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Issues in Dementia Caregiving: Effects on Mental and Physical Health, Intervention Strategies, and Research Needs
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“Caregivers of dementia patients in particular suffer more than other CGs–they tend to have worse mental and physical health, less leisure time, more employment complications and more family conflict [2, 3].”
From Baby boomer caregiver and dementia caregiving: findings from the National Study of Caregiving (2015) · cites this paper as [2]
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“and can lead to deterioration in CGs' physical health, psychological well-being and social relations [2].”
From Baby boomer caregiver and dementia caregiving: findings from the National Study of Caregiving (2015) · cites this paper as [2]
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“Caring for relatives with dementia creates various stressors for CGs—including care recipients’ (CRs) memory and behaviour problems, communication problems, conflict and role strain”
From Baby boomer caregiver and dementia caregiving: findings from the National Study of Caregiving (2015) · cites this paper as [2]
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Cites
Caregiving and the stress process: an overview of concepts and their measures
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Self-citationIs caregiving hazardous to one’s physical health? A meta-analysis
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Correlates of Physical Health of Informal Caregivers: A Meta-Analysis
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Meta‐Analysis of Psychosocial Interventions for Caregivers of People with Dementia
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Predicting nursing home admission in the U.S: a meta-analysis
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Cited by
Sorted by citations
Gender differences in caregiving among family - caregivers of people with mental illnesses
Sharma, N., Chakrabarti, S., & Grover, S. (2016) · World Journal of Psychiatry · doi:10.5498/wjp.v6.i1.7 · Cited by 865
Impact of dementia on informal care: a systematic review of family caregivers’ perceptions
Lindeza, P., Rodrigues, M., Costa, J. N., Guerreiro, M., & Rosa, M. M. (2020) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2020-002242 · Cited by 352
“D o w n l oaded f r o m”
BackgroundChen, H., Huang, M., Yeh, Y., Huang, W., & Chen, C. (2015) · Psychogeriatrics · doi:10.1111/psyg.12071 · Cited by 158
Clare, L., Nelis, S. M., Quinn, C., Martyr, A., Henderson, C., Hindle, J. V., Jones, I. R., Jones, R. W., Knapp, M. R. J., Kopelman, M. D., et al. (2014) · Health and Quality of Life Outcomes · doi:10.1186/s12955-014-0164-6 · Cited by 147
“It is widely understood that outcomes for carers of people with dementia are very variable [65], although a relatively limited range of carer factors has been studied in relation to outcomes.”
BackgroundA systematic review of psychosocial interventions to improve cancer caregiver quality of life
Waldron, E. A., Janke, E. A., Bechtel, C. F., Ramirez, M., & Cohen, A. (2013) · Psycho-Oncology · doi:10.1002/pon.3118 · Cited by 147
“Caregivers with a patient in hospice care may have more needs and less time, limiting their ability to fully participate in an intervention not optimally designed to meet their specific needs at a time when caregivers may in fact benefit most from a multifaceted, individually tailored intervention [40].”
BackgroundUnderstanding the needs of caregivers of persons with dementia: a scoping review
Queluz, F. N. F. R., Kervin, E., Wozney, L., Fancey, P., McGrath, P. J., & Keefe, J. (2020) · International Psychogeriatrics · doi:10.1017/s1041610219000243 · Cited by 142
Wiegelmann, H., Speller, S., Verhaert, L.-M., Schirra-Weirich, L., & Wolf‐Ostermann, K. (2021) · BMC Geriatrics · doi:10.1186/s12877-021-02020-4 · Cited by 151
“Compared with caregivers of persons with others diseases, mental health related indicators like distress and stress, burden or subjective wellbeing are particularly worse for dementia caregivers [21].”
BackgroundBrown, K. W., Coogle, C. L., & Wegelin, J. (2016) · Aging & Mental Health · doi:10.1080/13607863.2015.1065790 · Cited by 126
“However, treatment effect sizes have been relatively small (S€orensen & Conwell, 2011), and numerous reviews have failed to identify a consistently effective method for reducing the distress and burden experienced by AD caregivers (e.g., Bourgeois, Schulz, & Burgio, 1996; Gottlieb & Wolfe, 2002;…”
BackgroundAnxiety in Informal Dementia Carers: A Meta-Analysis of Prevalence
Kaddour, L., & Kishita, N. (2020) · Journal of Geriatric Psychiatry and Neurology · doi:10.1177/0891988719868313 · Cited by 98
Roach, P., Zwiers, A. M., Cox, E., Fischer, K., Charlton, A., Josephson, C. B., Patten, S. B., Seitz, D. P., Ismail, Z., & Smith, E. E. (2020) · Dementia · doi:10.1177/1471301220977639 · Cited by 95
“This echoes general concern of burnout by families living with dementia in times before the COVID-19 pandemic (Brodaty & Donkin, 2009; Sörenson & Conwell, 2011; Takai et al., 2009), but with these caring demands now amplified by isolation and anxiety.”
