6
“Caregivers of patients with dementia often face high emotional and behavioral challenges [53], while those caring for stroke survivors frequently manage physical disability and rehabilitation needs [54].”
Epidemiological and economic burden of dementia in the Middle East and North African region
Qadi, N., Alkhodair, Y., Alshammari, W., & AlDakheel, A. (2025) · Journal of Alzheimer s Disease · doi:10.1177/13872877251378454 · Cited by 3
Pushing Through: How Older Adult Caregivers Manage Wound Care
Swartzell, K. L., Fulton, J. S., & von Gaudecker, J. R. (2023) · Western Journal of Nursing Research · doi:10.1177/01939459231180894 · Cited by 3
Development of a Mindfulness and Self-compassion (MASC) Stress Reduction Program for Caregivers of Persons With Dementia With Behavioral Symptoms
Stone, S. M., Giraldo‐Santiago, N., Miller, A., O’Donnell, A. E., Travis, A., Ritchie, C. S., & Vranceanu, A. (2025) · The Gerontologist · doi:10.1093/geront/gnaf058 · Cited by 3
Relationship between cellular aging, perceived stress, and cardiometabolic disease risk in Black family caregivers of persons with dementia
Watson, J., Buchi, E., Higgins, M. K., Brewster, G. S., Trammell, A. R., Herring, C. H., Wharton, W., GARY, R. A., Hepburn, K., Dunbar, S. B., et al. (2025) · Alzheimer s & Dementia · doi:10.1002/alz.70518 · Cited by 3
“51 Notably, how caregivers interpret their experience can shape how stress affects well-being, and some studies also highlight caregiving benefits.”
Treating Depression in the Caregivers of Cancer Patients
Louis, J. M. (2017) · Journal of Psychology & Clinical Psychiatry · doi:10.15406/jpcpy.2017.07.00455 · Cited by 3
“Hence, informal caregivers are increasingly susceptible to mental and emotional challenges [14-16].”
Background
Caregivers’ burden and needed support for the care of dementia patients attending Ain Shams University hospitals
Atta, N. S. (2021) · Egyptian Journal of Geriatrics and Gerontology · doi:10.21608/ejgg.2021.204176 · Cited by 3
“(Sörensen & Conwell, 2011)”
CBD Oil as a Miracle Drug: A Thematic Analysis of Caregivers’ Attitudes and Practices Towards Cannabidiol in Dementia Treatment
Kłosińska, U., & Leszko, M. (2022) · Journal of Drug Issues · doi:10.1177/00220426221145019 · Cited by 3
“Caregiving involves a continual adaptation to decline in functioning and may have a detrimental impact on caregivers ’ health and well-being (Del-Pino-Casado, Priego-Cubero, López-Mart´ ı nez, & Orgeta, 2021; S¨orensen & Conwell, 2011).”
Background
Racial Differences in Program Evaluation of a Lifestyle Physical Activity Randomized Controlled Trial
Cothran, F. A., Paun, O., Farran, C. J., & Barnes, L. L. (2016) · Western Journal of Nursing Research · doi:10.1177/0193945916644686 · Cited by 3
“…persons with ADRD has received significant attention particularly because caregiving demands increase over time, family members’ care duties extend over many years, and caregiving affects their physical health and mental well-being (Sörensen & Conwell, 2011; Sörensen, Pinquart, & Duberstein, 2002).”
Background
Faded memories: The role of design in enhancing the quality of life of persons living with dementia
Frimpong, I. T. A. O., Duah, D. Y. A., Marful, A. B., Kwofie, I. E., & Offei-Nketiah, J. K. (2024) · Cogent Gerontology · doi:10.1080/28324897.2024.2308838 · Cited by 2
Risk profiles of Alzheimer’s disease and related dementias care partners: A latent profile analysis to inform intervention
Kew, C. L., Han, G., Holland, A., Smith, M. L., & Juengst, S. B. (2025) · Geriatric Nursing · doi:10.1016/j.gerinurse.2025.103462 · Cited by 2
Referrals to allied health professionals for people with dementia: an analysis of general practitioner data from two Australian primary health networks
Lee, D. A., Collyer, T. A., Russell, G. M., Andrew, N. E., O’Connor, C. M. C., Hill, K., Swaffer, K., Layton, N. A., Srikanth, V. K., Neves, B. B., et al. (2025) · Family Medicine and Community Health · doi:10.1136/fmch-2025-003470 · Cited by 2
“One More Picture:” A Mixed-Methods Examination of Caption Content in a Photo Captioning Cognitive Empathy Intervention for Dementia-Caregivers
Mroz, E. L., Assakul, R. P., Wells, J. L., Perkins, M. M., Hepburn, K. W., & Rilling, J. K. (2025) · Journal of Applied Gerontology · doi:10.1177/07334648251378791 · Cited by 2
“Due to the unique strains of caregiving for PLWD, these caregivers experience signi ﬁ cant and persisting health challenges, including elevated burden, depression, and anxiety (S¨orensen & Conwell, 2011).”