BackgroundCalvó‐Perxas, L., Franch, J. V., Litwin, H., Garriga, O. T., Mira, P., & Garre‐Olmo, J. (2018) · PLoS ONE · doi:10.1371/journal.pone.0194232 · Cited by 82
“financial strain, care situation), and they have been seen to exacerbate or ameliorate the emotional and health consequences of caregiving [14].”
BackgroundUnderstanding the needs of family caregivers of older adults dying with dementia
Thompson, G. N., & Roger, K. S. (2013) · Palliative & Supportive Care · doi:10.1017/s1478951513000461 · Cited by 78
“…of dementia, such as those described above, are associated with increased caregiver burden, depression, and institutionalization (Gaugler et al., 2004; Sorensen & Conwell, 2011; Volicer, Hurley & Blasi, 2003); however, the strength of these associations has been challenged (Black & Almeida, 2004).”
BackgroundBaby boomer caregiver and dementia caregiving: findings from the National Study of Caregiving
Moon, H., & Dilworth-Anderson, P. (2015) · Age and Ageing · doi:10.1093/ageing/afu119 · Cited by 67
“Caregivers of dementia patients in particular suffer more than other CGs–they tend to have worse mental and physical health, less leisure time, more employment complications and more family conflict [2, 3].”
BackgroundCaring for Dementia Caregivers in Times of the COVID-19 Crisis: A Systematic Review
Aledeh, M., & Adam, P. H. (2020) · American journal of nursing research · doi:10.12691/ajnr-8-5-8 · Cited by 63
Health of Elderly Mexican American Adults and Family Caregiver Distress
Rote, S. M., Angel, J. L., & Markides, K. S. (2014) · Research on Aging · doi:10.1177/0164027514531028 · Cited by 60
“…was not associated with caregiver depressive symptoms, our results support prior research indicating problematic behaviors related to cognitive decline undermine caregivers’ positive well-being (Clyburn et al., 2000; Matsumoto et al., 2007; Pearson et al., 1993; Sörensen & Conwell, 2011).”
BackgroundResultMoon, H. E., Townsend, A. L., Whitlatch, C. J., & Dilworth‐Anderson, P. (2016) · The Gerontologist · doi:10.1093/geront/gnw055 · Cited by 60
“Deterioration in dementia CGs’ physical health, psychological well-being, and social relations has been well documented (review by Sörensen & Conwell, 2011).”
BackgroundUnbehaun, D., Vaziri, D. D., Aal, K., Wieching, R., Tolmie, P., & Wulf, V. (2018) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3173574.3173636 · Cited by 61
“At the same time, private households may experience a loss of income because they can no longer maintain the same level of employment at the same time as managing the care needs of their relatives [71].”
BackgroundPrommas, P., Lwin, K. S., Chen, Y. C., Hyakutake, M., Ghaznavi, C., Sakamoto, H., Miyata, H., & Nomura, S. (2022) · Ageing Research Reviews · doi:10.1016/j.arr.2022.101839 · Cited by 57
“Dementia is a clinical syndrome associated with loss of memory, language, problemsolving and other abilities that severely interferes with daily life, creating significant burdens not only for older adults with dementia but also their caregivers (Brodaty and Donkin, 2009; Cheng, 2017; Sörensen and Conwell, 2011), and…”
Yuan, Q., Zhang, Y., Samari, E., Jeyagurunathan, A., Goveas, R. R., Ng, L. L., & Subramaniam, M. (2023) · BMC Geriatrics · doi:10.1186/s12877-023-03767-8 · Cited by 57
“For instance, poorer mental health of caregivers was reported to be associated with earlier institutionalization of PWD [32, 33] and higher mortality of PWD [34].”
BackgroundChan, C. Y., Cheung, G., Martínez-Ruiz, A., Chau, P. Y. K., Wang, K., Yeoh, E., & Wong, E. L. (2021) · BMC Geriatrics · doi:10.1186/s12877-021-02153-6 · Cited by 61
“Caregiving for people with dementia is more stressful and demanding than caring for a person with a physical disability alone [6].”
BackgroundCheng, S., LAM, L. C. W., & Kwok, T. C. Y. (2013) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2013.01.041 · Cited by 60
An Online Program for Caregivers of Persons Living With Dementia: Lessons Learned
Kovaleva, M. A., Blevins, L., Griffiths, P. C., & Hepburn, K. W. (2017) · Journal of Applied Gerontology · doi:10.1177/0733464817705958 · Cited by 55
“…linked not only to emotional rewards, relationship gains, and personal and spiritual growth (Lloyd, Patterson, & Muers, 2016; Roth, Fredman, & Haley, 2015) but also to negative outcomes for caregivers’ physical health (Fonareva & Oken, 2014) and psychological well-being (Sörensen & Conwell, 2011).”