Supporting the Well-Being of People Living With Dementia and Their Family Carers Through Concurrent Arts and Well-Being Community Programs: Qualitative Perspectives of Participants and Facilitators
Murray, C. M., de la Perrelle, L., Mart, K., Baranoff, J. A., Richards, G., Hernandez, G. R., & Berndt, A. (2025) · Dementia · doi:10.1177/14713012251383967 · Cited by 2
“For people with memory loss and dementia, isolation may compound cognitive symptoms as well as lead to co-morbidities such as depression and, anxiety (Holt Lunstad, 2017; S¨orensen & Conwell, 2011).”
Dementia Caregiving Among Diverse Minoritized Racial and Ethnic Groups in the United States: A Critical Review of Cultural Adaptations of Nonpharmacological Caregiving Intervention Trials
Aranda, M., Camacho, D., Liang, J., & Jang, Y. (2026) · Annual Review of Clinical Psychology · doi:10.1146/annurev-clinpsy-081423-032154 · Cited by 2
Spousal Dementia Exposure and Risk of Dementia
Wang, S., Lin, M., Fan, C. C., Huang, W.-L., Hsu, C.-C., & Wu, C. (2026) · JAMA Network Open · doi:10.1001/jamanetworkopen.2026.24175 · Cited by 3
Differences in the longitudinal change of behaviours related to dementia in long-term care: a growth mixture modelling approach
Robitaille, A., Garcia, L., & Terrera, G. M. (2023) · BMC Geriatrics · doi:10.1186/s12877-023-03933-y · Cited by 2
“family members and LTC staff) of people living with dementia in these settings are at an increased risk of stress-related psychosocial and physical health effects [15, 18, 19].”
Background
Burnout and Its Related Risk Factors: A Comparison Study of Nurses Working in Two Different Wards
Samadi, S., Malekmohammadi, R., Shahvari, Z., Mireskandari, S. M., Amraei, F., & Bafrani, M. A. (2024) · Archives of Neuroscience · doi:10.5812/ans-144286 · Cited by 2
The Role of Neighborhood Socioeconomic Status in Institutionalization of Home Health Care Patients With and Without Alzheimer's Disease and Related Dementias
Jung, D., Jarrin, O. F., Choi, J. H., Knox, S., Emerson, K. G., & Chen, Z. (2024) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2024.105170 · Cited by 2
Pain Prevalence and Intensity Among Older Family Caregivers Versus Non-Caregivers in the United States
Turner, S. G., Reid, M. C., & Pillemer, K. A. (2025) · Journal of Aging and Health · doi:10.1177/08982643251331247 · Cited by 2
Health Patterns of Dementia Caregivers With Chronic Pain: Latent Profile Analysis of the PROMIS-29 Measure
Turner, S. G., Witzel, D. D., Garza, S., Pillemer, K. A., & Reid, M. C. (2025) · Journal of Applied Gerontology · doi:10.1177/07334648251360819 · Cited by 3
“The physical and psychological stress from dementia caregiving can be detrimental to caregivers ’ own health (S¨orensen & Conwell, 2011), and caregivers ’ health has implications for caregiving outcomes such as care recipients ’ hospitalization (Kuzuya et al., 2011) and mortality (Pristavec & Luth,…”
Depression in Long-Term Care
Hui, C., & Sultzer, D. L. (2013) · Oxford University Press eBooks · doi:10.1093/med/9780199796816.003.0027 · Cited by 2
Optimizing independence in activities of daily living
Laver, K., Piersol, C. V., & Wiley, R. (2020) · Elsevier eBooks · doi:10.1016/b978-0-12-818685-5.00005-2 · Cited by 2
Supporting people who care for adults with dementia
Laakkonen, M., & Pitkälä, K. H. (2013) · BMJ · doi:10.1136/bmj.f6691 · Cited by 2
A Pilot Randomised Controlled Trial of Acceptance and Commitment Therapy Group Intervention for Family Caregivers of People with Dementia in Brazil.