BackgroundOliveira, D., Sousa, L., & Orrell, M. W. (2019) · Clinical Interventions in Aging · doi:10.2147/cia.s190610 · Cited by 53
Stansfeld, J. L., Crellin, N. E., Orrell, M. W., Wenborn, J., Charlesworth, G. M., & Vernooij-Dassen, M. J. F. J. (2018) · International Psychogeriatrics · doi:10.1017/s1041610218001394 · Cited by 52
“Current theoretical models of the caregiver stress-coping process (Sorensen and Conwell, 2011), and the existing theoretical model of sense of competence were used to guide the review (Vernooij-Dassen et al., 1996).”
MethodHow useful is the EQ-5D in assessing the impact of caring for people with Alzheimer's disease?
Reed, C., Barrett, A., Lebrec, J., Dodel, R., Jones, R. W., Vellas, B., Wimo, A., Argimon, J. M., Bruno, G., & Haro, J. M. (2017) · Health and Quality of Life Outcomes · doi:10.1186/s12955-017-0591-2 · Cited by 49
“The health impact on caregivers can be both physical and emotional [1]; nearly half of the caregivers in some studies meet formal diagnostic criteria for depression and show increased use of health services and psychiatric medication [2].”
BackgroundAt the intersection of culture: Ethnically diverse dementia caregivers’ service use
Richardson, V., Fields, N. L., Won, S., Bradley, E. L., Gibson, A., Rivera, G. L., & Holmes, S. (2017) · Dementia · doi:10.1177/1471301217721304 · Cited by 49
Unbehaun, D., Aal, K., Vaziri, D. D., Tolmie, P., Wieching, R., Randall, D. W., & Wulf, V. (2020) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3313831.3376648 · Cited by 48
“cases, by family members who may themselves be elderly yet, increasingly, still at work [21,59,65].”
BackgroundUnbehaun, D., Taugerbeck, S., Aal, K., Vaziri, D. D., Lehmann, J., Tolmie, P., Wieching, R., & Wulf, V. (2020) · Human-Computer Interaction · doi:10.1080/07370024.2020.1746910 · Cited by 46
“Caregivers often need to reduce their social contact to meet the temporal demands of providing care (Sörensen & Conwell, 2011; Sütterlin et al., 2011).”
BackgroundSocial participation and family carers of people living with dementia in Australia
Nay, R., Bauer, M., Fetherstonhaugh, D., Moyle, W., Tarzia, L., & McAuliffe, L. P. (2014) · Health & Social Care in the Community · doi:10.1111/hsc.12163 · Cited by 45
Tang, F., Jang, H., Lingler, J. H., Tamres, L. K., & Erlen, J. A. (2015) · Social Work in Health Care · doi:10.1080/00981389.2015.1054058 · Cited by 43
“Social support resources, such as a large social network, frequent social contacts, and the ability to arrange for assistance from friends, can mitigate the adverse effects of caregiver stress on depression (Sörensen & Conwell, 2011).”
BackgroundCorrelates of health-related quality of life in African American and Caucasian stroke caregivers.
Clay, O. J., Grant, J. S., Wadley, V. G., Perkins, M. M., Haley, W. E., & Roth, D. L. (2013) · Rehabilitation Psychology · doi:10.1037/a0031726 · Cited by 43
Choi, S. K., Yelton, B., Ezeanya, V. K., Kannaley, K., & Friedman, D. B. (2018) · Journal of Applied Gerontology · doi:10.1177/0733464818790187 · Cited by 42
“Increased demands can cause significant health effects on caregivers, such as mental and physical health deterioration and decreased quality of life (Sorensen & Conwell, 2011).”
BackgroundPromoting dementia awareness in African‐American faith communities
Epps, F. R., Alexander, K. L., Brewster, G. S., Parker, L. J., Chester, M., Tomlinson, A., Adkins, A., Zingg, S., & Thornton, J. (2020) · Public Health Nursing · doi:10.1111/phn.12759 · Cited by 42
“ADRD is considered a “silent” epidemic in the African-American community due to the lack of awareness of the scope of the problem and other risk factors related to the nation’s historical health inequities impacting African-Americans (Sörensen & Conwell, 2011).”
BackgroundHwang, A. S., Truong, K. N., Cameron, J. I., Lindqvist, E., Nygård, L., & Mihailidis, A. (2015) · BioMed Research International · doi:10.1155/2015/720483 · Cited by 41
“Although the stress and burden associated with caring for a PwD is well documented (e.g., [5–9]), ICPs may wish to continue caring for as long as possible for reasons that include fulfilling filial duties [10] or continuing their relationships with PwDs [11, 12].”