Ferreira, M. G., Caetano Vieira de Faria, R., Kishita, N., & Caramelli, P. (2026) · Clinical Gerontologist · doi:10.1080/07317115.2026.2615707 · Cited by 2
“However, the literature suggests that caring for someone living with dementia can produce many negative impacts on caregivers´ physical health, as well as their mental health (Sörensen & Conwell, 2011).”
Quality of life among dementia caregivers using an online Acceptance and Commitment Therapy: a longitudinal qualitative analysis.
Batura, J., Green, G., Kelley, H. H., Aller, T. B., Gossner, J., & Fauth, E. (2026) · Aging & Mental Health · doi:10.1080/13607863.2026.2622511 · Cited by 1
“The progression of dementia often intensifies caregiving challenges, with caregivers frequently experiencing disrupted sleep, physical exhaustion, financial strain, and social isolation due to the time-intensive nature of their role (Lindeza et al., 2020; Sörensen & Conwell, 2011; Vu et al., 2022).”
Trauma-informed family carer education and practical skills training in dementia: a systematic scoping review protocol
Harkess-Murphy, E., Tolson, D., Cheyne, J. D., Heron, S., Butler, A., Murray, Y., Mitchell, B., & Limond, K. (2024) · BMJ Open · doi:10.1136/bmjopen-2024-090202 · Cited by 1
Speed of Processing Training for Stress Adaptation in Caregivers of a Family Member With Dementia: A Randomized Controlled Trial
Heffner, K. L., Crean, H. F., Gallegos, A. M., Quiñones-Cordero, M. M., Weber, M. T., Sörensen, S., Lin, R. S. Y., Podgorski, C. A., & Lin, F. V. (2025) · Innovation in Aging · doi:10.1093/geroni/igaf033 · Cited by 1
“Poor mental, physical, and cognitive health outcomes of ADRD family caregivers can be linked in large part to the ongoing stressor exposure associated with the caregiving role (8).”
Design insights from dementia caregivers and therapists for a therapeutic music app
Myers, J. R., Brown, C. S., & Roa, E. (2025) · Academia Mental Health and Well-Being · doi:10.20935/mhealthwellb7665 · Cited by 1
The Level of Emotional Fatigue of Caregivers of Dementia Patients at Dr. Soetomo Hospital Surabaya as One of the Dimensions of Caregivers Burnout
Sitawati, A. D., & Awwaliyyah, N. (2025) · Interdisciplinary Social Studies · doi:10.55324/iss.v4i3.871 · Cited by 1
Issues in developing multilingual graphics-based digital caregiver guides for dementia care
Davis, B. H., Maclagan, M., & Troutman‐Jordan, M. (2025) · Discourse Context & Media · doi:10.1016/j.dcm.2025.100916 · Cited by 1
The Relationship of Neuropsychiatric Symptoms, Cognitive Dysfunction and Functional Decline in Older Adults
Moore, I. J., Embry, E., Balloun, B. A., Keller, H., Magnante, C., Padala, K. P., & Padala, P. R. (2025) · The American Journal of Geriatric Psychiatry Open Science Education and Practice · doi:10.1016/j.osep.2025.08.001 · Cited by 1
Psychological Profiles and Resilience in Family Caregivers of People with Dementia: A Latent Profile Analysis
Turcu, S., Glavce, C. S., & Tatomirescu, L. F. (2026) · Psychiatry International · doi:10.3390/psychiatryint7010023 · Cited by 1
Psychological Flexibility in Dementia Caregiving: The Adaptive Support Model
Green, G., Batura, J., Kelley, H. H., Bradford, K. P., & Fauth, E. B. (2026) · Journal of Family Theory & Review · doi:10.1111/jftr.70054 · Cited by 1
Family caregiving job disruptions and later life cognition: Intersections of race/ethnicity and gender
Campos, B. M., Cho, T., Lai, W., Smith, J., & Choi, H. (2026) · Journal of Alzheimer s Disease · doi:10.1177/13872877251394339 · Cited by 1
Examination of Factors Associated With Informal Caregivers’ Reactions to Different Problem Behaviors Among Persons With Alzheimer’s Disease
Shi, J., & Scott, C. (2023) · Home Health Care Management & Practice · doi:10.1177/10848223231162861 · Cited by 1
“14,18 A higher level of knowledge of Alzheimer’s Disease and memory loss predicts a lower level of caregiver burden.”
Background
The change of intimate relationship between people with Alzheimer’s disease and their adult child caregivers: An interpretative phenomenological analysis
Lyu, J., Jiang, W., Xiong, Q., Li, W., Li, M., Hu, Y., Jia, D., Gao, W., Mu, H., & Ma, Z. (2024) · Dementia · doi:10.1177/14713012241245482 · Cited by 1
“In addition, cultural background is an important mediating factor between caregiving and the mental and physical health outcomes of caregivers (S¨orensen & Conwell, 2011).”
Evaluating a mobile-based intervention to promote the mental health of informal dementia caregivers in Singapore: Study protocol for a pilot two-armed randomised controlled trial
Lee, Y. T., Yuan, Q., Zhang, Y., Samari, E., Goveas, R. R., Ng, L. L., & Subramaniam, M. (2024) · PLoS ONE · doi:10.1371/journal.pone.0305729 · Cited by 1
Association between severity of dementia, wandering behavior, and caregiver burden among caregivers of persons living with dementia
Anu, K. N., Vasanthra, C. R., Antony, S., Philip, M., Ammapattian, T., & Sivakumar, P. T. (2024) · Journal of Geriatric Mental Health · doi:10.4103/jgmh.jgmh_17_23 · Cited by 1
Social Robots at Play: Enhancing Social Interaction and Well-Being for People with Advanced Dementia and Their Ecosystem in a Secured Care Context
Unbehaun, D., Raß, E., Tandler, J., Lenz, G., & Wulf, V. (2025) · Design for inclusion · doi:10.1007/978-3-031-84901-5_6 · Cited by 1
Family cohesion and conflict in the context of adult children and parents living with early-stage cognitive impairment
Wang, Z., Wang, K., & Monin, J. K. (2025) · Aging & Mental Health · doi:10.1080/13607863.2025.2495282 · Cited by 1
“…in the literature, include greater stress reactivity (e.g. hormones, cardiovascular indices), compromised immune responses, greater comorbidity risk, productivity impairment, and more frequent depression, insomnia, anxiety and pain (Goren et al., 2016; Sörensen & Conwell, 2011; Tsuda et al., 2023).”
Dinamika Psikologis Individu dalam Merawat Lansia yang Mengalami Demensia
Djapar, R. P., Nurochim, H. F. G. I., & Hendriani, W. (2025) · Buletin Riset Psikologi dan Kesehatan Mental (BRPKM) · doi:10.20473/brpkm.v5i1.68152 · Cited by 1
Minor Impact of Multiple Psychiatric Symptoms on Quality of Life (EQ5D) in Psychogeriatric Patients: A Clinical-Empirical Structural Modeling Approach
Duivenvoorden, H. J., & Bakker, T. J. E. M. (2014) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2014.02.008 · Cited by 1
Bringing dementia-care back into psychiatry
Avasthi, A. (2018) · Journal of Geriatric Mental Health · doi:10.4103/jgmh.jgmh_31_17 · Cited by 2
Comparing the Needs of Family Caregivers and Program Providers in Long-Term Care in Terms of Family Support Program
Park, M., Go, Y., Jeong, M., & Han, E. (2019) · Korean Journal of Adult Nursing · doi:10.7475/kjan.2019.31.1.14 · Cited by 1
Management of Dementia Through Self-help and Assistive Technologies
Majumder, P. (2021) · Studies in big data · doi:10.1007/978-981-16-0415-7_11 · Cited by 1
Prevalence of Burnout in Dementia Caregivers, Riyadh, Saudi Arabia
Ahlruwaili, A. (2022) · Family Medicine and Primary Care Open Access · doi:10.29011/2688-7460.100092 · Cited by 1
Systematic care for caregivers of people with dementia in community mental health services
Spijker, G. J. A. A. (2013) · Radboud Repository (Radboud University) · Cited by 1
A music therapy model for pre-bereavement resiliency development in informal hospice caregivers a grounded theory study
Potvin, N. (n.d.) · iDEA - Drexel University Institutional Repository · doi:10.17918/etd-7129 · Cited by 1
Mindfulness and rumination: stress pathways for caregivers of persons living with dementia.