BackgroundRoss, A. C., Sundaramurthi, T., & Bevans, M. F. (2012) · Cancer Nursing · doi:10.1097/ncc.0b013e3182747b75 · Cited by 43
Ashrafizadeh, H., Gheibizadeh, M., Rassouli, M., Hajibabaee, F., & Rostami, S. (2021) · Frontiers in Psychology · doi:10.3389/fpsyg.2021.699959 · Cited by 39
“In fact, caregivers are considered secondary patients, because negative effects exert a huge impact on their health (Sörensen and Conwell, 2011).”
BackgroundGoodridge, D. M., Reis, N. A., Neiser, J., Haubrich, T., Westberg, B., Erickson-Lumb, L., Storozinski, J., Gonzales, C., Michael, J., Cammer, A. L., et al. (2021) · JMIR Aging · doi:10.2196/28652 · Cited by 38
“Family caregivers can face considerable stress when caring for a person with dementia at home [4,5], resulting in higher levels of depression and anxiety [6,7], social isolation [8], lower levels of subjective well-being [6-9] and worse physical outcomes for these individuals compared with caregivers of people without…”
A path analysis of patient dependence and caregiver burden in Alzheimer's disease
Garre‐Olmo, J., Franch, J. V., Calvó‐Perxas, L., Garriga, O. T., Conde‐Sala, J. L., & Pousa, S. L. (2016) · International Psychogeriatrics · doi:10.1017/s1041610216000223 · Cited by 39
“…for dementia caregiver burden based on Pearlin’s Stress Process Model (Pearlin et al., 1990) and Lawton’s two-factor model (Lawton et al., 1991), their determinants are categorized as contextual variables, stressors, moderators, and the own appraisal of the caregiver (Sörensen and Conwell, 2011).”
BackgroundMethodMediators of burden and depression in dementia family caregivers: Kinship differences
McAuliffe, L. P., Ong, B., & Kinsella, G. (2018) · Dementia · doi:10.1177/1471301218819345 · Cited by 37
Iribarren, S., Stonbraker, S., Suero-Tejeda, N. M., Granja, M. R., Luchsinger, J. A., Mittelman, M. S., Henry, S. B., & Lucero, R. J. (2018) · Informatics for Health and Social Care · doi:10.1080/17538157.2018.1433674 · Cited by 41
“Moreover, caregivers of individuals with ADRD have disproportionately bad health outcomes and it is recognized that the health of caregivers suffers as a result of their caregiving activities.(26) In addition, Hispanic caregivers”
BackgroundKaddour, L., Kishita, N., & Schaller, A. (2018) · International Psychogeriatrics · doi:10.1017/s1041610218001436 · Cited by 36
Caregiver Burden in Adults With Inflammatory Bowel Disease
Shukla, R., Thakur, E. R., Bradford, A. M., & Hou, J. K. (2017) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2017.05.020 · Cited by 36
“Caregiver demographics Female sex(13,17,58) Older age(13) Younger age(17) Low education(58) Low income(10,17) Cohabitation with care recipient(13,58) More than 1 dependent in the household(10,17) Spouse(13,26) Adult child(22) Employed(25) Caregiver psychosocioeconomic factors History of psychiatric illness(17) Depress…”
BackgroundActivity Monitoring and Location Sensory System for People With Mild Cognitive Impairments
García-Requejo, A., Pérez, M. C., Villadangos, J. M., & Hernández, Á. (2023) · IEEE Sensors Journal · doi:10.1109/jsen.2023.3239980 · Cited by 35
“anxiety, and depression related to caregiving [3].”
Potvin, N., Bradt, J., & Ghetti, C. M. (2018) · The Journal of music therapy · doi:10.1093/jmt/thx019 · Cited by 30
“In response to the increasingly nuanced knowledge of caregiver prebereavement experiences, various psychosocial interventions have been developed to assist caregivers to move through pre-bereavement processes into a bereavement both healthy and meaningfully (Sörensen & Conwell, 2011; Sorrell, 2014).”
BackgroundRawat, P., Sehar, U., Bisht, J., Reddy, A. P., & Reddy, P. H. (2023) · Ageing Research Reviews · doi:10.1016/j.arr.2023.102178 · Cited by 36
Kaasalainen, S., Hunter, P. V., Bello-Haas, V. P. M. D., Dolovich, L. R., Froggatt, K. A., Hadjistavropoulos, T., Markle‐Reid, M., Ploeg, J., Simard, J., Thabane, L., et al. (2020) · Pilot and Feasibility Studies · doi:10.1186/s40814-020-00575-4 · Cited by 34
Need for Resourcefulness Training for Women Caregivers of Elders with Dementia
Zauszniewski, J. A., Lekhak, N., Yolpant, W., & Morris, D. L. (2015) · Issues in Mental Health Nursing · doi:10.3109/01612840.2015.1075236 · Cited by 33
“…care, caring for an elderly person with dementia takes a toll on the physical, emotional, social, spiritual, and financial health of the caregiver (Alzheimer’s Association, 2015; Kim, Chang, Rose, & Kim, 2012; Sörensen & Conwell, 2011; Vitaliano et al., 2005; Vitaliano, Young, & Zhang, 2004).”