Savla, J., Mansoor, M., Kim, N., Hagemann, L., Luci, K., & Sapra, M. (2026) · The Gerontologist · doi:10.1093/geront/gnag103
“Primary stressors include assistance with activities of daily living (ADL) and responding to behavioral symptoms that require constant vigilance (Cerejeira et al., 2012; National Alliance for Caregiving & AARP, 2020; S € orensen & Conwell, 2011).”
COPE-indeksillä mitatun omaishoitajan kuormittumisen tilan yhteys omaishoidettavan käyttämien sijaishoitopalveluiden määrään ja käytön useuteen
Rutanen, L. (2013) · Jyväskylä University Digital Archive (University of Jyväskylä)
Practical approach to pharmacological treatment and nonpharmacological intervention of dementia
Tam, S. K., Lee, N., & Wong, G. (2014) · The HKU Scholars Hub (University of Hong Kong)
The role of self-efficacy in the health-related quality of life of family carers of individuals with dementia
Crellin, N. (2015) · UCL Discovery (University College London)
Improving Caregiver Supports through System Integration
Walsh, C. (2018) · doi:10.11575/prism/34950
Non-pharmacological Management of Symptoms of Dementias and Their Prodromes
Hayden, S. (2018) · Handbooks in health, work, and disability · doi:10.1007/978-3-030-03916-5_22
Ethical Challenges in Mild, Moderate, and Severe Stages of Dementia
Kumaran, J., Hoq, R., Dhar, R., & Balasubramaniam, M. (2019) · Springer eBooks · doi:10.1007/978-3-030-15172-0_6
Forming Impressions on Computer-Mediated Healthcare Peer-Support Systems for Informal Caregivers
Narasimha, S. (2020) · TigerPrints (Clemson University)
Neurocognitive Disorders and Health Psychology
Drossel, C. (2020) · The Wiley Encyclopedia of Health Psychology · doi:10.1002/9781119057840.ch143
Caregiving
Parks, S. H., Winter, L., & Snyderman, D. (2016) · Cambridge University Press eBooks · doi:10.1017/cbo9781107294967.056
Caregiving
Snyderman, D., Heredia, J., & Parks, S. H. (2022) · Cambridge University Press eBooks · doi:10.1017/9781108942751.060

Authors: Sörensen, S., & Conwell, Y.
Affiliations: University of Rochester Medicine (US)
Corresponding author: Sörensen, Silvia
ORCID: Sörensen, Silvia
Conwell, Yeates
Venue: The American Journal of Geriatric Psychiatry
Publisher: Elsevier BV
Published: 2011-06
Volume: 19
Issue: 6
Pages: 491-496
ISSN: 1064-7481 (ISSN-L)
DOI: 10.1097/jgp.0b013e31821c0e6e
PMC: PMC3774150
OpenAlex: W2110724390
Cited by: 242
References: 51
Citations by year: 2026: 23 · 2025: 37 · 2024: 21 · 2023: 22 · 2022: 24 · 2021: 17 · 2020: 15 · 2019: 17 · 2018: 17 · 2017: 6 · 2016: 9 · 2015: 8 · 2014: 10 · 2013: 10 · 2012: 4
FWCI: 5.72
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: www.elsevier.com/tdm/userlicense/1.0/ (tdm)
Locations: American Journal of Geriatric Psychiatry (publishedVersion)
PubMed (publishedVersion)
Europe PMC (PubMed Central) (acceptedVersion)
PubMed Central (acceptedVersion)
Funders: National Institute of Mental Health (R24MH071604)
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords: dementia caregiving, caregiver burden, caregiver health outcomes, caregiver mental health, caregiver physical health, caregiver interventions, caregiver support, older adults, research needs
MeSH terms: Dementia, Health Status, Humans, Mental Health, Research, Caregivers, Cost of Illness

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