BackgroundPlanning and Decision Making for Care Transitions
Sörensen, S., Mak, W., & Pinquart, M. (2011) · Annual Review of Gerontology and Geriatrics · doi:10.1891/0198-8794.31.111 · Cited by 29
“Individual fi nances will be under increasing strain as baby boomers transition to more precarious health states, and the responsibilities of family caregivers and their associated physical, emotional, and opportunity costs grow (Sörensen & Conwell, 2011).”
BackgroundAn empowerment program for family caregivers of people with dementia
Yoon, H. K., & Kim, G. S. (2019) · Public Health Nursing · doi:10.1111/phn.12690 · Cited by 32
Dementia knowledge and its demographic correlates amongst informal dementia caregivers in Singapore
Tan, G. T. H., Yuan, Q., Devi, F., Wang, P., Ng, L. L., Goveas, R. R., Chong, S. A., & Subramaniam, M. (2020) · Aging & Mental Health · doi:10.1080/13607863.2020.1740914 · Cited by 30
Lane, N. E., Hoben, M., Amuah, J. E., Hogan, D. B., Baumbusch, J., Gruneir, A., Chamberlain, S. A., Griffith, L. E., McGrail, K. M., Corbett, K., et al. (2022) · BMC Geriatrics · doi:10.1186/s12877-022-03294-y · Cited by 30
“Guided by relevant conceptual models [24, 25], we hypothesized that after adjusting for predisposing characteristics, the experience of pandemic-related stressors, including income loss, as well as stressors relevant to caregiving (e.”
BackgroundMethodInfluentialBenedetti, R., Cohen, L., & Taylor, M. (2013) · Journal of Women & Aging · doi:10.1080/08952841.2013.760330 · Cited by 28
“This assertion is congruent with the literature’s broader understanding of caregiver burden in non-CALD dementia caregiving populations (Pearlin et al., 1990; Sorenson & Conwell, 2011).”
BackgroundResultInfluentialNg, C. K. M., Leung, D. K. Y., Cai, X., & Wong, G. H. Y. (2021) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph18062956 · Cited by 27
“This is not surprising, given that BPSDs have been found to be the strongest predictor of carer burden [35, 36] and nursing home placement of the person with dementia [37].”
BackgroundO’Connor, M. K., Nicholson, R., Epstein, C., Donley, T., Salant, R., Nguyen, A. H., Shirk, S. D., Stevenson, E., & Mittelman, M. S. (2022) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2022.08.005 · Cited by 27
Larochette, C., Wawrziczny, É., Papo, D., Pasquier, F., & Antoine, P. (2019) · Dementia · doi:10.1177/1471301219854643 · Cited by 26
Scott, C. B., Clay, O. J., Epps, F. R., Cothran, F. A., & Williams, I. C. (2018) · Dementia · doi:10.1177/1471301218788147 · Cited by 26
Positive aspects of care in informal caregivers of community‐dwelling dementia patients
Ribeiro, Ó. M., Brandão, D., Oliveira, A. F., Teixeira, L., & Paúl, C. (2019) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.12582 · Cited by 26
Tan, K. P., Ang, J. K., Koh, E. B. Y., Pang, N. T. P., & Mat Saher, Z. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20054232 · Cited by 23
Hendricks-Lalla, A., & Pretorius, C. (2018) · Dementia · doi:10.1177/1471301218781372 · Cited by 26
“Familial caregivers often experience loss of employment and financial difficulties (Acton & Kang, 2001; Kim & Schultz, 2008; Sorensen & Conwell, 2011) because of increased caregiving responsibilities, which compound the caregiving challenges and affect family roles and relationships (Etters,…”
BackgroundSaadi, J. P., Carr, E., Fleischmann, M. S., Murray, E. T., Head, J. A., Steptoe, A., Hackett, R. A., Xue, B., & Cadar, D. (2021) · European Psychiatry · doi:10.1192/j.eurpsy.2021.20 · Cited by 24
“Caring for an individual with dementia has been associated with poor mental health outcomes, but the mechanisms are less understood [1,2].”
BackgroundPredictors of Depression Among Caregivers of Older Adults With Severe Mental Illness
Cummings, S. M., & Kropf, N. P. (2014) · Journal of Gerontological Social Work · doi:10.1080/01634372.2014.978927 · Cited by 23
“Likewise, caregiving has adverse impacts on mental health functioning, with caregivers experiencing increased depression and anxiety levels (Sorensen & Conwett, 2011; Vitaliano, Zhang, & Scanlan, 2003).”
BackgroundFactors Associated with Unmet Needs among African-American Dementia Care Providers
Desin, P. J., & Caban‐Holt, A. (2016) · Journal of Gerontology & Geriatric Research · doi:10.4172/2167-7182.1000267 · Cited by 23
“AD is considered a “silent epidemic” in the African-American community, due to lack of public awareness of the scope of the problem related to socioeconomic status and other risk factors, despite its relatively high incidence and significant contribution to increased mortality [7].”
BackgroundWelcoming Death: Exploring Pre-Death Grief Experiences of Caregivers of Older Adults with Dementia
Hovland, C. A. (2018) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2018.1508538 · Cited by 16
“2018 Taylor & Francis Group, LLC Lindauer & Harvath, 2014; Pinquart & Sorensen, 2005; Schulz & Martire, 2004; Sorensen & Conwell, 2011).”
Wu, K.-C., Su, Y. A., Chu, F., Chen, A., & Zaslavsky, O. (2022) · Journal of Medical Internet Research · doi:10.2196/38595 · Cited by 23
“This finding partially aligns with several studies which specified CBT and psychoeducational approaches as the most effective and common theories in caregiver interventions which aimed to improve caregiving knowledge, well-being, and satisfaction as well as to reduce caregiver burden, anxiety, and depressive symptoms…”
Yu, D. S. F., Kwok, T. C. Y., Choy, J. C. P., & Kavanagh, D. J. (2015) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2015.11.005 · Cited by 20
Horton, M., Oyebode, J. R., Clare, L., Megson, M., Shearsmith, L., Brayne, C., Kind, P., Hoare, Z., Al‐Janabi, H., Hewison, V., et al. (2019) · The Gerontologist · doi:10.1093/geront/gnz136 · Cited by 20
A Customized Intervention for Dementia Caregivers: A Quasi-Experimental Design
Wawrziczny, É., Larochette, C., Papo, D., Constant, E., Ducharme, F., Kergoat, M., Pasquier, F., & Antoine, P. (2018) · Journal of Aging and Health · doi:10.1177/0898264318770056 · Cited by 20
Positive Aspects of Family Caregiving for Older Adults at End-of-Life: A Qualitative Examination
Hovland, C. A., & Mallett, C. A. (2021) · Journal of Social Work in End-of-Life & Palliative Care · doi:10.1080/15524256.2021.1888845 · Cited by 18
“Much research documents the noted burden or difficulties that caregivers experience (Anderson, 2018; Doka, 2004; Holley & Mast, 2010; Lindauer & Harvath, 2014; Sorensen & Conwell, 2011).”
BackgroundMazaheri, M., Eriksson, L. E., Nasrabadi, A. N., Sunvisson, H., & Heikkilä, K. (2014) · BMC Public Health · doi:10.1186/1471-2458-14-794 · Cited by 18
“; licensee BioMed Centr Commons Attribution License (http://creativec reproduction in any medium, provided the or The experience of living with dementia has been described mainly to have negative consequences [4], including a variety of losses for people with dementia [5], as well as burden [6], strain, stress [7], po…”
BackgroundHarkin, D. J., O'Connor, C. M. C., Birch, M., & Poulos, C. J. (2020) · Health & Social Care in the Community · doi:10.1111/hsc.12916 · Cited by 17
“…and mental and physical health (Pinquart & Sörensen, 2007; Poulos, Beattie, Gresham, & Harkin, 2016; Roepke et al., 2011; Rubin & White-Means, 2009; Schulz & Sherwood, 2008; Sörensen & Conwell, 2011; Waite, Bebbington, Skelton-Robinson, & Orrell, 2004;; Wang, Shyu, Chen, & Yang, 2011).”
Lee, Y., Choi, W., & Park, M. S. (2022) · Journal of Applied Gerontology · doi:10.1177/07334648221075620 · Cited by 17
Raß, E., Unbehaun, D., Wulf, V., Lüssem, J., Eilers, H., Lenz, G., Tandler, J., Afzali, S. N., & Eroglu, B. (2023) · International Conference on PErvasive Technologies Related to Assistive Environments (PETRA) · doi:10.1145/3594806.3594826 · Cited by 17
“to high social, emotional and physical demands and could be confronted with emotional and organizational challenges they cannot manage [29].”
BackgroundZauszniewski, J. A., & Burant, C. J. (2020) · Issues in Mental Health Nursing · doi:10.1080/01612840.2019.1693670 · Cited by 17
Fields, N. L., Xu, L., Richardson, V., Parekh, R., Ivey, D. L., & Calhoun, M. (2019) · Dementia · doi:10.1177/1471301219871192 · Cited by 16
“Research suggests that these challenges pose considerable physical and psychosocial risks for ADRD caregivers (S€orensen & Conwell, 2011; Sun et al., 2013).”
BackgroundHou, D., Chen, Y. X., He, D., Zhang, X., & Fan, X. (2020) · The Journal of Cardiovascular Nursing · doi:10.1097/jcn.0000000000000636 · Cited by 16
“On the contrary, a larger social network, frequent social contact, and the ability to arrange for assistance from friends could decrease the effects of the caregiver burden on depressive symptoms.(53,54)”
BackgroundBarnhart, W. R., Ellsworth, D., Robinson, A. C., Myers, J. V., Andridge, R., & Havercamp, S. M. (2019) · Disability and health journal · doi:10.1016/j.dhjo.2019.100837 · Cited by 16
Kaasalainen, S., McCleary, L., Vellani, S., & Pereira, J. L. (2021) · Canadian Geriatrics Journal · doi:10.5770/cgj.24.493 · Cited by 15
Knowledge, Attitudes, and Perceptions Toward Dementia Among Middle-Aged Singapore Residents
Siddiqui, F., Nistala, K. R. Y., Quek, C. W. N., Leong, V. S. Y., Tan, A. Y. S., Tan, C. Y. E., & Hilal, S. (2022) · Journal of Alzheimer s Disease · doi:10.3233/jad-215262 · Cited by 16
Effectiveness of home-based, non-exercise interventions for dementia: A systematic review
Tan, D. G. H., Boo, B. M. B., Chong, C. S., Tan, M. M. L.-L., & Wong, B. (2022) · Frontiers in Aging Neuroscience · doi:10.3389/fnagi.2022.846271 · Cited by 14
“A higher level of burden was noted in PLWD’s caregivers when the caregiving tasks were more demanding and when less benefits or positive experiences were perceived by the caregivers (Sörensen and Conwell, 2011).”
BackgroundLeszko, M., & Allen, D. J. (2023) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbad086 · Cited by 15
Resilience in the context of dementia family caregiver mental health: A concept analysis
Poe, A. A., Vance, D. E., Patrician, P. A., Dick, T., & Puga, F. (2023) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2023.06.015 · Cited by 17
Assessment tools for measurement of dementia-friendliness of a community: A scoping review
Díaz, L. G., Durocher, E., Gardner, P. M., McAiney, C. A., Mokashi, V., & Letts, L. J. (2022) · Dementia · doi:10.1177/14713012221090032 · Cited by 16
“Caregivers of people with dementia have reported higher levels of stress than caregivers of persons with a physical disability (Ory et al., 1999; Sörensen & Conwell, 2011).”
BackgroundCheng, J. Y., Nurul, S. B. M. S., Cheng, L. J., & He, H. G. (2024) · International Journal of Mental Health Nursing · doi:10.1111/inm.13390 · Cited by 13
Influence of Adherence to a Systematic Care Program for Caregivers of Dementia Patients
Spijker, A., Teerenstra, S., Wollersheim, H. C. H., Adang, E., Verhey, F. R. J., & Vernooij-Dassen, M. J. F. J. (2013) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2012.10.003 · Cited by 14
Cognitive enhancement for the ageing world: opportunities and challenges
Ienca, M., Shaw, D., & Elger, B. S. (2018) · Ageing and Society · doi:10.1017/s0144686x18000491 · Cited by 14
“As research shows (Schulz and Martire 2004; Sörensen and Conwell 2011; Vitaliano et al. 2014), the informal care-giving burden for older and disabled people is a significant source of psychological distress for carers, worsened mental health functioning, anxiety, perceived stress and depression…”
BackgroundResidential Respite Care Use Is Associated With Fewer Overall Days in Residential Aged Care
Harrison, S. L., Lang, C. E., Whitehead, C., Crotty, M., Corlis, M. E., Wesselingh, S. L., & Inacio, M. C. S. (2019) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2019.08.023 · Cited by 14
Predicting cognitive impairment among geriatric patients at Asir central hospital, Saudi Arabia
Mohsen, S. A. A.-E., Algameel, M., Hawash, M. M., Elrahman, S. A., & Kamel, W. W. (2021) · Saudi Journal of Biological Sciences · doi:10.1016/j.sjbs.2021.06.023 · Cited by 14
Yang, F. C., Zamaria, J. A., Morgan, S. B., Lin, E. C., Leuchter, A. F., Abrams, M., Chang, S. E., Mischoulon, D., Pedrelli, P., Fisher, L. B., et al. (2022) · Professional Psychology Research and Practice · doi:10.1037/pro0000388 · Cited by 14
Sánchez‐Alcón, M., Sánchez‐Ramos, J. L., Garrido‐Fernández, A., Sosa‐Cordobés, E., Ortega‐Galán, Á. M., & Ramos‐Pichardo, J. D. (2023) · International Journal of Mental Health Nursing · doi:10.1111/inm.13142 · Cited by 12
Resourcefulness Training for Women Dementia Caregivers: Acceptability and Feasibility of Two Methods
Zauszniewski, J. A., Lekhak, N., Napoleon, B., & Morris, D. L. (2016) · Issues in Mental Health Nursing · doi:10.3109/01612840.2015.1119222 · Cited by 12
“The consequences of this stress, such as increase in depression, fatigue, anxiety, cardiovascular diseases, are worse in women caregivers (Alzheimer’s Disease Association, 2015; Pinquart, & Sörensen, 2006; Sörensen & Conwell, 2011; Vitaliano, Young, & Zhang, 2004).”
BackgroundHilsabeck, R. C., Lacritz, L. H., Colvin, M. K., Espe‐Pfeifer, P., Sperling, S. A., Arnett, P. A., & Perry, W. (2022) · Policy Insights from the Behavioral and Brain Sciences · doi:10.1177/23727322221110261 · Cited by 11
“Moreover, caring for someone with ADRD takes a mental and physical toll, which is difficult to quantify in dollars (Sörensen & Conwell, 2011).”
BackgroundOtero, P., Torres, Á., Vázquez, F. L., Blanco, V., Otero, M. J. F., & Fernández, O. D. (2019) · Frontiers in Psychology · doi:10.3389/fpsyg.2019.01144 · Cited by 11
“Until now, this research has focused on the effects of those who take care for family members suffering from dementia, and numerous psychological interventions have been specifically developed for them (Sörensen and Conwell, 2011).”
Wichrowski, M. J., & Moscovici, M. (2024) · Healthcare · doi:10.3390/healthcare12080832 · Cited by 14
Smith, G., & Rodham, K. (2021) · Health & Social Care in the Community · doi:10.1111/hsc.13373 · Cited by 10
Attitudes toward aging as a psychological resource among caregivers of persons living with dementia
Kim, E., & Bolkan, C. R. (2022) · Geriatric Nursing · doi:10.1016/j.gerinurse.2022.01.002 · Cited by 10
Beaton, D., McLaughlin, P. M., Orange, J. B., Munoz, D. P., Mandzia, J. L., Abrahão, A., Binns, M. A., Black, S. E., BORRIE, M. J., Dowlatshahi, D. D., et al. (2022) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.5727 · Cited by 10
“The last decade has seen increased interest in caregiving concerns in neurodegenerative disorders.(12) Some cross‐sectional studies showed that caregivers of individuals with ALS(13,14) and with frontotemporal dementia (FTD) report higher overall concerns and(15) especially when compared with other neurodegenerative d…”
BackgroundMcAuliffe, L. P., Wright, B. J., Hazi, A., & Kinsella, G. (2021) · Physiology & Behavior · doi:10.1016/j.physbeh.2021.113532 · Cited by 10
Than, T. N., Nguyen, T. T. T., Nguyen, T. C., Vu, L. D. T., Vo, P. T., Truong, K. T., Schofield, P. E., & Nguyen, T. A. (2023) · Digital Health · doi:10.1177/20552076231163786 · Cited by 9
Trend in Respite Use by Race Among Caregivers for People Living With Dementia
Kim, Y., Kim, J., Kim, H., Park, S., & Li, Y. (2024) · The Journals of Gerontology Series A · doi:10.1093/gerona/glae036 · Cited by 9
Resilience in the Face of Chronic Illness and Family Caregiving in Middle and Later Life
Fortinsky, R. H., Tennen, H. A., & Steffens, D. C. (2013) · Psychiatric Annals · doi:10.3928/00485713-20131206-07 · Cited by 10
Metadata
- Authors
- Sörensen, S., & Conwell, Y.
- Affiliations
- University of Rochester Medicine (US)
- Corresponding author
- Sörensen, Silvia
- Venue
- The American Journal of Geriatric Psychiatry
- Publisher
- Elsevier BV
- Published
- 2011-06
- Volume
- 19
- Issue
- 6
- Pages
- 491-496
- ISSN
- 1064-7481 (ISSN-L)
- PMC
- PMC3774150
- OpenAlex
- W2110724390
- Cited by
- 242
- References
- 51
- Citations by year
- 2026: 23 · 2025: 37 · 2024: 21 · 2023: 22 · 2022: 24 · 2021: 17 · 2020: 15 · 2019: 17 · 2018: 17 · 2017: 6 · 2016: 9 · 2015: 8 · 2014: 10 · 2013: 10 · 2012: 4
- FWCI
- 5.72
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- American Journal of Geriatric Psychiatry (publishedVersion)
- PubMed (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute of Mental Health (R24MH071604)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- dementia caregiving, caregiver burden, caregiver health outcomes, caregiver mental health, caregiver physical health, caregiver interventions, caregiver support, older adults, research needs
- MeSH terms
- Dementia, Health Status, Humans, Mental Health, Research, Caregivers, Cost of Illness
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